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1.
J Med Radiat Sci ; 70(4): 454-461, 2023 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-37365932

RESUMO

INTRODUCTION: Senior radiation oncologists in hospital/organisational settings, are repetitively and vicariously exposed to others' traumatic distress-perpetuating risk of burnout. Little is known of the additional organisational burdens of the Covid-19 pandemic on their mental well-being for career longevity. METHODS: Using Interpretative Phenomenological Analysis, semi-structured interviews provided positive and negative subjective interpreted data from five senior Australian radiation oncologists during Covid-19 lockdowns. RESULTS: One superordinate theme, Vicarious risk, hierarchical invalidation, redefining altruistic authenticity, overarched four subordinate themes: (1) Vicarious contamination of caring, (2) The hierarchical squeeze, (3) The heavy burden of me and (4) Growth of authenticity. For these participants, juxtaposed challenges to career longevity and mental well-being were 'self' as empathic carer to vulnerable patients, and ever-increasing burdens of the organisation. Sensing invalidation, they experienced periods of exhaustion and disengagement. However, with experience and seniority, self-care was prioritised and nurtured through intrapersonal honesty, altruism and relational connectedness with patients and mentoring forward junior colleagues. Focusing on mutual well-being, a sense of life beyond radiation oncology became acceptable. CONCLUSIONS: For these participants, self-care became a relational joining with their patients separate from the lack of systemic support which heralded an early termination to their career for psychological well-being and authenticity.


Assuntos
Esgotamento Profissional , COVID-19 , Humanos , Radio-Oncologistas , Pandemias , Austrália , Controle de Doenças Transmissíveis
2.
J Med Imaging Radiat Sci ; 54(2S): S70-S76, 2023 06.
Artigo em Inglês | MEDLINE | ID: mdl-37208217

RESUMO

OBJECTIVE: It has been shown that stress in the workplace can contribute to the development or worsening of mental health conditions, as well as having a negative impact on personal relationships and life outside of work. Therefore, prolonged job stress can be damaging to an individual's mental health and wellbeing, potentially leading to burnout. There is limited research surrounding the wellbeing of nuclear medicine technologists practicing globally, and more specifically in Australia. This interpretative phenomenological study seeks the lived experience of nuclear medicine technologists within a large metropolitan city in Australia, how these experiences and COVID-19 has impacted their wellbeing. METHODS: Five participants were recruited who had greater than five years working experience as a nuclear medicine technologist. Data was collected using semi-structured interviews conducted online via Zoom to accommodate COVID-19 restrictions. The data was transcribed and analysed according to interpretative phenomenological analysis (IPA) protocols. RESULTS: One superordinate theme: systemic regard, demoralizing burnout, protective maturity, overarched four subordinate themes: staying physically and psychologically safe; risk of burnout; maturity as protective against burnout; and COVID-19 drain. Pressures both prior to and during COVID-19 leave the participants feeling undervalued, discredited, and at risk of burnout. However, maturity brings confidence to incorporate their strengths in a more holistic view of life. Glimmers of positivity come from choices to alter their career path and the unexpected opportunities to spend time with family through COVID-19 restrictions. DISCUSSION: Overall, the participants of this study expressed a lack of positivity about their own individual experiences within their career. Occupational stress, caused by workplace bullying, increased workload and understaffing increased their risk of burnout. Although as the participants matured, their ability to cope with occupational stressors improved. The recent COVID-19 pandemic exacerbated the participants' risk of burnout. CONCLUSION: Due to a number of contributing workplace factors, exacerbated by the unexpected COVID-19 pandemic, participants in this study appeared to have an increased risk of developing burnout. However, maturity and life experience has helped mitigate this risk.


