Using the discrete choice experimental design to investigate decision-making about pressure ulcer prevention by community nurses.

This study investigates the preferences of senior community nurses who work as district nurse team leaders in selecting preventive care plans for elderly people at high risk of pressure ulcer formation. The discrete choice experiment (DCE) technique was used. Focus group work produced the following five attributes of nurse decision-making: 'ease of care plan management', 'impact of care plan on patient's lifestyle', 'speed of obtaining the equipment', 'affordability', 'evidence-based practice'. These were incorporated into a self-administered questionnaire, posted to 102 nurses from two integrated acute/community NHS Trusts in Wales. A response rate of 55% was achieved. Respondents were asked to rate the importance of the selected attributes on a 5-point scale. They rated 'evidence-based practice', 'impact of care plan on patient's lifestyle', 'ease of care plan management' and 'speed of obtaining the equipment' highly, whereas 'affordability' was of less importance. However, regression analysis, which is part of the DCE technique, produced a somewhat different picture, with 'impact' being least and 'affordability' most statistically significant. The reasons for this apparent anomaly are discussed and the paper concludes that the DCE approach is capable of yielding important information, which is not produced by simple rating exercises. Such information is potentially of value in the context of modernisation and service configuration.

Risk assessment scales for pressure ulcers: a methodological review.

Much is written about risk-assessment scales (RASs) for pressure ulcers (PU) and their properties demonstrating that they are of limited value. Less is known about the reasons for these limitations and the scope for improvement. This review examines issues such as structure and scoring for the Norton, Waterlow and Braden scales, showing that the equal-weighting technique behind the current RASs is too simplistic and leads to limitations. It concludes that properly trained, experienced nurses should conduct PU risk assessments, whilst more robust data-driven RASs should be developed using the differential weighting scoring method together with advanced statistical techniques.

Supporting evidence-based service delivery and organisation: a comparison of an emergent realistic appraisal technique with a standard qualitative critical appraisal tool.

A major component of current policies aimed at promoting the delivery of an effective health service is to ensure that practitioners base their practice on research findings. Considerable attention has been focussed on the research community and developing appropriate methods and tools to support these objectives at the national and international level. The appraisal needs of individual practitioners, who might wish to inform local service delivery and organisation and who are often not methodological experts, has been hitherto ignored. This paper reports on the application and testing of a technique for the appraisal of evaluation studies, which is being developed for use by practitioners to inform local service delivery. This technique has previously been applied to a quantitative evaluation. In this paper we report on its application to the appraisal of a qualitative paper. Our aim is to compare it with a standard tool to establish which generates more meaningful information for use by practitioners for the purposes of informing service delivery and organisation. The emergent technique successfully extracted relevant methodological and contextual information, with developmental issues being identified.

Newly diagnosed childhood diabetes: a psychosocial transition for parents?

AIM: This paper reports a study to gain a new theoretical understanding of parental grief responses and the process of adaptation to a diagnosis of childhood diabetes. BACKGROUND: A diagnosis of childhood (type 1) diabetes is an anxious and distressing event for the whole family. Little is known about the experience of parents of newly diagnosed children as they cope with and adapt to their new situation. Parkes' Theory of Psychosocial Transition proposes that life-change events, or 'psychosocial transitions', require people to undertake a major revision of their assumptions about the world. The relevance of this theory to adjusting to a diagnosis of childhood diabetes has not been explored. METHOD: Forty audio taped in-depth interviews were undertaken with 38 parents of 20 newly-diagnosed children. The data were subsequently examined using the framework of the Theory of Psychosocial Transition. FINDINGS: Before diagnosis, most parents associated their child's symptoms with normal childhood illnesses. The unexpectedness and speed of the diagnosis left all parents ill-prepared to deal with the situation. Their world suddenly changed, leaving them insecure and uncertain about the future. Diabetes intruded emotionally and practically upon all of their lives. Parents successfully adjusted and adapted their lives and rebuilt a new model of the world to accommodate their child's diabetes. However, this dynamic process has no guaranteed endpoint for parents. CONCLUSIONS: A diagnosis of childhood diabetes leads to a psychosocial transition for parents. The concept of transition provides a logical explanation of parents' responses to loss, and allows increased understanding of the grieving and adaptation processes experienced by parents of children diagnosed with a chronic condition such as diabetes. This knowledge should help health care professionals to assist parents in the period of transition.

Understanding why people with type 1 diabetes do not attend for specialist advice: a qualitative analysis of the views of people with insulin-dependent diabetes who do not attend diabetes clinic.

Attendance at diabetes clinic is associated with improved medical outcome, however, significant numbers of people with type 1 diabetes choose not to attend. In order to understand the reasons underlying this decision, qualitative interviews were carried out with 12 long-term non-attenders. Three distinct groups emerged differing in terms of their cognitive and emotional responses to diabetes and their coping strategies: (1) the 'High fear' group; (2) the 'Patient as expert' group; and (3) the 'Low motivation' group. These differences should be recognized and suitable approaches developed to ensure that all people with diabetes are able to accept appropriate specialist support.

Understanding complex trajectories in health and social care provision.

