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1.
J Affect Disord ; 359: 342-349, 2024 Aug 15.
Artigo em Inglês | MEDLINE | ID: mdl-38754595

RESUMO

BACKGROUND: Late-life depression (LLD) is highly prevalent, especially in people aged 80 years and older. We aimed to investigate predictors and their influence on depressive symptoms in LLD. METHODS: We analysed data from the NRW80+ study, a population-based cross-sectional study of individuals aged 80 years and older. Data from n = 926 cognitively unimpaired participants were included. We reduced 95 variables to 21 predictors of depressive symptoms by using a two-step cluster analysis (TSCA), which were assigned to one of four factors (function, values and lifestyle, autonomy and contentment, biological-somatic) according to a principal component analysis. A second TSCA with complete data sets (n = 879) was used to define clusters of participants. Using weighted mean composite scores (CS) for each factor group, binary logistic regression analyses were performed to predict depressive symptoms for each cluster and the total population. RESULTS: The second TSCA yielded two clusters (cluster 1 (n = 688), cluster 2 (n = 191)). The proportion of participants with depressive symptoms was significantly higher in cluster 2 compared to cluster 1 (39 % vs. 15 %; OR = 3.6; 95 % CI 2.5-5.1; p < .001). Participants in cluster 2 were significantly older (mean age 88 vs. 85 years; p < .001), with a higher proportion of women (56 % vs. 46 %; OR = 1.5; 95 % CI 1.1-2.0; p = .016), had a higher BMI (p = .017), lower financial resources (OR = 2.3; 95 % CI 1.6-3.5; p < .001), lower educational level (OR = 1.8; 95 % CI 1.2-2.5; p = .002), higher proportion of single, separated or widowed participants (OR = 1.9; 95 % CI 1.3-2.6; p < .001) and a smaller mean social network (p = .044) compared to cluster 1. Binary logistic regression analyses showed that the weighted mean CS including the autonomy and contentment predictors explained the largest proportion of variance (22.8 %) for depressive symptoms in the total population (Nagelkerke's R2 = 0.228, p < .001) and in both clusters (cluster 1: Nagelkerke's R2 = 0.171, p < .001; cluster 2: Nagelkerke's R2 = 0.213, p < .001), respectively. LIMITATIONS: The main limitations are the restriction to cognitively unimpaired individuals and the use of a self-rated questionnaire to assess depressive symptoms. CONCLUSIONS: Psychological factors such as autonomy and contentment are critical for the occurrence of depressive symptoms at higher age, independent of the functional and somatic status and may serve as specific targets for psychotherapy.


Assuntos
Depressão , Humanos , Feminino , Masculino , Idoso de 80 Anos ou mais , Estudos Transversais , Depressão/epidemiologia , Depressão/psicologia , Análise por Conglomerados , Estilo de Vida , Autonomia Pessoal , Fatores de Risco
2.
BMC Health Serv Res ; 22(1): 1433, 2022 Nov 28.
Artigo em Inglês | MEDLINE | ID: mdl-36443793

RESUMO

BACKGROUND: To inform quality improvement and strengthen services provided in the last year of life, measuring quality of care is essential. For Germany, data on care experiences in the last year of life that go beyond diagnoses and care settings are still rare. The aim of this study was to develop and validate a German version of the 'Views of Informal Carers' Evaluation of Services - Short Form (VOICES-SF)' suitable to assess the quality of care and services received across settings and healthcare providers in the German setting in the last year of life (VOICES-LYOL-Cologne). METHODS: VOICES-SF was adapted and translated following the 'TRAPD' team approach. Data collected in a retrospective cross-sectional survey with bereaved relatives in the region of Cologne, Germany were used to assess validity and reliability. RESULTS: Data from 351 bereaved relatives of adult decedents were analysed. The VOICES-LYOL-Cologne demonstrated construct validity in performing according to expected patterns, i.e. correlation of scores to care experiences and significant variability based on care settings. It further correlated with the PACIC-S9 Proxy, indicating good criterion validity. The newly added scale "subjective experiences of process and outcome of care in the last year of life" showed good internal consistency for each given care setting, except for the homecare setting. Test-retest analyses revealed no significant differences in satisfaction ratings according to the length of time since the patient's death. Overall, our data demonstrated the feasibility of collecting patient care experiences reported by proxy-respondents across multiple care settings. CONCLUSION: VOICES-LYOL-Cologne is the first German instrument to analyse care experiences in the last year of life in a comprehensive manner and encourages further research in German-speaking countries. This instrument enables the comparison of quality of care between settings and may be used to inform local and national quality improvement activities. TRIAL REGISTRATION: This study was registered in the German Clinical Trials Register (DRKS00011925; Date of registration: 13/06/2017).


