RESUMO
In this article we describe and analyse the issue of non-directivity in human genetic counselling in Germany between 1970 and 2010 based on printed sources and oral history interviews. The focus is on the extent to which the ethical aspects in genetic counselling were debated among human geneticists and to what extent aspects of non-directivity were discussed.As the results show, it was not only in retrospect that experts attributed great importance to the autonomy of those seeking advice and rejected "directive" advice, at least in public positions. They considered ethical justification to be central here.
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Between 2016 and 2018, interviews with 33 persons were conducted about the history of human genetics in Germany between 1970 and the 2000s. 29 interviewees gave consent to have the interviews used for historical research. These interviews are currently being analysed with the methods of qualitative content analysis and grounded theory. The focus of this article lies on the critical examination of the method of oral history and its application to human genetics. The oral history project focuses on questions regarding (1) biographical data and careers of interviewees, (2) development and application of diagnostic and therapeutic techniques, (3) establishment and growth of institutions of human genetics and (4) social debates regarding the discipline.
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Historians have repeatedly pointed to personal and institutional continuities between eugenics in Germany before 1945 and the developing human genetics in post-war Germany. But how was this external perception discussed among German human geneticists and did it play a role in the discipline's self-image? On the basis of printed sources and biographical interviews, the historical consciousness and the assumption of historical responsibility among German human geneticists active in the field between the 1970s and the 2010s were investigated. In the memories of the contemporary witnesses, historical awareness played a role for their discipline even before the 1980s, and since the founding of the Deutsche Gesellschaft für Humangenetik in 1987, the question of the form of showing historical responsibility has been discussed repeatedly. It has been expressed, for example, in discussions with the public and renaming of prizes.
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BACKGROUND: The purpose of this paper is to analyze the political preparation of the Enquete Commission of the German Bundestag which aimed at assessing and improving the psychiatric and psychotherapeutic/psychosomatic care in the Federal Republic of Germany. METHODS: We performed a selective literature review and a hermeneutic analysis of political, parliamentary and administrative records from public archives which reflect and help reconstruct the run-up process to the so-called Enquete of psychiatry. RESULTS: Literature and documents show how individual actors both in the mental health professions and politics bundled activities in the domains of psychiatry and mental health care as well as health/social politics; they helped to implement political, parliamentary and administrative steps leading up to the Enquete of the German Bundestag (1971-1975). In addition, the records and pertinent literature document the social, cultural and political developments in the Federal Republic of Germany which helped initiate the Enquete project. CONCLUSION: The Enquete was not a straightforward process and was also not tied to any moment. It fits more into the longer-term reform process of psychiatry in the Federal Republic of Germany.
Assuntos
Política , Psiquiatria , Alemanha Ocidental , História do Século XX , Saúde Mental/normas , Psiquiatria/história , Psiquiatria/legislação & jurisprudência , Psiquiatria/normasRESUMO
BACKGROUND: In Bavarian psychiatric hospitals approximately 15,000 people with mental handicaps and mental illnesses were killed after the so-called Action T4. The Heil- und Pflegeanstalt (psychiatric hospital) Günzburg was a so-called Zwischenanstalt (interim institution). The aim of the study was to analyze its role in carrying out "regionalized euthanasia". METHODS: Based on defined criteria the patient records of deceased patients at the Günzburg Psychiatric Hospital between July 1941 and December 1943 were analyzed to establish whether criteria for "regionalized euthanasia" were fulfilled. RESULTS: During the study period 45 patients at the Günzburg Psychiatric Hospital probably died following actions by direct or indirect intention to kill using malnutrition, neglect, medication overdose or a combination of these actions. CONCLUSION: The Günzburg Psychiatric Hospital was involved in "regionalized euthanasia".