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1.
JMIR Aging ; 6: e45859, 2023 Aug 24.
Artigo em Inglês | MEDLINE | ID: mdl-37616032

RESUMO

BACKGROUND: Informal caregivers of people with dementia frequently experience chronic insomnia, contributing to stress and poor health outcomes. Rural caregivers are particularly vulnerable but have limited access to cognitive behavioral therapy for insomnia (CBT-I), a recommended frontline treatment for chronic insomnia. Web-based delivery promises to improve insomnia, particularly for rural caregivers who have limited access to traditional in-person treatments. Our team translated an efficacious 4-session standard CBT-I content protocol into digital format to create NiteCAPP. OBJECTIVE: This study aimed to (1) adapt NiteCAPP for dementia caregivers to create NiteCAPP CARES, a tailored digital format with standard CBT-I content plus caregiver-focused modifications; (2) conduct usability testing and evaluate acceptability of NiteCAPP CARES' content and features; and (3) pilot-test the adapted intervention to evaluate feasibility and preliminary effects on sleep and related health outcomes. METHODS: We followed Medical Research Council recommendations for evaluating complex medical interventions to explore user needs and adapt and validate content using a stepwise approach: (1) a rural dementia caregiver (n=5) and primary care provider (n=5) advisory panel gave feedback that was used to adapt NiteCAPP; (2) caregiver (n=5) and primary care provider (n=7) focus groups reviewed the newly adapted NiteCAPP CARES and provided feedback that guided further adaptations; and (3) NiteCAPP CARES was pilot-tested in caregivers (n=5) for feasibility and to establish preliminary effects. Self-report usability measures were collected following intervention. Before and after treatment, 14 daily electronic sleep diaries and questionnaires were collected to evaluate arousal, health, mood, burden, subjective cognition, and interpersonal processes. RESULTS: The stepped approach provided user and expert feedback on satisfaction, usefulness, and content, resulting in a new digital CBT-I tailored for rural dementia caregivers: NiteCAPP CARES. The advisory panel recommended streamlining content, eliminating jargon, and including caregiver-focused content. Focus groups gave NiteCAPP CARES high usefulness ratings (mean score 4.4, SD 0.79, scored from 1=least to 5=most favorable; score range 4.2-4.8). Multiple features were evaluated positively, including the intervention's comprehensive and engaging information, caregiver focus, good layout, easy-to-access intervention material, and easy-to-understand sleep graphs. Suggestions for improvement included the provision of day and night viewing options, collapsible text, font size options, tabbed access to videos, and a glossary of terms. Pilot-test users rated usefulness (mean score 4.3, SD 0.83; range 4.1-4.5) and satisfaction (mean score 8.4, SD 1.41, scored from 1=least to 10=most satisfied; range 7.4-9.0) highly. Preliminary effects on caregiver sleep, arousal, health, mood, burden, cognition, and interpersonal processes (all P<.05) were promising. CONCLUSIONS: Adaptations made to standard digital CBT-I created a feasible, tailored digital intervention for rural dementia caregivers. Important next steps include further examination of feasibility and efficacy in a randomized controlled trial with an active control condition, a multisite effectiveness trial, and eventual broad dissemination. TRIAL REGISTRATION: ClinicalTrials.gov NCT04632628; https://clinicaltrials.gov/ct2/show/NCT04632628.

