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1.
Cureus ; 15(5): e38882, 2023 May.
Artigo em Inglês | MEDLINE | ID: mdl-37303450

RESUMO

Background A case series report based on the Turnaway Study has previously concluded that 99% of women with a history of abortion will continue to affirm satisfaction with their decisions to abort. Those findings have been called into question due to a low participation rate (31%) and reliance on a single yes/no assessment of decision satisfaction. Aim To utilize more sensitive scales in assessing decision satisfaction and the associated mental health outcomes women attribute to their abortions. Method  A retrospective survey was completed by 1,000 females, aged 41-45, living in the United States. The survey instrument included 11 visual analog scales for respondents to rate their personal preferences and outcomes they attributed to their abortion decisions. A categorical question allowed women to identify if their abortions were wanted and consistent with their own values and preferences, inconsistent with their values and preferences, unwanted, or coerced. Linear regression models were tested to identify which of three decision scales best predicted positive or negative emotions, effects on mental health, emotional attachment, personal preferences, moral conflict, and other factors relevant to an assessment of satisfaction with a decision to abort. Results Of 226 women reporting a history of abortion, 33% identified it as wanted, 43% as accepted but inconsistent with their values and preferences, and 24% as unwanted or coerced. Only wanted abortions were associated with positive emotions or mental health gains. All other groups attributed more negative emotions and mental health outcomes to their abortions. Sixty percent reported they would have preferred to give birth if they had received more support from others or had more financial security. Conclusions Perceived pressure to abort is strongly associated with women attributing more negative mental health outcomes to their abortions. The one-third of women for whom abortion is wanted and consistent with their values and preferences are most likely over-represented in studies initiated at abortion clinics. More research is needed to understand better the experience of the two-thirds of women for whom abortion is unwanted, coerced, or otherwise inconsistent with their own values and preferences.

2.
Cureus ; 15(12): e49973, 2023 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-38179370

RESUMO

Introduction As medication abortion accounts for a growing share of abortions in the United States, an increasing number of women are seeking abortion pill reversal (APR). These decisions are typically not made in isolation. However, little research exists on women's APR decision-making and the role played by people close to them. Methods We surveyed women who contacted a national hotline for information on APR and who completed a two-week treatment protocol with progesterone (n = 67). We analyzed women's open-ended answers using thematic analysis to identify memorable messages about medication abortion and APR. Participants' communication with other people in their lives was assessed using the Isolation subscale of the Individual Level Abortion Stigma (ILAS) scale, and decision-making difficulty was assessed using a Likert scale. Results Thirty-six respondents met the eligibility criteria and filled out the ILAS and decision-difficulty scales. Women tended to talk with family and friends about their medication abortion decisions, while they typically sought information online when deciding about APR. Women reported greater stigma in their disclosures about their abortions than in their disclosures about APR (p = 0.006). Conclusion Memorable messages influence women's decisions to pursue medication abortion and APR.

3.
West J Nurs Res ; 44(10): 912-919, 2022 10.
Artigo em Inglês | MEDLINE | ID: mdl-34238081

RESUMO

Children living with medical complexities are a growing population in the United States. Supportive pediatric health care team members are arguably the single most important factor in helping mothers manage their child's multifaceted condition. To better understand what constitutes helpful support from health care team members, we interviewed 17 mothers affiliated with a pediatric palliative care program at a large Midwestern U.S. hospital. Using Charmaz's approach to grounded theory analysis, we found that mothers desired a collaborative partnership with their child's health care team. However, the development of this partnership was contingent upon team members' effective use of informational, emotional, and network support. We identified two specific strategies that qualified each of these three different types of helpful supportive communication. These strategies may be implemented into training and educational programs for health care professionals to improve their communication skills.


Assuntos
Mães , Equipe de Assistência ao Paciente , Criança , Doença Crônica , Emoções , Feminino , Humanos , Mães/psicologia , Cuidados Paliativos
4.
Health Commun ; 36(12): 1485-1494, 2021 11.
Artigo em Inglês | MEDLINE | ID: mdl-32482094

RESUMO

One out of four women in the United States will have an abortion by age 45. While abortion rates are steadily declining in the United States, the rate of medication abortions continues to increase, with 39% of all abortions being medication abortions. Our study is one of the first to analyze women's narratives after having had a medication abortion. Using relational dialectics theory, we conducted a case study of the nonpartisan website, Abortion Changes You. Our contrapuntal analysis rendered four sites of dialectical tension found across women's blog posts: only choice vs. other alternatives, unprepared vs. knowledgeable, relief vs. regret, and silence vs. openness. Each site of struggle characterized a different noteworthy moment within a woman's medication abortion experience: the decision, the medication abortion process, identity after abortion, and managing the stigmatizing silence before and after the abortion. We discuss theoretical and practical implications about how the larger politicized discourses prevalent within the abortion debate impact the liminality of women who are contemplating a medication abortion and affect their own narrative construction about the medication abortion experience.


