Promoting justice through community-based research: International case studies.

Community-based participatory research (CBPR) approaches to promoting justice focus on working from the ground up and giving a voice to marginalized communities regarding their concerns, potential solutions, and how to address social justice issues that matter to them. The pursuit of justice is often related to efforts to attain personal as well as collective well-being. In this paper, we illustrate three exemplars of community psychologists' efforts to promote justice. Within each case study, we discuss the social and community context and examine how the researchers built partnerships and solidarity, developed ways of doing, and approached challenges and solutions. First, we present an example to promote economic justice through an entrepreneurship initiative developed in collaboration with young Black youth with disabilities in the United States. The second case illustrates an effort to promote reproductive justice in collaboration with Roma women and girls in Spain. The third exemplar depicts the use of life stories as a method to raise the voices of displaced, marginalized indigenous women in Peru. Based on these three case studies, we present a synthesis model of social justice. We also discuss implications for future studies emphasizing the importance of engaging community participants in research meaningful ways, developing sustainable partnerships, and decolonizing research.

Capacitación de población gitana en abogacía para la salud: un estudio de caso en Torreblanca, Sevilla / Training for Roma health advocacy: a case study of Torreblanca, Seville

Objetivo: El objetivo del presente estudio es crear capacidad de abogacía entre un grupo de vecinos/as gitanos/as que viven en contextos de riesgo de exclusión social. Método: Se ha utilizado un diseño de Investigación Acción Participativa Basada en la Comunidad, en el que el que 4 miembros de la comunidad participaron en el proceso de recogida de evidencias mediante fotovoz, análisis de estas siguiendo el método ReACT y diseminación de los resultados. Resultados: Se recogieron un total de 96 evidencias que fueron analizadas para el análisis de datos cualitativos. Estas fueron categorizadas atendiendo a (a) el tipo de condiciones insalubres y (b) la zona del barrio donde se encontraban. La posterior agrupación temática permitió identificar como causas: (a) El abandono de los servicios públicos; (b) la discriminación y (c) la falta de presencia de población gitana en los espacios comunitarios. Las consecuencias señaladas fueron (a) problemas de salud mental y física y (b) normalización de condiciones de vida indignas. El plan diseñado tuvo por objetivo abogar por la presencia gitana en los espacios comunitarios. Conclusiones: Nuestro estudio puso en evidencia la pertinencia del fotovoz para trascender la perspectiva biomédica y desarrollar acciones de abogacía basadas en el conocimiento creado por la comunidad. Futuras investigaciones deberían profundizar en el impacto de la abogacía para la salud en la reducción de las desigualdades y considerar la importancia de implicar a investigadores/as, profesionales de salud pública y la comunidad en su abordaj. (AU)

Objective: The objective of this study is to build advocacy capacity among a group of gipsy Roma neighbours living in contexts of risk of social exclusion. Methods: A Community Based Participatory Action Research design was used, in which 4 members of the community participated in the process of collecting evidence by photovoice, analysing it using the ReACT method and disseminating the results. Results: A total of 96 pieces of evidence were collected and analysed for qualitative data analysis. These were categorised according to (a) the type of unhealthy conditions and (b) the area of the neighbourhood where they were located. The subsequent thematic grouping made it possible to identify the causes: (a) the abandonment of public services; (b) discrimination; and (c) the lack of Roma presence in community spaces. The consequences identified were (a) mental and physical health problems and (b) the normalisation of undignified living conditions. The plan was designed to advocate for the presence of Roma in community spaces. Conclusions: Our study highlighted the relevance of the photovoice to transcend the biomedical perspective and develop advocacy actions based on the knowledge created by the community. Future research should look more deeply into the impact of health advocacy on reducing inequalities and consider the importance of involving researchers, public health professionals and the community in addressing it. (AU)

Community-engaged asset mapping with Latinx immigrant families of youth with disabilities.

Asset mapping is a participatory methodology that engages community members in identifying services and settings that promote health and well-being. This study aimed to identify community assets from the perspective of Latinx immigrant families with youth with disabilities. Latinx immigrant families (n = 21) participated in the mapping, followed by a reflection session and an open forum (n = 30). The findings revealed that families identified faith-based organizations and social service agencies as some of the main assets in their communities, while they identified mental health services as the most needed. The results also showed that participants preferred to utilize services and resources that are within walking distance of their homes, provide safe spaces, treat them well, offer bilingual services, do not require documentation, and are affordable. This study has important implications for community scholars and practitioners interested in implementing asset-based methodologies that focus on participants as experts of their own realities and agents of change and that promote advocacy and empowerment actions.

[Training for Roma health advocacy: a case study of Torreblanca, Seville]. / Capacitación de población gitana en abogacía para la salud: un estudio de caso en Torreblanca, Sevilla.

