Aging in Sweden: local variation, local control.

Aging in Sweden has been uniquely shaped by its history-most notably the long tradition of locally controlled services for older adults. We considered how local variations and local control shape the experience of aging in Sweden and organized the paper into 3 sections. First, we examine aging in Sweden along demography, economy, and housing. Next, we trace the origins and development of the Swedish welfare state to consider formal supports (service provision) and informal supports (caregiving and receipt of care). Finally, we direct researchers to additional data resources for understanding aging in Sweden in greater depth. Sweden was one of the first countries to experience rapid population aging. Quality of life for a majority of older Swedes is high. Local control permits a flexible and adaptive set of services and programs, where emphasis is placed on improving the quality and targeting of services that have already reached a plateau as a function of population and expenditures.

Needs and care of older people living at home in Iceland.

BACKGROUND: The Icelandic old-age care system is universal and the official goal is to support older people live independently for as long as possible. The aim of this study is to analyse living conditions and use of formal and informal care of older people in Iceland. METHODS: The results are based on the new study ICEOLD, a telephone survey which included questions on social network, health, activities of daily living, and received support from the community and/or from relatives, neighbours, and friends. RESULTS: Almost half of the sample (47%) receives some kind of care, with 27% of them receiving only informal care, which is understood to mean that informal care is of great importance and families are the main providers of help. For hypothetical future long-term care, older people wish to be cared for in their homes, but those already in need of assistance prefer to be cared for in institutions. DISCUSSION: Caring relatives are the main providers of support to older people in their homes and it is important to provide them with suitable formal support when the care responsibility increases. CONCLUSIONS: As the care system in Iceland is now under reconstruction, the important contribution of informal carers must be recognised and taken into account when planning the care of older people.

La diversificación y consolidación de los servicios sociales para las personas mayores en España y Suecia / Diversification and strengthening of services for older people in Spain and Sweden

La información sobre los servicios públicos para las personas mayores a menudo se limita a la atención residencial y a la ayuda a domicilio. Sin embargo, estos servicios básicos son en muchos países complementados o sustituidos por otros servicios de menor envergadura, como el transporte, comidas a domicilio, teleasistencia y centros de día. Esta diversificación partió de un racionamiento de los servicios para lograr una asignación más racional de los recursos y, si se podía, un menor gasto. En este trabajo se utilizan diversos datos sobre estos servicios en España y Suecia. Cuando se consideran todos los cuidados, la cobertura de atención es mucho mayor que si sólo se contemplan los servicios básicos. Esto indica una mayor consolidación de los mismos. Los datos sugieren mayor focalización en Suecia, y prestaciones fragmentadas en España, donde parece que los usuarios alcanzan lo disponible, con poca diferenciación entre sus necesidades. Cuando las tasas de cobertura son superiores, como en Suecia, hay mayor solapamiento entre el cuidado familiar y los servicios públicos. Con tasas más bajas, como en España, los cuidados familiares y los servicios públicos son sustitutos unos de otros. Se sugiere que una mayor diversidad de servicios, básicos y secundarios, puede adaptarse mejor y de manera más eficiente a las diversas necesidades de las personas mayores que la elección entre ningún servicio, ayuda domiciliaria o atención residencial. Aunque estos servicios secundarios también puedan ser utilizados como un sustituto de bajo coste, e inferior calidad, en la atención(AU)

Information on public services for older people is often limited to institutional care and Home Help/Home Care, be it for individuals in surveys, statistics for a specific country or for international comparisons. Yet, these two major services are in many countries supplemented – or substituted – by other, minor services. The latter include services such as transportation services, meals-on-wheels, alarm systems and day care. This diversification is the outcome of a rationing of services to achieve a more rational allocation of resources and attempts to keep down costs. In this presentation we use various data sources to provide information on all these types of support for Spain and Sweden. When all of them are considered, service coverage is much higher than by basic services alone, indicating further consolidation of services. Data suggests a high targeting in Sweden, but fragmented delivery in Spain, where – we suspect - users get what is available, with little differentiation between needs. With higher service rates, as in Sweden, there is greater overlap between family care and public services; with lower coverage rates, as in Spain, family care and public services are more often substituted for each other. It is suggested that a range of services, major and minor, may suit the varying needs of older people better – and more efficiently - than the choice between nothing, Home Help or institutional care, but that minor services may also be used as an inexpensive – and sometimes inferior - substitute for full support(AU)

[Diversification and strengthening of services for older people in Spain and Sweden]. / La diversificación y consolidación de los servicios sociales para las personas mayores en España y Suecia.