Assuntos
Esgotamento Profissional , COVID-19 , Medicina Nuclear , Estresse Ocupacional , Humanos , COVID-19/epidemiologia , Pandemias
3.
Psychol Trauma ; 15(2): 237-246, 2023 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-34843350

RESUMO

OBJECTIVE: Contextually embedded and sanctioned gender minimization and sexual abuse toward female personnel within the military appears widespread. Left unabated, mental health complications of female personnel will challenge care responsibilities for military organizations. METHOD: Interview data from six ex-military women that sought positive and negative interpretations of gender minimization and sexual abuse while in the military was analyzed using interpretative phenomenological analysis. RESULTS: Analysis revealed two superordinate themes: (a) Immature Culture, and (b) Ejection and Growth. These overarched four subordinate themes that explored fostered patriarchy and male privilege in the military. Participants expressed experiencing relentless belittling that eroded early adolescent goals of success and aborted their ability to thrive psychologically. By association, interpersonal violence compounded by organizational complicity triggered internalized shame and narcissistic defenses. Discharging from the military is remembered as a painful, isolated struggle for these participants as they sought to make sense of their fragmented identities as women. With time, all participants acknowledged pride in skills achieved during military life, and the strength to speak out against embedded organizational abuse. A persistent ruminative struggle to make sense of complex systemic biases against women that allowed organizational abuse to flourish facilitated posttraumatic growth. CONCLUSIONS: For these participants, personal experiences of gender minimization and sexual abuse in the military incubated a betrayal of hope and moral safety. As women, they felt violated at an organizational level seemingly orchestrated by male privilege and patriarchy. Clinical priorities include reparative validation and holistic trauma support underpinned by trauma and posttraumatic growth frameworks. (PsycInfo Database Record (c) 2023 APA, all rights reserved).


Assuntos
Militares , Delitos Sexuais , Transtornos de Estresse Pós-Traumáticos , Veteranos , Humanos , Masculino , Feminino , Adolescente , Veteranos/psicologia , Transtornos de Estresse Pós-Traumáticos/psicologia , Militares/psicologia , Delitos Sexuais/psicologia , Saúde Mental
4.
J Autism Dev Disord ; 53(9): 3435-3448, 2023 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-35781855

RESUMO

Restricted and repetitive behaviours (RRBs) are observed in many children presenting with characteristics of autism and are frequently the targets of psychological interventions. This study used Interpretative Phenomenological Analysis (IPA) to identify positive and negative interpretations from four young adults who received behavioural interventions in their childhood designed to 'fix' RRBs. Two superordinate themes were identified: (1) Doubt, stigma and being fixed according to others, and (2) Embracing Authenticity. They highlighted juxtaposed positions from exclusion, rejection, criticism, and self-doubt in childhood, to rejecting societal censure and embracing authentic growth in adult life. As adults, though the participants recognised themselves as neurologically different from others, they redefined themselves through a lens of neurodiversity, and therefore as not needing to be fixed.


Assuntos
Transtorno do Espectro Autista , Transtorno Autístico , Criança , Adulto Jovem , Humanos , Transtorno do Espectro Autista/psicologia , Emoções , Estigma Social , Terapia Comportamental
5.
Child Abuse Negl ; 131: 105770, 2022 09.
Artigo em Inglês | MEDLINE | ID: mdl-35772331

RESUMO

BACKGROUND: Sex-cybercrimes against children in the Philippines rose by over 400 % during the first year of the Covid-19 pandemic exponentially increasing challenges for carers of children, law enforcers, and prosecutors. OBJECTIVE: Burnout, primary, and secondary traumatic stress are some of the potential mental health risks for child protection carers. How longevity of career is sustained, is unknown. PARTICIPANTS AND SETTING: This idiographic study explored both positive and negative interpretations of frontline workers in the Philippines exposed to sex-cybercrimes against children. METHODS: The protocols of Interpretative Phenomenological Analysis guided data collection through semi-structured interviews, transcription, and analysis. RESULTS: One superordinate theme: Irreconcilable destruction of innocence, mercy and justice, and the passionate self; highlights the integral struggle that emerged from these participants' roles in child protection. Their faith philosophy of compassion and forgiveness contrasted with the unfathomable corruption and exploitation they witnessed, and their role in removing child victims from perpetrator family members to serve justice. These internal conflicts necessitated a critical need to self-care against psychological vulnerability. Longevity of career emerged from a co-existence of traumatic distress and psychological growth allowing them to redefine their faith and confront the unfathomable with hope, self-valuing, and purpose. CONCLUSIONS: Justice and mercy were juxtaposed integral conflicts threatening the psychological wellbeing of these participants. Ineffective organisational support aggravated their traumatic distress as did the lethargy with which world governments' engage in effective controls against online crimes of child sexual exploitation which has meteorically risen as a result of the global coronavirus pandemic.


