Discerning Disparities: The Data Gap.

Health disparities that focus on gender and on the ancillary dependent variables of race and ethnicity reflect continually early illness, compromised quality of life, and often premature and preventable deaths. The inability of the nation to eliminate disparities also track along race and gender in communities where a limited number of health-care providers and policymakers identify as being from these traditionally underserved and marginalized population groups. Epidemiologists and other researchers and analysts have traditionally failed to integrate the social determinants of health and other variables known to support upward mobility in their predictive analyses of health status. The poor, and poor men of color particularly, begin a descent to invisibility and separation that has been witnessed since the early days of this nation. This history has the majority of men of color mired in poverty or near poverty and has more substantively and explicitly affected both American Indians and Africans forced into immigration into the United States and into slavery. Other racial and ethnic groups including large distinct ethnic groups of Asian Americans and Hispanics/Latinx do not have their treatment by systems fully reported from a health and social justice perspective simply because the systems do not disaggregate by race and ethnicity. It is axiomatic that examining disparities through the lens of race, ethnicity, and gender provides a unique opportunity to reflect upon what is known about boys' and men's health, particularly men from communities of color, and about payment systems. Integration of all populations into the enumeration of morbidity, mortality, and disparity indices is a dynamic reflection of the vision and exclusive actions of decision makers.

Developing the community empowered research training program: building research capacity for community-initiated and community-driven research.

UNLABELLED: Health promotion practice research conducted by or in partnership with community-based organizations (CBOs) serving Asian Americans, Native Hawaiians, and Pacific Islanders (AA and NHPI) can address health disparities. Few CBOs have the tools to integrate or initiate research into their programmatic agenda. The New York University (NYU) Center for the Study of Asian American Health (CSAAH) and the Asian & Pacific Islander American Health Forum (APIAHF) created a partnership with the goal to support CBO research infrastructure development by creating the Community Empowered Research Training (CERT) program. METHODS: A survey was conducted and discussions held with CBO leaders representing AA and NHPI communities to inform the development of the CERT program. RESULTS: The majority of participants are engaged in service-related research and reported interest in building their research capacity. CBOs may require help reframing how data can be collected and used to better inform programmatic activities and to address health disparities facing AA and NHPI communities. CONCLUSIONS: CBOs possess both an interest in and access to local knowledge that can inform health priorities. Findings have been applied to the CERT program to build capacity to support community-initiated/driven research to address health disparities affecting AAs and NHPIs.

Role of federal policy in building research infrastructure among emerging minorities: the Asian American experience.

PROBLEM: Considerable progress in Asian American health research has occurred over the last two decades. However, greater and sustained federal support is needed for reducing health disparities in Asian American communities. PURPOSE OF THE ARTICLE: This paper reviews federal policies that support infrastructure to conduct minority health research and highlights one model for strengthening research capacity and infrastructure in Asian American communities. KEY POINTS: Research center infrastructures can play a significant role in addressing pipeline/workforce challenges, fostering campus-community research collaborations, engaging communities in health, disseminating evidence-based strategies and health information, and policy development. CONCLUSION: Research centers provide the capacity needed for academic institutions and communities to work together synergistically in achieving the goal to reduce health disparities in the Asian American community. Policies that support the development of concentrated and targeted research for Asian Americans must continue so that these centers will reach their full potential.

Transforming the delivery of care in the post-health reform era: what role will community health workers play?

The Patient Protection and Affordable Care Act (PPACA) affords opportunities to sustain the role of community health workers (CHWs). Among myriad strategies encouraged by PPACA are prevention and care coordination, particularly for chronic diseases, chief drivers of increased health care costs. Prevention and care coordination are functions that have been performed by CHWs for decades, particularly among underserved populations. The two key delivery models promoted in the PPACA are accountable care organizations and health homes. Both stress the importance of interdisciplinary, interprofessional health care teams, the ideal context for integrating CHWs. Equally important, the payment structures encouraged by PPACA to support these delivery models offer the vehicles to sustain the role of these valued workers.

Methodological issues in the collection, analysis, and reporting of granular data in Asian American populations: historical challenges and potential solutions.

There are close to 15 million Asian Americans living in the United States, and they represent the fastest growing populations in the country. By the year 2050, there will be an estimated 33.4 million Asian Americans living in the country. However, their health needs remain poorly understood and there is a critical lack of data disaggregated by Asian American ethnic subgroups, primary language, and geography. This paper examines methodological issues, challenges, and potential solutions to addressing the collection, analysis, and reporting of disaggregated (or, granular) data on Asian Americans. The article explores emerging efforts to increase granular data through the use of innovative study design and analysis techniques. Concerted efforts to implement these techniques will be critical to the future development of sound research, health programs, and policy efforts targeting this and other minority populations.

Vulnerable populations, prison, and federal and state Medicaid policies: avoiding the loss of a right to care.

Unknown numbers of incarcerated people are losing public benefits. Instead of suspending these until the prisoner or detainee is released into society, some states are simply terminating benefits upon incarceration. Although there is evidence to suggest that this policy is having negative consequences for those who are reentering society and on their communities and systems of care, the precise impact is not clear because a systematic monitoring of these actions is nonexistent. A more efficient system would (a) suspend benefits and automatically reinstate the same to those eligible upon release and (b) establish a monitoring mechanism that would provide an accurate accounting of how these benefits are being applied.

Lack of oral health care for adults in harlem: a hidden crisis.

OBJECTIVES: Profound and growing disparities exist in oral health among certain US populations. We sought here to determine the prevalence of oral health complaints among Harlem adults by measures of social class, as well as their access to oral health care. METHODS: A population-based survey of adults in Central Harlem was conducted from 1992 to 1994. Two questions on oral health were included: whether participants had experienced problems with their teeth or gums during the past 12 months and, if so, whether they had seen a dentist. RESULTS: Of 50 health conditions queried about, problems with teeth or gums were the chief complaint among participants (30%). Those more likely to report oral health problems than other participants had annual household incomes of less than $9000 (36%), were unemployed (34%), and lacked health insurance (34%). The privately insured were almost twice as likely to have seen a dentist for oral health problems (87%) than were the uninsured (48%). CONCLUSIONS: There is an urgent need to provide oral health services for adults in Harlem. Integrating oral health into comprehensive primary care is one promising mechanism.

A "health commons" approach to oral health for low-income populations in a rural state.

Oral health needs are urgent in rural states. Creative, broad-based, and collaborative solutions can alleviate these needs. "Health commons" sites are enhanced, community-based, primary care safety net practices that include medical, behavioral, social, public, and oral health services. Successful intervention requires a comprehensive approach, including attention to enhancing dental service capacity, broadening the scope of the dental skills of locally available providers, expanding the pool of dental providers, creating new interdisciplinary teams in enhanced community-based sites, and developing more comprehensive oral health policy. By incorporating oral health services into the health commons primary care model, access for uninsured and underserved populations is increased. A coalition of motivated stakeholders includes community leaders, safety net providers, legislators, insurers, and medical, dental, and public health providers.