Information on public services for older people is often limited to institutional care and Home Help/Home Care, be it for individuals in surveys, statistics for a specific country or for international comparisons. Yet, these two major services are in many countries supplemented - or substituted - by other, minor services. The latter include services such as transportation services, meals-on-wheels, alarm systems and day care. This diversification is the outcome of a rationing of services to achieve a more rational allocation of resources and attempts to keep down costs. In this presentation we use various data sources to provide information on all these types of support for Spain and Sweden. When all of them are considered, service coverage is much higher than by basic services alone, indicating further consolidation of services. Data suggests a high targeting in Sweden, but fragmented delivery in Spain, where - we suspect-users get what is available, with little differentiation between needs. With higher service rates, as in Sweden, there is greater overlap between family care and public services; with lower coverage rates, as in Spain, family care and public services are more often substituted for each other. It is suggested that a range of services, major and minor, may suit the varying needs of older people better - and more efficiently-than the choice between nothing, Home Help or institutional care, but that minor services may also be used as an inexpensive - and sometimes inferior-substitute for full support.

La soledad de las personas mayores en España y Suecia: contexto y cultura / Loneliness among the Elderly in Spain and Sweden: context and Culture

Introducción. Históricamente, las personas mayores españolas y de países del sur de Europa manifiestan índices de soledad percibida muy superiores a los de los países nórdicos. Estudios desde los años 70 hasta ahora confirman esta paradoja. Este estudio analiza la soledad como producto de expectativas culturales y contextuales comparando datos de España y Suecia. Material y método. Se revisarán todas las encuestas en España y Suecia sobre soledad de las personas mayores y en especial, la Encuesta de Condiciones de Vida de 2006 para España y la Encuesta Nacional de 2002–03 para Suecia. Resultados. En promedio, un 24% de los mayores en España y un 10% de los mayores en Suecia expresan soledad (encuestas 2006 y 2002–03, respectivamente). La estructura del hogar y la salud percibida son efectos determinantes de la soledad en ambos países, aunque los niveles difieren. Los mayores con buena salud que viven solos son 5 veces más propensos a sentirse solos en España (45%) que en Suecia (9%) y 2–3 veces más probable cuando viven solos y con mala salud (82–32%). Y para los mayores que conviven con su pareja sin otros y con buena salud es igual de infrecuente en España y en Suecia que experimenten soledad (4–5%) y si surge, parece que tiene que ver con el hecho de cuidar al compañero o con problemas en la relación. Conclusiones. Los resultados destacan los aspectos contextuales (la salud y la estructura del hogar) y las expectativas culturales para entender la soledad manifestada por los mayores(AU)

Objectives. Older people in Spain and other Southern European countries are reported to feel lonelier than the older people in the North of Europe. Data from the 1970s and onwards consistently show this. The present study explores feelings of loneliness as a product of both cultural and situational determining factors, by comparing survey data for Spain and Sweden. Material and method. Data derived from several national surveys of the older people in Spain and Sweden with questions about loneliness. For closer analysis we use the Spanish 2006 Encuesta de Condiciones de Vida (Living conditions Questionnaire), and the Swedish 2002–2003 Survey of Living Conditions. Results. On average, 24% of older people in Spain and 10% of elderly Swedish people expressed sentiments of loneliness in the surveys used here (2006 and 2002-03 respectively). Living arrangements and perceived health are related with factors of loneliness in both countries, although levels differ. For example, people in good health who live alone are five times more likely to feel lonely in Spain (45%) than in Sweden (9%) and two-three times more likely when living alone in poor health (82% and 32% respectively). People in good health who live with their spouse/partner only are equally unlikely in both Spain and Sweden to express loneliness (4–5%). It often seems — when it occurs — to be due to caring for a spouse/partner, or problems in the relationship. Conclusions. Results highlight the importance of contextual features — health and living arrangements — and cultural expectations in interpreting reported loneliness(AU)

[Loneliness among the elderly in Spain and Sweden: context and culture]. / La soledad de las personas mayores en España y Suecia: contexto y cultura.

