Barriers and benefits of model development for integration of palliative care for cancer patients in a developing country: A qualitative study.

AIM: The aim of the study was to identify barriers and benefits in establishing a model for integration of palliative care of cancer patients in daily clinical practice in tertiary health institutions. METHODS: This was a qualitative design study using in-depth interviews with four stakeholders and focus group discussions with 19 nurse managers using purposive sampling to select the participants, utilizing interpretive paradigm method. Need was ascertained for a model that would guide nursing care for cancer patients. RESULTS: Barriers identified in relation to integrating palliative care in daily clinical practice included lack of hospital policies about palliative care activities, cultural influences, denial or rejection of diagnosis by patients, inappropriate attitude of health care workers, patients failing to keep check-up appointments and financial implications of setting up a dedicated palliative care team. Benefits of the model were twofold: hospital outcomes and patients/family outcomes. CONCLUSIONS: Quality care for cancer patients/families calls for the adoption of clearly set out principles of palliative care as an integral component of daily practice. Challenges to implementation of palliative care services in hospitals can be overcome by establishing workable policies and allocating adequate funds for palliative care activities.

A qualitative study of home visiting as a palliative care strategy to follow-up cancer patients by nurses in clinical setting in a developing country.

AIMS: The aims are to examine the effect of home visiting and resources for instituting the programme as a follow-up strategy in integration of palliative care in daily clinical practice by nurses caring for cancer patients in Nigeria, and on how it can be used to improve care for cancer patients. BACKGROUND: Home visiting by nurses has been used as a follow-up option in maternal and child health care globally. Most cancer patients default after diagnosis, home visiting offers potential as a strategy for follow-up of these patients too. METHODS: This was a qualitative study which employed a focus group discussion with nurse managers and interviews with cancer in-patients in two teaching hospitals in Nigeria. It utilised an interpretive paradigm to reach the best understanding of the problem. A total of 19 nurse managers who were directly involved with the care of cancer patients and 11 cancer patients participated in the study between July and September 2016. A qualitative content analysis was employed to analyse the data. FINDINGS: Nine major themes were identified in relation to perceived benefits of home visiting services and six in relation to needed resources in instituting the programme. Similar findings emerged from both the focus group discussions and the interviews with patients. Participants agreed that visiting cancer patients would ease many problems commonly encountered by patients following diagnosis of cancer, including psychological, financial, and emotional problems. Needed resources included hospital policies, adequate staff strength, staff commitment and funding. CONCLUSIONS: Viable home visiting requires palliative care teams to carry out the service and hospital policy to direct their activities. Putting this into practice will be in line with World Health Organisation (WHO) advocacy of integrated palliative care for chronic diseases.

Assessment of palliative care needs of patients/families living with cancer in a developing country.

PURPOSE: The study seeks to assess the care needs of oncology in-patients and clinic attendees or families in two tertiary health institutions. METHODS: This was a descriptive study which utilised a quantitative survey questionnaire of all cancer patients diagnosed between January 2014 and September 2016 (n = 547) with the return rate (n = 455) representing 82%. The questionnaire explored assessment of palliative care need. These instruments were used, because patients with cancer and their families are reluctant to talk about the disease. Using a questionnaire was therefore the best means of obtaining their full participation. The data were analysed using descriptive statistics to identify the highest need of patients with cancer patients. The study was approved by the two participating hospitals and the Human and Social Sciences Research Ethics of University of KwaZulu-Natal. FINDINGS: The study found that most common needs of patients were information on possibilities of treatment and side effects (92.8%), diagnosis (91.6%), testing (91.1%) and physical symptoms (90.9%). There were also other needs, such as psychological, spiritual and financial needs, related to factors causing distress to patients and their families following diagnosis of cancer. CONCLUSIONS: This article focused on needs as expressed by patients and families and offers a useful guide to develop a model for integration of palliative care activities. The findings reveal that patients who are undergoing follow-up care and cancer treatment or investigation are clearly concerned about receiving information on a range of cancer issues. We therefore conclude that patients are able to deal with the disease more effectively when hospitals set up a palliative care team or unit to carry out proper assessment of patients living with cancer.