2.
JMIR Res Protoc ; 11(6): e37874, 2022 Jun 14.
Artigo em Inglês | MEDLINE | ID: mdl-35700020

RESUMO

BACKGROUND: Chronic insomnia affects up to 63% of family dementia caregivers. Research suggests that chronic insomnia prompts changes in central stress processing that have downstream negative effects on health and mood, as well as on cognitive, inflammatory, and neurodegenerative functioning. We hypothesize that cognitive behavioral therapy for insomnia (CBT-I) will reverse those downstream effects by improving insomnia and restoring healthy central stress processing. Rural caregivers are particularly vulnerable, but they have limited access to CBT-I; therefore, we developed an accessible digital version using community input (NiteCAPP CARES). OBJECTIVE: This trial will evaluate the acceptability, feasibility, and short-term and long-term effects of NiteCAPP CARES on the sleep and stress mechanisms underlying poor caregiver health and functioning. METHODS: Dyads (n=100) consisting of caregivers with chronic insomnia and their coresiding persons with dementia will be recruited from Columbia and surrounding areas in Missouri, United States. Participant dyads will be randomized to 4 weeks (plus 4 bimonthly booster sessions) of NiteCAPP CARES or a web-based sleep hygiene control (NiteCAPP SHARES). Participants will be assessed at baseline, after treatment, and 6- and 12-month follow-ups. The following assessments will be completed by caregivers: 1 week of actigraphy and daily diaries measuring sleep, Insomnia Severity Index, arousal (heart rate variability), inflammation (blood-derived biomarkers: interleukin-6 and C-reactive protein), neurodegeneration (blood-derived biomarkers: plasma amyloid beta [Aß40 and Aß42], total tau, and phosphorylated tau [p-tau181 and p-tau217]), cognition (Joggle battery, NIH Toolbox for Assessment of Neurological and Behavioral Function, and Cognitive Failures Questionnaire), stress and burden, health, and mood (depression and anxiety). Persons with dementia will complete 1 week of actigraphy at each time point. RESULTS: Recruitment procedures started in February 2022. All data are expected to be collected by 2026. Full trial results are planned to be published by 2027. Secondary analyses of baseline data will be subsequently published. CONCLUSIONS: This randomized controlled trial tests NiteCAPP CARES, a web-based CBT-I for rural caregivers. The knowledge obtained will address not only what outcomes improve but also how and why they improve and for how long, which will help us to modify NiteCAPP CARES to optimize treatment potency and support future pragmatic testing and dissemination. TRIAL REGISTRATION: ClinicalTrials.gov NCT04896775; https://clinicaltrials.gov/ct2/show/NCT04896775. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/37874.

3.
J Cogn Psychother ; 36(1): 3-23, 2022 02 01.
Artigo em Inglês | MEDLINE | ID: mdl-35121676

RESUMO

Cognitive behavioral therapy for Insomnia (CBT-I) is the gold standard treatment for insomnia. There is limited access to qualified providers to deliver CBT-I; moreover, there are patient populations who struggle with access to insomnia care due to limited time and resources. This includes caregivers for persons with Alzheimer's disease, for whom sleep disturbance is a common concern. Utilizing telehealth to deliver CBT-I may be particularly important for vulnerable populations such as caregivers of persons with dementia, as it can offer an accessible, safe, and cost-effective treatment option that can be tailored to meet the needs of a specific population. This case study illustrates the successful implementation of a four-session CBT-I protocol through telehealth with a caregiver of a person with Alzheimer's disease. Given the success of this case and the conditions for psychological care the recent pandemic has created, continued research into the efficacy of sleep-related interventions through telehealth is warranted.


Assuntos
Doença de Alzheimer , Terapia Cognitivo-Comportamental , Distúrbios do Início e da Manutenção do Sono , Telemedicina , Doença de Alzheimer/psicologia , Doença de Alzheimer/terapia , Cuidadores/psicologia , Cognição , Terapia Cognitivo-Comportamental/métodos , Humanos , Distúrbios do Início e da Manutenção do Sono/terapia , Telemedicina/métodos
4.
BMC Res Notes ; 12(1): 557, 2019 Sep 03.
Artigo em Inglês | MEDLINE | ID: mdl-31481129

RESUMO

BACKGROUND: Excessive and patterned ambulation is associated with falls, urinary tract infections, co-occurring delirium and other acute events among long-term care residents with cognitive impairment/dementia. This study will test a predictive longitudinal data model that may lead to the preservation of function of this vulnerable population. METHODS/DESIGN: This is a single group, longitudinal study with natural observations. Data from a real-time locating system (RTLS) will be used to objectively and continuously measure ambulation activity for up to 2 years. These data will be combined with longitudinal acute event and functional status data to capture patterns of change in health status over time. Theory-driven multilevel models will be used to test the trajectories of falls and other acute conditions as a function of the ambulation activity and demographic, functional status, gait quality and balance ability including potential mediation and/or moderation effects. Data-driven machine learning algorithms will be applied to run screening of the high dimensional RTLS data together with other variables to discover new and robust predictors of acute events. DISCUSSION: The findings from this study will lead to the early identification of older adults at risk for falls and the onset of acute medical conditions and interventions for individualized care.


