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1.
J Fam Pract ; 71(6): E16-E17, 2022 07.
Artigo em Inglês | MEDLINE | ID: mdl-35994761

RESUMO

YES. Infants respond to behavioral interventions, although objective data are limited. Behavioral interventions include establishing regular daytime and sleep routines for the infant, reducing environmental noises or distractions, and allowing for self-soothing at bedtime (strength of recommendation: B, based on multiple randomized and nonrandomized studies).


Assuntos
Terapia Comportamental , Sono , Criança , Humanos , Lactente
2.
J Card Fail ; 23(4): 272-277, 2017 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-28012883

RESUMO

BACKGROUND: Despite the availability of validated risk scores for survival in heart failure (HF), individualized estimates are not typically provided directly to patients. METHODS AND RESULTS: We explored patient perspectives regarding conveyance of individualized Seattle Heart Failure Model (SHFM) survival estimates. In 2014 and 2015, 24 HF patients completed a semistructured interview at the initial offering of SHFM survival estimates (baseline) and a follow-up interview. Themes emerging from questions of interest were identified: 1) preferences for receiving estimates: patients generally wished to see their SHFM estimates (acceptors; n = 17, and ideally would have received such information early after HF "diagnosis"; 2) reactions: viewing their personalized estimates restored some control and hope for most patients and rarely increased anxiety; 3) application: some acceptors found the information to be helpful in considering future plans, but its usefulness in specific decisions was restricted owing to perceived model limitations; 4) understanding uncertainty: participants contextualized estimates through observations that uncertainty is pervasive in life; acceptors qualitatively understood the population-based nature of the estimates. CONCLUSIONS: The majority of patients valued receiving individualized prognostic survival estimates. Acceptors generally understood the nature of the information and found it to provide clarity, control, and hope rather than invoking confusion or anxiety.


Assuntos
Informação de Saúde ao Consumidor , Insuficiência Cardíaca , Administração dos Cuidados ao Paciente , Preferência do Paciente , Medição de Risco/métodos , Ansiedade/fisiopatologia , Colorado , Comorbidade , Informação de Saúde ao Consumidor/métodos , Informação de Saúde ao Consumidor/normas , Feminino , Insuficiência Cardíaca/diagnóstico , Insuficiência Cardíaca/mortalidade , Insuficiência Cardíaca/psicologia , Humanos , Masculino , Pessoa de Meia-Idade , Administração dos Cuidados ao Paciente/métodos , Administração dos Cuidados ao Paciente/estatística & dados numéricos , Prognóstico , Pesquisa Qualitativa , Fatores de Risco , Índice de Gravidade de Doença , Análise de Sobrevida
3.
Heart Lung ; 44(3): 219-24, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25724116

RESUMO

OBJECTIVE: To understand mechanical circulatory support (MCS) coordinators' perspectives related to destination therapy left ventricular assist devices (DT LVAD) decision making. BACKGROUND: MCS coordinators are central to the team that interacts with patients considering DT LVAD, and are well positioned to comment upon the pre-implantation process. METHODS: From August 2012 to January 2013, MCS coordinators were recruited to participate in semi-structured, in-depth interviews. Established qualitative approaches were used to analyze and interpret data. RESULTS: Eighteen MCS coordinators from 18 programs were interviewed. We found diversity in coordinators' roles and high programmatic variability in how DT LVAD decisions are approached. Despite these differences, three themes were consistently recommended: 1) DT LVAD is a major patient-centered decision: "you're your best advocate… this may not be the best choice for you"; 2) this decision benefits from an iterative, multidisciplinary process: "It is not a one-time conversation"; and 3) this process involves a tension between conveying enough detail about the process yet not overwhelming patients: "It's sometimes hard to walk that line to not scare them but not paint a rainbow and butterflies picture." CONCLUSIONS: MCS coordinators endorsed a shared decision-making process that starts early, uses non-biased educational materials, and involves a multidisciplinary team sensitive to the tension between conveying enough detail about the therapy yet not overwhelming patients.


Assuntos
Tomada de Decisões , Pessoal de Saúde/psicologia , Insuficiência Cardíaca/terapia , Coração Auxiliar , Feminino , Humanos , Entrevistas como Assunto , Masculino
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