Assuntos
Esgotamento Profissional , COVID-19 , COVID-19/epidemiologia , Criança , Família , Humanos , Pandemias , Filipinas
6.
Work ; 72(1): 75-90, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35431195

RESUMO

BACKGROUND: Mental distress is often endured by injured workers participating in the rehabilitation or return to work process following a physical injury. Delays in detecting the onset and treating mental distress can lead to a diverse range of cognitive and behavioural changes that may precipitate psychological distress such as anxiety, depression, and posttraumatic stress. OBJECTIVE: The objective of this scoping review was to provide an overview of existing health questionnaires utilised by health care providers and affiliated researchers. It reviewed their effectiveness and suitability to detect mental distress endured by injured workers engaged in the return to work process. METHODS: A scoping review methodology was conducted using the Arksey and O'Malley framework which examined peer-reviewed articles published between 2000 and March 2020 comprising health questionnaires. Database searches included Medline, CINAHL, EMBASE and PsycINFO combining specific MeSH terms and key words. RESULTS: The full search identified 3168 articles. Following full screening a total of 164 articles reviewed the use of health questionnaires and specific criteria to determine their suitability. Most of the health questionnaires reviewed were used as screening measures for identifying both work and non-work-related psychological hazards. However, they were found to be limited in their application when considering all potential predictors of delayed return to work such as poor or stressful interactions with stakeholders, financial stress and the injured workers experience of the RTW process. CONCLUSION: Earlier identification of mental distress using an optimal MHSQ followed by appropriate intervention will reduce the risk of psychological injury becoming cumulative on a physical workplace injury. Without such complications, early return to work can be achieved with significant cost saving to the economy.


Assuntos
Transtornos Mentais , Retorno ao Trabalho , Humanos , Transtornos Mentais/complicações , Inquéritos e Questionários , Local de Trabalho
7.
J Med Imaging Radiat Sci ; 52(2): 295-304, 2021 06.
Artigo em Inglês | MEDLINE | ID: mdl-33965349

RESUMO

OBJECTIVE: Burnout is seen as an occupational phenomenon related to workplace stress. Professional groups within medical imaging and radiation science have been reported to suffer from burnout in the past, however research into the profession has been limited. This systematic review aims to evaluate literature measuring levels and prevalence of burnout in the professional groups within medical imaging and radiation science (MIRS). These being radiographers (radiological technologists), sonographers, radiation therapists (therapeutic radiographers) and nuclear medicine technologists. METHODS: Electronic databases including Medline, Embase, Psycinfo and CINAHL were searched to locate studies published in English from 2000 that used a questionnaire/survey to measure burnout in the MIRS population. Also included were studies that measured burnout in a larger healthcare group that included MIRS professionals, as long as the MIRS professionals were reported as a separate group. RESULTS: Sixteen articles met the inclusion criteria; two of these articles reported the same data and therefore were combined to leave 15 studies to review. Of the radiation therapy group, seven of the nine studies reported low or moderate burnout amongst their participants. One study reported high levels of burnout in the emotional exhaustion and depersonalisation domains, and another reported high emotional exhaustion levels. Within the other MIRS professions, five of the six studies reported moderate burnout. One group of sonographers had high levels of burnout in the emotional exhaustion domain. CONCLUSION: For the past 20 years, levels of burnout in MIRS professionals has remained relatively steady, with the majority of studies reporting moderate levels of burnout. However, more research is needed in radiographers, sonographers and nuclear medicine technologists. IMPLICATIONS FOR PRACTICE: Even though the review indicates moderate level of burnout, this needs addressing on an organisational and individual level to ensure stress in the workplace is managed before burnout becomes a significant issue.