Assuntos
Cuidadores , Melhoria de Qualidade , Adulto , Humanos , Estudos Transversais , Reprodutibilidade dos Testes , Estudos Retrospectivos
3.
Palliat Support Care ; 20(5): 637-645, 2022 10.
Artigo em Inglês | MEDLINE | ID: mdl-36111733

RESUMO

OBJECTIVE: Burdensome transitions are typically defined as having a transition in the last three days or multiple hospitalizations in the last three months of life, which is seldom verified with qualitative accounts from persons concerned. This study analyses types and frequencies of transitions in the last year of life and indicators of burdensome transitions from the perspective of bereaved relatives. METHOD: Cross-sectional explanatory mixed-methods study with 351 surveyed and 41 interviewed bereaved relatives in a German urban area. Frequencies, t-tests, and Spearman correlations were computed for quantitative data. Qualitative data were analyzed using content analysis with provisional and descriptive coding/subcoding. RESULTS: Transitions rise sharply during the last year of life. 8.2% of patients experience a transition in the last three days and 7.8% three or more hospitalizations in the last three months of life. An empathetic way of telling patients about the prospect of death is associated with fewer transitions in the last month of life (r = 0.185, p = 0.046). Professionals being aware of the preferred place of death corresponds to fewer hospitalizations in the last three months of life (1.28 vs. 0.97, p = 0.021). Qualitative data do not confirm that burden in transitions is linked to having transitions in the last three days or multiple hospitalizations in the last three months of life. Burden is associated with (1) late and non-empathetic communication about the prospect of death, (2) not coordinating care across settings, and (3) not considering patients' preferences. SIGNIFICANCE OF RESULTS: Time of occurrence and frequency appear to be imperfect proxies for burdensome transitions. The subjective burden seems to be associated rather with insufficient information, preparation, and management of transitions.


Assuntos
Assistência Terminal , Estudos Transversais , Hospitalização , Humanos , Assistência Terminal/métodos
4.
Eur J Cancer Care (Engl) ; 31(6): e13683, 2022 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-35993254

RESUMO

OBJECTIVE: The aim of the study is to examine differences in hospital care between patients with cancer and non-cancer conditions in their dying phase, perceived by bereaved relatives. METHODS: A retrospective cross-sectional post-bereavement survey, with the total population of 351 deceased, 91 cancer patients and 46 non-cancer patients, who spent their last 2 days of life in hospital. A validated German version of the VOICES-questionnaire ('VOICES-LYOL-Cologne') was used. RESULTS: There were substantial differences between the two groups in the rating of sufficient practical care such as pain relief or support to eat or drink (p = 0.005) and sufficient emotional care needs (p = 0.006) and in the quality of communication with healthcare professionals (p < 0.001), with non-cancer patients scoring lowest in all these dimensions. CONCLUSION: In all surveyed dimensions on the quality of care in the dying phase, non-cancer patients' relatives rated the provided care worse than those of cancer patients. To compensate any differences in care in the dying phase between diagnosis groups, hospital care should be provided as needs-oriented and non-indication-specific.


Assuntos
Luto , Neoplasias , Assistência Terminal , Humanos , Assistência Terminal/psicologia , Estudos Transversais , Família/psicologia , Estudos Retrospectivos , Hospitais , Inquéritos e Questionários , Neoplasias/psicologia , Cuidados Paliativos/psicologia
5.
Z Gerontol Geriatr ; 55(5): 381-387, 2022 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-35852588