Assuntos
Disfunção Cognitiva/fisiopatologia , Demência/fisiopatologia , Assistência de Longa Duração , Modelos Teóricos , Projetos de Pesquisa , Caminhada/fisiologia , Adulto , Humanos , Estudos Longitudinais , Tamanho da Amostra
5.
J Gerontol B Psychol Sci Soc Sci ; 71(3): 458-62, 2016 May.
Artigo em Inglês | MEDLINE | ID: mdl-25429026

RESUMO

OBJECTIVES: Understanding predictors of older dementia caregivers' mood could provide insight into potential treatments which may delay institutionalization of their care recipient. Research with older noncaregivers has shown that nights characterized by better subjective sleep were associated with days characterized by higher positive and lower negative affect, and vice versa. Examining daily relationships is important, as sleep and affect are state-like behaviors that fluctuate within individuals, across time. This study was a preliminary examination of whether a sample with a greater proportion of older dementia caregivers exhibits similar daily sleep/affect associations. METHODS: Sleep diaries, actigraphy, and affect data were collected concurrently for 7 days in 55 community-dwelling, dementia caregivers (M = 62.80 years, SD = 12.21; 77.8% female). Sleep and affect were examined within- (day-to-day level) and between-persons (mean level). RESULTS: Findings for older noncaregivers were replicated for negative affect only. Specifically, nights characterized by better subjective sleep were characterized by lower negative affect, and vice versa. DISCUSSION: Examining older caregivers' daily sleep/affect association is important, because caregiving-related awakenings are unavoidable, often unpredictable, and can impact mood. Future research is needed to examine whether regularization in awakenings and/or negative affect represent important secondary, or even target, treatment outcomes for this vulnerable population.


Assuntos
Afeto , Doença de Alzheimer/psicologia , Cuidadores/psicologia , Privação do Sono/psicologia , Distúrbios do Início e da Manutenção do Sono/psicologia , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Institucionalização , Masculino , Pessoa de Meia-Idade , Estatística como Assunto , Vigília
6.
Adv Neonatal Care ; 15(6): 429-39; quiz E1-2, 2015 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-26308605

RESUMO

BACKGROUND: Severe irritability in infants with neonatal abstinence syndrome often impacts their ability to feed successfully, which challenges a mother's ability to demonstrate this most basic parenting skill. There is little empiric evidence to guide recommendations for practice in this population. PURPOSE: Describe the infant behaviors that disrupt feeding in infants with neonatal abstinence syndrome. METHODS: A mixed-method approach was used to describe digitally recorded infant feeding behaviors. Qualitative methodology was first used to identify categories of behaviors during the feeding. The categories were used as a coding scheme to identify the temporal sequence, duration, and frequency of behaviors observed during a feeding. RESULTS: The behavior categories that disrupted feeding were identified as fussing, resting, crying, and sleeping/sedated. Infants spent almost twice as much time in fussing as in feeding. The majority of the infants were fussing between 1 and 11 minutes during the feeding, and fussing disrupted feeding in every subject at least once. Feeding behavior occurred only 24% of the time, while fussing and crying occurred 51%. Fussing was the primary transitional behavior from one category to another. Infants who did not complete their feeding had nearly twice the mean number of fussing episodes as those who completed their feeding. IMPLICATIONS FOR PRACTICE: Fussing is a transitional state and appears to provide an opportunity to test interventions that help the mothers re-engage their infants in feeding. The frequency of the behavioral transitions provides a measure of irritability that has not been previously described in this population. IMPLICATIONS FOR RESEARCH: Additional study is needed to evaluate the impact and contributions of maternal behaviors and external variables on infant behavioral transition.