Assuntos
Esgotamento Profissional , Estresse Ocupacional , Pessoal Técnico de Saúde , Esgotamento Profissional/epidemiologia , Esgotamento Profissional/etiologia , Esgotamento Psicológico , Humanos , Inquéritos e Questionários
8.
Dementia (London) ; 20(5): 1814-1831, 2021 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-33241693

RESUMO

BACKGROUND AND OBJECTIVES: Few studies explore both negative and positive perspectives of family members who relinquish home care of a family member with dementia for systemic aged care. RESEARCH DESIGN AND METHODS: This phenomenological study sought the 'lived' experience of relinquishing the role of home carer for a family member with mild to severe dementia to others within care home settings, by seeking to understand the impact of aged care on family members' psychological well-being. Using semi-structured interviews, positive and negative subjective interpretations from 17 families (27 individuals) provided data for analysis, following the protocols of interpretative phenomenological analysis. RESULTS: One superordinate theme, mistrust/integrity, overarched oscillation between mistrust of the aged care system and a struggle for personal integrity in caring for these participants. Two sub-themes emerged: intrinsic trauma and extrinsic trauma. Intrinsic trauma explained feelings of helplessness and guilt, and internally directed responses that triggered a retreat into submission ultimately reducing the participant's role in advocacy. Extrinsic trauma represented externally directed responses such as anger and frustration, where family members became more engaged and watchful and recognised a need for vigilance and advocacy. Paradoxically oscillating between these personal struggles, participants exhibited growth, a third theme that defined assertive/advocacy utilised to nurture hope, gratitude, courage and change. DISCUSSION AND IMPLICATIONS: Family members experienced complex distress as they relinquished home care to others within systemic aged care for a member with dementia. By developing adaptive responses as appropriate, for example, advocating for their family member or accepting compliance with treatment, collaborative care between family and staff created better outcomes for the family member with dementia.


Assuntos
Cuidadores/psicologia , Demência , Serviços de Assistência Domiciliar , Idoso , Família , Culpa , Humanos
9.
J Int Humanit Action ; 6(1): 8, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-38624796

RESUMO

Objective: Humanitarian-specific psychological distress following deployment can elude detection using contemporary measures of trauma-related stress. This study assesses the unidimensional structure and convergent validity of the Post-deployment Altruistic Identity Disruption Questionnaire (PostAID/Q), an 18-item questionnaire underpinned by the construct Altruistic Identity/Disruption (AI/AID). Method: Humanitarian aid personnel (N=108) completed an online web survey, inclusive of the Moral Injury Questionnaire (MIQ), Posttraumatic Distress Disorder Checklist (PCL-5), Psychological Well-Being Posttraumatic Changes Questionnaire (PWB-PTCQ) and Social Provisions Scale (SPS). Results: A confirmatory factor analysis suggested a single factor structure providing further support for the conception of AI/AID as a unidimensional construct. Convergent validity was demonstrated through (1) utility for predicting a posttraumatic stress disorder (PTSD) diagnosis assessed by the PCL-5, and (2) moral injury assessed by the MIQ. The PostAID/Q was further moderately and negatively associated with the availability of social support (assessed by the SPS) and lower self-reports of psychological well-being post trauma (assessed by the PWB-PCTQ). Finally, the PostAID/Q demonstrated evidence of incremental validity in predicting humanitarian specific psychological distress over and above the PCL-5. Specifically, the PostAID/Q predicted increased moral injury on the MIQ, and decreased psychological well-being post trauma. Conclusions: The PostAID/Q can assist in identifying humanitarian specific psychological responses post deployment guiding support for personnel, over and above more traditional measures of posttraumatic stress.

10.
Int J Soc Psychiatry ; 65(2): 169-179, 2019 03.
Artigo em Inglês | MEDLINE | ID: mdl-30808226

RESUMO

BACKGROUND: The psychological complexity of refugee status for children is poorly understood. Alone or with family members, child refugees are exposed to multiple and potentially traumatic events, including conflict and human rights deprivation in their country of origin, perilous and life-threatening escape journeys, years of statelessness, and isolation and discrimination in their new host country. AIMS: This phenomenological study explored the positive and negative interpretations of four adults as they sought to make sense of their experiences of refugee status as children. METHOD: Interpretative Phenomenological Analysis (IPA) guided the development of semi-structured interview for data collection and analysis. RESULTS: One superordinate theme, Violation and Hope, overarched three subordinate themes, Violent detachment, Refugee identity, and Resourcefulness and reciprocity. One divergent theme also emerged: Clashing identities. These themes provide unique insight into the interpreted experiences of escaping oppression and persecution in each participant's country of origin as children, and the ensuing bleak interval as refugees, belonging nowhere. They identify the risk of becoming pawns of opportunism without human rights protection. Once stateless, survival was not guaranteed, producing a stark merging of acceptance of mortality and determined resourcefulness as children. Avoidant coping became a positive tool for surviving ever present threat, and was crucial in defining a life philosophy that was future oriented as they entered adulthood. CONCLUSION: These participants rejected a 'refugee victim' identity, emphasising a legacy of resourcefulness, hope, gratitude and reciprocity, domains of post-traumatic growth which are unreported aspects of refugee well-being that can provide future therapeutic and research direction.


