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1.
Health Soc Care Community ; 30(4): e1375-e1383, 2022 07.
Artigo em Inglês | MEDLINE | ID: mdl-34407284

RESUMO

Those diagnosed with dementia and those who provide care and support often feel socially isolated with limited opportunities for social engagement, increasing the potential for loneliness and further isolation that is detrimental to social health. This study examined how a co-designed dementia café impacted on the self-reported social health of community dwelling people with dementia and their care partners in the North-West of England. Semi-structured interviews were conducted at two time periods (summer of 2019 and spring of 2020), with five people living with dementia and eight care partners. The key finding was that participating in the cafés led to a sense of belonging and purpose that was beneficial to well-being and social health for all participants. Community-based initiatives that provide opportunities for peer support for the person with the diagnosis and the care partner are essential so that people living with dementia may rebuild their confidence as well as retaining opportunities to socialise.


Assuntos
Cuidadores , Demência , Demência/terapia , Humanos , Vida Independente , Solidão , Autorrelato
2.
Health Soc Care Community ; 30(1): 114-123, 2022 01.
Artigo em Inglês | MEDLINE | ID: mdl-33825264

RESUMO

Evidence exists relating to music-based initiatives and positive health outcomes for people living with dementia who can access them. Yet, knowledge about the impact of 'music-making' on the well-being of community-dwelling people with dementia is limited. Much of the existing evidence about the benefits of music is focused on care home settings where initiatives can be readily applied as part of a weekly schedule of activities. Therefore, this initiative aimed to provide opportunities to participate in music-making, to increase social interaction and ultimately well-being in a community environment. Ten music-making session were scheduled for community-dwelling people living with dementia and care-partners, once a month between September 2019 and March 2020. Three sessions did not take place due to Covid19. Eighteen participants consented to take part including seven people living with dementia, five care-partners and six former care-partners. Baseline semi-structured interviews explored the lived experience of music and expectations of the upcoming music-making cafes. Self-report questionnaires captured 'in the moment' experiences of each music-making cafe. Follow-up semi-structured interviews explored the impact of music-making on participants' self-reported well-being. Interviews were transcribed verbatim and analysed thematically. The findings demonstrate that participating in the music-making café benefitted the self-reported well-being of participants in three ways: first, a sense of camaraderie that enabled the facilitation of connections with others; second, creating opportunities to 'level the playing field' by always assuming a person's strengths and abilities; and third, group participation in music-making meets a need for meaningful musical experiences. We conclude that participating in music-making is a powerful medium to promote well-being for community-dwelling people living with dementia and care-partners.


Assuntos
COVID-19 , Demência , Música , Humanos , Vida Independente , SARS-CoV-2
3.
Alzheimers Dement (N Y) ; 4: 481-487, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-30258977

RESUMO

INTRODUCTION: Group-based cognitive stimulation is the only nonpharmacologic intervention recommended by the UK National Institute for Clinical and Health Excellence for people with dementia. The potential of technology to extend the availability of group-based cognitive stimulation has not been tested. METHODS: One hundred sixty-one people with dementia participated in an eight-session group activity using Computer Interactive Reminiscence and Conversation Aid (CIRCA). Cognition, quality of life, and general health were assessed before intervention, postintervention, and 3 months later. RESULTS: There was a significant improvement in cognition and quality of life at the end of the CIRCA group intervention, which was further improved at 3-month follow-up. DISCUSSION: CIRCA group sessions improved cognition and quality of life similar to group-based cognitive stimulation approved by the National Institute for Clinical and Health Excellence. These benefits were maintained at 3-month follow-up. The data confirm the potential of CIRCA, which can be populated with different cultural and language contents for different user groups.