Assuntos
Comportamento Alimentar/psicologia , Comportamento do Lactente/psicologia , Síndrome de Abstinência Neonatal/psicologia , Comportamento Problema , Adulto , Choro , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Morfina/administração & dosagem , Transtornos Relacionados ao Uso de Opioides/psicologia , Sono , Adulto Jovem
7.
Res Gerontol Nurs ; 8(5): 220-30, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25893725

RESUMO

The most commonly used functional status (FS) instruments were examined to determine the validity, reliability, sensitivity, and specificity to change and feasibility in residents in an assisted living facility (ALF). Twenty-six ALF residents were assessed weekly for up to 8 months using six instruments. Group and single-subject analyses were used to examine associations between instruments and acute events. Two were problematic initially (Katz Index of Independence in Activities of Daily Living and hand grip) and were excluded early in the study. Of the remaining instruments, only the Barthel Index and Resident Assessment Instrument had acceptable psychometric profiles. However, these instruments were either not feasible in this environment or did not capture the full range of FS in this population. The current study's findings suggest that instruments commonly used to measure FS may be inadequate for this population and environment. These findings may be used to develop assessment methods for ALF residents that capture both the full range of FS in ALF settings as well as acute and long-term changes in functioning.


Assuntos
Moradias Assistidas , Avaliação Geriátrica , Indicadores Básicos de Saúde , Atividades Cotidianas , Idoso , Idoso de 80 Anos ou mais , Feminino , Força da Mão , Humanos , Masculino , Psicometria/instrumentação , Reprodutibilidade dos Testes
8.
Int J Older People Nurs ; 10(1): 14-26, 2015 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-24433320

RESUMO

BACKGROUND: Worldwide, there are more than 35 million individuals diagnosed with Alzheimer's disease. Many of these individuals are cared for at home by unpaid caregivers who often report high levels of depressive symptoms and depression. The majority of studies conducted to predict which caregivers are at risk for depression have examined non-modifiable risk factors. Therefore, it is important to discover modifiable factors that may be associated with risk for depression in caregivers. OBJECTIVES: The aims of this research were to identify a set of factors that are modifiable and known to be associated with high levels of depression/depressive symptomology (D/DS) in other populations and to determine whether these factors are predictive of D/DS after controlling for non-modifiable, demographic, and clinical factors. DESIGN: Secondary data analysis. METHODS: Fifty-three participants provided direct care to a person with dementia with night-time activity. Inclusion criteria included not undergoing treatment for sleep disorders; living with the care recipient; and a Mini-Mental Status Exam score > 27. Baseline data collected by questionnaires, sleep diary and actigraphy. RESULTS: In multivariate analyses of the modifiable factors, only high levels of negative affect predicted higher levels of depressive symptomatology. When non-modifiable factors were included in the model, negative affect and high levels of perceived caregiver burden predicted 52.6% of the variance in depressive symptomology. In secondary analyses, wake after sleep onset misperception was associated with higher depression scores. CONCLUSIONS: While negative affect had a moderate effect on depressive symptoms, modifiable factors often associated with depressive symptoms in other studies were not associated with caregiver depression in this study. Possibly caregivers' overall poor sleep causes a floor effect and masks a potential relationship. IMPLICATIONS FOR PRACTICE: Both caregivers' affect and perceived burden are strongly related to depressive symptoms, so healthcare practitioners need to frequently assess both so as to provide timely interventions.


Assuntos
Cuidadores/psicologia , Demência/enfermagem , Depressão/epidemiologia , Actigrafia , Adulto , Afeto , Idoso , Idoso de 80 Anos ou mais , Humanos , Pessoa de Meia-Idade , Fatores de Risco , Sono , Inquéritos e Questionários
9.
J Gerontol Nurs ; 39(10): 16-21, 2013 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-24015886

RESUMO

Many functions that nurses carry out require the use of various technologies, yet nurses are rarely involved in the development and/or testing of technology. The purpose of this article is to provide an introduction to the world of technology development to help nurses understand how to become involved in this endeavor. An illustration of a newly developed technology will be used to further clarify the steps.


