[Application of a model of continued attention in inflammatory bowel disease: the Crohn-colitis care unit]. / Aplicación de un modelo de asistencia continuada en la enfermedad inflamatoria intestinal: la Unidad de Atención Crohn-Colitis.

OBJECTIVE: To describe the activity performed in the Crohn-Colitis Care Unit (CCCU) and its web portal (http://www.ua-cc.org) during the first 9 years (1999-2007). MATERIAL AND METHODS: We retrospectively reviewed the presential and non-presential activity carried out in the CCCU from January 1999 to June 2007 by analyzing the data available in the data base and in the CCCU web portal from January 2002 (data available from the private web environment). RESULTS: The number of patients has progressively increased, and currently stands at 1784. There is equal distribution by gender (880 men vs 904 women) and diagnosis (849 Crohn's disease vs 893 ulcerative colitis). Patients are mostly younger than 50 years old (1404 patients). The non-presential resources (telephone and fax) have been used to a greater extent than the presential resources (11,173 vs 5164). Most requests (15,198) have been specific consultations relating to the disease. The CCCU also monitors treatments such as corticosteroids, immunomodulators, biological agents and granulocyte apheresis (663 in the last year). The web portal has received more than 150,000 visits and has 3698 registered users (1552 patients, 1374 health professionals, 384 relatives of patients, and 388 institutions), mostly from Spain and Latin America (2087 and 1555 respectively). CONCLUSIONS: The CCCU offers continued, participative and dynamic care, which promotes remote healthcare and optimizes the care of patients with inflammatory bowel disease.

Aplicación de un modelo de asistencia continuada en la enfermedad inflamatoria intestinal: la Unidad de Atención Crohn-Colitis / Application of a model of continued attention in inflammatory bowel disease: the Crohn-colitis care unit

Objetivos: describir la actividad desarrollada en la Unidad de Atención Crohn-Colitis (UACC) en sus 9 años de funcionamiento y su línea virtual (http://www.ua-cc.org).Material y métodos: revisión retrospectiva de la actividad presencial y a distancia desempeñada en la UACC desde enero de 1999 a junio de 2007 (mediante el análisis de los datos disponibles en la base de datos), y del portal web de la UACC desde enero de 2002 (datos disponibles en el entorno web de uso privado).Resultados: el número de pacientes ha ido aumentando de forma progresiva, y actualmente es de 1.784. Hay una distribución igual por género (880 varones y 904 mujeres) y diagnóstico (849 con enfermedad de Crohn y 893 con colitis ulcerosa). La población atendida esencialmente es menor de 50 años (1.404 pacientes). La atención a distancia (telefónica y fax) ha sido la prioritaria, se han atendido 11.173 demandas y de forma presencial 5.164. La mayoría de las demandas (15.198) han sido consultas específicas sobre la enfermedad. Desde la UACC, también se registran los tratamientos corticoideos, inmunomoduladores, agentes biológicos y granulocitoaféresis (663 en el último año). El portal web ha recibido más de 150.000 visitas y cuenta con 3.698 usuarios registrados (1.552 pacientes, 1.374 profesionales de la salud, 384 familiares de pacientes y 388 de otras instituciones), la mayoría españoles y de países sudamericanos (2.087 y 1.555, respectivamente).Conclusiones: la UACC presta una atención continuada, participativa y dinámica, que promociona el control a distancia y optimiza la atención sanitaria de los pacientes con enfermedad inflamatoria intestinal(AU)

Objective: To describe the activity performed in the Crohn-Colitis Care Unit (CCCU) and its web portal (http://www.ua-cc.org) during the first 9 years (1999–2007).Material and methods: We retrospectively reviewed the presential and non-presential activity carried out in the CCCU from January 1999 to June 2007 by analyzing the data available in the data base and in the CCCU web portal from January 2002 (data available from the private web environment).Results: The number of patients has progressively increased, and currently stands at 1784. There is equal distribution by gender (880 men vs 904 women) and diagnosis (849 Crohn's disease vs 893 ulcerative colitis). Patients are mostly younger than 50 years old (1404 patients). The non-presential resources (telephone and fax) have been used to a greater extent than the presential resources (11,173 vs 5164). Most requests (15,198) have been specific consultations relating to the disease. The CCCU also monitors treatments such as corticosteroids, immunomodulators, biological agents and granulocyte apheresis (663 in the last year). The web portal has received more than 150,000 visits and has 3698 registered users (1552 patients, 1374 health professionals, 384 relatives of patients, and 388 institutions), mostly from Spain and Latin America (2087 and 1555 respectively).Conclusions: The CCCU offers continued, participative and dynamic care, which promotes remote healthcare and optimizes the care of patients with inflammatory bowel disease(AU)