RESUMO

BACKGROUND: Commercial conversational agents (CAs) bear the promise of low threshold accessibility for individuals with limited digital competencies. This applies not only for healthy aging older adults but also for specific subgroups such as those with life-long intellectual disabilities (ID). OBJECTIVE: This scoping review aims to synthesize the current evidence on benefits and challenges of CAs for older adults with and without ID. In doing so, we hope to inform future research as well as practical decision-making in the context of CAs as potential quality of life enhancers for older adults with various competence levels. MATERIAL AND METHODS: A literature search was conducted in form of a scoping review. A total of 841 publications were screened for benefits and challenges of CAs, resulting in an extraction of 18 articles targeting healthy aging older adults (60 years+) and 5 articles targeting older adults with ID (50 years+) for synthesis. RESULTS: The existing evidence suggests that CAs come with more benefits than challenges, e.g., general ease of use, easier information access, and feelings of companionship. Higher perceived agency due to using a CA seems to be a specific issue for older adults with ID. Challenges concern mostly learning how to use a CA and privacy concerns. CONCLUSION: The results indicate that CAs can serve as quality of life enhancers both in healthy aging adults and in older adults with ID; nevertheless, thoughtful preparation is necessary, especially in relation to learning needs, capabilities present and privacy concerns.


Assuntos
Deficiência Intelectual , Qualidade de Vida , Idoso , Comunicação , Atenção à Saúde , Humanos
6.
J Youth Adolesc ; 51(8): 1511-1535, 2022 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-35384532

RESUMO

Although acculturation is considered a mutual process, no measure assesses attitudes toward mutual acculturation. Through a novel four-dimensional measurement, this study addresses this research gap by assessing attitudes toward minority and majority acculturation and its relation to psychological adjustment for immigrant-background minority and non-immigrant majority adolescents in public secondary schools in three European countries: in Germany (n = 346, 46% female, Mage = 12.78 years, range 11-16), Greece (n = 439, 56% female, Mage = 12.29 years, range 11-20), and Switzerland (n = 375, 47% female, Mage = 12.67 years, range 11-15). Latent profile analyses led to three distinct acculturation profiles in all three countries: strong and mild mutual integration profiles, where both migrant and majority students are expected to integrate, and a third profile assuming lower responsibility upon the majority. Additionally, those in the strong- and mild-integration profiles reported stronger psychological adjustment than those assuming lower responsibility upon the majority, which held for all students in Switzerland and mostly for those without a migration background in Germany. The findings demonstrate the importance of a mutual acculturation framework for future research. Moreover, as most adolescents fit in with one of the mutual integration patterns, findings stress that no matter their migration background, adolescents favor mutual integration including the expectation on schools to enhance intercultural contact.


Assuntos
Aculturação , Emigrantes e Imigrantes , Adaptação Psicológica , Adolescente , Adulto , Atitude , Criança , Ajustamento Emocional , Feminino , Humanos , Masculino , Adulto Jovem
7.
Palliat Support Care ; : 1-9, 2022 Mar 10.
Artigo em Inglês | MEDLINE | ID: mdl-35264274

RESUMO

OBJECTIVES: Patients in their last year of life, as well as their relatives, often feel that existent care structures of the healthcare system do not adequately address their individual needs and challenges. This study analyzes unmet needs in terms of unsolved problems and unwanted decision-making in the health and social care of patients in their last year of life from the perspective of bereaved caregivers. METHODS: This qualitative study is based on free-text comments from informal caregivers of deceased patients collected as part of the Last-Year-of-Life-Study-Cologne (LYOL-C) using a postal survey. With qualitative content analysis, a category system with main and subcategories was developed in a multi-step process. RESULTS: Free-text commentaries and demographic data were collected from 240 bereaved caregivers. Particularly outside of hospice and palliative care services, study participants addressed the following unsolved problems: poor communication with medical and nursing staff, insufficient professional support for informal caregivers, inadequate psycho-social support for patients, and poor management of pain and other symptoms. Respondents often stated that their relative had to be cared for and die outside their own home, which the relative did not want. SIGNIFICANCE OF RESULTS: Our findings suggest the necessity for greater awareness of patients' and their relatives' needs in the last year of life. Addressing individual needs, integrating palliative and hospice care in acute hospitals and other healthcare structures, and identifying patients in their last year of life and their caregivers could help to achieve more targeted interventions and optimization of care.

