Aging and Mental Health: Collaborating on Research Priorities with Older Adults, Caregivers and Health and Social Care Providers across Canada.

Age-related changes can affect mental health, but aging-focused mental health research is limited. The objective was to identify the top 10 unanswered research questions on aging and mental health according to what matters most to aging Canadians. A steering group of experts-by-experience (e.g., older adults, caregivers, health and social care providers) guided three phases of a modified James Lind Alliance priority-setting partnership: (1) a broad national survey (n = 305) and a rapid literature scan; (2) a follow-up national survey (n = 703); and (3) four online workshops (n = 52) with a nominal group technique. Forty-two unique questions on aging and mental health resulted, of which 18 were determined to be answered by existing evidence. Of the 25 partially and unanswered questions, 10 were ranked as top priority. Findings can be used to prioritize future research, knowledge mobilization, and funding decisions, and to promote and support collaboration between longstanding siloed research and care fields.

Actionable insights for human factors and ergonomics to achieve the Sustainable Development Goals: mapping past advancements and proposing future strategic paths.

Despite significant strides in linking Human Factors and Ergonomics (HFE) and sustainability, research lacks precision in debating HFE's role, especially concerning the Sustainable Development Goals (SDGs). This paper maps concrete contributions of HFE to the SDGs, offering strategic actions for target achievement. The methodological approach involved the application of PRISMA to define a sample, SciMAT and VOSviewer for visual and temporal thematic mapping, deductive content analysis and categorical analysis. The results show that there is an already rich and unique set of contributions across a wide range of SDGs, not just the most common related to HFE, SDG8 (Decent work). The importance of HFE is highlighted in various aspects, such as the sustainable adoption of industry 4.0 technologies (SDG9) and the development of sustainable production (SDG12), energy (SDG7) and urban (SDG11) systems. Strategic actions specifying targets for each mapped SDG are offered for policymakers, industry professionals and researchers.

This paper maps concrete contributions of HFE to the SDGs, including aspects such as sustainable adoption of industry 4.0 technologies and the development of sustainable production, energy and urban systems. Policymakers, industry professionals and researchers can benefit from the strategic pathways offered to further advance the SDGs.

Embedding Authorship Identity into a Portal-Based Agenda Setting Intervention to Support Older Adults and Care Partners.

BACKGROUND: Patients, families, and clinicians increasingly communicate through patient portals. Due to potential for multiple authors, clinicians need to know who is communicating with them. OurNotes is a portal-based pre-visit agenda setting questionnaire. This study adapted OurNotes to include a self-identification question to help clinicians interpret information authored by nonpatients. OBJECTIVES: To describe adapted OurNotes use and clinician feedback to inform broader implementation. DESIGN: Evaluation of adapted OurNotes in a geriatric practice. PARTICIPANTS: Older adults with a portal account and a clinic visit; eight clinicians were interviewed. INTERVENTION: OurNotes adaptation to clarify whether the author is the patient, the patient with help, or a nonpatient. APPROACH: Cross-sectional chart review of OurNotes completion, patient characteristics, and visit topics by author type. Clinician interviews explored experiences with OurNotes. RESULTS: Out of 503 visits, 134 (26%) OurNotes questionnaires were completed. Most respondents (n = 92; 69%) identified as the patient, 18 (14%) identified as the patient with help, and 24 (17%) identified as someone other than the patient. On average, patients who authored their own OurNotes were younger (80.9 years) compared to patients who received assistance (85.8 years), or patients for whom someone else authored OurNotes (87.8 years) (p < 0.001). A diagnosis of cognitive impairment was present among 20% of patients who self-authored OurNotes vs. 79% of patients where someone else authored OurNotes (p < 0.001). Topics differed when OurNotes was authored by patients vs. nonpatients. Symptoms (52% patient vs. 83% nonpatient, p = 0.004), community resources (6% vs. 42%, p < 0.001), dementia (5% vs. 21%, p = 0.009), and care partner concerns (1% vs. 12%, p = 0.002) were more often mentioned by nonpatients. Clinicians valued the self-identification question for increasing transparency about who provided information. CONCLUSIONS: A self-identification question can identify nonpatient authors of OurNotes. Future steps include evaluating whether transparency improves care quality, especially when care partners are involved.

Stakeholder perspectives on factors that influence global prioritization for MNH in humanitarian settings.