4.
Int Wound J ; 15(1): 95-105, 2018 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-29115004

RESUMO

The aim of the study was to compare the changes in the prevalence of pressure injuries from 2008 to 2014 in relation to staff behaviour in acute/subacute inpatient care settings. In 2008, the large regional health district Hunter New England Local Health District implemented an initiative called the Crystal Model which resulted in changes in their policy and an e-learning education program for all nursing staff. A retrospective cross sectional study compared data from the 2008, 2010 and 2014 point prevalence surveys of PI in acute services. These were collected as part of an annual pressure injury prevention and management quality audit for adult inpatients. The total number of participants included 1407 participants in 2008, 1331 participants in 2010 and 1199 participants in 2014. From 2008 to 2014 there was a 15.7% decrease in percentage of patients with hospital-acquired pressure injuries and the percentages of each stage of pressure of injury 1-4 decreased. From 2008 to 2014 the completion and documentation of risk assessment, the documentation of repositioning and the implementation of pressure-relieving equipment increased. A multifactorial model can reduce the prevalence of pressure injuries in acute inpatient settings. The theories of knowledge translation and the modified Theory of Planned Behaviour can be utilised to analyse changes in health professionals habituated pressure injury prevention practice.


Assuntos
Cuidados Críticos/estatística & dados numéricos , Enfermagem Baseada em Evidências/normas , Cuidados de Enfermagem/normas , Recursos Humanos de Enfermagem Hospitalar/educação , Úlcera por Pressão/enfermagem , Úlcera por Pressão/prevenção & controle , Medição de Risco/métodos , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Austrália , Criança , Pré-Escolar , Estudos Transversais , Educação Continuada em Enfermagem , Feminino , Humanos , Lactente , Recém-Nascido , Internet , Masculino , Pessoa de Meia-Idade , Guias de Prática Clínica como Assunto , Úlcera por Pressão/epidemiologia , Prevalência , Estudos Retrospectivos , Adulto Jovem
5.
Stud Health Technol Inform ; 242: 16-22, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28873770

RESUMO

Independent Living Functions for the Elderly (IN-LIFE) is a 3 year multidisciplinary, multisite European project that aims to prolong and support independent living for people with cognitive impairments, through (ICT) services. Sheffield is one of six research sites and is focused on enhancing communication and conversations using touch screen computers.


Assuntos
Comunicação , Demência , Vida Independente , Idoso , Transtornos Cognitivos , Computadores , Humanos , Interface Usuário-Computador
6.
Int J Lang Commun Disord ; 47(4): 351-64, 2012.
Artigo em Inglês | MEDLINE | ID: mdl-22788222

RESUMO

BACKGROUND: Dysphagia is a common symptom of Parkinson's disease and can have negative consequences for physical health and quality of life. A variety of treatment options are available to clinicians working with people who have dysphagia and Parkinson's disease. These options can be broadly categorized as being compensatory or rehabilitative in nature. AIMS: To explore the evidence behind treatment options available to clinicians working with dysphagia and Parkinson's disease and to draw conclusions about whether compensatory or rehabilitative approaches are likely to provide the best outcomes for our patients. METHODS & PROCEDURES: A critical literature review of compensatory and rehabilitative interventions for dysphagia in Parkinson's disease was undertaken. Relevant studies were analysed for their robustness and potential clinical applications. General conclusions were drawn based on the evidence base identified in this review. MAIN CONTRIBUTION: This review outlines the lack of evidence supporting both compensatory and rehabilitative methods of treating dysphagia in Parkinson's disease. It directs clinicians and researchers towards areas that require further investigation. CONCLUSIONS & IMPLICATIONS: To date, compensatory methods of treating dysphagia in Parkinson's disease have received more research attention than rehabilitative methods and yet neither approach has a strong evidence base. This review argues that rehabilitative methods could possibly have greater potential to increase swallowing safety and improve quality of life in the long-term than compensatory methods alone. However, at present there is a lack of research in this area.


Assuntos
Transtornos de Deglutição/reabilitação , Transtornos de Deglutição/terapia , Terapia da Linguagem/métodos , Doença de Parkinson/reabilitação , Doença de Parkinson/terapia , Fonoterapia/métodos , Transtornos de Deglutição/etiologia , Humanos , Doença de Parkinson/complicações
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