8.
Support Care Cancer ; 30(6): 4971-4979, 2022 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-35190893

RESUMO

PURPOSE: To compare health care experiences of patients with cancer or non-cancer diseases in their last year of life. METHODS: A cross-sectional post-bereavement survey was conducted using an adapted German version of the VOICES questionnaire (VOICES-LYOL-Cologne). Differences in the reported experiences were assessed using a two-sided Pearson's chi-square test and Mann-Whitney U test. RESULTS: We collected data from 351 bereaved relatives. More than half of non-cancer patients were not informed that their disease could lead to death (p < 0.001). When this was communicated, in 46.7% of non-cancer and 64.5% of cancer patients, it was reported by the hospital doctor (p = 0.050). In all, 66.9% of non-cancer and 41.6% of cancer patients were not informed about death being imminent (p < 0.001). On average, non-cancer patients had significantly fewer transitions and hospital stays in their last year of life (p = 0.014; p = 0.008, respectively). Non-cancer patients were treated more often by general practitioners, and cancer patients were treated more often by specialists (p = 0.002; p = 0.002, respectively). A substantially lower proportion of non-cancer patients were treated by at least one member of or in the setting of general or specialized palliative care (p < 0.001). CONCLUSIONS: Non-cancer patients experience disadvantages in communication regarding their care and in access to specialized palliative care in their last year of life compared to cancer patients. Regarding the assessment of palliative care needs and the lack of communication of an incurable disease, non-cancer patients are underserved. An early identification of patients requiring palliative care is a major public health concern and should be addressed irrespective of diagnosis. TRIAL REGISTRATION: Prospectively registered by the German Clinical Trials Register (DRKS00011925, data of registration: 13.06.2017).


Assuntos
Luto , Neoplasias , Assistência Terminal , Estudos Transversais , Família , Humanos , Neoplasias/terapia , Cuidados Paliativos , Estudos Retrospectivos , Inquéritos e Questionários
9.
PLoS One ; 17(1): e0263089, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35085364

RESUMO

The present study investigated resilience profiles (based on levels of symptoms of anxiety and depression and five dimensions of protective factors) of 1,160 students from Germany (n = 346, 46.0% females, Mage = 12.77, SDage = 0.78), Greece (n = 439, 54.5% females, Mage = 12.68, SDage = 0.69), and Switzerland (n = 375, 44.5% females, Mage = 12.29, SDage = 0.88) using latent profile analyses. We also checked for measurement invariance and investigated the influence of gender and migration on class membership. A three-profile-solution was found for Switzerland (nonresilient 22.1%, moderately resilient 42.9%, untroubled 34.9%), and a four-profile-solution was the best fitting model for Germany (nonresilient 15.7%, moderately resilient 44.2%, untroubled 27.3%, resilient 12.7%) and Greece (nonresilient 21.0%, moderately resilient 30.8%, untroubled 24.9%, resilient 23.3%). Measurement invariance did not hold across the three countries. Profile differences regarding class membership predictions were detected for Germany and Greece, but none for Switzerland. Results implicate that resilience profiles are highly contextually sensitive, and resilience research findings should not be generalized considering the particularity of contexts, people, and outcomes.


Assuntos
Ansiedade , Depressão , Estudantes/psicologia , Adolescente , Ansiedade/epidemiologia , Ansiedade/etnologia , Ansiedade/psicologia , Criança , Depressão/epidemiologia , Depressão/etnologia , Depressão/psicologia , Etnicidade , Feminino , Alemanha/epidemiologia , Alemanha/etnologia , Grécia/epidemiologia , Grécia/etnologia , Humanos , Masculino , Fatores de Proteção , Fatores Sexuais , Suíça/epidemiologia , Suíça/etnologia
10.
J Health Organ Manag ; ahead-of-print(ahead-of-print)2021 Oct 22.
Artigo em Inglês | MEDLINE | ID: mdl-34672471

