1.
J Law Med Ethics
; 47(1): 41-50, 2019 03.
Artigo
em Inglês
| MEDLINE
| ID: mdl-30994065
RESUMO
A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.