OBJECTIVE: The objective of this study is to build advocacy capacity among a group of gipsy Roma neighbours living in contexts of risk of social exclusion. METHODS: A Community Based Participatory Action Research design was used, in which 4 members of the community participated in the process of collecting evidence by photo-voice, analysing it using the ReACT method and disseminating the results. RESULTS: A total of 96 pieces of evidence were collected and analysed for qualitative data analysis. These were categorised according to (a) the type of unhealthy conditions and (b) the area of the neighbourhood where they were located. The subsequent thematic grouping made it possible to identify the causes: (a) the abandonment of public services; (b) discrimination; and (c) the lack of Roma presence in community spaces. The consequences identified were (a) mental and physical health problems and (b) the normalisation of undignified living conditions. The plan was designed to advocate for the presence of Roma in community spaces. CONCLUSIONS: Our study highlighted the relevance of the photo-voice to transcend the biomedical perspective and develop advocacy actions based on the knowledge created by the community. Future research should look more deeply into the impact of health advocacy on reducing inequalities and consider the importance of involving researchers, public health professionals and the community in addressing it.

Abogacía por la salud de la población gitana: capacitación de profesionales del Distrito Sanitario Sevilla / Advocacy for Roma health: in-service training of professionals from the Seville Health District

Se describe la experiencia de un taller cuyo objetivo fue capacitar a profesionales para abogar por la salud de la población gitana. La abogacía por la salud es recomendada por organismos internacionales y expertos en salud pública para superar las inequidades en salud. Participaron 16 profesionales de tres centros de salud de barrios con una alta densidad de población gitana, en riesgo de exclusión social. El taller se organizó en tres sesiones dirigidas a sensibilizar, dar a conocer el marco conceptual y metodológico de la abogacía, y diseñar un plan de abogacía. Se pone de manifiesto la utilidad de este espacio de reflexión y análisis, y la necesidad de abogar por la salud de la población gitana, junto a otros agentes gitanos/as y sectores comunitarios, identificando oportunidades y utilizando los recursos comunitarios. Futuras investigaciones deben profundizar en el desarrollo de planes de abogacía intersectoriales y difundirlos, para facilitar su implementación en otros contextos de características similares

This article describes a workshop whose objective was to build Roma health advocacy capacity among a group of health professionals. Health advocacy is recommended by international organizations and public health experts to overcome the health inequities that Roma populations suffer. Sixteen professionals from three health centres located in neighbourhoods with a high Roma population participated. The workshop was organized in three sessions aimed at raising awareness, sharing an advocacy framework and methodology and designing an advocacy plan. We highlight the utility of spaces for reflection and analysis, the need to advocate for Roma health with Roma leaders and community sectors, identification of opportunities and utilization of community resources. Future research should strengthen the development of intersectoral advocacy plans, disseminate them and facilitate their implementation in other contexts with similar characteristics

Building Meaningful Community Advocacy for Ethnic-based Health Equity: The RoAd4Health Experience.

The pervasive failure of policies aimed at overcoming health inequities suffered by European Roma reflects the oppressive and impoverished living conditions of many ethnic minorities in the Western world. The multiple social inequities that Roma experience and the cumulative effect on their health prove that the failure of health policies that impact Roma must be attributed to their ameliorative nature. These policies legitimize the mechanisms of oppression that sustain inequities, fueling fatalistic attitudes toward minorities, while these minorities internalize the stigma and attempt to survive on the margins of society. This paper presents the RoAd4Health project, a community initiative in which academic researchers partnered with Roma communities to overcome health inequities. We present the multiple methods utilized for building meaningful advocacy, such as photovoice and asset mapping led by Roma agents of change. These methods provided the capacity to develop a local narrative of disparities, build alliances to gain capacity to respond to injustices, and take actions to promote social change. The results of effectively involving all significant stakeholders (i.e., community agents of change, residents, health and social care providers, Roma community grassroots organizations, and institutional actors) are discussed along with lessons learned.

[Advocacy for Roma health: in-service training of professionals from the Seville Health District]. / Abogacía por la salud de la población gitana: capacitación de profesionales del Distrito Sanitario Sevilla.

This article describes a workshop whose objective was to build Roma health advocacy capacity among a group of health professionals. Health advocacy is recommended by international organizations and public health experts to overcome the health inequities that Roma populations suffer. Sixteen professionals from three health centres located in neighbourhoods with a high Roma population participated. The workshop was organized in three sessions aimed at raising awareness, sharing an advocacy framework and methodology and designing an advocacy plan. We highlight the utility of spaces for reflection and analysis, the need to advocate for Roma health with Roma leaders and community sectors, identification of opportunities and utilization of community resources. Future research should strengthen the development of intersectoral advocacy plans, disseminate them and facilitate their implementation in other contexts with similar characteristics.

A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain.

Addressing health disparities and promoting health equity for Roma has been a challenge. The Roma are the largest disadvantaged ethnic minority population in Europe and have been the victims of deep social and economic injustices, institutional discrimination, and structural antigypsyism over many centuries. This has resulted in a much worse health status than their non-Roma counterparts. Current strategies based on ameliorative and top-down approaches to service delivery have resulted in paradoxical effects that solidify health disparities, since they do not effectively address the problems of vulnerable Roma groups. Following a health justice approach, we present a community-based participatory action research case study generated by a community and university partnership intended to address power imbalances and build collaboration among local stakeholders. This case study involved a group of health providers, Roma residents, researchers, Roma community organizations, and other stakeholders in the Poligono Sur, a neighborhood of Seville, Spain. The case study comprises four phases: (1) identifying Roma health assets, (2) empowering Roma community through sociopolitical awareness, (3) promoting alliances between Roma and community resources/institutions, and (4) building a common agenda for promoting Roma health justice. We highlighted best practices for developing processes to influence Roma health equity in local health policy agendas.