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1.
J Autism Dev Disord ; 49(11): 4707, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31468274

RESUMO

During the publication process, an author "M. Pinkett-Davis", who helped conceptualize and revise this study was accidentally excluded from the authorship list. The revised author group is now: Kalb, L., Jacobson, L., Zisman, C., Mahone, E., Landa, R., Azad, G., Pinkett-Davis, M., Menon, D., Singh, V., Zabel, A., & Pritchard, A. Please use this authorship list when citing this manuscript.

2.
J Autism Dev Disord ; 49(9): 3786-3797, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31172337

RESUMO

The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline.


Assuntos
Atitude , Transtorno do Espectro Autista/psicologia , Pesquisa Biomédica , Cuidadores/psicologia , Adolescente , Adulto , Criança , Feminino , Humanos , Masculino , Participação dos Interessados
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