Assuntos
Criatividade , Empreendedorismo , Enfermeiras e Enfermeiros , Idoso , Serviços de Saúde para Idosos , Humanos
10.
Menopause ; 20(1): 22-7, 2013 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-22929034

RESUMO

OBJECTIVE: The objectives of this study were to examine the effects of symptoms associated with the menopausal transition and early postmenopause on quality of life and to determine if there is a clustering of symptoms that has a larger effect on quality of life than individual symptoms. METHODS: This study used data from a cross-sectional study on women aged 45 to 60 years. Descriptive statistics and regression analyses were used to analyze the data. RESULTS: More than 60% of the participants reported three or more symptoms. The symptom clusters that had the highest impact on quality of life were sleep disturbances and vaginal dryness, which accounted for 9.7% of the variance in quality-of-life scores. A parsimonious model of individual symptoms, including sleep disturbances, fatigue, and anxiety, accounted for 16.7% of the variance in quality of life. This group of symptoms, not represented by a cluster, had the highest impact on quality of life. CONCLUSIONS: The symptoms found to most significantly affect quality of life are sleep disturbances, fatigue, and anxiety, suggesting that appropriate management of sleep disorders and anxiety may be beneficial to women undergoing the transition to postmenopause. Unanticipated clusters of symptoms point toward a unique symptom experience influenced by factors other than a decline in ovarian function. In this study, symptoms commonly associated with the menopausal transition and early postmenopause negatively affect quality of life; however, the results indicate that quality of life in midlife women is affected by these symptoms only to a small extent.


Assuntos
Menopausa/fisiologia , Pós-Menopausa/fisiologia , Qualidade de Vida/psicologia , Ansiedade , Estudos Transversais , Escolaridade , Fadiga , Feminino , Fogachos , Humanos , Renda , Menopausa/psicologia , Pessoa de Meia-Idade , Pós-Menopausa/psicologia , Transtornos do Sono-Vigília , Inquéritos e Questionários , Síndrome , Doenças Vaginais
11.
J Am Geriatr Soc ; 60(11): 2063-9, 2012 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-23134069

RESUMO

OBJECTIVES: To determine the circumstances under which persons with dementia become lost while driving, how missing drivers are found, and how Silver Alert notifications are instrumental in those discoveries. DESIGN: A retrospective, descriptive study. SETTING: Retrospective record review. PARTICIPANTS: Conducted using 156 records from the Florida Silver Alert program for October 2008 through May 2010. These alerts were issued in Florida for missing drivers with dementia. MEASUREMENTS: Information derived from the reports on characteristics of the missing driver, antecedents to missing event, and discovery of a missing driver. RESULTS: The majority of missing drivers were men aged 58 to 94 who were being cared for by a spouse. Most drivers became lost on routine, caregiver-sanctioned trips to usual locations. Only 15% were driving when found, with most being found in or near a parked car. Law enforcement officers found the large majority. Only 40% were found in the county where they went missing, and 10% were found in a different state. CONCLUSION: Silver Alert notifications were most effective for law enforcement; citizen alerts resulted in a few discoveries. There was 5% mortality in the study population, with those living alone more likely to be found dead than alive. An additional 15% were found in dangerous situations such as stopped on railroad tracks. Thirty-two percent had documented driving or other dangerous errors, such as driving the wrong way or into secluded areas or walking in or near roadways.


Assuntos
Condução de Veículo , Demência/complicações , Comportamento Errante , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Retrospectivos
12.
Am J Nurs ; 112(12): 30-5, discussion 36-7, 2012 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-23154677

RESUMO

OVERVIEW: At every stage of dementia, people with the condition are at risk for both missing incidents, in which they are unattended and unable to navigate a safe return to their caregiver, and "wandering," a term often used to describe repetitive locomotion with patterns such as lapping or pacing. By understanding the differences between these two phenomena, nurses can teach caregivers how to anticipate and prevent missing incidents, which are not necessarily related to wandering. The authors differentiate missing incidents from wandering, describe personal characteristics that may influence the outcomes in missing incidents, and suggest strategies for preventing and responding to missing incidents.


