Assuntos
Síndrome de Brugada/diagnóstico , Cardiomiopatia Hipertrófica/diagnóstico , Eletrocardiografia , Hipocalcemia/diagnóstico , Síndrome do QT Longo/diagnóstico , Síndrome de Wolff-Parkinson-White/diagnóstico , Adolescente , Síndrome de Brugada/fisiopatologia , Síndrome de Brugada/terapia , Cardiomiopatia Hipertrófica/fisiopatologia , Cardiomiopatia Hipertrófica/terapia , Diagnóstico Diferencial , Feminino , Humanos , Síndrome do QT Longo/fisiopatologia , Síndrome do QT Longo/terapia , Masculino , Pessoa de Meia-Idade , Síndrome de Wolff-Parkinson-White/fisiopatologia , Síndrome de Wolff-Parkinson-White/terapia , Adulto JovemRESUMO
The patient kept hoping that the rash would go away on its own, but as time went by the rash spread and the pain became intolerable.
Assuntos
Corticosteroides/uso terapêutico , Autoimunidade , Doxiciclina/uso terapêutico , Imunossupressores/uso terapêutico , Penfigoide Bolhoso , Indução de Remissão/métodos , Administração Cutânea , Administração Oral , Idoso , Antibacterianos/uso terapêutico , Biópsia , Vesícula/etiologia , Fármacos Dermatológicos/uso terapêutico , Diagnóstico Diferencial , Epiderme/patologia , Exantema/etiologia , Humanos , Masculino , Dor/etiologia , Penfigoide Bolhoso/complicações , Penfigoide Bolhoso/imunologia , Penfigoide Bolhoso/patologia , Penfigoide Bolhoso/fisiopatologia , Resultado do Tratamento , Complexo Vitamínico B/uso terapêutico , Suspensão de TratamentoRESUMO
BACKGROUND: Understanding people's social lived experiences of chronic illness is fundamental to improving health service delivery and health outcomes, particularly in relation to self-management activity. In explorations of social lived experiences this paper uncovers the ways in which Aboriginal and Torres Strait Islander people with chronic illness experience informal unsolicited support from peers and family members. METHODS: Nineteen Aboriginal and Torres Islander participants were interviewed in the Serious and Continuing Illness Policy and Practice Study (SCIPPS). Participants were people with Type 2 diabetes (N = 17), chronic obstructive pulmonary disease (N = 3) and/or chronic heart failure (N = 11) and family carers (N = 3). Participants were asked to describe their experience of having or caring for someone with chronic illness. Content and thematic analysis of in-depth semi-structured interviews was undertaken, assisted by QSR Nvivo8 software. RESULTS: Participants reported receiving several forms of unsolicited support, including encouragement, practical suggestions for managing, nagging, growling, and surveillance. Additionally, participants had engaged in 'yarning', creating a 'yarn' space, the function of which was distinguished as another important form of unsolicited support. The implications of recognising these various support forms are discussed in relation to responses to unsolicited support as well as the needs of family carers in providing effective informal support. CONCLUSIONS: Certain locations of responsibility are anxiety producing. Family carers must be supported in appropriate education so that they can provide both solicited and unsolicited support in effective ways. Such educational support would have the added benefit of helping to reduce carer anxieties about caring roles and responsibilities. Mainstream health services would benefit from fostering environments that encourage informal interactions that facilitate learning and support in a relaxed atmosphere.