OBJECTIVES: Older people in Spain and other Southern European countries are reported to feel lonelier than the older people in the North of Europe. Data from the 1970s and onwards consistently show this. The present study explores feelings of loneliness as a product of both cultural and situational determining factors, by comparing survey data for Spain and Sweden. MATERIAL AND METHOD: Data derived from several national surveys of the older people in Spain and Sweden with questions about loneliness. For closer analysis we use the Spanish 2006 Encuesta de Condiciones de Vida (Living conditions Questionnaire), and the Swedish 2002-2003 Survey of Living Conditions. RESULTS: On average, 24% of older people in Spain and 10% of elderly Swedish people expressed sentiments of loneliness in the surveys used here (2006 and 2002-03 respectively). Living arrangements and perceived health are related with factors of loneliness in both countries, although levels differ. For example, people in good health who live alone are five times more likely to feel lonely in Spain (45%) than in Sweden (9%) and two-three times more likely when living alone in poor health (82% and 32% respectively). People in good health who live with their spouse/partner only are equally unlikely in both Spain and Sweden to express loneliness (4-5%). It often seems--when it occurs--to be due to caring for a spouse/partner, or problems in the relationship. CONCLUSIONS: Results highlight the importance of contextual features--health and living arrangements--and cultural expectations in interpreting reported loneliness.

Sooner or later? A study of institutionalization in late life.

BACKGROUND AND AIMS: Existing information about institutionalization of elderly individuals is mainly based on cross-sectional data and does not address the cumulative risk of institutionalization. The purpose of the present study was to analyze longitudinal data prospectively and estimate the risk of placement in an elder care institution for individuals aged 70 years or older. METHODS: The study was based on a longitudinal investigation (the H70 study) of a random sample of 70- year-olds living in Gothenburg, Sweden, in 1971. Individuals were followed from age 70-100 years. Three different analyses were performed: a descriptive prospective analysis, cross-sectional analyses at ages 70, 79 and 85 years, and a longitudinal analysis of predictors for institutionalization. RESULTS: The prospective analysis indicated that 50% of the individuals eventually moved to an elder care institution. Significantly more women than men were institutionalized, although for women the move occurred later in life. Cross-sectional analyses demonstrated that various factors were important to institutionalization at different ages. The Cox regression model with time-varying covariates indicated that gender, socio-economic situation, marital status, number of symptoms, having children living nearby, and activities in daily life were related to institutionalization. CONCLUSIONS: The proportion of elderly persons relocating to institutions was significantly higher than that generally found in cross-sectional studies. It was possible to identify variables that predict institutionalization during a subsequent 30-year period, but different analyses revealed different effects from the factors evaluated.

Loneliness among older Europeans.

More than two decades of research has consistently indicated that feelings of loneliness among older people are more common in southern Europe than in its northern parts, with the lowest rates in Denmark and Sweden. Our analyses based on analysis of 2004-2006 data from 8,787 individuals aged 65 years or older in the SHARE project replicate, update, and extend these findings. We found, similar to previous studies, that the prevalence of feelings of loneliness was more common in the Mediterranean countries than in Northern Europe. Living together with a spouse/partner was consistently associated with the lower prevalence of loneliness across countries. The combination of living alone and having bad health was associated with 10 times higher odds of feeling lonely as compared with living together with someone and having good health. With regard to gender and health, we found signs of differences between countries in how these factors were related to loneliness. Our results indicate the importance of both contextual features and cultural expectations in interpreting reported loneliness, that is, loneliness across Europe has both nomothetic and idiographic features.

Home help services in Sweden: responsiveness to changing demographics and needs.

Decreases in Swedish home help services have not resulted in increased rates of unmet need. To understand these changes, we identified predictors of home help services and rates of institutional care and how these effects changed over time using longitudinal data (1994-2000) from 286 Swedish municipalities. Outcomes were home help coverage rates, intensity of home help per recipient, and rates of institutional living. Predictors reflected availability and need for services. Services decreased over time, but not uniformly. Coverage rates were higher in municipalities with a greater proportion of population 65 and older and greater proportion of unmarried elders. Decreases in coverage rates were greater in municipalities with a higher proportion of unmarried elders, greater ratio of older women to men, with more home help staff workers, and more expensive services. Home help was provided more intensively in municipalities with higher median incomes, higher unemployment rates and municipalities spending more per inhabitant on child care. Decreases in intensity were greater in municipalities with lower proportions of unmarried elders and fewer home help staff workers. Rates of institutional living were higher in municipalities that spent more on old age services and with a greater proportion of unmarried elders. Decreases in institutionalization were greater in municipalities with a greater proportion of unmarried elders and lower ratio of older women to men. Variability in how municipalities responded to these changes may explain continued low rates of unmet need. Results are consistent with both increased efficiency and more effective targeting, but cannot capture service quality.

