RESUMO
BACKGROUND: In our varied roles as health care professionals and researchers, many women with rheumatoid arthritis (RA) have commented to us about their feelings of inability to cope with everyday tasks, especially within their role as mothers. AIMS: This study explored the health and life experiences of mothers with RA in order to increase knowledge about this group of women and inform health care professionals who provide them with support before and after becoming a mother. METHODS: A phenomenological approach was adopted, and individual face-to-face semi-structured interviews were carried out with a sample of seven women, aged 21-41 years, who had lived with RA for 3-11 years and had one or more children under five years of age (total range of ages being 1-7 years). The data were analysed using Colaizzi's procedural steps. RESULTS: The five major themes that emerged were inner strength, depression, labelling, failure, and pre- and post-natal education. Sub-themes included issues such as putting on a brave face, spirituality, guilt, burden, feeling 'robbed of motherhood', isolation, coping methods and lack of information. CONCLUSIONS: This in-depth study informs health care professionals for their role as support provider for mothers with RA. Further research needs to be carried out to include multicultural experiences, which may or may not differ. As a step forward, we have implemented a local support group for mothers with RA, which will hopefully add benefit to existing rheumatology, midwifery and health visiting services.
Assuntos
Artrite Reumatoide/psicologia , Nível de Saúde , Acontecimentos que Mudam a Vida , Comportamento Materno/psicologia , Mães/psicologia , Adulto , Artrite Reumatoide/fisiopatologia , Feminino , Humanos , Relações Mãe-Filho , Grupos de Autoajuda , Apoio SocialRESUMO
An understanding of African American and Hispanic adolescent drug abuse occurs at the intersection of context, development, and behavior. The focus of this review is on the impact of racial/ethnic culture as one of the important contexts that influence adolescent development toward or away from prosocial behaviors. Because family plays a major role in both African American and Hispanic cultures, it is also a centerpiece of any discussion of adolescent development in these groups. This review on the state of the science in drug abuse for African American and Hispanic adolescents focuses on epidemiology, culturally specific risk and protective processes, and prevention and treatment research. From the perspective of a broad lens, specific minority groups such as African Americans and Hispanics would appear to have more in common than not. However, each of these groups encompasses considerable genetic, historical, social, and cultural heterogeneity. Investigation across such diversity will yield a more complete picture of the human condition.