Assuntos
Sintomas Comportamentais , Comportamento Perigoso , Demência/enfermagem , Gestão da Segurança , Idoso , Condução de Veículo , Feminino , Florida , Educação em Saúde , Humanos , Aplicação da Lei , Planejamento de Assistência ao Paciente , Dispositivo de Identificação por Radiofrequência , Estados Unidos , Comportamento Errante
13.
J Gerontol Nurs ; 38(5): 8-11, 2012 May.
Artigo em Inglês | MEDLINE | ID: mdl-22533348

RESUMO

Sleep disturbances may occur in more than 50% of individuals with dementia, and nighttime activity can lead to unsafe situations and serious consequences for both the person and his or her caregivers. Nighttime awakenings expose individuals with dementia to two major dangers: falls and unattended home exits. This article is a review of the current research on the causes of sleep disturbances and interventions for nighttime activity in individuals with dementia living at home.


Assuntos
Escuridão , Demência/complicações , Transtornos do Sono-Vigília/complicações , Idoso , Ritmo Circadiano , Medicina Baseada em Evidências , Serviços de Assistência Domiciliar , Humanos , Transtornos do Sono-Vigília/enfermagem , Transtornos do Sono-Vigília/prevenção & controle
14.
Health Psychol ; 31(5): 671-6, 2012 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-22369491

RESUMO

OBJECTIVE: The objectives for the present study were to (a) examine within-person variability of nap duration and (b) assess how variability in nap duration is related to the number of health conditions in a sample of older adults. For highly variable behaviors such as sleep, it is important to consider fluctuations within the person instead of solely comparing averages of behaviors across persons. METHOD: Data were drawn from a previous study examining sleep in 103 community-dwelling older adults. Subjective estimates of napping behavior were obtained from sleep diaries and objective estimates of napping behavior were obtained using actigraphy. Both measures were collected for 14 consecutive days. The sampled data were aggregated in terms of (a) average daily time spent napping and (b) average within-person fluctuations in daily nap duration. The health measure consisted of the number of self-reported health conditions. RESULTS: Both the objective and subjective measures revealed that there was considerable day-to-day fluctuation in nap duration and that variability in nap duration, not mean duration, uniquely predicted the number of health conditions, b = .03, b* = .26, t(100) = 2.71, p = .01. CONCLUSIONS: Duration of napping in older adults is a highly variable behavior, fluctuating as much within- as between-persons. Furthermore, variability in nap duration from day to day is predictive of greater medical morbidity, suggesting that clinicians should assess for inconsistencies in nap behavior in addition to duration, frequency, and timing.


Assuntos
Nível de Saúde , Morbidade , Sono , Actigrafia , Idoso , Idoso de 80 Anos ou mais , Doença Crônica , Feminino , Humanos , Masculino , Polissonografia , Valor Preditivo dos Testes , Reprodutibilidade dos Testes
15.
BMC Geriatr ; 11: 28, 2011 Jun 05.
Artigo em Inglês | MEDLINE | ID: mdl-21639942

RESUMO

BACKGROUND: At some point in the disease process many persons with dementia (PWD) will have a missing incident and be unable to safely return to their care setting. In previous research studies, researchers have begun to question whether this phenomenon should continue to be called wandering since the antecedents and characteristics of a missing incident are dissimilar to accepted definitions of wandering in dementia. The purpose of this study was to confirm previous findings regarding the antecedents and characteristics of missing incidents, understand the differences between those found dead and alive, and compare the characteristics of a missing incident to that of wandering. METHODS: A retrospective design was used to analyse 325 newspaper reports of PWD missing in the community. RESULTS: The primary antecedent to a missing incident, particularly in community-dwelling PWD, was becoming lost while conducting a normal and permitted activity alone in the community. The other common antecedent was a lapse in supervision with the expectation that the PWD would remain in a safe location but did not. Deaths most commonly occurred in unpopulated areas due to exposure and drowning. Those who died were found closer to the place last seen and took longer to find, but there were no significant differences in gender or age. The key characteristics of a missing incident were: unpredictable, non-repetitive, temporally appropriate but spatially-disordered, and while using multiple means of movement (walking, car, public transportation). Missing incidents occurred without the discernible pattern present in wandering such as lapping or pacing, repetitive and temporally-disordered. CONCLUSIONS: This research supports the mounting evidence that the concept of wandering, in its formal sense, and missing incidents are two distinct concepts. It will be important to further develop the concept of missing incidents by identifying the differences and similarities from wandering. This will allow a more targeted assessment and intervention strategy for each problem.


