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1.
J Marital Fam Ther ; 43(3): 435-447, 2017 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-28217971

RESUMO

The research literature on relational betrayal in a committed relationship has focused on the resulting trauma from the betrayal; however, few studies investigated the potential for posttraumatic growth following a relational betrayal. This study investigated the presence of posttraumatic growth in relationally betrayed women. The research focused on women's perceptions of the relational betrayal, and factors that facilitated posttraumatic growth. Results indicated relationally betrayed women perceived the betrayal as a traumatic event, to the extent that some met criteria for PTSD diagnosis. The passage of time was significant corollary to posttraumatic growth when moderated by a PTSD diagnosis. Finally, certain resources were reported to be more helpful than others in the development of posttraumatic growth. Clinical implications are presented.


Assuntos
Conflito Familiar/psicologia , Trauma Psicológico/psicologia , Transtornos de Estresse Pós-Traumáticos/psicologia , Adulto , Idoso , Feminino , Humanos , Pessoa de Meia-Idade , Adulto Jovem
2.
J Marital Fam Ther ; 40(2): 233-45, 2014 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-24749482

RESUMO

This article describes a qualitative research methods training project undertaken in a COAMFTE-accredited family therapy master's-level program. Graduate students were trained to collect research data for a qualitative study on the resilience of families displaced to the United States because of war and politically motivated violence in their country of origin. By involving trainees in a research project with refugees, the project was intended to address a gap in clinicians' training, specific to the refugee population (Miller, Muzurovic, Worthington, Tipping, and Goldman, American Journal of Orthopsychiatry 2002; 72: 341). However, the training process was also a way to increase the students' skills at interviewing in complex situations, develop their cultural sensitivity beyond awareness, enhance their capacity for routine self-reflection, and introduce them to basic practices of qualitative research methodology. In this article, we focus on the students' experience of the training and discuss the potential implications of their feedback for family therapy training.


Assuntos
Competência Cultural , Educação de Pós-Graduação/organização & administração , Terapia Familiar/educação , Terapia Conjugal/educação , Relações Profissional-Paciente , Adulto , Comunicação , Diversidade Cultural , Terapia Familiar/métodos , Feminino , Humanos , Masculino , Terapia Conjugal/métodos , Pessoa de Meia-Idade , Refugiados/estatística & dados numéricos , Estados Unidos , Universidades , Adulto Jovem
3.
PLoS Med ; 9(1): e1001158, 2012 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-22272190

RESUMO

BACKGROUND: Care advances in the United States (US) have led to improved survival of children with neurological impairment (NI). Children with NI may account for an increasing proportion of hospital resources. However, this assumption has not been tested at a national level. METHODS AND FINDINGS: We conducted a study of 25,747,016 US hospitalizations of children recorded in the Kids' Inpatient Database (years 1997, 2000, 2003, and 2006). Children with NI were identified with International Classification of Diseases, 9th Revision, Clinical Modification diagnoses resulting in functional and/or intellectual impairment. We assessed trends in inpatient resource utilization for children with NI with a Mantel-Haenszel chi-square test using all 4 y of data combined. Across the 4 y combined, children with NI accounted for 5.2% (1,338,590) of all hospitalizations. Epilepsy (52.2% [n = 538,978]) and cerebral palsy (15.9% [n = 164,665]) were the most prevalent NI diagnoses. The proportion of hospitalizations attributable to children with NI did not change significantly (p = 0.32) over time. In 2006, children with NI accounted for 5.3% (n = 345,621) of all hospitalizations, 13.9% (n = 3.4 million) of bed days, and 21.6% (US$17.7 billion) of all hospital charges within all hospitals. Over time, the proportion of hospitalizations attributable to children with NI decreased within non-children's hospitals (3.0% [n = 146,324] in 1997 to 2.5% [n = 113,097] in 2006, p<.001) and increased within children's hospitals (11.7% [n = 179,324] in 1997 to 13.5% [n = 209,708] in 2006, p<0.001). In 2006, children with NI accounted for 24.7% (2.1 million) of bed days and 29.0% (US$12.0 billion) of hospital charges within children's hospitals. CONCLUSIONS: Children with NI account for a substantial proportion of inpatient resources utilized in the US. Their impact is growing within children's hospitals. We must ensure that the current health care system is staffed, educated, and equipped to serve this growing segment of vulnerable children.