RESUMO

PURPOSE: The context in which an innovation is implemented is an important and often neglected mediator of change. A prospective payment system (PPS) for psychiatric and psychosomatic facilities with major implications for inpatient psychiatric care in Germany was implemented from 2013 to 2017. This study aims to examine the determinants of implementation of this government policy using the Diffusion of Innovations theory and consider the role of context. DESIGN/METHODOLOGY/APPROACH: An exploratory case study was conducted in two wards of a psychiatric hospital in Germany: geriatric psychiatry (GerP) and general psychiatry (GenP). Fifteen interviews were conducted with different occupational groups and analyzed in-depths. Routine hospital data were analyzed for delimiting the two contexts. FINDINGS: Routine hospital data show a higher day-mix index (1.08 vs. 0.94) in the GerP context and a very different structure regarding PPS groups, indicating a higher patient complexity. Two types of factors influencing implementation were identified: Context-independent factors included social separation between nurses and doctors, poor communication behavior between the groups and a lack of conveying information about the underlying principles of the PPS. Context-dependent factors included compatibility of the new requirements with existing routines and the relative advantage of the PPS, which were both perceived to be lower in the GerP context. PRACTICAL IMPLICATIONS: Depending on the patient characteristics in the specific context, compatibility with existing routines should be ensured when implementing. Clear communication of the underlying principles and reduction of organizational and communicative barriers between professional groups are crucial success factors for implementing such innovations. ORIGINALITY/VALUE: This study shows how a diffusion process takes place in an organization even after the organization adopts an innovation. The authors could show how contextual differences in terms of patient characteristics result in different determinants of implementation from the views of the employees affected by the innovation.


Assuntos
Sistema de Pagamento Prospectivo , Psiquiatria , Idoso , Governo , Hospitais Psiquiátricos , Humanos , Políticas
12.
Front Psychol ; 12: 619493, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33897529

RESUMO

The experience of stress is receiving increasing attention in the context of adolescent mental health, which is why a valid and reliable stress assessment instrument is of great importance. For this purpose, an English-language adolescent stress questionnaire (ASQ) was developed, which assesses the subjective stress experience of adolescents in different areas of life (e.g., at home, at school, and during leisure time). However, the latest long version of the questionnaire with 56 items (ASQ-2) was found to be too extensive, so a more economical short version ASQ-S with 27 items was developed. The aim of this study was to validate a German and a Greek version of the ASQ-S. In order to investigate the psychometric properties of the German and Greek ASQ-S confirmatory factor analysis, analyses of variance and correlations were applied to sample data from Switzerland, Germany, and Greece (N = 1,071 seventh-grade students; M age = 12.53; SD = 0.76). The results yielded only poor to moderate internal reliability across all three countries and the suggested 9-dimensional factor structure could not be confirmed. Instead, a modified 6-factor structure was tested which showed acceptable model fits while demonstrating form invariance across the three countries. Furthermore, the ASQ-S scales correlated positively with depressive symptoms and anxiety and negatively with self-esteem and life satisfaction, all of which supported adequate concurrent validity. The results revealed that the utility of the ASQ-S appears to be limited when translated to other languages and should be used with caution when administered in international contexts.

13.
Sensors (Basel) ; 21(4)2021 Feb 17.
Artigo em Inglês | MEDLINE | ID: mdl-33671216

RESUMO

The prediction of health disorders is the goal of many sensor systems in dairy farming. Although mastitis and lameness are the most common health disorders in dairy cows, these diseases or treatments are a rare event related to a single day and cow. A number of studies already developed and evaluated models for classifying cows in need of treatment for mastitis and lameness with machine learning methods, but few have illustrated the effects of the positive predictive value (PPV) on practical application. The objective of this study was to investigate the importance of low-frequency treatments of mastitis or lameness for the applicability of these classification models in practice. Data from three German dairy farms contained animal individual sensor data (milkings, activity, feed intake) and were classified using machine learning models developed in a previous study. Subsequently, different risk criteria (previous treatments, information from milk recording, early lactation) were designed to isolate high-risk groups. Restricting selection to cows with previous mastitis or hoof treatment achieved the highest increase in PPV from 0.07 to 0.20 and 0.15, respectively. However, the known low daily risk of a treatment per cow remains the critical factor that prevents the reduction of daily false-positive alarms to a satisfactory level. Sensor systems should be seen as additional decision-support aid to the farmers' expert knowledge.


