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1.
Can J Cardiol ; 35(2): 229.e7-229.e9, 2019 02.
Artigo em Inglês | MEDLINE | ID: mdl-30760435

RESUMO

We describe the case of a 68-year-old woman presenting with stress cardiomyopathy (SCM), with concomitant cardiogenic shock, left ventricular outflow tract obstruction, and ventricular septal rupture. These complications have not simultaneously been reported in a single SCM case. The importance of early diagnosis of serial complications of SCM and using mechanical circulatory support as a treatment strategy are highlighted.


Assuntos
Choque Cardiogênico/etiologia , Cardiomiopatia de Takotsubo/complicações , Obstrução do Fluxo Ventricular Externo/etiologia , Ruptura do Septo Ventricular/etiologia , Idoso , Ecocardiografia Doppler em Cores , Evolução Fatal , Feminino , Humanos , Choque Cardiogênico/diagnóstico , Cardiomiopatia de Takotsubo/diagnóstico , Obstrução do Fluxo Ventricular Externo/diagnóstico , Ruptura do Septo Ventricular/diagnóstico
2.
Qual Health Res ; 29(4): 568-576, 2019 03.
Artigo em Inglês | MEDLINE | ID: mdl-28985686

RESUMO

Atrial fibrillation (AF) is a common arrhythmia that increases patients' risk of stroke, and determining an optimal prevention therapy is a preference-sensitive decision appropriate for shared decision making (SDM). Utilizing community-based focus groups, we explored beliefs and values around options for stroke prevention. Interview transcripts from five independent focus groups were qualitatively assessed and organized into themes. Most participants were taking a blood thinner (93%) and more than half of participants (64%) reported having AF. Few participants were familiar with newer therapies. Qualitative analysis revealed three themes: (a) fearing loss of self-control through debilitating stroke, (b) recognizing uncertainty in how to weigh risks and benefits of new treatments, and (c) needing mutual respect between clinicians and patients to consider new/alternative treatment regimens. These findings help direct future research efforts examining optimal timing for SDM and decision aids to promote mutual respect.


Assuntos
Medo , Conhecimentos, Atitudes e Prática em Saúde , Acidente Vascular Cerebral/prevenção & controle , Acidente Vascular Cerebral/psicologia , Idoso , Idoso de 80 Anos ou mais , Anticoagulantes/uso terapêutico , Fibrilação Atrial/complicações , Tomada de Decisão Compartilhada , Feminino , Grupos Focais , Humanos , Masculino , New Hampshire , Relações Médico-Paciente , Fatores de Risco , Acidente Vascular Cerebral/complicações
3.
JAMA Otolaryngol Head Neck Surg ; 144(5): 433-439, 2018 05 01.
Artigo em Inglês | MEDLINE | ID: mdl-29621392

RESUMO

Importance: Clinicians and patients benefit when they have a clear understanding of how medical conditions influence patients' life experiences. Patients' perspectives on life with unilateral vocal fold paralysis have not been well described. Objective: To promote patient-centered care by characterizing the patient experiences of living with unilateral vocal fold paralysis. Design, Setting, and Participants: This study used mixed methods: surveys using the voice and dysphagia handicap indexes (VHI and DHI) and semistructured interviews with adults with unilateral vocal cord paralysis recruited from a tertiary voice center. Recorded interviews were transcribed, coded using a hierarchical coding system, and analyzed using an iterative inductive-deductive approach. Main Outcomes and Measures: Symptom domains of the patient experience. Results: In 36 patients (26 [72%] were female, and the median age and interquartile range [IQR] were 63 years [48-68 years]; median interview duration, 42 minutes), median VHI and DHI scores were 96 (IQR, 77-108) and 55.5 (IQR, 35-89) at the time of interviews, respectively. Frustration, isolation, fear, and altered self-identity were primary themes permeating patients' experiences. Frustrations related to limitations in communication, employment, and the medical system. Sources of fear included a loss of control, fear of further dysfunction or permanent disability, concern for health consequences (eg, aspiration pneumonia), and/or an inability to call for help in emergency situations. These experiences were modified by the following factors: resilience, self-efficacy, perceived sense of control, and social support systems. Conclusions and Relevance: Effects of unilateral vocal fold paralysis extend beyond impaired voice and other somatic symptoms. Awareness of the extent to which these patients experience frustration, isolation, fear, and altered self-identity is important. A patient-centered approach to optimizing unilateral vocal fold paralysis treatment is enhanced by an understanding of both the physical dimension of this condition and how patients cope with the considerable emotional and social consequences. Recognizing the psychosocial dimensions of disease allows clinicians to communicate more effectively, be more empathetic, and to better personalize treatment plans, which may lead to improved patient care and patient satisfaction.


Assuntos
Paralisia das Pregas Vocais/psicologia , Adulto , Idoso , Transtornos de Deglutição/psicologia , Medo/psicologia , Frustração , Humanos , Masculino , Pessoa de Meia-Idade , Qualidade de Vida , Resiliência Psicológica , Estudos Retrospectivos , Autoeficácia , Distúrbios da Fala/psicologia
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