Abstract Ensuring collaboration between health and social care providers is a well-established policy concern in most developed countries. Thus far, however, this has proved to be a frustratingly elusive goal. Despite the growing body of empirical work devoted to this issue, social scientific theorising on the management of complex caring trajectories remains under-developed. This paper is an attempt to begin to address this gap in the literature. Drawing on Strauss et al.'s (1985) writings on illness trajectories and Elias's (1978) game model, we offer a framework - centred on the notion of a caring trajectory game - that can assist understanding of the linkages between individual trajectories of care and broader health and social care systems. It is only when we have developed a more theoretically sophisticated understanding of this relationship that we can begin to explain why trajectories of care take the course that they do. The framework arises from our analysis of eight ethnographic case studies of adults undergoing rehabilitation from a first acute stroke. In this paper we illustrate its utility by reference to one specific case: Edward.

Accommodating health and social care needs: routine resource allocation in stroke rehabilitation.

This paper explores routine resource allocation processes in health and social care. While there has been a small body of work which has drawn on Lipsky's (1980) insights into street level bureaucracy, few have taken seriously the opportunity offered by ethnography to explore in detail the work of front-line staff as a way of observing policy processes in action. Utilising ethnographic data from research into the continuing care of adults who had suffered a first acute stroke, we analyse how staff accommodated patient need and consider the implications that this had for the quality, equality and equity of service provision.

Using the IPQ and PMDI to predict regular diabetes care-seeking among patients with Type 1 diabetes.

OBJECTIVES: The objectives were, first, to identify factors associated with regular diabetes care-seeking and, second, to compare the performance of the Illness Perception Questionnaire (IPQ) and a modified version of the Personal Models of Diabetes Interview (PMDI) in predicting care-seeking. METHOD: This was a cross-sectional study involving 42 patients who had not attended hospital diabetes clinic for a period of 18 months or more and 42 matched controls receiving specialist care. Differences in illness representations between clinic attenders and non-attenders were examined. Due to the variability in care-seeking between non-attenders (ranging from no contact with health professionals to regular general practitioners care), participants were then reclassified for further analyses into those receiving regular care from either hospital diabetes clinic or general practice (n = 52) and those receiving no regular care (n = 32). RESULTS: Patients not seeking regular care held more negative views of the control, course and consequences of diabetes than those who received regular care. Regression analyses showed that the most important construct was treatment effectiveness. Treatment effectiveness (PMDI) and control (IPQ) dimensions were associated with clinic attendance. PMDI constructs of treatment effectiveness, threat and worries were associated with regular care-seeking. CONCLUSIONS: IPQ and PMDI results were generally consistent. In order to understand diabetes care-seeking behaviour it is important to measure beliefs about the benefits of treatment recommendations in addition to those of the disease itself. Emotional and cognitive responses to diabetes should be assessed.

Pressure ulcer risk assessment: application of logistic analysis.

AIM: The aim of this study was to investigate the relative importance of key factors affecting the likelihood of hospital acquired pressure ulcers, thus offering the groundwork for the development of an empirically-based risk assessment scale. It also evaluated the predictive performance of the underlying empirical model and compared its classification ability with the empirically observed ability of the Waterlow risk assessment scale. BACKGROUND: Pressure ulcers impose a significant burden on patients and carers and demand substantial resources from the health care system. There is, however, a lack of systematic empirical research on which to base the development of risk assessment measurement tools. METHODS: Multivariate statistical methods were applied to data derived from the records of a cross-sectional sample of around 500 randomly selected inpatient episodes drawn from the population of admissions to a single unit in a large acute hospital during a 2-year period (October 1996 to September 1998). Double-checking of a randomly selected 25% sample of the original records and careful screening out of records with incomplete information or inconsistent values was carried out to ensure a high quality sample. Logit analysis was used to investigate the relative contribution of risk factors, such as continence, skin condition, mobility and inter-hospital transfer to the risk of hospital-acquired pressure ulcer occurrence, whilst cross-validation techniques were employed to check the predictive performance of the model. RESULTS: The results suggest that a simplified version of the Waterlow risk assessment tool has satisfactory predictive ability and the potential for further development. CONCLUSIONS: Two main conclusions emerged from this study. First, it is both feasible and worthwhile to pursue improvement in the development of risk assessment tools using statistical methods. Second, locally-determined risk factors will need to be incorporated into the construction of future risk assessment scales.

Studying complex caring interfaces: key issues arising from a study of multi-agency rehabilitative care for people who have suffered a stroke.

Ensuring "seamless" health and social services provision has been a concern of policy makers for many years but our understanding of this complex system of work remains underdeveloped. This article reports selected findings from a series of ethnographic case studies of health and social services provision to adults recovering from a first acute stroke. Flexible working, the need for a lead professional and the transition from hospital to home are themes considered. The need for high quality data in order to develop our existing understanding of complex caring interfaces is underlined.

Improving the accuracy of pressure ulcer risk calculators: some preliminary evidence.

This study presents data from a prospective cohort study of 213 in-patient admissions of people over 65. Logit analysis was used to investigate the relative contribution of a range of risk factors to the risk of pressure ulcer occurrence, as a basis for development of improved risk assessment tools. It was found that for this population, a model containing the Waterlow risk factors appetite, continence, skin condition and age, plus diagnosis, performed better than one based on the complete set of Waterlow factors. Gender was not significant. A diagnosis of cancer was positively associated with pressure ulcer occurrence but presence of Parkinson's disease had the opposite effect.