The Sleep Patterns of Children and Adolescents with Chronic Conditions and Their Families: An Integrative Literature Review.

Sleep is of vital necessity for health, and it has a restorative and protective function for children and adolescents with chronic conditions and their families. The purpose of this study was to identify the scientific production on sleep patterns in children and adolescents with chronic conditions and their families. This integrative review was conducted between March and June 2022 using the databases of MEDLINE, Web of Science, CINAHL and PsycINFO. The articles included were original papers published between January 2007 and mid-2022. Excluded were review studies that did not evaluate sleep and whose participants did not have chronic conditions or were not children, adolescents and/or their families. The searches returned 814 abstracts. After exclusions, 47 studies were selected to be read in full; of these, 29 were selected and were grouped empirically into four categories: major alterations in the sleep patterns of children and adolescents with chronic conditions; the relationship between sleep disorders and symptoms in children and adolescents with chronic conditions; the impaired sleep patterns of families of children and adolescents with chronic conditions; and sleep alterations and their relationship with other problems in families of children and adolescents with chronic conditions. All studies showed sleep pattern impairment in children and adolescents with chronic conditions as well as their families.

Skin lesions resulting from use of personal protective equipment in the context of COVID-19: a cross-sectional study.

OBJECTIVE: During the SARS-CoV-2 (COVID-19) pandemic, to prevent the transmission of the virus, the use of personal protection products and equipment were recommended by international and national organisations. The need to use it more frequently and for a long time can damage the skin of health professionals. The aim of this study was to estimate the prevalence and factors associated with skin lesions in health professionals resulting from the use of personal protective equipment (PPE). METHOD: This was a cross-sectional exploratory study through an online questionnaire. The first part of the questionnaire collected socio-labour characterisation data and the second part related to exposure factors. The variables were analysed according to the prevalence and the odds ratio (OR), within a 95% confidence interval (CI). RESULTS: Of the 398 participants who met the inclusion criteria, 65.3% were self-diagnosed with skin lesions: 37.3% with pressure injury, 25.8% with contact/allergic dermatitis and 2.7% with acne. Regarding the use of PPE, of the 240 professionals who reported using an N95 mask, 80.4% developed injuries, 70.4% of which related to a work regime of >6 hours per day (OR: 2.08, 95% CI: 1.79-2.42). CONCLUSION: The results of this study showed a significant prevalence of skin lesions in health professionals. Among exposure factors, the N95 mask and goggles stand out. Longer or more frequent exposure time to personal protective products and equipment proved to be important factors to be considered.

Families' concerns about the care of children with technology-dependent special health care needs / Dudas de los familiares sobre el cuidado del niño con necesidades especiales de salud con dependencia de la tecnología / Dúvidas de familiares sobre o cuidado de crianças com necessidades especiais de saúde dependentes de tecnologia

Objective.To identify concerns of family members of Children with Special Health Care Needs (CSHCN) as far as care related to using technology, and to discuss nurses' performance in the face of these concerns. Methodology. Qualitative descriptive research, developed through February and March 2014, through semi-structured interviews with six family members, caregivers of technology-dependent CSHCN who are followed at a University Hospital in Rio de Janeiro. The setting chosen was the family members' home. Data were submitted to content analysis. Results. Concerns were distributed in a timeframe, divided between those occurring the moment the family members received the information about the technological device needed, then those which arose while accompanying the child during hospitalization, and finally those that remained after the hospital discharge. Conclusion. The family needs information and support from nurses, because different concerns emerge throughout the treatment and accompaniment of a technology-dependent child.

