"We Eat Without Thinking: We Just Eat, Eat, Eat" - A Thematic Exploration of Cultural Practices of Ethnically Diverse Youth and Their Parents Who Are at Risk for Prediabetes and Type 2 Diabetes.

PURPOSE: Cultural beliefs and practices influence management of type 2 diabetes (T2D) in youth and their parents, and have been minimally explored, limiting our understanding and implementation of preventative healthcare. An enhanced evidence base may inform comprehensive, effective community health nursing (CHN). Thus, the purpose of this research was to explore the influence of youths' and their parents' understandings of cultural practices on risk for prediabetes and T2D. DESIGN: A secondary thematic analysis was conducted. Qualitative data were obtained from semi-structured interviews with 24 participants who were purposefully recruited from two mid-western Canadian high schools. FINDINGS: Three themes and one subtheme were developed including: 1) Food Culture and related subtheme, Acculturation to New Food Choices; 2) Exercise Culture: Adapting Physical Activity in a New Country; and, 3) Risk Perception of the Effects of T2D on Loved Ones: Behavior Modifications and Motivation. Cultural practices and acculturation to food such as dietary choices, preparation, large portions, different dietary staples, food availability, and food gathering patterns influenced health behaviors. Similarly, changes in exercise patterns including adapting to Western video game culture, weather in Canada, and the new way of life emerged as important factors that impacted health. Participants who perceived a familial risk of diabetes identified behavior modifications such as regular diabetes screening, nutrition counseling, healthier food choices, smaller food portions, and an increase in physical activity as strategies to reduce risk of prediabetes and diabetes. CONCLUSIONS: There is a critical need for research aimed at prediabetes and T2D prevention, and intervention programs targeting ethnically diverse groups where prediabetes and T2D is most prevalent. CLINICAL EVIDENCE: Community health nurses are at the core of implementing and supporting disease prevention and, therefore, may consider the findings from this research to develop family-focused, intergenerational, and culturally-based interventions.

A investigation into hope, self-efficacy, distress and uncertainty in parents who have a child with a life-threatening or life-limiting illness.

PURPOSE: To examine the experiences of parents who are caring for a child with a life-threatening or life-limiting illness (LTI/LLI) including levels of uncertainty, distress, hope, and self-efficacy to determine if there are significant variations with respect to demographic characteristics. DESIGN AND METHODS: Data for this analysis are derived from a quasi-experimental evaluation of a support intervention with a purposeful sample of parental caregivers from a western Canadian province. Participants completed a demographic survey and four quantitative measures at baseline and following use of the support intervention. RESULTS: Many parents had high scores of hope and self-efficacy, with highest levels of hope amongst parents who could stay at home with their children, and higher self-efficacy expressed by parents without financial concerns. Increased levels of uncertainty and distress were found amongst parents without other children living in the home, and those with financial concerns, respectively. CONCLUSIONS: This exploratory analysis found that many parents experienced clinically significant distress along with uncertainty. The results determined that caring for children in the home other than the ill child significantly decreased uncertainty. High levels of parental hope and self-efficacy were frequently identified, with variations reflecting differences in social roles and stressors. The results contribute to an increased understanding of the value of support resources including parental leave and financial support. PRACTICE IMPLICATIONS: Pediatric nurses may consider adopting an approach to caring for families with children in treatment for LLIs/LTIs that gives high priority to promoting hope and self-efficacy while ensuring access to support resources.

Co-Developed Indigenous Educational Materials for Chronic Kidney Disease: A Scoping Review.

