Assuntos
Ética Clínica , Alocação de Recursos para a Atenção à Saúde/normas , Prioridades em Saúde/classificação , Terapia Intensiva Neonatal/normas , Cuidados para Prolongar a Vida/normas , Anencefalia/economia , Anencefalia/terapia , Teoria Ética , Feminino , Alocação de Recursos para a Atenção à Saúde/legislação & jurisprudência , Humanos , Recém-Nascido , Recém-Nascido de muito Baixo Peso , Terapia Intensiva Neonatal/economia , Terapia Intensiva Neonatal/estatística & dados numéricos , Cuidados para Prolongar a Vida/economia , Cuidados para Prolongar a Vida/estatística & dados numéricos , Medicaid/normas , Princípios Morais , Oregon , Gravidez , Segundo Trimestre da Gravidez , Prognóstico , Valores Sociais , Consentimento do Representante Legal , Estados Unidos , Suspensão de TratamentoRESUMO
A four-bed Chronic Illness Transition Unit (CITU) for the care and developmental support of children who require long-term hospitalization is described. The goal is to discharge patients to the home or the best alternative environment as expeditiously as possible. The layout, staffing, and equipment; the importance of regional coordination; and components that increase viability of such a program and unit are discussed. The costs of construction and the projected costs of service are reviewed. It is hoped that others can use this experience to establish pediatric transition units, thereby improving care, developmental stimulation, family support, and placement of children with severe chronic illnesses.
Assuntos
Criança Hospitalizada , Doença Crônica/terapia , Unidades Hospitalares/organização & administração , Assistência Progressiva ao Paciente , Chicago , Criança , Pré-Escolar , Hospitais com menos de 100 Leitos , Humanos , Projetos PilotoRESUMO
This study compared primary care physicians' ratings of psychosocial adjustment of their chronically ill pediatric patients with parents' and children's reports. A series of measures of psychosocial adjustment were administered to 63 children with either a seizure disorder or a visible orthopedic condition, and their parents. Each child's physician was asked to rate the presence and severity of psychological adjustment problems in the child, as well as to rate six specific psychosocial domains. Forty-one physicians responded, and relationships between their ratings and child and parent psychosocial measures were determined using Pearson product-moment correlation coefficients. Ratings by physicians correlated with children's reports and parents' judgments about the children, but not with mothers' self-concept or the impact that the illness had on the family. However, physicians' ratings were interdependent. When congruence of physician ratings with child or parent reports was examined for each disease group, we found significant results for the seizure disorder group; however, congruence among ratings for the orthopedically handicapped group was poor. Student's t-tests revealed no statistically significant differences between the two disease groups in any of the demographic variables of the children or physicians, nor in their scores on the criterion measures. Hierarchical multiple regression analysis identified factors that contributed to physicians' significantly different congruence with parents regarding the adjustment of children in the two subsamples. The findings of this study suggested that primary care physicians were moderately aware of the presence and severity of psychosocial adjustment problems in some categories of their pediatric patients with chronic illness.(ABSTRACT TRUNCATED AT 250 WORDS)