Assuntos
Adaptação Psicológica , Esperança , Refugiados/psicologia , Transtornos de Estresse Pós-Traumáticos/psicologia , Adulto , Criança , Feminino , Humanos , Relações Interpessoais , Entrevistas como Assunto , Acontecimentos que Mudam a Vida , Masculino , Pessoa de Meia-Idade
11.
Sex Health ; 15(5): 389-395, 2018 11.
Artigo em Inglês | MEDLINE | ID: mdl-30131098

RESUMO

Background Previous studies have described inconsistent condom use in Chinese- and Thai-speaking female sex workers in Sydney, Australia. In the present study, we describe the demographics and safe sexual practices in the Chinese- and Thai-speaking female sex workers attending the Sydney Sexual Health Centre (SSHC) in 2014-15. METHODS: A self-completed 60-item anonymous questionnaire, adapted from previous surveys conducted in 1993 and 2003, was translated into Chinese and Thai and administered to female sex workers attending the SSHC or seen on outreach. RESULTS: In all, 488 surveys were distributed, of which 435 were returned; 43% in Chinese and 57% in Thai. Most women did not plan on sex work before their arrival in Australia. Compared with Chinese-speaking women, Thai-speaking women rated themselves higher on English language literacy, had better knowledge of the transmission of HIV and sexually transmissible infections (STIs) and were more likely to practice 100% condom use. Overall, 72% of the sex workers surveyed reported consistent condom use for vaginal sex at work. CONCLUSIONS: Consistent condom use for vaginal sex at work among Chinese- and Thai-speaking female sex workers has decreased slightly from that reported in a similar survey conducted by the SSHC in 2003, when 85% of sex workers reported consistent condom use. There are significant differences between Chinese- and Thai-speaking sex workers in terms of both knowledge and safer sex practices. Ongoing health promotion efforts should focus on providing culturally appropriate education around STIs and safe sex practices not only to workers, but also to parlour owners, managers and consumers.


Assuntos
Preservativos/estatística & dados numéricos , Idioma , Sexo Seguro/estatística & dados numéricos , Profissionais do Sexo/estatística & dados numéricos , Adulto , Austrália , China/etnologia , Estudos Transversais , Feminino , Humanos , Inquéritos e Questionários , Tailândia/etnologia
12.
Aging Ment Health ; 22(8): 954-963, 2018 08.
Artigo em Inglês | MEDLINE | ID: mdl-28513185

RESUMO

OBJECTIVE: This qualitative study seeks evidence of retained social awareness in individuals with moderate dementia residing in care-homes, when engaged in interactive family visits. METHOD: Speech/non-speech data collected from 10/15-minute video-recorded family interactions of five family groups (12 individuals; 2 sessions per family group) were coded using thematic analysis. RESULTS: Interactional patterns embedded in familiar bonds provided the context for the superordinate theme: relational social engagement (RSE). This overarched two subthemes: in-step and out-of-step; highlighting that RSE, can occur as a result of both positive and negative familial communication patterns. When familial communication was in-step, despite changed communication pathways, the resident's attempts at social engagement appeared open, relaxed, and responsive. A sense of trust, and familiarity appeared to facilitate reciprocal understanding and the striving of resident family members to retain family group membership. When familial communication was out-of-step, active attempts at reciprocity or open engagement from visiting family members were not observed. At such times, communication became discordant, and frustrated in their efforts to remain an integral part of the family group, the resident appeared disinterested or guarded often retorting with annoyance at visiting family members. CONCLUSION: The construct of RSE appears specific to prior meaningful relationships, where optimal social awareness and communication, positive and negative, can occur. Currently, dementia assessment and care does not include RSE during family interactions. Implications are discussed.


