Positive identity development through community engagement among youth with intellectual and developmental disabilities.

BACKGROUND: Identity development in individuals with disabilities is often negatively impacted by exclusion, marginalisation, and stigma. However, meaningful opportunities for community engagement can serve as one pathway towards establishing positive identity. This pathway is further examined in the present study. METHODS: Researchers used a tiered, multi-method, qualitative methodology consisting of audio diaries, group interviews, and individual interviews with seven youth (ages 16-20) with intellectual and developmental disabilities, recruited through the Special Olympics U.S. Youth Ambassador Program. RESULTS: Participants' identities incorporated disability while simultaneously transcending the social limits of disability. Participants viewed disability as one aspect of their broader identity, shaped by leadership and engagement experiences such as those offered by the Youth Ambassador Program. CONCLUSIONS: Findings have implications for understanding identity development in youth with disabilities, the importance of community engagement and structured leadership opportunities, and the value of tailoring qualitative methodologies to the subject of the research.

It's right, but risky too: Inclusive behavior as a positive risk in adolescence.

INTRODUCTION: Although adolescent risk-taking is often characterized as negative, more recent work focuses on risk as a spectrum of negative to positive behaviors. We propose inclusive behavior as a new category of positive risk-taking focused on helping and facilitating social belonging for those who are marginalized or excluded. We use a qualitative approach to explore adolescents' perceptions of the risks involved in inclusive behavior and the factors that motivate acting inclusively at school. METHODS: 30 focus groups were conducted at 16 middle and high schools across the United States. The cross-sectional sample consisted of 194 students in grades 6-12 (11-19 years old). Students were majority female (61%) and self-identified as white (68%). Data were analyzed using qualitative thematic analysis. RESULTS: Students often perceived the decision to act inclusively as risky because it involved weighing uncertain outcomes, including potential costs (e.g. peer rejection) and rewards (e.g. friendship). Students primarily focused on the role of peer group influence, but also discussed how school norms, the identity of the peer they were trying to include, and their own motivations affected the perceived risk involved in acting inclusively. CONCLUSIONS: This study provides an exploratory look at adolescents' experiences of inclusive behavior. Findings support the current conceptualization of positive risk-taking behavior and suggest a multi-level framework for inclusive risks. Exploring the factors that make inclusive behavior differentially risky across individuals and contexts is a first step towards understanding how inclusive behavior fits within the positive risk-taking framework and designing interventions to reduce the risks involved.

Unified Extracurricular Activities as a Pathway to Social Inclusion in High Schools.

The present study examined how a multicomponent intervention embedded in a high school's extracurricular framework impacts students' acceptance of peers with intellectual disability (ID). Data were collected from eight high schools, three of which implemented the Special Olympics Unified Champion Schools (UCS) program involving inclusive sports, clubs, and schoolwide events, and five of which did not. A pretest-posttest survey design was used to measure students' attitudes, perceptions, and interactions (n = 1,230). Lagged dependent variable modeling revealed that UCS participation significantly predicted improved attitudes toward peers with ID and perceptions of school social inclusion, as well as increased social interactions with peers with ID. Unified extracurricular activities may be the next step forward in promoting an inclusive school culture.

A schoolwide approach to promoting student bystander behavior in response to the use of the word "retard".

BACKGROUND AND AIMS: The use of the word retard ("the r-word") among adolescents sheds light on societal views about individuals with intellectual disability and the need to address the colloquial use of this word and its underlying stigma. Schools provide an important platform for intervening to promote social change among youth. The present study examined the impact of a schoolwide social inclusion program on students' bystander behavior against the use of the r-word. METHODS AND PROCEDURES: 1233 students from 5 high schools were surveyed about the prevalence of the r-word in their school, the contexts in which it is used, and their bystander behavior in response to the word. Approximately 40% of surveyed students participated in an R-word Campaign, Unified Sports team, and/or Unified Club as part of the Special Olympics Unified Champion Schools (UCS) program. OUTCOMES AND RESULTS: Students' prosocialness, the context in which the r-word was used, and participation in UCS activities significantly predicted active bystander behavior in response to the r-word. CONCLUSIONS AND IMPLICATIONS: By empowering students to be active bystanders against the use of the r-word in school, school-based interventions provide a promising avenue for addressing both the use of the r-word and its underlying stigma.