Background: Maternal and newborn mortality rates are disproportionately high in crisis and conflict-affected countries. This study aims to understand factors influencing how MNH in humanitarian and fragile settings (HFS) is prioritized on the global health agenda during the Sustainable Development Goal (SDG) era. This includes examining the policies and processes driving agenda setting and decision-making, as well as the perceptions of global actors. It further reflects on the role of global milestones, reports, convenings, and high-level champions, based on the premise that global prioritization leads to increased attention and resource allocation, ultimately contributing to improved outcomes for mothers and newborns in crisis-affected areas. Methods: A qualitative study conducted from April 2022 to June 2023, employing a desk review and 23 semi-structured key informant interviews with global actors from donor agencies, implementing organizations, research institutes, United Nations agencies, professional associations, and coalitions, predominantly based in the Global North. Data were analyzed using inductive thematic analysis and the research was guided by the Walt and Gibson Health Policy Triangle framework. Results: Participants believe that global agenda-setting and investment decisions for MNH are primarily driven by UN agencies, donors, and implementing organizations at the global level. Although the Millennium Development Goal era successfully prioritized MNH, this focus has diminished during the SDGs, especially for HFS. Identified barriers include the complexity of reducing mortality rates in these contexts, limited political will, MNH investment fatigue, and a preference for quick wins. Fragmentation between humanitarian and development sectors and unclear mandates in protracted crises also hinder progress. Without enhanced global advocacy, accountability, and targeted investments in HFS, respondents deem global MNH targets unattainable. Conclusions: While waning donor interest and the siloing of HFS in global MNH decision-making pose challenges, targeted actions to address these barriers may include designating quotas for humanitarian actors in global MNH convenings, developing shared messages that convey common interests, and adopting an equity lens. Prioritizing MNH in HFS on the global agenda demands sustained commitment to ensure these settings are not an afterthought through dedicated advocacy and accountability, high-level political engagements, global milestones, and by leveraging opportunities to capture mainstream interest. Failing to shift global priorities will result in continued stagnation and worsening MNH outcomes across HFS.

Debates over the role of Traditional Chinese Medicine on COVID-19: A computational comparison between professionals and laypersons in Chinese online knowledge community.

Leveraging a large collection of textual data (N = 21,539) from a Chinese online community, we employed structural topic modeling to investigate the thematic disparities between professionals and laypersons, regarding the effectiveness of Traditional Chinese Medicine (TCM) on COVID-19. Findings reveal that laypersons are the dominant communicators in terms of discussion volume, who often focus on relevant news events, societal or political aspects of TCM. In contrast, professionals keep concentrating on issues related to medical expertise, and do not shift attentions as frequent as laypersons. Despite the dominant influence of professionals on laypersons' agenda, two-way agenda interactions identified confirm that lay public is empowered to negotiate with elite professionals under certain topics. Our results provide novel insights into the dynamic nature of attentions, behaviors, and relations among prominent communication actors, and encourage future research to examine the individual-level and societal-level impacts of these constructs in the emerging online media landscape.

PHYSICAL ACTIVITY RESEARCH: ANALYSIS OF THE AGENDA FUNDED BY THE MINISTRY OF HEALTH / INVESTIGACIÓN DE ACTIVIDAD FÍSICA: ANÁLISIS DE LA AGENDA FINANCIADA POR EL MINISTERIO DE SALUD / PESQUISAS EM ATIVIDADE FÍSICA: ANÁLISE DA AGENDA FINANCIADA PELO MINISTÉRIO DA SAÚDE

Introduction: Physical activity (PA) is one of the strategic agendas in the public health agenda and in Brazil it is established as a right of the population. The Ministry of Health funds research guided by the National Agenda of Health Research Priorities (ANPPS), so the ANPPS can bring PA research closer to the policies of the Unified Health System (SUS). The study aimed to analyze a) the temporal evolution of the number, total value and value per survey; b) the axles; c) the sub-agendas of the ANPPS. Methods: This is a descriptive, quantitative, study of PA research funded by the Ministry of Health between 2002 and 2023, carried out by consulting the public repository "Pesquisa Saúde". The temporal trend analysis of the number, total deflated value and deflated value was performed per survey. The absolute and relative values of the number and total value were analyzed using descriptive statistics. Results: A total of 234 PA research were funded, and the total deflated amount was approximately R$ 60.0 million, which corresponds to an average investment of R$ 256.5 thousand per research. This amount represents 3.2% and 1.7%, respectively, of the quantity and of the total deflated value for health research. Important fluctuations in the number and funding were revealed, with a decreasing trend for the number, total value and value per survey in the period analyzed. The health consequences axis was the one that received the largest number of research and financial resources. The sub-agenda with the highest number of studies was chronic non-communicable diseases and the one that received the largest amount of resources was epidemiology. Conclusion: PA was present in research funded by the Ministry of Health, but it is necessary to advance, especially in increasing the amount of resources and inducing specific funding for the policy axis, aiming to expand the production of knowledge about PA as a public health policy.

