Equilibrio ocupacional, discapacidad y funcionalidad en personas con enfermedades reumáticas / Occupational balance, disability and functionality in people with rheumatic disease

Fundamento. El objetivo del presente estudio es conocer el equilibrio ocupacional de las personas con enfermedad reumá-tica y analizar su relación con la participación, el rendimiento y satisfacción con las actividades de la vida diaria (AVD), así como evaluar si la edad o recibir tratamiento no farmacológico influ-yen en los resultados.Método. Estudio transversal realizado entre marzo y noviembre de 2021 en personas con diagnóstico de enfermedad reumática en fase no avanzada procedentes de la Asociación ConArtritis, seleccionadas mediante muestreo aleatorio simple. Se recogie-ron, on-line y/o por teléfono, datos sociodemográficos y pun-tuaciones de los cuestionarios OBQ, IMPACT-S, COPM, y de un cuestionario creado ad hoc para las AVD.Resultados. Los 47 participantes no presentaban un buen equi-librio ocupacional (OBQ: 34,2; DE: 13,7). A pesar de una buena participación en AVD (IMPACT-S: 76,8; DE: 13,1), el grado de desempeño y de satisfacción con las AVD distó de ser óptimo (COPM-R: 3,9; DE=2,0 y COPM-S: 4,3; DE=2,5). El 46,8% encon-traba limitaciones en al menos cuatro AVD, tanto básicas como instrumentales, y el 61,7% utilizaba al menos un producto de apoyo en su día a día. Estas limitaciones disminuían su tiem-po de descanso y afectaban a su actividad laboral, aficiones y relaciones personales. El grado de desempeño se relacionó ne-gativamente con la edad (p=0,04); recibir tratamiento no farma-cológico no modificó las puntuaciones.Conclusión. Los datos recabados sugieren que las personas con enfermedad reumática en fases no avanzadas de la enfermedad perciben que su equilibrio ocupacional mejoraría si encontra-sen menos limitaciones en las AVD (AU)

Background. We aimed to assess the occupational balance of people with rheumatic disease, analyze its relationship with par-ticipation, performance, and satisfaction with daily life activi-ties, and evaluate whether age or receiving non-pharmacological treatment affects the outcome.Methods. Cross-sectional study carried out between March and November 2021; patients with non-advanced stage of rheumatic disease from the ConArtritis Association –selected through sim-ple random sampling–, were included. Sociodemographic data and scores from the OBQ, IMPACT-S, COPM questionnaires, and a questionnaire created ad hoc for daily life activities were collected online and/or by telephone.Results. The occupational balance of the 47 participants was low (OBQ: 34.2; SD: 13.7). Despite a high participation in daily life activities (IMPACT-S: 76.8; SD: 13.1), the degree of perfor-mance and satisfaction with these activities was far from op-timal (COPM-R: 3.9; SD: 2.0 and COPM-S: 4.3; SD: 2.5); 46.8% of the participants found limitations in at least four daily life activities (basic and instrumental) and 61.7% used at least one support product in their daily lives. These limitations reduced their resting time and affected their jobs, hobbies, and personal relationships. The level of performance was negatively related to age (p=0.04); No changes in the scores were found in patients who received non-pharmacological treatment.Conclusion. Our results suggest that individuals with non- advanced stage of a rheumatic disease perceive that their oc-cupational balance may be improved should they have fewer limitations in daily life activities (AU)

[Occupational balance, disability and functionality in people with rheumatic disease]. / Equilibrio ocupacional, discapacidad y funcionalidad en personas con enfermedades reumáticaS

BACKGROUND: We aimed to assess the occupational balance of people with rheumatic disease, analyze its relationship with participation, performance, and satisfaction with daily life activities, and evaluate whether age or receiving non-pharmacological treatment affects the outcome. METHODS: Cross-sectional study carried out between March and November 2021; patients with non-advanced stage of rheumatic disease from the ConArtritis Association - selected through simple random sampling -, were included. Sociodemographic data and scores from the OBQ, IMPACT-S, COPM questionnaires, and a questionnaire created ad hoc for daily life activities were collected online and/or by telephone. RESULTS: The occupational balance of the 47 participants was low (OBQ: 34.2; SD: 13.7). Despite a high participation in daily life activities (IMPACT-S: 76.8; SD: 13.1), the degree of performance and satisfaction with these activities was far from optimal (COPM-R: 3.9; SD: 2.0 and COPM-S: 4.3; SD: 2.5); 46.8% of the participants found limitations in at least four daily life activities (basic and instrumental) and 61.7% used at least one support product in their daily lives. These limitations reduced their resting time and affected their jobs, hobbies, and personal relationships. The level of performance was negatively related to age (p=0.04); No changes in the scores were found in patients who received non-pharmacological treatment. CONCLUSIONS: Our results suggest that individuals with non- advanced stage of a rheumatic disease perceive that their occupational balance may be improved should they have fewer limitations in daily life activities.