Assuntos
Criação de Animais Domésticos/instrumentação , Doenças dos Bovinos/diagnóstico , Indústria de Laticínios , Coxeadura Animal/diagnóstico , Mastite/diagnóstico , Animais , Bovinos , Fazendas , Feminino , Lactação , Leite
14.
BMC Health Serv Res ; 21(1): 147, 2021 Feb 15.
Artigo em Inglês | MEDLINE | ID: mdl-33588851

RESUMO

BACKGROUND: Little is known about the nature of patients' transitions between healthcare settings in the last year of life (LYOL) in Germany. Patients often experience transitions between different healthcare settings, such as hospitals and long-term facilities including nursing homes and hospices. The perspective of healthcare professionals can therefore provide information on transitions in the LYOL that are avoidable from a medical perspective. This study aims to explore factors influencing avoidable transitions across healthcare settings in the LYOL and to disclose how these could be prevented. METHODS: Two focus groups (n = 11) and five individual interviews were conducted with healthcare professionals working in hospitals, hospices and nursing services from Cologne, Germany. They were asked to share their observations about avoidable transitions in the LYOL. The data collection continued until the point of information power was reached and were audio recorded and analysed using qualitative content analysis. RESULTS: Four factors for potentially avoidable transitions between care settings in the LYOL were identified: healthcare system, organization, healthcare professional, patient and relatives. According to the participants, the most relevant aspects that can aid in reducing unnecessary transitions include timely identification and communication of the LYOL; consideration of palliative care options; availability and accessibility of care services; and having a healthcare professional taking main responsibility for care planning. CONCLUSIONS: Preventing avoidable transitions by considering the multicomponent factors related to them not only immediately before death but also in the LYOL could help to provide more value-based care for patients and improving their quality of life.


Assuntos
Transferência de Pacientes , Melhoria de Qualidade , Qualidade de Vida , Feminino , Alemanha/epidemiologia , Humanos , Pesquisa Qualitativa , Fatores de Risco , Assistência Terminal
15.
Omega (Westport) ; 84(1): 157-176, 2021 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31615342

RESUMO

Some end-of-life aspects have become a significant political and social issue such as elderly care and euthanasia. But hardly anything is known about how the general public in Germany thinks about death and dying more generally. Therefore, we conducted a representative online survey (N = 997) regarding 21 end-of-life aspects. Differences between subgroups were analyzed by conducting analyses of variance and Tukey honestly significance difference post hoc tests and by performing t tests. The findings revealed that the general public is open to engaging with topics of death, dying, and grief and that death education might even be promoted for children. Most participants appraised dealing with the finitude of life as part of a good life, but few have contemplated death and dying themselves so far. Attitudes and perceptions were related to age, subjective health, religious denomination, and gender. The survey provides useful implications for community palliative care, death education, and communication with dying people.


Assuntos
Atitude Frente a Morte , Assistência Terminal , Idoso , Criança , Alemanha , Pesar , Humanos , Percepção , Inquéritos e Questionários
16.
BMJ Open ; 10(11): e035988, 2020 11 24.
Artigo em Inglês | MEDLINE | ID: mdl-33234614

RESUMO

OBJECTIVES: To set up a pragmatic Plan-Do-Study-Act cycle by analysing patient experiences and determinants of satisfaction with care in the last year of life. DESIGN: Cross-sectional postbereavement survey. SETTING: Regional health services research and development structure representing all health and social care providers involved in the last year of life in Cologne, a city with 1 million inhabitants in Germany. PARTICIPANTS: 351 bereaved relatives of adult decedents, representative for age and gender, accidental and suspicious deaths excluded. RESULTS: For the majority (89%) of patients, home was the main place of care during their last year of life. Nevertheless, 91% of patients had at least one hospital admission and 42% died in hospital. Only 60% of informants reported that the decedent had been told that the disease was leading to death. Hospital physicians broke the news most often (58%), with their communication style often (30%) being rated as 'not sensitive'. Informants indicated highly positive experiences with care provided by hospices (89% 'good') and specialist palliative home care teams (87% 'good'). This proportion dropped to 41% for acute care hospitals, this rating being determined by the feeling of not being treated with respect and dignity (OR=23.80, 95% CI 7.503 to 75.498) and the impression that hospitals did not work well together with other services (OR=8.37, 95% CI 2.141 to 32.71). CONCLUSIONS: Following those data, our regional priority for action now is improvement of care in acute hospitals, with two new projects starting, first, how to recognise and communicate a limited life span, and second, how to improve care during the dying phase. Results and further improvement projects will be discussed in a working group with the city of Cologne, and repeating this survey in 2 years will be able to measure regional achievements. TRIAL REGISTRATION NUMBER: DRKS00011925.


