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1.
J Asthma ; 54(6): 624-631, 2017 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-27780380

RESUMO

OBJECTIVES: To evaluate limited English proficiency (LEP) Latino caregiver asthma knowledge after exposure to an educational video designed for this target group. METHODS: A cross-sectional, interventional study was performed. We aimed to evaluate the post-test impact on asthma knowledge from baseline after exposure to a patient-centered, evidence-based, and professionally produced Spanish asthma educational video. Participants included LEP Latino caregivers of children 2-12 years old with persistent asthma. Enrollment was performed during ED encounters or scheduled through a local community organization. Asthma knowledge was measured with a validated Spanish parental asthma knowledge questionnaire. Differences in mean scores were calculated with a paired t-test. RESULTS: Twenty caregivers were enrolled. Participants included mothers (100%) from Puerto Rico (75%), with a high-school diploma or higher (85%), with no written asthma action plan (65%), whose child's asthma diagnosis was present for at least 3 years (80%). Mean baseline asthma knowledge scores improved 8 points from 58.4 to 66.4 after watching the educational video (95% CI 5.3-10.7; t(19) = 6.21, p < 0.01). Knowledge improvements were similar across the ED and community groups. Knowledge gains were observed in the areas of ED utilization, medication usage, and activity limitations. CONCLUSIONS: The developed educational video improved caregiver asthma knowledge for a Latino population facing communication barriers to quality asthma care. Dissemination of this educational resource to LEP caregivers has the potential to improve pediatric asthma care in the United States.


Assuntos
Asma/fisiopatologia , Barreiras de Comunicação , Educação em Saúde/métodos , Conhecimentos, Atitudes e Prática em Saúde , Mães/psicologia , Adulto , Antiasmáticos/uso terapêutico , Asma/tratamento farmacológico , Criança , Pré-Escolar , Estudos Transversais , Serviço Hospitalar de Emergência/estatística & dados numéricos , Feminino , Hispânico ou Latino , Humanos , Internet , Idioma , Masculino , Pessoa de Meia-Idade , Porto Rico/etnologia , Fatores Socioeconômicos
2.
Qual Health Res ; 25(1): 16-26, 2015 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-25185159

RESUMO

In this article, we analyze qualitative data from a purposeful sample of limited English proficiency (LEP) asthma health caregivers. We used ethnically concordant, semistructured, in-depth Spanish-language interviews and a follow-up focus group to explore issues related to communication during pediatric asthma encounters in medical settings. Inductive coding of Spanish transcripts by a bilingual research team was performed until thematic saturation was reached. Several key findings emerged. LEP caregivers encountered significant asthma burdens related to emotional stress, observed physical changes, and communication barriers. Language-discordant communication and the use of ad hoc interpreters were common. This finding is complex, and was influenced by perceptions of interpreter availability, delays in care, feelings of mistrust toward others, and individual emotional responses. Language-concordant education and suitable action plans were valued and desired. We discuss a revealing depiction of the LEP caregiver experience with asthma health communication and recommend areas for further inquiry.


Assuntos
Asma/etnologia , Cuidadores/psicologia , Barreiras de Comunicação , Comunicação em Saúde , Hispânico ou Latino , Adulto , Antiasmáticos/uso terapêutico , Asma/psicologia , Asma/terapia , Pré-Escolar , Pesquisa Participativa Baseada na Comunidade , Meio Ambiente , Feminino , Humanos , Lactente , Entrevistas como Assunto , Idioma , Masculino , Pessoa de Meia-Idade , Educação de Pacientes como Assunto , Relações Médico-Paciente , Pesquisa Qualitativa , Poluição por Fumaça de Tabaco/prevenção & controle , Tradução
3.
J Asthma ; 52(1): 71-80, 2015 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-25019349

RESUMO

OBJECTIVE: To assess limited English proficiency (LEP) asthma caregiver quality of life (QoL), skills retention and healthcare utilization after an asthma education fair (AEF). METHODS: A language concordant AEF was conducted at a Latino community center. LEP caregivers of children 1-12 years old and an established asthma diagnosis participated in three skill stations: (a) medication recognition and administration, (b) peak flow use (if child ≥ 5 years) and (c) action plan dissemination. Spacers, peak flow meters and individualized action plans were distributed. A validated, pediatric asthma caregiver quality of life questionnaire (PACQLQ-Spanish version) was administered. Baseline data was compared to follow-up interview data at three and six months after the AEF. Mean PACQLQ scores were analyzed with Wilcoxon signed-rank test and nominal paired data with McNemar's test. RESULTS: We analyzed data from 18 caregivers able to speak English well (22%), not well (28%) or not at all (50%). After three months, improved caregiver QoL was experienced (51 vs. 72, p<0.01). No differences were observed in medication recognition, spacer and peak flow use or peak flow interpretation. After six months, mean school days missed due to asthma decreased (4.1 vs. 0.4, p<0.01). Mean clinic visits, emergency department visits and hospitalizations remained unchanged. CONCLUSIONS: Implementation of a community-based AEF with action plan administration can be beneficial for LEP caregivers and their children. QoL improvements to emotional wellbeing and activity limitations were observed, and lower rates of school absenteeism were reported. Caregiver ability to accurately identify medications was not enhanced.


Assuntos
Asma , Cuidadores/estatística & dados numéricos , Educação em Saúde , Hispânico ou Latino , Absenteísmo , Adolescente , Corticosteroides/uso terapêutico , Agonistas Adrenérgicos beta/uso terapêutico , Adulto , Instituições de Assistência Ambulatorial/estatística & dados numéricos , Antiasmáticos/uso terapêutico , Asma/tratamento farmacológico , Asma/etnologia , Cuidadores/psicologia , Criança , Pré-Escolar , Pesquisa Participativa Baseada na Comunidade , Serviço Hospitalar de Emergência/estatística & dados numéricos , Conhecimentos, Atitudes e Prática em Saúde , Hospitalização/estatística & dados numéricos , Humanos , Lactente , Idioma , Inaladores Dosimetrados , Pessoa de Meia-Idade , Qualidade de Vida , Características de Residência , Adulto Jovem
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