Assuntos
Recursos em Saúde/estatística & dados numéricos , Recursos em Saúde/tendências , Pacientes Internados/estatística & dados numéricos , Doenças do Sistema Nervoso/epidemiologia , Adolescente , Criança , Pré-Escolar , Estudos Transversais , Demografia , Feminino , Recursos em Saúde/economia , Hospitalização/estatística & dados numéricos , Humanos , Lactente , Recém-Nascido , Masculino , Doenças do Sistema Nervoso/diagnóstico , Estados Unidos/epidemiologia
4.
BMC Health Serv Res ; 11: 117, 2011 May 23.
Artigo em Inglês | MEDLINE | ID: mdl-21605385

RESUMO

BACKGROUND: Children with tracheotomy receive health care from an array of providers within various hospital and community health system sectors. Previous studies have highlighted substandard health information exchange between families and these sectors. The aim of this study was to investigate the perceptions and experiences of parents and providers with regard to health information management, care plan development and coordination for children with tracheotomy, and strategies to improve health information management for these children. METHODS: Individual and group interviews were performed with eight parents and fifteen healthcare (primary and specialty care, nursing, therapist, equipment) providers of children with tracheotomy. The primary tracheotomy-associated diagnoses for the children were neuromuscular impairment (n = 3), airway anomaly (n = 2) and chronic lung disease (n = 3). Two independent reviewers conducted deep reading and line-by-line coding of all transcribed interviews to discover themes associated with the objectives. RESULTS: Children with tracheotomy in this study had healthcare providers with poorly defined roles and responsibilities who did not actively communicate with one another. Providers were often unsure where to find documentation relating to a child's tracheotomy equipment settings and home nursing orders, and perceived that these situations contributed to medical errors and delayed equipment needs. Parents created a home record that was shared with multiple providers to track the care that their children received but many considered this a burden better suited to providers. Providers benefited from the parent records, but questioned their accuracy regarding critical tracheotomy care plan information such as ventilator settings. Parents and providers endorsed potential improvement in this environment such as a comprehensive internet-based health record that could be shared among parents and providers, and between various clinical sites. CONCLUSIONS: Participants described disorganized tracheotomy care and health information mismanagement that could help guide future investigations into the impact of improved health information systems for children with tracheotomy. Strategies with the potential to improve tracheotomy care delivery could include defined roles and responsibilities for tracheotomy providers, and improved organization and parent support for maintenance of home-based tracheotomy records with web-based software applications, personal health record platforms and health record data authentication techniques.


Assuntos
Sistemas de Informação Hospitalar/normas , Informática Médica/normas , Percepção , Qualidade da Assistência à Saúde/normas , Traqueotomia/normas , Adolescente , Criança , Proteção da Criança , Pré-Escolar , Feminino , Pesquisas sobre Atenção à Saúde , Sistemas de Informação Hospitalar/organização & administração , Humanos , Masculino , Informática Médica/métodos , Médicos de Atenção Primária , Pesquisa Qualitativa , Traqueotomia/métodos , Estados Unidos
5.
Pediatrics ; 126 Suppl 3: S177-82, 2010 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-21123483

RESUMO

Transitions to postsecondary education for youth with disabilities, special health care needs, or both are often challenging. Adults design most interventions aimed at assisting youth in the transition process. In this article, we report on how youth can enhance transition interventions and research. Youth representing a variety of community-based organizations that serve diverse immigrant populations served as co-researchers in a randomized controlled study called OPT4College, a program that provides postsecondary education transition support for youth with disabilities, special health care needs, or both. This youth-based participatory study used an iterative process that is quite different from the traditional research-study flow. The involvement of empowered youth and communities, in concert with academic and public health partners, increases the probability of creating interventions that ensure successful postsecondary transitions for youth with disabilities, special health care needs, or both.