Assuntos
Aborto Induzido , Emoções , Feminino , Humanos , Pessoa de Meia-Idade , Narração , Gravidez , Estados Unidos
5.
J Pediatr Health Care ; 34(6): 542-549, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32771340

RESUMO

INTRODUCTION: An emerging subpopulation within pediatric chronic illness is children living with complex chronic conditions. Managing a child's complex chronic conditions can be emotionally taxing for parents. Many parents regard hope as a "life-sustaining and essential" process for them. METHOD: We used the central concepts within Snyder's hope theory to guide our directed content analysis of parents' interviews about their hopeful and hopeless experiences. Our sample consisted of primarily Christian married mothers. RESULTS: We found themes within each concept of Snyder's hope theory that clarifies the social and communicative processes that facilitate more hopeful thinking for parents. DISCUSSION: Understanding how individuals communicate or enact hopeful thinking is an important contributor to performing hope in social settings like hospitals and nonprofit organizations (Ronald McDonald House) that support parents with medically complex children. Our findings indicate that messages should help parents identify care solutions, offer words of encouragement, and help parents create life goals that maintain a child's quality of life.


Assuntos
Esperança , Pais , Qualidade de Vida , Sobrecarga do Cuidador/psicologia , Criança , Família , Humanos , Pais/psicologia , Apoio Social
6.
Health Commun ; 35(11): 1386-1395, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-31264478

RESUMO

Parental advice giving serves as an important form of informational support for parents of children living with complex chronic conditions (CCCs). These messages can provide backchannel insights into social challenges, best practices, and may offer different forms of experiential wisdom garnered from their own parental caregiving experiences. Contributing to the naturalistic, health-context investigations of advice messages, we interviewed 35 parents who discussed their experiences with parenting their medically complex child. Part of the broader interview protocol asked parents about advice they would offer to other parents like them. We conducted a thematic analysis of parents' responses to these questions to understand advice content, form of advice giving messages, challenges experienced by parents, and suggested best practices for managing a child's CCC. We present our findings and discuss implications on educating health care professionals about how to cultivate advice networks and the need for more parent peer mentoring programs.


Assuntos
Poder Familiar , Pais , Criança , Doença Crônica , Humanos , Relações Pais-Filho
7.
Health Commun ; 34(1): 100-109, 2019 01.
Artigo em Inglês | MEDLINE | ID: mdl-29072494

RESUMO

Parents have a significant role in the management of a child's chronic condition. Parents are often the only consistent individuals managing a child's health across his or her childhood and adolescence (e.g., present for all appointments and medical procedures). Many of the responsibilities required of parents involve communication work, where parents must strategically and actively design messages as they interact with medical professionals, other family, and friends. Using communication privacy management theory, we analyzed interviews conducted with 35 parents to understand the motivations and strategies involved in their regulation of information about their child's chronic condition. These findings have important practical implications because parental involvement in a chronically ill child's care has direct effects on familial adaptation and adjustment.


Assuntos
Doença Crônica/psicologia , Comunicação , Confidencialidade/psicologia , Pais/psicologia , Relações Profissional-Família , Adulto , Revelação , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Motivação , Fatores Socioeconômicos
8.
Health Commun ; 32(9): 1151-1160, 2017 09.
Artigo em Inglês | MEDLINE | ID: mdl-27588934

RESUMO

Caring for a child with a chronic condition has received considerable attention in the pediatric health literature. Today, approximately 1 out of 5 North American children are diagnosed with a chronic condition that requires parents to become caregivers and advocates. Although advocacy is regarded as a significant aspect to parental caregiving, more research is needed to better define this oversimplified and misrepresented concept in clinical practice and research. Subsequently, we interviewed 35 parents of children diagnosed with complex chronic conditions. Within our analysis, we identified three themes that elaborate upon how parental advocacy is socially constructed through communication behaviors and partnerships with other people (e.g., medical professionals, family, school educators). We also discuss the emotional side of advocacy, and proffer suggestions to practitioners who work with parents to form collaborative care teams.