Sticks, Stones, and Stigma: Student Bystander Behavior in Response to Hearing the Word "Retard".

The present study explored the prevalence of the r-word in schools and students' bystander behavior in response to hearing the word. In total, 2,297 students from 12 high schools across the country participated in this study. Results revealed the r-word was used frequently among high school students, most often toward individuals without intellectual disability (ID). Students were more likely to take an active bystander role when hearing the r-word used toward students with ID than when hearing it used toward students without ID. Students' gender and prosocialness also played a role in determining their bystander behavior in response to the r-word. This study has implications for reducing the use of the r-word and the stigma associated with ID.

Young Athletes program: impact on motor development.

This study examined the effectiveness of the Young Athletes program to promote motor development in preschool-aged children with disabilities. In the study, 233 children were randomly assigned to a control group or the Young Athletes (YA) intervention group which consisted of 24 motor skill lessons delivered 3 times per week for 8 weeks. Hierarchical Linear Modeling (HLM) showed that children who participated in the YA intervention exhibited mean gains of 7-9 months on the Peabody Developmental Motor Subscales (PDMS) compared with mean gains of 3-5 months for the control group. Children in the YA intervention also exhibited significant gains on the gross motor subscale of the Vineland Teacher Rating Form (VTRF). Teachers and parents reported benefits for children not only in specific motor skills, but also kindergarten readiness skills and social/play skills. The necessity for direct and intentional instruction of motor skills, as well as the challenges of involving families in the YA program, are discussed.

Sticks, stones, and stigma: a study of students' use of the derogatory term "retard".

The present study explored the prevalence of the derogatory invective "retard" (i.e., "r-word") in everyday speech among American youth. A total of 1,169 youth between the ages of 8 and 18 years old participated in the present study. Results showed high prevalence of the r-word, as 92% of youth had heard someone use the word as a slang invective. Results also indicated that youth responded differently depending on who the word was directed toward (i.e., person with or without an intellectual disability), who said the word (i.e., friend vs. nonfriend), and who heard the word (i.e., females vs. males; younger vs. older youth). Implications for eliminating the r-word from everyday use are discussed.

Social inclusion of children with intellectual disabilities in a recreational setting.

The social acceptance of children with and without intellectual disabilities was examined in an inclusive, summer recreational program. Participants were 67 children entering Grades 3 through 6, of which 29 were identified as having a mild intellectual disability. Children were recruited from economically and racially diverse urban school districts. Results showed that children with and without intellectual disabilities were equally accepted by their peers. Specifically, 95% of children without intellectual disabilities indicated that they liked to "hang out with" at least 1 child with an intellectual disability. Results also indicated that the majority of children without intellectual disabilities made at least 1 new friend with another child with an intellectual disability. The features of recreational programming that promote social inclusion are discussed.

The sport experience of athletes with intellectual disabilities: a national survey of special olympics athletes and their families.

The purpose of this study was to examine the sport experience for athletes with intellectual disabilities (ID) who participate in Special Olympics (SO). This study included a nationally representative sample of 1,307 families and 579 athletes in the U.S., focusing on sport involvement over the lifespan and motives for participating and for leaving SO. Athletes with ID are similar to athletes without disabilities in that sport is a significant life experience. They participate in sport for fun (54%) and social interaction (21%). Like athletes without disabilities, SO athletes leave sport because of changes in interest (38%) but also because of program availability (33%). These findings suggest that we continue to document the involvement of people with ID in sports and work to expand the sport opportunities available.

Maternal involvement in the education of young children with autism spectrum disorders.

Parent involvement is widely acknowledged to be a critical ;best practice' in the education of young children with ASD. Despite its importance, no studies to date have systematically examined the relative influence of child, family, and school factors on the extent to which parents participate in the education of their children with ASD. In the present study, questionnaire and interview data collected from the mothers and teachers of 95 children receiving public school services for ASD were used to address this issue. Descriptively, wide variation was found in both type and intensity of mothers' educational involvement. Regression analyses showed involvement, both at school and at home, to be heavily influenced by the extent to which school staff actively encouraged, assisted, and provided opportunities for parent involvement. In addition, severity of child behavior problems was also found to exert a uniformly negative effect on intensity of mothers' educational involvement, while the influence of family resources and demand variables varied, depending on whether involvement occurred at school or at home. Implications of these findings for future research and for the support of parents seeking to participate in the learning and development of their children with ASD are discussed.