Introducción: La actividad física (AF) es una de las cuestiones estratégicas en la agenda de la salud pública y en Brasil está establecida como un derecho de la población. El Ministerio de Salud financia investigaciones orientadas por la Agenda Nacional de Prioridades de Investigación en Salud (ANPPS), por lo tanto, la ANPPS puede acercar las investigaciones en AF a las políticas del Sistema Único de Salud (SUS). El estudio tuvo como objetivos analizar: a) la evolución temporal del número, del valor total y valor por investigación; b) los ejes; c) las subagendas de la ANPPS. Métodos: Se trata de un estudio descriptivo, cuantitativo, de las investigaciones en AF financiadas por el Ministerio de Salud en el período entre 2002 y 2023, realizado a través de una consulta en el repositorio público "Pesquisa Saúde". Se realizó un análisis de tendencia temporal del número, valor total deflacionado y valor deflacionado por investigación. Los valores absolutos y relativos del número y valor total fueron analizados mediante estadística descriptiva. Resultados:Se financiaron 234 investigaciones en AF y el valor total deflacionado fue de aproximadamente R$ 60,0 millones, lo que corresponde a una inversión promedio de R$ 256,5 mil por investigación. Este cuantitativo representa respectivamente el 3,2% y el 1,7% del cuantitativo y del valor total deflacionado para investigaciones en salud. Se revelaron importantes oscilaciones en el número y en la financiación, con tendencia decreciente para el número, valor total y valor por investigación en el período analizado. El eje de consecuencias para la salud fue el que recibió el mayor número de investigaciones y de recursos financieros. La subagenda con mayor número de investigaciones fue la de enfermedades crónicas no transmisibles y la que recibió el mayor monto de recursos fue la de epidemiología. Conclusión: La AF estuvo presente en las investigaciones financiadas por el Ministerio de Salud, sin embargo, es necesario avanzar, principalmente en el aumento del monto de recursos y en la inducción de la promoción específica para el eje de políticas, con el objetivo de ampliar la producción de conocimiento sobre AF como política pública de salud.

Introdução: A atividade física (AF) é uma das pautas estratégicas na agenda da saúde pública e no Brasil é estabelecida enquanto um direito da população. O Ministério da Saúde financia pesquisas orientadas pela Agenda Nacional de Prioridades de Pesquisa em Saúde (ANPPS), portanto, a ANPPS pode aproximar as pesquisas em AF das políticas do Sistema Único de Saúde (SUS). O estudo teve como objetivos analisar: a) a evolução temporal do número, do valor total e valor por pesquisa; b) os eixos; c) as subagendas da ANPPS. Métodos: Trata-se de um estudo descritivo, quantitativo, das pesquisas em AF financiadas pelo Ministério da Saúde no período entre 2002 e 2023, realizado por meio de consulta no repositório público "Pesquisa Saúde". Foi realizada a análise de tendência temporal do número, valor total deflacionado e valor deflacionado por pesquisa. Os valores absolutos e relativos do número e valor total foram analisados por meio de estatística descritiva. Resultados: Foram financiadas 234 pesquisas em AF e o valor total deflacionado foi de aproximadamente R$ 60,0 milhões, o que corresponde a um investimento médio de R$ 256,5 mil por pesquisa. Esse quantitativo representa respectivamente 3,2% e 1,7% do quantitativo e do valor total deflacionado para pesquisas em saúde. Foram reveladas importantes oscilações no número e no financiamento, com tendência decrescente para o número, valor total e valor por pesquisa no período analisado. O eixo de consequências para a saúde foi o que recebeu o maior número de pesquisas e de recursos financeiros. A subagenda com maior número de pesquisas foi a de doenças crônicas não transmissíveis e a que recebeu o maior montante de recursos foi a de epidemiologia. Conclusão: A AF esteve presente nas pesquisas financiadas pelo Ministério da Saúde, contudo é necessário avançar, principalmente no aumento do montante de recursos e na indução do fomento específico para o eixo de políticas, visando ampliar a produção do conhecimento sobre AF enquanto política pública de saúde.

Primary Healthcare Marketing: A Bibliometric Study and Research Agenda.