Assuntos
Demência/epidemiologia , Demência/psicologia , Características de Residência , Comportamento Errante/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Demência/diagnóstico , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Agitação Psicomotora/diagnóstico , Agitação Psicomotora/epidemiologia , Agitação Psicomotora/psicologia , Estudos Retrospectivos , Fatores de Tempo , Caminhada/psicologia
16.
Res Gerontol Nurs ; 4(3): 168-84, 2011 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-20873693

RESUMO

This study used multilevel modeling to evaluate a newly revised model in which dementia caregivers' stress process variables-perceived stress and emotional-behavioral responses-were posited as predictors of behavioral symptoms of dementia (BSD) within community-based dyads. Secondary analyses were conducted on data from a primary two-group (experimental and control) trial, in which experimental participants received a home monitoring system for managing nighttime activity in individuals with dementia. Models indicated that caregivers' trajectories did not differ significantly between groups over time; however, the time-by-group interaction of BSD approached significance. Because BSD were not targeted, this indicated that the system may have indirectly lowered BSD. In addition, caregivers' perceived stress and emotional-behavioral responses predicted BSD, on average (across all occasions) and from occasion to occasion, with higher levels associated with worse BSD. These limited results provide support for further research to investigate the nature of these relationships.


Assuntos
Cuidadores/psicologia , Demência/enfermagem , Estresse Psicológico , Humanos , Pennsylvania
17.
Am J Alzheimers Dis Other Demen ; 26(8): 616-22, 2011 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-22296909

RESUMO

Although the term wandering is routinely used by clinicians, researchers, and informal caregivers (ICs), the meaning of this term varies depending on the source of the definition and the context in which it is used. The purpose of this study was to examine the terms ICs used to describe different scenarios that have been identified in literature as "wandering," determine their perception of risk, and compare their definitions of wandering with the perspectives of researchers. Structured interviews were conducted with 128 ICs of older adults with dementia. Informal Caregivers rarely used the term wandering to label different scenarios that had been previously identified in the literature as wandering. Responses to a survey of 17 wandering experts did not reflect agreement on a definition for wandering. These findings suggest that a broad set of terms should be used to describe this potentially dangerous behavior when health care providers communicate with ICs.


Assuntos
Cuidadores , Demência/psicologia , Pessoal de Saúde , Comportamento Errante , Idoso , Idoso de 80 Anos ou mais , Demência/epidemiologia , Humanos , Masculino , Pessoa de Meia-Idade , Percepção , Risco
18.
J Nurs Scholarsh ; 42(3): 338-47, 2010 Sep 01.
Artigo em Inglês | MEDLINE | ID: mdl-20738745

RESUMO

PURPOSE: The purpose of this study was to determine if a nighttime home monitoring system, designed to track the movements of a care recipient with dementia, would relieve worry and improve sleep in caregivers of persons with dementia. DESIGN AND METHODS: In this controlled clinical trial, 49 dementia caregivers were followed for up to 1 year. Sleep was measured for 7-day intervals at nine points in time using actigraphy and a sleep diary. FINDINGS: Although the experimental caregivers generally reported that the system was "of great help" in relieving worry about nighttime activity, no significant group differences were found using multilevel modeling analyses. With regard to total sleep time, time awake after sleep onset, and sleep quality, multilevel models did not demonstrate any changes in sleep between groups, either averaged over time or for the interaction of group and time. CONCLUSIONS: Since previous analysis of our qualitative data suggested improvements in caregiver worry and sleep, problems other than night awakenings may be perpetuating the sleep problem. Future studies should include testing of multimodal sleep interventions. CLINICAL RELEVANCE: Caregivers have high amounts of unwanted wake time during the night and additional research is needed to identify effective interventions to improve their sleep.