Assuntos
Comunicação , Demência/psicologia , Família/psicologia , Relações Interpessoais , Apoio Social , Adulto , Idoso , Idoso de 80 Anos ou mais , Conscientização/fisiologia , Demência/enfermagem , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Casas de Saúde , Pesquisa Qualitativa , Índice de Gravidade de Doença
13.
Aging Ment Health ; 21(6): 658-667, 2017 06.
Artigo em Inglês | MEDLINE | ID: mdl-26881318

RESUMO

OBJECTIVES: Limited research explores the medical model of residential care in dementia from the family caregiver's perspectives. METHOD: This study sought subjective interpretations of nine family caregivers who experienced relinquishing their status as primary caregiver to a medical model, dementia care residential setting. Following semi-structured interviews and transcription data was analysed using interpretative phenomenological analysis. RESULTS: One superordinate theme, navigating 'system' control, overarched three subordinate themes: connecting/disconnecting, windows closing, and capacity for sensation. Navigating system control reflected participants' experience of circumnavigating a medical system fraught with hierarchical challenges inclusive of a complex maze of contradictions that appeared threatening, yet appeared comforting; authoritarian, yet often humane. For them, care of self, while advocating for a family member with dementia, required vigilance to manoeuvre a system of care that imposed its uninvited authority at will. Connection/disconnection highlights the enduring struggle for inclusivity in caregiving despite the omnipresent trauma of windows closing. Psychological growth came to these participants through an unexpected capacity for sensation which offered a unique lens to communication with the family member with dementia primarily through sensory exchange. CONCLUSIONS: Models of dementia care and therapeutic interventions could inclusively involve dementia family caregivers who may be experiencing traumatic distress, and associated guilt, stigma, loss, and grief. Co-existing psychological wellbeing, however, is possible when family members are encouraged to transition communication to sensory awareness and exchange as windows close.


Assuntos
Cuidadores/psicologia , Demência/terapia , Família/psicologia , Casas de Saúde , Idoso , Idoso de 80 Anos ou mais , Feminino , Instituição de Longa Permanência para Idosos , Humanos , Entrevistas como Assunto , Masculino , Estresse Psicológico/psicologia
14.
Health Psychol ; 36(1): 45-54, 2017 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-27657800

RESUMO

OBJECTIVES: 22q11.2 deletion syndrome (22q11DS), a complex genetic syndrome associated with more than 180 features, presents complex challenges for parents including gaining a diagnosis. This phenomenological study sought the "lived" interpretations of parents supporting an adult child with 22q11DS, a poorly researched area. METHOD: Interpretative phenomenological analysis informed a detailed and open exploration of parenting a child through to adult life with 22q11DS. Using in-depth semistructured interviews, 8 parents (2 male, 6 female) of adult children with 22q11DS were individually interviewed; providing the data set for transcription and thematic analysis. RESULTS: Losing "I" Finding "self," overarched 6 subordinate themes that emerged from participants' articulated descriptions of psychological distress and psychological growth. Distress in parenting a child with 22q11DS was experienced through stigma, loss, grief, and guilt. Progressively, stigma undermined independence, friendships, and instinctual judgement. Ill-informed hierarchical structures experienced as layers of obstruction and lack of awareness of the syndrome triggered angry advocacy for their child. Diagnosis brought opposing relief and grief. In time, they came to value their unique "accomplishments," collected on their journey with 22q11DS, and in turn, consciously valued authentic "self" expressed through empathy, humility, gratitude, and pride. CONCLUSION: Parental distress through societal, educational, and health care invalidation persisted for decades for all participants. Conversely, distress facilitated psychological growth for redefining "self" and role as parents over time. Building on this phenomenological cameo, future research can educate against the plight of 22q11DS families. It can enlighten health care professionals in buffering against associated stigma, blame, and self-doubt, and in fostering psychological well-being. (PsycINFO Database Record


Assuntos
Filhos Adultos/psicologia , Síndrome de DiGeorge/psicologia , Acontecimentos que Mudam a Vida , Relações Pais-Filho , Poder Familiar/psicologia , Estigma Social , Criança , Síndrome de DiGeorge/terapia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
15.
Aging Ment Health ; 21(12): 1262-1271, 2017 12.
Artigo em Inglês | MEDLINE | ID: mdl-27596921