Assuntos
Pesquisa Biomédica , Pessoas com Deficiência , Adolescente , Adulto , Fatores Etários , Currículo , Humanos , Pessoa de Meia-Idade , Estados Unidos , Adulto Jovem
6.
Arch Dis Child ; 95(9): 703-10, 2010 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-20522454

RESUMO

OBJECTIVES: To identify children at risk for in-hospital mortality following tracheotomy. DESIGN: Retrospective cohort study. SETTING: 25 746 876 US hospitalisations for children within the Kids' Inpatient Database 1997, 2000, 2003 and 2006. PARTICIPANTS: 18 806 hospitalisations of children ages 0-18 years undergoing tracheotomy, identified from ICD-9-CM tracheotomy procedure codes. MAIN OUTCOME MEASURE: Mortality during the initial hospitalisation when tracheotomy was performed in relation to patient demographic and clinical characteristics (neuromuscular impairment (NI), chronic lung disease, upper airway anomaly, prematurity, congenital heart disease, upper airway infection and trauma) identified with ICD-9-CM codes. RESULTS: Between 1997 and 2006, mortality following tracheotomy ranged from 7.7% to 8.5%. In each year, higher mortality was observed in children undergoing tracheotomy who were aged <1 year compared with children aged 1-4 years (mortality range: 10.2-13.1% vs 1.1-4.2%); in children with congenital heart disease, compared with children without congenital heart disease (13.1-18.7% vs 6.2-7.1%) and in children with prematurity, compared with children who were not premature (13.0-19.4% vs 6.8-7.3%). Lower mortality was observed in children with an upper airway anomaly compared with children without an upper airway anomaly (1.5-5.1% vs 9.1-10.3%). In 2006, the highest mortality (40.0%) was observed in premature children with NI and congenital heart disease, who did not have an upper airway anomaly. CONCLUSIONS: Congenital heart disease, prematurity, the absence of an upper airway anomaly and age <1 year were characteristics associated with higher mortality in children following tracheotomy. These findings may assist provider communication with children and families regarding early prognosis following tracheotomy.


Assuntos
Mortalidade Hospitalar , Traqueotomia/mortalidade , Adolescente , Distribuição por Idade , Fatores Etários , Criança , Pré-Escolar , Feminino , Cardiopatias Congênitas/mortalidade , Humanos , Lactente , Recém-Nascido , Recém-Nascido Prematuro , Masculino , Doenças Neuromusculares/mortalidade , Prognóstico , Anormalidades do Sistema Respiratório/mortalidade , Estudos Retrospectivos , Fatores de Risco , Estados Unidos/epidemiologia
7.
Pediatrics ; 124(2): 563-72, 2009 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-19596736

RESUMO

OBJECTIVES: The objectives are to describe health outcomes and hospital resource use of children after tracheotomy and identify patient characteristics that correlate with outcomes and hospital resource use. PATIENTS AND METHODS: A retrospective analysis of 917 children aged 0 to 18 years undergoing tracheotomy from 36 children's hospitals in 2002 with follow-up through 2007. Children were identified from ICD-9-CM tracheotomy procedure codes. Comorbid conditions (neurologic impairment [NI], chronic lung disease, upper airway anomaly, prematurity, and trauma) were identified with ICD-9-CM diagnostic codes. Patient characteristics were compared with in-hospital mortality, decannulation, and hospital resource use by using generalized estimating equations. RESULTS: Forty-eight percent of children were

Assuntos
Recursos em Saúde/estatística & dados numéricos , Hospitais Pediátricos/estatística & dados numéricos , Traqueotomia/estatística & dados numéricos , Adolescente , Criança , Pré-Escolar , Doença Crônica , Comorbidade , Feminino , Seguimentos , Mortalidade Hospitalar , Humanos , Lactente , Recém-Nascido , Doenças do Prematuro/mortalidade , Doenças do Prematuro/terapia , Tempo de Internação/estatística & dados numéricos , Pneumopatias/mortalidade , Pneumopatias/terapia , Masculino , Análise Multivariada , Doenças do Sistema Nervoso/mortalidade , Doenças do Sistema Nervoso/terapia , Readmissão do Paciente/estatística & dados numéricos , Anormalidades do Sistema Respiratório/mortalidade , Anormalidades do Sistema Respiratório/terapia , Taxa de Sobrevida , Traqueotomia/efeitos adversos , Traqueotomia/mortalidade , Estados Unidos , Revisão da Utilização de Recursos de Saúde/estatística & dados numéricos
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