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Background: Caregivers' burden and health-related quality-of-life (HRQoL) associated with Diabetes Mellitus (DM) are affected by several factors, including socio-demographic characteristics of the patients and their caregivers. Unfortunately, studies evaluating the influence of socio-demographic characteristics on caregivers and patients with DM in this environment are limited. This study therefore aimed at assessing the level of the burden imposed on the primary caregivers, the level of HRQoL of Individuals with Diabetes Mellitus (IDM) and the influence of socio-demographic characteristics on these variables among IDM attending the Family Medicine clinic of Wesley Guild Hospital, Ilesa, Osun State, Nigeria. Methodology: Seventy-eight consenting IDM and their corresponding primary caregivers were recruited over 13-weeks in this hospital-based cross-sectional descriptive study. The Well-Being Questionnaire and Zarit Burden Interview were administered on IDM and their corresponding caregivers to assess HRQoL and burden of care. Data were analysed on SPSS 17 using descriptive statistics and Pearson chi-square test at p<0.05. Results: Mean ages of respondents were 70.4±6.33 and 23.7±7.58 years for diabetics and caregivers, respectively. The majority of the diabetic respondents were females (61.5%), married (66.7%), and retired (64.1%). The majority of the caregivers were females (87.2%), petty traders/students (71.8%) and unmarried (87.2%). Over half (51.3%) of the diabetic respondents and their caregivers had 'good' HRQoL and 'high' caregivers' burden. Conclusion: The caregiver being a female, having primary education, being single and having a nuclear family relation of the IDM influenced good HRQoL, whereas being a low-income earner and an uneducated IDM influenced high caregivers' burden.
RESUMO
INTRODUCTION: availability of the Stroke-Specific Quality of Life scale 2.0 (SS-QoL(E)) in Yoruba and Hausa, two of the three major indigenous languages in Nigeria have the potential to promote its uptake among these population, however, its non-availability in the Igbo languages makes its use restrictive among the south-eastern Nigerians. This study was aimed at cross-culturally adapting and assessing validity and reliability of the Igbo version of the SS-QoL. METHODS: the SS-QoL(E) was cross-culturally adapted to Igbo following the American Association of Orthopaedic Surgeons' guideline. This involved forward and back-translations, expert committee review, pretesting and cognitive debriefing interview to produce the final Igbo version, SS-QoL(I). The validity and reliability test involved 50 consenting Igbo stroke survivors. The construct validity was assessed by administering SS-QoL(E) and SS-QoL(I) on all 50 respondents, while SS-QoL(I) was re-administered at 7-day interval to assess test-retest reliability. Each scale was administered in random order. Data were analysed using Spearman's correlation, Wilcoxon's signed-rank test, Cronbach's alpha, Intra-class Correlation Coefficient (ICC), independent t-test and one-way ANOVA at p<0.05. RESULTS: respondents' domains scores on SS-QoL(E) and SS-QoL(I) did not differ significantly except in mobility and work (r=0.58 to 0.87; p=0.001). Cronbach's alpha was 0.69 to 0.87 for domains scores. The ICC ranged from 0.48 to 0.84, while no significant differences was found across different age groups or gender for the domains or overall scores of SS-QoL(I). CONCLUSION: the Igbo version of the SS-QoL has limited alterations from the original version and has moderate to excellent validity and reliability values.