RESUMO

OBJECTIVE: Few studies have utilised observation to investigate retained awareness when individuals with severe dementia interact with family members. Seeking evidence of retained awareness in those with severe dementia, interactive family visits in care homes were observed and analysed. METHOD: Five family groups (14 individuals) completed 10/15-minute video recorded family interactions. Speech and non-speech interactions were analysed using Thematic Analysis. RESULTS: One superordinate theme: Distinctive family bonds; overarched two subthemes, in-step and out-of-step describing positive and negative familial interactions. In-step interactions revealed family groups reciprocating social support, having fun together, and willing to go on the ride together. Out-of-step interactions characterised social frustration, non-reciprocity, and sidelining of members with dementia. Although awareness fluctuated, complex awareness was observed in the speech/non-speech expressions of those with dementia. In response, visitors appeared to treat those expressions and behaviours as understandable. Observed outcomes were out-of-step when visitors sought to retain the familiar and in-step when visitors sought to optimise all communication possibilities. CONCLUSION: Video recorded family interactions and analysis revealed: (a) awareness was retained in the participants with severe dementia beyond assessed levels; and (b) Relational Social Engagement (RSE) occurred within family groups despite positive or negative interactions. Implications are discussed.


Assuntos
Demência/psicologia , Relações Familiares/psicologia , Apoio Social , Adulto , Idoso , Idoso de 80 Anos ou mais , Pré-Escolar , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
16.
Psychol Trauma ; 9(2): 156-165, 2017 03.
Artigo em Inglês | MEDLINE | ID: mdl-27710004

RESUMO

OBJECTIVE: No known research explores the double-edged phenomenon of childhood trauma/adult mental health consumer. Therefore, whether receiving a psychiatric diagnosis in light of childhood trauma supports or impedes psychological wellbeing in adult life, is unknown. METHOD: Interpretative phenomenological analysis (IPA) provided the methodological framework. Data were collected through the use of semistructured interviews. Analysis sought thematic representation from subjective interpretations of the experienced phenomenon: childhood trauma survivor/mental health consumer. RESULTS: Data revealed 1 superordinate theme, Childhood Betrayal, Identity, and Worthiness, that overarched 5 subordinate themes a) legacies, (b) the label, (c) putting the jigsaw together, (d) stigma, and (e) better than good enough self. Legacies of doubt that perpetuated "not good enough" delayed the development of an adult identity of worthiness in these participants. Importantly, the right diagnosis separated self as worthy-adult from self as traumatized child and facilitated positive change for breaking harmful cycles, self-valuing, and increased empathy, wisdom, and patience. CONCLUSIONS: Findings inform future research and therapeutic practice in regards to adult help seeking behaviors in light of childhood trauma, often postponed through fear of stigma associated with mental health diagnoses and services. Similarly, findings suggest that ameliorating wellbeing may be dependent on a therapeutic relationship in which accuracy or right fit of diagnosis provides a conduit for the client to disengage from self-blame, unworthiness, and "not good enough." (PsycINFO Database Record


Assuntos
Adultos Sobreviventes de Eventos Adversos na Infância/psicologia , Transtornos Mentais/diagnóstico , Adaptação Psicológica , Adulto , Feminino , Humanos , Entrevista Psicológica , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Autoimagem , Estigma Social
17.
Dementia (London) ; 15(6): 1666-1684, 2016 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-25725002

RESUMO

Minimal research explores the impact of dementia and a dementia diagnosis on families from the unique vantage of senior health professionals. The participants of this study, eight senior aged care professionals, provided unique interpretative insights into family dynamics and sense-making on the journey with dementia, and their own role in that journey. Both positive and negative perspectives were sought. Data from semi-structured interviews were analysed using Interpretative Phenomenological Analysis (IPA). One superordinate theme, Dementia naiveté; redefined intimacy, overarched Embarrassed shame; Maintaining hope; Redefining a model of intimacy; and Redefined relational intimacy and growth Within these themes, the participants shed light on hurtful embarrassment and shame experienced by families associated with the diagnostic label given to a loved one. This label was perceived to either trigger separation, hurt and immobility through ignorance, or precipitate a frenzy of naive yet hopeful energy for seeking that elusive cure. The participants saw their role as one of enacting a new way of connecting what was with what could be. Thus, they modelled advocacy, integral care and relational intimacy. Validation came in witnessing a redefining of intimacy in many families who were able to embrace that holistic and empathic approach to the shifting presentation of dementia. Psychological well-being was observed to occur when families embraced growthful domains, e.g. acceptance, hope, relational closeness and altruistic concern for other families. Implications for future care models are discussed.