Assuntos
Cuidados Paliativos na Terminalidade da Vida , Assistência Terminal , Adulto , Criança , Estudos Transversais , Feminino , Alemanha , Humanos , Masculino , Cuidados Paliativos , Inquéritos e Questionários
17.
BMC Palliat Care ; 19(1): 177, 2020 Nov 24.
Artigo em Inglês | MEDLINE | ID: mdl-33234117

RESUMO

BACKGROUND: Providing patient-centered care (PCC) during the last year of life (LYOL) can be challenging due to the complexity of the patients' medical, social and psychological needs, especially in case of chronic illnesses. Assessing PCC can be helpful in identifying areas for improvements. Since not all patients can be surveyed, a questionnaire for proxy informants was developed in order to retrospectively assess patient-centeredness in care during the whole LYOL. This study aimed to evaluate the feasibility and validity of an adapted version of the German Patient Assessment of Chronic Illness Care (PACIC) for surveying bereaved persons in order to assess PCC during the decedents' LYOL. METHODS: The German PACIC short form (11 items) was adapted to a nine-item version for surveying bereaved persons on the decedent's LYOL (PACIC-S9-Proxy). Items were rated on a five-point Likert scale. The PACIC adaptation and validation was part of a cross-sectional survey in the region of Cologne. Participants were recruited through self-selection and active recruitment by practice partners. Sociodemographic characteristics and missing data were analyzed using descriptive statistics. An exploratory factor analysis was conducted in order to assess the structure of the PACIC-S9-Proxy. Internal consistency was estimated using Cronbach's alpha. RESULTS: Of the 351 informants who participated in the survey, 230 (65.52%) considered their decedent to have suffered from chronic illness prior to death. 193 of these informants (83.91%) completed ≥5 items of the questionnaire and were included in the analysis. The least answered item was item (74.09%) was item 4 (encouragement to group & classes for coping). The most frequently answered item (96.89%) was item 2 (satisfaction with care organization). Informants rated the item" Given a copy of their treatment plan" highest (mean 3.96), whereas "encouragement to get to a specific group or class to cope with the condition" (mean 1.74) was rated lowest. Cronbach's alpha was 0.84. A unidimensional structure of the questionnaire was found (Kaiser-Meyer-Olkin 0.86, Bartlett's test for sphericity p < 0.001), with items' factor loadings ranging from 0.46 to 0.82. CONCLUSIONS: The nine-item questionnaire can be used as efficient tool for assessing PCC during the LYOL retrospectively and by proxies. TRIAL REGISTRATION: The study was registered in the German Clinical Trials Register ( DRKS00011925 ) on 13 June 2017.


Assuntos
Adaptação Psicológica , Luto , Assistência Centrada no Paciente/métodos , Psicometria/normas , Adulto , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Feminino , Alemanha , Humanos , Masculino , Pessoa de Meia-Idade , Assistência Centrada no Paciente/tendências , Procurador/psicologia , Procurador/estatística & dados numéricos , Psicometria/instrumentação , Psicometria/métodos , Estudos Retrospectivos , Inquéritos e Questionários
18.
Sensors (Basel) ; 20(14)2020 Jul 10.
Artigo em Inglês | MEDLINE | ID: mdl-32664417

RESUMO

The aim of this study was to develop classification models for mastitis and lameness treatments in Holstein dairy cows as the target variables based on continuous data from herd management software with modern machine learning methods. Data was collected over a period of 40 months from a total of 167 different cows with daily individual sensor information containing milking parameters, pedometer activity, feed and water intake, and body weight (in the form of differently aggregated data) as well as the entered treatment data. To identify the most important predictors for mastitis and lameness treatments, respectively, Random Forest feature importance, Pearson's correlation and sequential forward feature selection were applied. With the selected predictors, various machine learning models such as Logistic Regression (LR), Support Vector Machine (SVM), K-nearest neighbors (KNN), Gaussian Naïve Bayes (GNB), Extra Trees Classifier (ET) and different ensemble methods such as Random Forest (RF) were trained. Their performance was compared using the receiver operator characteristic (ROC) area-under-curve (AUC), as well as sensitivity, block sensitivity and specificity. In addition, sampling methods were compared: Over- and undersampling as compensation for the expected unbalanced training data had a high impact on the ratio of sensitivity and specificity in the classification of the test data, but with regard to AUC, random oversampling and SMOTE (Synthetic Minority Over-sampling) even showed significantly lower values than with non-sampled data. The best model, ET, obtained a mean AUC of 0.79 for mastitis and 0.71 for lameness, respectively, based on testing data from practical conditions and is recommended by us for this type of data, but GNB, LR and RF were only marginally worse, and random oversampling and SMOTE even showed significantly lower values than without sampling. We recommend the use of these models as a benchmark for similar self-learning classification tasks. The classification models presented here retain their interpretability with the ability to present feature importances to the farmer in contrast to the "black box" models of Deep Learning methods.