Assuntos
Cuidadores/psicologia , Doença Crônica/terapia , Pais/psicologia , Defesa do Paciente , Adulto , Criança , Feminino , Humanos , Masculino , Estresse Psicológico
9.
Cultur Divers Ethnic Minor Psychol ; 22(2): 196-204, 2016 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-26147633

RESUMO

OBJECTIVES: Social support is an important resource that has been associated with better mental and physical health outcomes among HIV-positive people. However, researchers have not adequately explored how social support functions among HIV-positive African Americans. The purpose of the current study was to understand whether HIV-related support resources are associated with relational functioning and HIV-related problems among a sample of HIV-infected African American dyads. METHOD: Exactly 34 HIV-infected (i.e., seroconcordant) dyads compromised of HIV-positive African American adults and their HIV-positive adult "informal supporters" from 3 Midwestern urban cities completed psychosocial questionnaires and a communication task. Using the actor-partner interdependence model, we analyzed dyadic data to determine whether there were actor and/or partner effects within dyadic relationships on measures of conflict and HIV-related problems, communication about these problems, and health symptoms. RESULTS: We found significant negative relationships between perceived support and HIV-related problems and perceptions of problem inequity within dyads and a positive relationship between perceived support and communication about these problems within dyads. Contrary to our expectations, we found no relationship between social support and HIV symptoms, relational conflict, or perceptions about dyadic partners' HIV-related problems. CONCLUSIONS: Although our study precludes drawing causal conclusions, we found evidence of a relationship between the personal experience of HIV-related problems, communication about these problems, and perceptions of social support among a small sample of HIV-infected African American dyads. These findings suggest the need to consider how support-related communication within HIV-infected dyads might influence and be influenced by problem perceptions.


Assuntos
Negro ou Afro-Americano/psicologia , Infecções por HIV/etnologia , Infecções por HIV/psicologia , Parceiros Sexuais/psicologia , Adulto , Estudos Transversais , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Apoio Social , Inquéritos e Questionários , Estados Unidos
10.
Am J Hosp Palliat Care ; 33(1): 69-76, 2016 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-25239939

RESUMO

A significant number of Americans die in ways that do not reflect their preferences for end-of-life (EOL) care. For married individuals, the spouse often has the legal authority to make decisions at EOL. Many factors, most notably open preemptive communication about care preferences and dying wishes, determine whether such communication is viable and a partner's wishes are respected. We used a mixed method approach, involving a content analysis of spouses' reasons for seeking and avoiding conversations regarding their partners' EOL care preferences, and examined whether certain demographic factors (eg, income, gender, age) more likely contributed to the initiation of EOL conversations. We situate our findings within the broader cultural discourse about death and dying and highlight the influence of uncertainty in spousal EOL communication.


Assuntos
Planejamento Antecipado de Cuidados , Tomada de Decisões , Comportamento de Busca de Informação , Cônjuges/psicologia , Assistência Terminal/psicologia , Incerteza , Atitude Frente a Morte , Feminino , Humanos , Masculino , Preferência do Paciente , Estados Unidos
11.
Health Commun ; 30(4): 409-18, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25074724

RESUMO

The theory of motivated information management (TMIM) provides one framework to examine information-seeking behaviors, especially in conversations involving sensitive or difficult information such as preferences for end-of-life (EOL) care. The spouse plays a significant role in decision making surrounding EOL care. Consequently, individuals need information about spouses' EOL preferences in order to ensure carrying out those desires. Our findings support the value of TMIM as a framework to understand factors that influence couples' EOL care information-seeking behaviors. In support of the theory, we provide factors that influence the initiation or avoidance of EOL conversations between spouses.


Assuntos
Comunicação , Preferência do Paciente , Cônjuges/psicologia , Assistência Terminal , Idoso , Idoso de 80 Anos ou mais , Tomada de Decisões , Feminino , Humanos , Comportamento de Busca de Informação , Masculino , Pessoa de Meia-Idade , Motivação , Teoria Psicológica , Cônjuges/estatística & dados numéricos , Assistência Terminal/psicologia
12.
J Relig Health ; 54(5): 1870-85, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25341570

RESUMO

Currently, 10% of Americans are living with a chronic illness. One coping mechanism for individuals living with chronic illness is religion and/or spiritual (R/S). To better explicate the relationship among R/S and psychological well-being, we conceptualize R/S as an interpersonal process involving conversations that may facilitate positive reappraisals. We use a mixed-method approach from data collected from 106 participants, involving a content analysis of R/S conversations and test Burleson and Goldsmith's (Handbook of communication and emotion: research, theory, applications, and contexts, Academic Press, San Diego, pp 245-280, 1998) appraisal-based comforting model. Partial support for the model was found. In addition, the majority of R/S conversations were considered positive, helpful, and supportive. Theoretical and practical implications are discussed.


Assuntos
Adaptação Psicológica , Doença Crônica/psicologia , Comunicação , Religião e Medicina , Espiritualidade , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem
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