Favourable social functioning and health related quality of life of patients with JIA in early adulthood.

OBJECTIVE: To evaluate the social functioning and health related quality of life (HRQoL) in patients with juvenile idiopathic arthritis (JIA) in early adulthood. METHODS: The patient files of the Rheumatism Foundation Hospital were screened to identify patients born in 1976-1980 diagnosed as having JIA. HRQoL was measured by the RAND 36-item health survey 1.0; spousal relationships and educational and employment status were assessed by questionnaire. The patients were invited to a follow up study. Age and sex matched controls from the community were identified in the Finnish population registry. RESULTS: Of 187 patients identified, 123 participated. Spousal relationships, educational level, and employment status were similar to controls. HRQoL in JIA patients was similar to controls except on the physical functioning scale. At follow up 35% of patients were in remission. Patients with active disease had poorer HRQoL in the physical component than those in remission or controls. The extended oligoarthritis group had the lowest physical and mental score in HRQoL compared with the other JIA subgroups. The patient's own evaluation was the explanatory factor in both the physical and mental component of HRQoL. CONCLUSION: Social functioning and HRQoL were similar in JIA patients and age, sex, and municipality matched controls. However, patients with extended oligoarthritis attained significantly lower scores in the physical and mental component of HRQoL than oligo- or polyarthritis patients. Special attention in everyday care should be paid to those patients who have active disease or the extended oligoarthritis type of disease.

Public awareness and attitudes toward epilepsy in Finland.

Public awareness and attitudes toward epilepsy were surveyed in Finland. Three thousand names were randomly selected from the population registry in the age range of 15 to 64 years. Of the 2,789 persons contacted, 2,272 (81%) answered a questionnaire about epilepsy. The social background of the responsdents did not deviate significantly from that of the general population in this age range. The questionnaire consisted of 28 questions designed to determine the respondents' social background, acquaintance with epileptic persons, awareness of epilepsy, and opinions and attitudes about the disorder. Ninety-five percent of the respondents had heard of epilepsy, 49% knew an epileptic person, 45% had seen a seizure, 15% were familiar with the causes of epilepsy, 12% knew how to help a person having a generalized convulsive seizure, and 1% would leave their jobs if they had to work with an epileptic person. The attitudes toward children with epilepsy were more charitable than toward epileptic adults. The factors of knowing an epileptic person, education, and age had the greatest influence on awareness and knowledge of epilepsy and to a lesser extent, attitudes toward it. The level of knowledge of epilepsy was rather low, especially in younger age groups. The results appeared useful for the Attitude Formation Program of the Finnish League for Epilepsy. Those processes that govern the forming and changing of attitudes toward epilepsy in school or work should be traced. An information campaign will be continued, and the survey of public attitudes toward epilepsy will be renewed in the future.