Assuntos
Atitude do Pessoal de Saúde , Demência/psicologia , Relações Familiares , Esperança , Vergonha , Estresse Psicológico , Feminino , Instituição de Longa Permanência para Idosos , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Estigma Social
18.
Dementia (London) ; 15(6): 1685-1702, 2016 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-25770129

RESUMO

Minimal research explores the impact of a career in dementia care on senior health professionals. This study sought positive and negative subjective interpretations from seven senior health professionals regarding their experiences in dementia care. Data from semi-structured interviews were analysed using interpretative phenomenological analysis (IPA). One superordinate theme, Honouring stigmatised self, overarched four sub-themes: Systemic stigma, Invalidated, Self-respect and Moral integrity and Growth Stigma was interpreted as systemically entrenched minimisation of aged care and the aged-care workforce, including poor remuneration and training. Participants experienced peer invalidation particularly when attempting to resolve complex professional and moral challenges in dementia care. These often occurred in the context of efforts to individualise care, constrained within a medical model. Paradoxically, external invalidation motivated a search for redefining 'self' and moral integrity. By wisely acknowledging career experience, growthful domains of self-respect, optimism, humility and innovation defined professional practice and personal choices. Implications are discussed.


Assuntos
Atitude do Pessoal de Saúde , Competência Clínica , Demência , Estigma Social , Feminino , Instituição de Longa Permanência para Idosos , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
19.
Dementia (London) ; 13(5): 626-41, 2014 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-24339076

RESUMO

There is minimal research investigating non-speech communication as a result of living with severe dementia. This phenomenological study explores retained awareness expressed through non-speech patterns of communication in a family member living with severe dementia. Further, it describes reciprocal efforts used by all family members to engage in alternative patterns of communication. Family interactions were filmed to observe speech and non-speech relational communication. Participants were four family groups each with a family member living with non-speech communication as a result of severe dementia. Overall there were 16 participants. Data were analysed using thematic analysis. One superordinate theme, Dance of Communication, describes the interactive patterns that were observed during family communication. Two subordinate themes emerged: (a) in-step; characterised by communication that indicated harmony, spontaneity and reciprocity, and; (b) out-of-step; characterised by communication that indicated disharmony, syncopation, and vulnerability. This study highlights that retained awareness can exist at levels previously unrecognised in those living with limited or absent speech as a result of severe dementia. A recommendation for the development of a communication program for caregivers of individuals living with dementia is presented.


Assuntos
Demência/psicologia , Relações Familiares , Família/psicologia , Comunicação não Verbal/psicologia , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino
20.
Am J Mens Health ; 8(2): 121-36, 2014 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-23884788

RESUMO

The onset of an eating disorder in middle-age men is poorly researched as are eating disorders in men generally. Therefore, life events that influence eating disorders in men, including delayed onset of an eating disorder remains unknown. Given the limited understanding of males with eating disorders and limited access to large samples of men with eating disorders, an in-depth analysis of a single case of a male in middle age with an eating disorder was chosen to gain insight and understanding into this phenomenon. A Life History approach explored the case of Joseph (pseudonym), who was diagnosed at age 44 years with an Eating Disorder Not Otherwise Specified. Data were collected through (a) life course open-ended questioning through interviews, (b) written statements, and (c) comments on transcripts. Three themes emerged, loss and unworthiness, becoming bigger, and wanting to change reflecting eating behaviors associated with attachment disruption, loss and trauma, body dissatisfaction, and negative affect. Later in life, an emotional "tipping point" precipitated an eating disorder. Results indicate traumatic loss leading to early attachment disruption as influential in Joseph's delayed onset of an eating disorder. The value of thorough narrative life histories during therapy when eating disorders occur late in life is discussed as well as the significance for men.


Assuntos
Luto , Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Acontecimentos que Mudam a Vida , Autoimagem , Ferimentos e Lesões/psicologia , Criança , Criança Abandonada/psicologia , Transtornos da Alimentação e da Ingestão de Alimentos/etiologia , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Isolamento Social/psicologia
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