RESUMO
Background: Communities and local governments invest in compassionate communities (CCs) a great deal of time, money, effort, and work. However, it is not known whether the CCs are having the effect they are expected to have, so the value of continuing with these initiatives is unknown, and there is a need for a model for evaluating CCs to solve the question. Objectives: To identify a set of core outcomes or benefits that should be measured to assess the impact of the CCs. Design: Multiple-methods study involving three communities, each in a different country (Argentina, Colombia, and Switzerland). Methods and analysis: To identifying the set of core outcomes, which is the first step in developing the CC evaluation model, five phases will follow: online meetings, literature review, fieldwork, Delphi survey, and social transfer. We will involve members of the local communities of Bern, Buenos Aires, and Medellin at three different levels: (1) citizens (e.g. patients, caregivers, and family members), (2) organizations and institutions involved in the program implementation (e.g. health care organizations, churches, non-governmental organizations, and schools), and (3) political and governmental sectors. Ethics: The study will be conducted following existing international regulations and guidance such as the Declaration of Helsinki. The ethics committee of Pallium Latin America and the ethics committee of the canton of Bern considered our application exempt from the need for approval. Ethics approval in Bern and Buenos Aires is in the process of being obtained. The ethics committee of the Pontifical Bolivarian University approved this protocol. Discussion: We expect that this project will help bridge the gap in knowledge regarding the measurable impact of the CCs and enhance more CC development.
RESUMO
OBJETIVOS: el presente trabajo, realizado entre 2016 y 2017, tuvo como objetivo describir y analizar la participación en actividades de Ocio y Tiempo Libre en personas con un repentino cambio en su condición de salud. MÉTODO: este trabajo presentó una metodología exploratoria descriptiva con estrategia cualitativa. Se realizaron entrevistas en profundidad en las que participaron seis personas. RESULTADOS: los resultados obtenidos documentaron que las personas entrevistadas participaron de actividades de Ocio y Tiempo Libre antes y después, mostrando una tendencia a continuar con la misma forma. Se evidenció además un incremento en la valoración de las actividades de tiempo libre, especialmente las compartidas con la familia y amigos resaltando los roles significativos; y se vinculó la participación en estas actividades con el cuidado y mantenimiento de la salud. CONCLUSIONES: la participación en las actividades de Ocio y Tiempo libre se ha presentado como un continuum en su forma, cambiando su significado, siendo mas valoradas las actividades compartidas con otras personas y vinculando el desempeño de estas actividades con el cuidado de la salud
OBJECTIVE: The present work, conduct between 2016 and 2017, aimed to describe and analyze participation in Leisure and Free Time activities in people with a sudden change in their health condition. METHODS: This work presented a descriptive, exploratory methodology with a qualitative strategy. 6 people participated of In-depth interviews. RESULTS: The results obtained documented that the interviewees participated in Leisure and Free Time activities before and after, showing a tendency to continue in the same way. There was also an increase in the meaning of leisure activities, especially those shared with family and friends, highlighting the significant roles; and participation in these activities was linked to health care and maintenance. CONCLUSIONS: Participation in Leisure and Free Time activities is presented as a continuum in its form, changing its meaning, activities shared with others being more valued and linking the performance of these activities with health care
