RESUMO
Spanish-speaking Latinos account for 13% of the U.S. population yet are chronically under-represented in national surveys; additionally, the response quality suffers from low literacy rates and translation challenges. These are the same issues that health communicators face when understanding how best to communicate important health information to Latinos. The Health Information National Trends Survey (HINTS) offers a unique opportunity to understand the health communication landscape and information needs of the U.S. POPULATION: We describe the challenges in recruiting Spanish-speaking HINTS respondents and strategies used to improve rates and quality of responses among Spanish-speaking Latinos. Cognitive interviewing techniques helped to better understand how Spanish-speaking Latinos were interpreting the survey questions, and the extent to which these interpretations matched English-speaking respondents' interpretations. Some Spanish-speaking respondents had difficulty with the questions because of a lack of access to health care. Additionally, Spanish-speaking respondents had a particularly hard time answering questions that were presented in a grid format. We describe the cognitive interview process, and consider the impact of format changes on Spanish-speaking people's responses and response quality. We discuss challenges that remain in understanding health information needs of non-English-speakers.
Assuntos
Comunicação em Saúde , Inquéritos Epidemiológicos , Hispânico ou Latino/psicologia , Idioma , Adolescente , Adulto , Barreiras de Comunicação , Feminino , Letramento em Saúde , Hispânico ou Latino/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Avaliação das Necessidades , Pesquisa , Estados Unidos , Adulto JovemAssuntos
Conhecimentos, Atitudes e Prática em Saúde , Disseminação de Informação , Neoplasias , Médicos/estatística & dados numéricos , Encaminhamento e Consulta/estatística & dados numéricos , Adulto , Conscientização , Feminino , Humanos , Disseminação de Informação/métodos , Masculino , Informática Médica/estatística & dados numéricos , Pessoa de Meia-Idade , Estados UnidosRESUMO
BACKGROUND: Strategies to support cancer information-seeking among Hispanics are needed. METHODS: We analyzed data from the 2005 Health Information National Trends Survey (HINTS) to explore cancer information-seeking experiences among respondents according to ethnicity and language of interview. RESULTS: Over 80% of Spanish-speaking Hispanics had never looked for cancer information. Compared to English-speaking respondents, Spanish-speaking Hispanics who sought cancer information indicated their search took a lot of effort (67%), was hard to understand (54%), and frustrating (42%). Spanish-speaking Hispanics noted minimal confidence in obtaining cancer information. CONCLUSIONS: Language and cultural differences must be considered in the design, implementation, and dissemination of cancer information.
Assuntos
Características Culturais , Hispânico ou Latino/etnologia , Idioma , Informática Médica/estatística & dados numéricos , Neoplasias/etnologia , Adolescente , Adulto , Idoso , Barreiras de Comunicação , Feminino , Educação em Saúde , Promoção da Saúde , Humanos , Serviços de Informação/estatística & dados numéricos , Masculino , Pessoa de Meia-Idade , Neoplasias/diagnóstico , Adulto JovemRESUMO
BACKGROUND: Lay understanding of cancer prevention, screening, and survival may influence health behavior and health outcomes. METHODS: Data were from the 2005 Health Information National Trends Survey (HINTS). In our analyses, we describe population (N = 5586) beliefs about cancer prevention, detection, and survival for colon, lung, and skin cancer and compare beliefs with state-of-science evidence. We examined differences by sociodemographic subgroups. RESULTS: A majority of respondents responded consistently with state-of-science evidence in prevention for colon (78.2%), lung (81.2%), and skin cancer (83.5%). Respondents' perceptions of screening for colon cancer were generally consistent with state-of-science evidence (89.9%); however, fewer respondents' responded consistently with state-of-science in screening for lung (12.6%) and skin cancer (11.9%). Finally, respondents' estimates of survival/cure of colon (66.2%) and skin cancer (63.6%) were consistent with state-of-the-science evidence in survival; however, a minority of respondents' estimates of lung cancer survival (17.3%) were consistent with state-of-science. Sociodemographic associates of state-of-science consistent responses included younger age, greater education, and White race. CONCLUSIONS: Public knowledge of cancer prevention, screening, and survival varies by type of cancer, levels of evidence, and sociodemographic factors. These findings provide an evidence base for improving public awareness and understanding of cancer prevention, screening, and survival.