Policies and practices in support of family caregivers - filial obligations redefined in Sweden.

This article provides an overview of how the expression of filial obligations has shifted over time in Sweden. Historically, and currently in many countries, the family, next of kin, and the social network are the only or major sources of help, as it was in Sweden till half a century ago. The article also explores how various aspects of solidarity-public and private-have developed and are changing in Sweden, known for its extensive welfare programs, with "from cradle to grave" security. It concludes that intergenerational solidarity has not vanished in Sweden; just the manifestations have changed.

Unequal but equitable: an analysis of variations in old-age care in Sweden.

This study aimed to investigate whether contraction in services has led to inequitable service levels or simply large local variations. Previous attempts to explain service variations with aggregate, municipal level data have failed. We link representative Swedish data from 3,267 individuals aged 65 and older in 2002-2003 with coverage rates of public Home Help services in the 288 municipalities in which they reside. What past attempts have masked is that needs also vary substantially between municipalities; needs being defined as old people who live alone and need help with their activities of daily living (ADL). Once these local individual level variations are incorporated, municipal differences in public Home Help coverage largely vanish. Multivariate analyses confirm that advanced age, inability to perform ADL and solitary living are the major determinants of Home Help use. Variations in local supply have no association with individual use of public Home Help. These services are unequal but hence yet deemed to be reasonably equitable.

Life on the edge: patterns of formal and informal help to older adults in the United States and Sweden.

OBJECTIVE: Our objective in this study was to compare assistance received by individuals in the United States and Sweden with characteristics associated with low, moderate, or high 1-year placement risk in the United States. METHODS: We used longitudinal nationally representative data from 4,579 participants aged 75 years and older in the 1992 and 1993 waves of the Medicare Current Beneficiary Survey (MCBS) and cross-sectional data from 1,379 individuals aged 75 years and older in the Swedish Aging at Home (AH) national survey for comparative purposes. We developed a logistic regression equation using U.S. data to identify individuals with 3 levels (low, moderate, or high) of predicted 1-year institutional placement risk. Groups with the same characteristics were identified in the Swedish sample and compared on formal and informal assistance received. RESULTS: Formal service utilization was higher in Swedish sample, whereas informal service use is lower overall. Individuals with characteristics associated with high placement risk received more formal and less informal assistance in Sweden relative to the United States. DISCUSSION: Differences suggest formal services supplement informal support in the United States and that formal and informal services are complementary in Sweden.

Exploring assistance in Sweden and the United States.

PURPOSE: Few international comparisons of health services are performed using microlevel data. Using such data, this paper compares the need for and receipt of assistance with activities of daily living (ADLs) in comparable samples in the United States and Sweden, a country with a universal system of community-based services. DESIGN AND METHODS: Data from national surveys of community residents completed at approximately the same time in each nation are used to create comparable measures of need and assistance. Descriptive and logistic regression analyses compare need and assistance patterns across the nations and identify individual factors that explain receipt of assistance and unmet needs. RESULTS: Our results indicate that a simple story of greater use of paid formal services in Sweden and more unpaid informal use in the United States masks a more complex relationship. Assistance with ADLs seems to be more targeted in Sweden; narrow differences in assistance widen considerably when the analysis is limited to those reporting need. IMPLICATIONS: Although these two different health systems result in similar levels of overall ADL assistance, a detailed microlevel comparison reveals key distinctions. Further microlevel comparisons of access, cost, and quality in cross-national data can further aid our understanding of the consequences of health policy.

The shifting balance of long-term care in Sweden.

PURPOSE: This study describes the Swedish debate on the role of family and state in care of elderly persons. It provides empirical evidence on the shifting balance of family, state, and market in the total panorama of elderly care. DESIGN AND METHODS: Secondary analysis of older (1954) and more recent data sources (1994 and 2000) is used to assess living arrangements and care patterns for persons 75 years or older living in the community. RESULTS: Total spending on aged adults has stagnated, and institutional care is shrinking in absolute and relative terms, but public Home Help for elders in the community is decreasing even more. Family members increasingly shoulder the bulk of care, but privately purchased care also seems to expand. This study calculates how public and informal care changed between 1994 and 2000: Informal care is estimated to have provided 60% of all care to elders in the community in 1994 and 70% in 2000. IMPLICATIONS: The results parallel a crisis of legitimacy of public elderly care in Sweden. They also call into question various metaphors used to describe patterns of care.