Assuntos
Actigrafia/métodos , Atitude Frente a Saúde , Cuidadores/psicologia , Demência , Assistência Domiciliar/métodos , Privação do Sono/prevenção & controle , Adulto , Idoso , Idoso de 80 Anos ou mais , Análise de Variância , Efeitos Psicossociais da Doença , Demência/enfermagem , Família/psicologia , Feminino , Seguimentos , Humanos , Modelos Lineares , Masculino , Pessoa de Meia-Idade , Pesquisa Metodológica em Enfermagem , Pesquisa Qualitativa , Privação do Sono/etiologia , Privação do Sono/psicologia
19.
Am J Alzheimers Dis Other Demen ; 25(1): 27-31, 2010 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-19001350

RESUMO

Persons with dementia are at particular risk for injuries and unattended home exits. The purposes of this study were to prospectively describe the characteristics and determine the hazard rates of unattended home exits and injuries. A total of 9 times over 12 months, data were collected from 53 caregivers of persons with dementia about persons with dementia unattended home exits or injuries. A total of 24% of persons with dementia had at least 1 unattended exit; 4 participants exited multiple times. Men and younger persons with dementia were significantly more likely to exit than women or older individuals. A total of 30% of persons with dementia sustained injuries in 29 separate incidents; all but 3 injuries were caused by falls, and 38% of injuries resulted in nursing home placement. The hazard rate of untoward events was high, at approximately 1 unattended exit and 1 fall per person-year. For all persons with dementia living in the community, health care plans should include specific interventions to prevent these untoward events.


Assuntos
Acidentes Domésticos/estatística & dados numéricos , Meio Ambiente , Solidão/psicologia , Ferimentos e Lesões/epidemiologia , Acidentes por Quedas/estatística & dados numéricos , Idoso , Feminino , Humanos , Masculino , Estudos Prospectivos , Características de Residência , Fatores de Risco , Fatores Sexuais
20.
Alzheimers Dement ; 5(5): 419-26, 2009 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-19751921

RESUMO

BACKGROUND: Nighttime activity, a common occurrence in persons with dementia, increases the risk for injury and unattended home exits and impairs the sleep patterns of caregivers. Technology is needed that will alert caregivers of nighttime activity in persons with dementia to help prevent injuries and unattended exits. METHODS: As part of a product development grant, a controlled pilot study was conducted to test the effectiveness of a new night monitoring system designed for informal caregivers to use in the home. Data from 53 subjects were collected at nine points in time during a 12-month period regarding injuries and unattended home exits that occurred while the caregiver slept. Nighttime activity frequently resulted in nursing home placement. RESULTS: The night monitoring system proved a reliable adjunct to assist caregivers in managing nighttime activity. A total of nine events (injuries or unattended home exits) occurred during the study, with 6 events occurring in the control group. With intent-to-treat analysis, there was no difference between the groups. However, in a secondary analysis that was based on use of the intervention, experimental subjects were 85% less likely to sustain an event than control subjects. CONCLUSIONS: When nighttime activity occurred, it resulted in severe injuries sometimes associated with subsequent nursing home placement. The night monitoring system represents a new technology that caregivers can use to assist them in preventing nighttime injuries and unattended home exits in care recipients with dementia.


Assuntos
Cuidadores/psicologia , Demência/enfermagem , Assistência Domiciliar/métodos , Monitorização Fisiológica/instrumentação , Atividades Cotidianas , Idoso , Idoso de 80 Anos ou mais , Demência/psicologia , Assistência Domiciliar/psicologia , Humanos , Satisfação Pessoal , Projetos Piloto , Reprodutibilidade dos Testes , Inquéritos e Questionários
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