"I Missed School to Take Care of Someone Else": Middle and High School Students' Caregiving Responsibilities as a Reason for Absenteeism.

BACKGROUND: Middle and high school students who are involved in caregiving for aging, chronically ill, and/or disabled family members report more learning challenges compared to their non-caregiving peers. However, little is known about how many students miss school to take care of someone else, and which students are most likely to have this experience. Such knowledge could reveal an important, largely unrecognized reason for school absences and educational disparities. METHODS: Our research-practice partnership surveyed middle-and-high schoolers across Rhode Island public schools in 2022. RESULTS: Among 55,746 students (45% White non-Latinx; 21% Latinx; 45% girls), 13.80% reported they had missed school to take care of someone else, with up to 35% in some districts. Students who missed school for caregiving were disproportionately girls, non-binary, transgender, or preferred not to report gender, older youth, and from historically marginalized racial and ethnic groups, and from urban districts. CONCLUSIONS: Children's experiences caregiving for others may be an important and overlooked contributor to absenteeism and achievement gaps, especially in urban areas. We suggest school policies to better serve these students.

Child and adolescent caregiving for family: Emotional, social, physical, and academic risk and individual differences.

In the United States, it is estimated that more than 5.4 million children and adolescents under age 18 provide care for adult family members who are aging or have a chronic illness, disability, or other health conditions that require assistance. However, little is known about how providing care to the family during childhood and adolescence impacts youth development. We examined whether caregiving as a youth is associated with emotional challenges, peer difficulties, course grades, and physical health risk behaviors. A large, diverse sample of middle and high school students in Florida completed the first systematic school-based survey in the U.S. to date to count caregiving youth (N = 10,880; 52% female; Mage = 14.40, 40% Latinx). Youth reported the amount of caregiving they provided to the family each week, in addition to items reflecting their emotional challenges (e.g., suicidality), peer difficulties (e.g., experiences of conflict or victimization), academic course grades, and health risk behaviors (e.g., diet, physical activity, sleep). We found that Latinx and Black youth provided higher levels of caregiving to the family compared to youth from White non-Latinx, Asian, or Other ethnicities. Caregiving was associated with more emotional challenges, more peer difficulties, and lower course grades for all groups. In addition, providing caregiving was associated with a less healthy diet among older youth and sleeping less than 8 hr per night among White non-Latinx youth. These findings highlight a need to support caregiving youth and their families via policies and institutional supports. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

Medication administration by caregiving youth: An inside look at how adolescents manage medications for family members.

INTRODUCTION: Children take on the role of family caregiver throughout the world. No prior published research exists surrounding the particular circumstances of the task of medication administration and management by these youth, which was explored in this study. METHODS: A series of focus groups were conducted using semi-structured interviews of 28 previously identified caregiving youth ages 12-19 years old who live in the United States. Data analysis followed guidelines of conventional content analysis. RESULTS: The following categories emerged about youth caregivers handling medications: 1) tasks involve organizational and administrative responsibilities; 2) youth have varying degrees of knowledge pertaining to these medications; 3) most share responsibility with other family members; 4) they lack formal education about their responsibilities; 5) multiple challenges exist relating to this task; 6) managing medications is associated with emotional responses; and 7) possible safety issues exist. CONCLUSIONS: These responsibilities represent a unique hardship and merit support and research from the medical, healthcare, legislative, and public health communities, among others.

Participation Rates and Perceptions of Caregiving Youth Providing Home Health Care.

Little is known about the population of caregiving youth in the United States. We sought to describe the participation rates, demographics, and caregiving tasks among sixth graders served by the American Association of Caregiving Youth (AACY) in its Caregiving Youth Project (CYP) in Palm Beach County, FL and evaluate the perceived benefit of AACY services. Sixth grade enrollment data from eight middle schools between 2007 and 2013 were obtained from The School District of Palm Beach County and the AACY. Data were obtained using a retrospective review of AACY program participant files. These files contained responses to evaluative questions from both students and family members. Overall, 2.2 % of sixth graders enrolled and participated in the program. Among the 396 caregiving sixth graders studied, care recipients were predominantly a grandparent (40.6 %) or parent (30.5 %). Common activities included providing company for the care recipient (85.6 %), emotional support (74.5 %), and assistance with mobility (46.7 %). Youth reported a median of 2.5 h caregiving on weekdays and 4 h on weekend days, while families reported fewer hours (1.6 and 2.3, respectively). At the end of the school year, the sixth graders reported improvement in school (85.5 %), caregiving knowledge (88.5 %), and self-esteem (89.5 %). Slightly over 2 % of sixth graders participated in the CYP. While support services may mitigate the negative effects of the time spent by caregiving youth, more prospective research is needed to better define the true prevalence, tasks, and time spent caregiving among this subpopulation.

Young caregivers: effect of family health situations on school performance.

Recognition, assessment, education, support, and research of young caregivers is yet to be well established throughout the United States. Studies show that as a result of family caregiving, employees miss work, arrive late, have telephone interruptions, and pass up promotions. Education is essentially the work-life of a student. Research among 12,681 public school students in Palm Beach County, Florida, shows that more than 1 in 2 middle and high school youth (6,210) have the dual role of young caregiver and student; one third of all students (67.1% of young caregivers) miss school/after school activities, do not complete homework, and/or are interrupted in their studying-their work-life. As demonstrated in the United Kingdom, assessment, education, and support of young caregivers in school and in the community can improve education outcomes. Proactive school nurses have the opportunity to identify, assess, and promote the well-being and academic success of U.S. student-caregivers.