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1.
Child Care Health Dev ; 46(1): 83-89, 2020 01.
Artigo em Inglês | MEDLINE | ID: mdl-31808173

RESUMO

BACKGROUND: The Assistance to Participate Scale is a questionnaire to evaluate activity participation of children with developmental disabilities. The purpose of this study was to determine the validity and reliability of the Turkish version of the Assistance to Participate Scale. METHODS: Ninety-eight mothers' children with developmental disabilities were included in this study. The Assistance to Participate Scale, Pediatric Quality of Life Inventory, and Pediatric Evaluation of Disability Inventory were applied to all subjects. To evaluate reliability, Cronbach's alpha coefficient, minimal detectable change (MDC) with standard error of measurement (SEM), and intraclass correlation coefficient (ICC) for test-retest were used. The relationship between Assistance to Participate Scale, Pediatric Quality of Life Inventory, and Pediatric Evaluation of Disability Inventory was investigated, and exploratory and confirmatory factor analysis were used for construct validity. RESULTS: Cronbach's alpha value of the scale was found.93, demonstrating that this value has excellent internal consistency. Test-retest reliability was found 0.99 (ICC 95% CI [0.995, 0.998]; SEM:0.57, MDC:1.58). For construct validity, the correlations between Assistance to Participate Scale, Pediatric Quality of Life Inventory, and Pediatric Evaluation of Disability Inventory total scores and items were significant (p < .001). Factor analysis showed that the questionnaire had unidimensional and the explained variance was 0.84%. CONCLUSIONS: The Turkish version of the Assistance to Participate Scale is valid and reliable scale for children with developmental disabilities.


Assuntos
Deficiências do Desenvolvimento/psicologia , Avaliação das Necessidades , Qualidade de Vida , Participação Social/psicologia , Inquéritos e Questionários , Adolescente , Adulto , Criança , Pré-Escolar , Comparação Transcultural , Avaliação da Deficiência , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Mães/psicologia , Reprodutibilidade dos Testes , Traduções , Turquia , Adulto Jovem
2.
Mult Scler Relat Disord ; 24: 101-106, 2018 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-29982105

RESUMO

BACKGROUND: Multiple sclerosis (MS) involves impaired trunk control, leading to impaired upper-limb functionality, dexterity, and independence. Deciding early on a comprehensive approach pointing of functional disturbances and personal needs is essential for a multimodal, individualized, goal-oriented assessment and treatment program, recognizing the broad range of symptoms and disabilities associated with MS. In clinical practice, postural control of the trunk is purported to be an important contributor to voluntary upper-limb function, including motor control and dexterity. The objective of this study was to point out the impairments of and relationship between trunk control and comprehensive upper-limb functions in individuals with MS. METHODS: Tasks that were sought are optimal screening for deterioration in trunk control (Trunk Control Test [TCT] and Trunk Impairment Scale [TIS]) and upper-limb functionality by comparing them with the Expanded Disability Status Scale (EDSS), Nine Hole Peg Test (NHPT), Duruoz's Hand Index (DHI), and Functional Independence Measurement (FIM) results of 49 well-defined relapsing-remitting MS (RRMS) participants with those of 49 age-gender matched healthy subjects. RESULTS: Significant differences between the groups were evident across all tasks of the clinical tests studied (p < 0.05), except the TCT-balance in sitting position subscore. EDSS, NHPT, DHI, and FIM scores were highly correlated with the TCT subscores (rolling to weak side, sitting up from lying down) and TCT-total score, as well as TIS subscores (dynamic and coordination) and TIS total score (p ≤ 0.005). While TIS subscores were highly correlated with almost all parameters, just TIS-static subscore did not correlate with the DHI and FIM-cognitive scores. Also, DHI-hygiene subscore correlated poorly just with the TIS-coordination and TCT-coming to sitting position (p < 0.05). CONCLUSION: We found that patients with MS would present impaired upper-limb movement and decreased trunk control with high correlation between them, even in RRMS and in the very mild form of the disease. Identifying trunk control deficits provides better insight into dexterous difficulties of patients with MS and allows a more targeted neurorehabilitation focusing on upper limbs. In future studies, it would be of interest to examine the prognostic value of trunk control and upper-limb functionality in patients with MS using a longitudinal approach.


Assuntos
Atividade Motora , Esclerose Múltipla Recidivante-Remitente/fisiopatologia , Tronco/fisiopatologia , Extremidade Superior/fisiopatologia , Adulto , Estudos Transversais , Avaliação da Deficiência , Feminino , Humanos , Masculino , Atividade Motora/fisiologia , Equilíbrio Postural/fisiologia
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