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1.
Allergol Select ; 4: 44-52, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32568272

RESUMO

No abstract available.

3.
Allergy ; 74(11): 2064-2076, 2019 11.
Artigo em Inglês | MEDLINE | ID: mdl-31070805

RESUMO

The European Academy of Allergy and Clinical Immunology (EAACI) organized the first European Strategic Forum on Allergic Diseases and Asthma. The main aim was to bring together all relevant stakeholders and decision-makers in the field of allergy, asthma and clinical Immunology around an open debate on contemporary challenges and potential solutions for the next decade. The Strategic Forum was an upscaling of the EAACI White Paper aiming to integrate the Academy's output with the perspective offered by EAACI's partners. This collaboration is fundamental for adapting and integrating allergy and asthma care into the context of real-world problems. The Strategic Forum on Allergic Diseases brought together all partners who have the drive and the influence to make positive change: national and international societies, patients' organizations, regulatory bodies and industry representatives. An open debate with a special focus on drug development and biomedical engineering, big data and information technology and allergic diseases and asthma in the context of environmental health concluded that connecting science with the transformation of care and a joint agreement between all partners on priorities and needs are essential to ensure a better management of allergic diseases and asthma in the advent of precision medicine together with global access to innovative and affordable diagnostics and therapeutics.


Assuntos
Asma/epidemiologia , Financiamento de Capital , Hipersensibilidade/epidemiologia , Pesquisa , Pesquisa Translacional Biomédica , Asma/diagnóstico , Asma/terapia , Big Data , Bioengenharia , Gerenciamento Clínico , Desenvolvimento de Medicamentos , Saúde Ambiental , Europa (Continente)/epidemiologia , Política de Saúde , Humanos , Hipersensibilidade/diagnóstico , Hipersensibilidade/etiologia , Hipersensibilidade/terapia , Ciência da Implementação , Tecnologia da Informação , Participação do Paciente , Pesquisa Translacional Biomédica/economia , Pesquisa Translacional Biomédica/legislação & jurisprudência , Pesquisa Translacional Biomédica/métodos , Pesquisa Translacional Biomédica/organização & administração
4.
ERJ Open Res ; 4(4)2018 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-30588481

RESUMO

We conducted a large global survey, Still Fighting for Breath, in patients with severe persistent asthma, 10 years after the Fighting for Breath survey to assess the impact of disease on patients' lives and to determine if control and management have changed in recent years. Data were collected from 1333 adults (aged >18 years) and caregivers of children (aged 6-17 years) with severe persistent asthma from nine countries through an online survey conducted in 2016 by GfK. A decade after the first survey, our results showed that the impact of severe asthma has not changed significantly and a high proportion of patients with severe asthma remain inadequately controlled. A large discrepancy was observed between the proportion of patients who perceived their asthma to be well controlled (42%) and the proportion of patients who reported to be well controlled as per the Global Initiative for Asthma (GINA) assessment (6%). Although most patients perceived their asthma to be controlled, many experienced frequent symptoms that affected their daily lives. Thus, there is a need for improved management (support and strategies) of patients with severe persistent asthma and improved coordination of efforts that would enable these patients to achieve better disease control.

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