BACKGROUND: Canadian Indigenous populations experience significantly more chronic kidney disease (CKD) than the general population. Indigenous people who live in rural and remote areas may also have difficulty accessing both information and care for their CKD. Informed decision making about treatment options for advancing kidney disease may be delayed, which can result in poor health outcomes and decreased quality of life. Moreover, Indigenous people may experience marginalization within Western health care systems. OBJECTIVE: The objective of this scoping review is to identify culturally appropriate and co-developed Indigenous educational tools that will ultimately support CKD learning and end-stage kidney treatment decision making. DESIGN: Scoping Review. SETTING: Databases included Embase, CINAHL, Medline (OVID), ERIC, and the Canadian Agency for Drugs and Technology Gray Matters. STUDY PARTICIPANTS: Community-based Indigenous patients, families, health care workers, and community members. METHODS: We systematically reviewed the literature to explore the availability of co-developed Indigenous educational tools and material for CKD treatment options. Titles, abstracts, and full texts were reviewed independently by 2 reviewers with disagreements resolved through a third. All aspects of this project, including searching the databases were done in consultation with an Indigenous Elder. RESULTS: Only one retrieved article identified a comprehensive CKD tool co-developed by researchers, health care providers, and an Indigenous community. Three themes emerged from the scoping review that may inform characteristics of co-developed tools: cultural appropriateness; appraisal of utility and effectiveness and; content informed by co-development of traditional and Western chronic disease knowledge. LIMITATIONS: Consistent with scoping review methodology, the methodological quality of included studies was not assessed. In addition, it was difficult to synthesize the findings from the research and gray literature. CONCLUSION: Little is known about the co-development of Indigenous educational tools for CKD. Further in-depth understanding is required about how to best engage with Indigenous communities, specifically to co-develop contextualized CKD tools that are acceptable to Indigenous people.Trial registration: Not applicable as this review described secondary data.

CONTEXTE: Au Canada, l'insuffisance rénale chronique (IRC) touche les populations autochtones davantage que la population générale. Qui plus est, l'accès à des soins et de l'éducation sur l'IRC s'avère plus difficile pour les autochtones vivant en régions rurales et éloignées. Une situation susceptible de retarder la prise de décision informée quant aux options de traitement et donc, de compromettre les résultats de santé et la qualité de vie. Les autochtones pourraient également être marginalisés dans les systèmes de santé occidentaux. OBJECTIFS: L'étude visait à répertorier des outils de sensibilisation culturellement appropriés et développés conjointement avec les autochtones qui, en définitive, viendraient appuyer l'éducation sur l'IRC et la prise de décision quant au traitement de l'insuffisance rénale terminale. TYPE D'ÉTUDE: Étude de cadrage. SOURCES: Les bases de données Embase, CINAHL, Medline (OVID) et ERIC, et l'outil Matière grise de l'Agence canadienne des médicaments et des technologies de la santé (ACMTS). SUJETS: Des patients autochtone de la communauté et leurs familles, des travailleurs du secteur de la santé et des membres de la communauté. MÉTHODOLOGIE: Nous avons procédé à une revue systématique de la littérature pour vérifier la disponibilité d'outils d'éducation développés conjointement avec les autochtones et de matériel relatif aux options de traitement pour l'IRC. Les titres, abrégés et textes complets ont été révisés indépendamment par deux examinateurs; les désaccords ayant été résolus par un troisième. Un aîné autochtone a été consulté pour tous les aspects de ce projet, y compris la recherche dans les bases de données. RÉSULTATS: Parmi les articles retenus, un seul faisait état d'un outil complet développé conjointement par des chercheurs, des fournisseurs de soins et une communauté autochtone. L'étude a dégagé trois thèmes susceptibles d'éclairer les caractéristiques d'un outil co-développé: l'adaptation culturelle, l'évaluation de l'utilité et de l'efficacité, et un contenu éclairé par le co-développement des connaissances traditionnelles et occidentales sur les maladies chroniques. LIMITES: Conformément à la méthodologie d'une étude de cadrage, la qualité méthodologique des études incluses n'a pas été évaluée. De plus, il a été difficile de synthétiser les résultats provenant de la recherche et de la littérature grise. CONCLUSION: On en sait peu sur le développement d'outils d'éducation sur l'IRC conjointement avec les membres des communautés autochtones. Une compréhension plus approfondie des meilleures façons de collaborer avec les communautés autochtones est nécessaire, particulièrement pour l'élaboration d'outils d'éducation sur l'IRC contextualisés et acceptables pour les autochtones. ENREGISTREMENT DE L'ESSAI CLINIQUE: Sans objet puisque cette étude discute de données secondaires.