Assuntos
Coxeadura Animal/diagnóstico , Coxeadura Animal/terapia , Aprendizado de Máquina , Mastite/diagnóstico , Mastite/terapia , Animais , Teorema de Bayes , Bovinos , Indústria de Laticínios , Feminino , Leite , Sensibilidade e Especificidade
19.
Rehabil Psychol ; 65(3): 299-310, 2020 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-32437189

RESUMO

PURPOSE: In the context of geriatric rehabilitation, 2 quality of life (QoL) facets are of particular importance: a behavioral, more objective facet, and an emotional, more subjective facet. This study looked at changes in these 2 QoL facets during rehabilitation, their relationship to each other and potential mediating processes. DESIGN: Ninety-two geriatric patients were assessed by the geriatric assessment and a structured face-to-face interview at admission to and discharge from an inpatient geriatric rehabilitation ward. Behavioral QoL was measured in terms of independence in the activities of daily living and mobile abilities, while positive and negative affect represented emotional QoL. As potential mediators, self-perceptions of health (self-rated health, subjective pain, temporal health comparison) were assessed. Statistical analysis comprised repeated-measures (multivariate) analyses of variance as well as regression and mediation analyses based upon a fixed effects-panel model. RESULTS: All behavioral and emotional QoL indicators showed significant prepost improvements. During rehabilitation, changes in behavioral QoL were significantly related to changes in emotional QoL. Multiple regression of changes in emotional QoL on changes in behavioral QoL and in self-perceptions of health revealed, however, that only health perceptions significantly predicted emotional QoL. Mediation analysis showed that self-perceptions of health fully mediated the relationship between behavioral and emotional QoL outcomes. CONCLUSIONS: During geriatric rehabilitation, significant progress can be made regarding QoL. The results indicate that the influence of physical progress on affective improvements is conveyed through self-perceptions of health, showing the importance of self-perceptions of health for emotional QoL in geriatric rehabilitation. (PsycInfo Database Record (c) 2020 APA, all rights reserved).


Assuntos
Emoções , Pacientes Internados/psicologia , Qualidade de Vida/psicologia , Atividades Cotidianas , Idoso , Idoso de 80 Anos ou mais , Depressão/psicologia , Feminino , Avaliação Geriátrica , Alemanha , Humanos , Masculino , Dor/psicologia
20.
Res Aging ; 42(5-6): 163-173, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32167019

RESUMO

This study examines technology adoption among oldest-old cohorts (80+) in private homes and long-term care facilities and analyzes relationships between individual characteristics, the living environment, and different kinds of assistive technologies (AT) and information and communication technologies (ICT). The data analysis is based on a representative survey of the oldest-old group's quality of life and well-being in North Rhine-Westphalia, Germany (N = 1,863; age range: 80-103; 12.7% long-term care). Descriptive and multiple binary logistic regression analyses were conducted. Fewer than 3% of people in long-term care used internet-connected ICT devices. AT and ICT device adoption is associated with the living environment and individual characteristics (e.g., functional health, chronological age, education, and technology interest), and different patterns of ICT and AT use can be observed. These results indicate that individual characteristics and the living environment are both decisive in the use of technology among the oldest-old group.


Assuntos
Tecnologia da Informação/estatística & dados numéricos , Tecnologia Assistiva/estatística & dados numéricos , Idoso de 80 Anos ou mais , Estudos de Coortes , Feminino , Alemanha , Humanos , Vida Independente/estatística & dados numéricos , Assistência de Longa Duração/estatística & dados numéricos , Masculino , Inquéritos e Questionários
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