Preparing the return home of the children with cancer

Children with oncologic disease, between treatments, if there are no complica-tions, return home until the next treatment. Planning the discharge is essential to promote a continuity of cares at home. An adequate preparation for discharge leads to a better management of collateral effects and to a minor risk of rehospi-talisation. The goals of this study were: to identify the preparation for discharge performed to the parents / caregivers of children / adolescents with cancer sub-mitted to chemotherapy; to identify the strategies of preparation for discharge. A qualitative, exploratory, descriptive and transversal study was developed. After the return home, 11 parents of children with cancer submitted to chemotherapy treatment, participated in the study. Data was collected using a semi-structured in-terview and its treatment made using content analyses, based on Bardin. From the data analyses emerged the domain The Return Home that aggregates the category Preparation for Discharge and its subcategories: Oral Information, Written Informa-tion, Comprehensibility of the Information and Information Content. The return home is simultaneously a desired and feared moment. Parents and children return to their environment, but face difficulties in daily life activities, due to the fear that is provoked by the child's vulnerability. This way, the return home should be pre-pared early and adequate to the singular context of each family. Oral information should be reinforced by written information, given the difficulty to process it. The comprehensibility and the content of information are peremptory components in the preparation for discharge

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Children with cancer nutrition at home

The children nutrition is one of the problems that parents have to manage at home, after treatment of an oncological disease. Nutritional commitment may prolong episodes of neutropenia and compromise the effectiveness of treatments. The goals of this study were: to identify the needs of parents/caregivers in the mana-gement of children/adolescents nutrition with cancer undergoing chemothera-py treatment, at home; to characterize parental strategies in the management of children's nutrition at home, after chemotherapy. A qualitative, exploratory, des-criptive and cross-sectional study was developed with eleven parents of children with cancer, who underwent chemotherapy treatment, after returning home. Data were collected through a semi-structured interview and analyzed according to Bar-din. From the analysis of content emerged the domain The Life at Home and the category Nutrition. Home Life for parents of the child with cancer presents seve-ral challenges, particularly in nutritional management, in the face of reduced food intake and the new rules imposed by the neutropenic diet. Thus, parents resort to several strategies to manage this problem: recourse to new practices in food confectionery; changes in the diet of the whole family; insistence/verbal pressure; distraction; reward after negotiation; supply a varied and nutritious diet; questio-ning/accepting the food preference; organic food. Despite appealing to the multi-plicity of strategies, the subjects of this study require the need for more structured support so that at home, they can respond to the challenges they face in their daily lives

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