RESUMO
Arthrogryposis multiplex congenita (AMC) is a term that is used to describe the presence of multiple joint contractures at birth. AMC can be seen singularly or in conjunction with other abnormalities. Historically, the term arthrogryposis was used as a disease diagnosis, but it is now clear that AMC is not a disease entity but a syndrome, involving a manifestation of many fetal and neonatal disorders of the neuromuscular system. Its etiology is multifocal, and there is a wide variation in the degree to which muscles and joints are affected. Early identification and implementation of a plan of therapy are essential. The purpose of this article is to provide an overview of the AMC 'syndrome, specifically, clinical features, etiology, diagnosis, therapeutic interventions, family support, and outcomes.
Assuntos
Artrogripose , Adaptação Psicológica , Assistência ao Convalescente/métodos , Artrogripose/classificação , Artrogripose/diagnóstico , Artrogripose/etiologia , Artrogripose/terapia , Moldes Cirúrgicos , Causalidade , Diagnóstico Diferencial , Humanos , Recém-Nascido , Enfermagem Neonatal/métodos , Pais/educação , Pais/psicologia , Prognóstico , Apoio Social , Contenções , SíndromeAssuntos
Epiglotite/diagnóstico , Epiglotite/microbiologia , Infecções por Bactérias Gram-Positivas , Doenças do Recém-Nascido/diagnóstico , Doenças do Recém-Nascido/microbiologia , Trabalho de Parto , Antibacterianos/uso terapêutico , Dexametasona/uso terapêutico , Feminino , Glucocorticoides/uso terapêutico , Infecções por Bactérias Gram-Positivas/diagnóstico , Humanos , Recém-Nascido , Injeções Intravenosas , Gravidez , Fatores de TempoRESUMO
This article re-examines access to treatment and care in the current context of fiscal restriction and change in locus of care. Taking the position that the development of partnerships with all parties who work in the mental health area is an important process, this article argues that such processes are infrequently discussed. Further, creating a partnered relationship with the person with mental disorder is also neglected. The authors examine mechanisms of relationship change as care moved from large, total-care institutions to general hospitals and finally, to the community. How professionals, individuals with mental disorder and their families have been affected by this change in terms of how alliances are constituted and maintained is discussed. The authors conclude with two case examples which illustrate the reconciliation and non-reconciliation of differing points of view between all partners which likely affected clinical outcomes.