Objetivo.Identificar las dudas de los familiares de Niños con Necesidades Especiales de Salud con respecto al uso de las tecnologías relacionadas con su cuidado. Metodología. Estudio cualitativo descriptivo realizado entre febrero y marzo de 2014. Se realizaron entrevistas semiestructuradas en el domicilio a seis cuidadores familiares de Niños con Necesidades Especiales de Salud dependientes de tecnología y que eran acompañados desde un Hospital Federal de Río de Janeiro (Brasil). Los datos se sometieron a análisis de contenido. Resultados. Los familiares indicaron dudas que se relacionaban con la trayectoria del cuidado, divididas así: 1º ) el momento en el que recibían la información sobre la necesidad del uso de algún dispositivo tecnológico, 2º) el acompañamiento del niño durante la hospitalización, y 3º) después del alta hospitalario, de regreso en el domicilio. Conclusión. La familia necesita apoyo del enfermero para el desarrollo de las habilidades y competencias para el cuidado del niñocon necesidades especiales de salud con dependencia de la tecnología.

Objetivo. Identificar as dúvidas dos familiares de Crianças com Necessidades Especiais de Saúde (CRIANES) quanto aos cuidados relacionados ao uso de tecnologias; e discutir a atuação do enfermeiro frente a essas dúvidas. Metodologia. Pesquisa qualitativa descritiva. O cenário foi o domicílio de seis familiares cuidadores de CRIANES dependentes de tecnologia, acompanhadas em um Hospital Federal do Rio de Janeiro. Coleta de dados em fevereiro e março de 2014, a partir de entrevista semiestruturada.Resultados. As dúvidas se distribuíram de forma temporal, sendo divididas entre o momento em que os familiares receberam a informação da necessidade do uso de dispositivo tecnológico, depois, durante o acompanhamento da criança na hospitalização e, por fim, as que permanecem quando saem de alta hospitalar para o domicílio. Conclusão. A família necessita receber informações e apoio do Enfermeiro, pois surgem diferentes dúvidas no decorrer do tratamento e acompanhamento da criança dependente de tecnologia.

Rescuing the pleasure of playing of child with cancer in a hospital setting.

OBJECTIVE: to dimension spaces and people that act on playing of children with cancer in outpatient treatment. METHOD: qualitative research developed with the creative sensitive method. A total of twenty two family members of seven children with cancer in outpatient treatment at a public hospital in Rio de Janeiro participated of this research. Data were generated in the family members' homes, from September 2011 to May 2012. RESULTS: after the diagnosis of childhood cancer, there was a change of scene and in the people who interact and play with children. Hospital has a central place for it, since children discover the pleasure of playing in this setting. CONCLUSION: the health care professional, especially nurses, who work on hospital care needs, should develop the ability of facilitate playing and therefore, enable care that promotes childhood development.

Families' concerns about the care of children with technology-dependent special health care needs.

OBJECTIVE: To identify concerns of family members of Children with Special Health Care Needs (CSHCN) as far as care related to using technology, and to discuss nurses' performance in the face of these concerns. METHODOLOGY: Qualitative descriptive research, developed through February and March 2014, through semi-structured interviews with six family members, caregivers of technology-dependent CSHCN who are followed at a University Hospital in Rio de Janeiro. The setting chosen was the family members' home. Data were submitted to content analysis. RESULTS: Concerns were distributed in a timeframe, divided between those occurring the moment the family members received the information about the technological device needed, then those which arose while accompanying the child during hospitalization, and finally those that remained after the hospital discharge. CONCLUSION: The family needs information and support from nurses, because different concerns emerge throughout the treatment and accompaniment of a technology-dependent child.

[The use of playing by the nursing staff on palliative care for children with cancer]. / O uso do brincar pela equipe de enfermagem no cuidado paliativo de crianças com cancer.

This study aimed to describe ways of using play by the nursing staff on palliative care of children with cancer and analyze the facilitators and barriers of the use of playing on this type of care. Qualitative, descriptive research developed on November 2012 with 11 health professionals, in a public hospital of the state of Rio de Janeiro. Semi-structured interviews and thematic analysis of the information were conducted. The use of playing before procedures was highlighted as a facilitator on palliative care. The child's physical condition, one's restriction, resistance of some professionals and the lack of time for developing this activity, made the use of play harder. We concluded that playing enables the child with cancer, in palliative care, a humanized assistance, being fundamental to integrate it on the care for these children.