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2.
BMC Health Serv Res ; 18(1): 302, 2018 04 25.
Artigo em Inglês | MEDLINE | ID: mdl-29699556

RESUMO

BACKGROUND: Every year, 14 % of patients in Norwegian hospitals experience adverse events, which often have health-damaging consequences. The government, hospital management and health personnel attempt to minimize such events. Limited research on the first-hand experience of the patients affected is available. The aim of this study is to present patients' perspectives of the occurrence of, disclosure of, and healthcare organizations' responses to adverse events. Findings are discussed within a social constructivist framework and with reference to principles of open disclosure policy. METHODS: This qualitative study with an explorative descriptive design included fifteen in-depth interviews with former patients recruited by the Health and Social Services ombudsmen in the two northernmost counties of Norway. Inclusion criteria were as follows: 1) experience of adverse events in connection with surgical, orthopedic or medical treatment in general hospitals; 2) men and women; 3) aged 20-70; and 4) a minimum of one year since the event occurred. Transcribed audio-recorded interviews were analyzed through qualitative content analysis. RESULTS: The analysis revealed three main topics regarding patients' experiences of adverse events: 1) ignored concerns or signs of complications; 2) lack of responsibility and error correction; and 3) lack of support, loyalty and learning opportunities. Patients had to struggle to demonstrate the error that had occurred and to receive the necessary treatment and monitoring in the aftermath of the events. CONCLUSIONS: Patient narratives reveal a lack of openness, care and responsibility in connection with adverse events. Conflicting power structures, attitudes and established procedures may inhibit prevention, learning and patient safety work in spite of major efforts and good intentions. Attitudes in day-to-day patient care and organizational procedures should be challenged to invite patients into open disclosure processes and include them in health and safety work to a greater extent. The study's small sample of self-selected participants limits the generalizability of the findings, and future studies should include a larger number of patients as well as professional perspectives.


Assuntos
Revelação , Imperícia/estatística & dados numéricos , Erros Médicos/psicologia , Adulto , Idoso , Atitude Frente a Saúde , Feminino , Pessoal de Saúde , Administração Hospitalar , Hospitais , Humanos , Masculino , Erros Médicos/estatística & dados numéricos , Pessoa de Meia-Idade , Noruega , Percepção , Relações Profissional-Paciente , Pesquisa Qualitativa , Responsabilidade Social , Apoio Social , Adulto Jovem
3.
Work ; 49(1): 123-32, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-23787254

RESUMO

BACKGROUND: A significant part of the population suffers from non-malignant chronic pain that is not treated by pain specialists. No successful long-term treatment exists. The patients have to deal with their condition in collaboration with health personnel establishing treatment programmes under uncertain circumstances with few guidelines. Thus, there is a strong need for knowledge on how patients with chronic non-malignant pain manage their condition. OBJECTIVES: The aim of the study was to explore how patients with chronic non-malignant pain deal with their condition. METHODS: Twenty patients with chronic non-malignant pain (aged 26-63 in year 2006) told in an open-ended interview situation, how they lived with and dealt with their condition. The interviews were analysed within a phenomenological meaning condensation framework. RESULTS: For all patients the pain was as an integrated part of their life that required huge efforts to cope with. Typically, the patients experienced loneliness, fear of stigmatization and despair because of their unpredictable condition, and they wanted to come back to a normalized daily life, first and foremost by getting back to paid work. CONCLUSIONS: In general, the patients developed individual strategies that were influenced by their local contexts and life situation as well as the pain itself. This may be interpreted in line with Bourdieu's notions of habitus, strategies and social capital.


Assuntos
Dor Crônica/psicologia , Manejo da Dor/métodos , Qualidade de Vida , Autocuidado , Adaptação Psicológica , Adulto , Medo , Feminino , Humanos , Entrevistas como Assunto , Solidão , Masculino , Pessoa de Meia-Idade , Noruega , Medição da Dor , Estigma Social
4.
Int J Circumpolar Health ; 71: 1-8, 2012 Mar 30.
Artigo em Inglês | MEDLINE | ID: mdl-22564460

RESUMO

OBJECTIVES: This article is based on a pilot study of Finnmark University College's off-campus bachelor programme (BA) for nurses, organised in rural areas. The objectives were to explore whether these courses had contributed to reduced vacancies; whether the learning outcome of the off-campus courses was the same as the on-campus programme, and how the education had influenced the nurses' professional practice in local health services. STUDY DESIGN: In the study we used mixed strategies in data collection and analyses. METHODS: Data about course completion, average age, average grades and retention effect were collected in 2009/2010 from 3 off-campus classes and their contemporary on-campus classes. Then 7 of the off-campus nurses were interviewed. A content analytical approach to the data was employed. RESULTS: With retention of 93%, the off-campus BA course for nurses has been one of the most effective measures, particularly in rural areas. The employers' support for further education after graduating seems to be an important factor for the high retention rate. Teaching methods such as learning activities in small local groups influenced the nurses' professional development. Local training grants, supervision and a local learning environment were important for where they chose their first job after graduation. CONCLUSIONS: The study confirms that nurses educated through off-campus courses remain in the county over time after graduating. The "home-grown" nurses are familiar with the local culture and specific needs of the population in this remote area. The study confirms findings in other studies, that further education is an important factor for nurses' retention.


Assuntos
Bacharelado em Enfermagem/organização & administração , Atenção Primária à Saúde/organização & administração , Serviços de Saúde Rural/organização & administração , Adulto , Regiões Árticas , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Noruega , Projetos Piloto , Aprendizagem Baseada em Problemas , População Rural
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