The evolution of our lives has forced changes to the healthcare system and consequently established healthcare marketing as an essential element of health services, including primary health care (PHC). This article aims to analyze the size, structure, and dynamics of research on primary healthcare marketing to identify the main topics and research trends in this area. The authors conducted a bibliographic analysis based on the methods of performance analysis and scientific mapping. The bibliographical analysis covered 1981 publications selected from the Scopus database and was carried out with the use of the MS Excel and VOSviewer applications. The results were supplemented with an in-depth analysis of 34 publications selected based on bibliographic coupling analysis to determine key research trends and results, which increased the understanding of the research area. The conducted research proves that the issue of marketing in primary health care is rarely addressed by researchers, which translates into very limited research results and little impact on the decision-making process in this area. This research field requires much greater commitment, especially in the areas indicated in the future research agenda recommendations.

Lesbian, gay, bisexual, transgender and queer (LGBTQ+) menopause: Literature review, knowledge gaps and research agenda.

There is growing interest in menopause discrimination in healthcare, the workplace and beyond. However, there is a dearth of research on lesbian, gay, bisexual, transgender and queer (LGBTQ+) experiences of the menopause. This article reports on a scoping review of the recent literature which identified a very limited number of articles and a wide range of knowledge gaps. This is discussed in relation to LGBTQ+ wider health, healthcare and workplace inequalities, and heteronormative and cisnormative conceptualisations of the menopause. A research agenda is proposed. Research should: be intersectional; differentiate between LGBTQ+ sub-groups; aim to understand how menopause experiences impact and are impacted by minority sexuality/gender identities; and examine how menopause healthcare and workplace support can be LGBTQ+ inclusive. Such research is urgently needed to ensure that LGBTQ+ people are fully included in menopause justice discussions and solutions.

Simple, Office-Based Intervention Improves Patient-Provider Relationship in New Patient Hand Visits.

Purpose: Effective patient-doctor communication is linked to improved patient functional and physiological health status, better adherence to physician recommendations, and increased patient satisfaction. However, studies show that patients have difficulty understanding and recalling information discussed during a medical encounter. The purpose of this study was to assess patient engagement, patient-doctor communication, and patient-doctor interactions with the utilization of a patient encounter card to help aid in communication. Methods: New patients presenting to a single hand surgeon during an 8-month period between 2019 and 2020 were recruited for this study. Patients were recruited in pre and postintervention phases, defined by the rollout of a patient encounter card. Patients studied in the preintervention group were defined as the control population and experienced a typical office visit. The postintervention group experienced a typical office visit with the addition of a patient encounter card distributed to patients prior to meeting with the physician and screened by the physician during the visit to guide the encounter. Patient satisfaction and engagement surveys were collected during patient checkout process. Results: Two hundred eighty-seven patients (70% participation rate) were enrolled in the preintervention (145) and postintervention (142) phases. The utilization of a patient encounter card for setting a visit agenda resulted in a significant increase in self-reported patient engagement, improving from 74% to 88%. In both phases, 98% of patients felt that the physician listened well or very well and reported high levels of confidence in the provider being able to address their primary health concerns (72% and 79%, respectively). Overall, patient satisfaction was maintained pre and postintervention (96% and 98%, respectively). Conclusions: Use of the encounter card improved patients' feelings of engagement during their visits. Further research is required to determine the impact of these tools on providers' engagement and patient outcomes to improve quality of care in hand surgery. Type of study/level of evidence: Therapeutic II.

Intelligent health in the IS area: A literature review and research agenda.

As the global demand for healthcare services continues to grow, improving the efficiency and effectiveness of the healthcare ecosystem has become a pressing concern. Information systems are transforming the healthcare delivery process, shifting the focus of healthcare services from passive disease treatment to proactive health prevention and the healthcare management model from hospital-centric to patient-centric. This study focuses on reviewing research in IS journals on the topic of e-health and is dedicated to constructing a theoretical model of intelligent health to provide a research basis for future discussions in this field. In addition, as the innovation of intelligent healthcare services has led to changes in its elements (e.g., an increase in the number of stakeholders), there is an urgent need to sort out and analyze the existing research.

Global Research Network Analysis of Edible Coatings and Films for Preserving Perishable Fruit Crops: Current Status and Future Directions.

Edible coatings and films have gained substantial attention as a promising and sustainable technology for fruit preservation. This study employed a bibliometric analysis to identify core research areas, research gaps, and emerging trends, thus providing a comprehensive roadmap for future research on the use of edible coatings and films for fruit quality preservation. The study involved 428 research articles related to edible coatings and films for fruit preservation published in the Scopus database before 06 October 2023. Utilizing Vosviewer and R for network analysis, we generated network visualization maps, research performance statistics, and identified key contributors and their collaborations. The results show the evolution of this field into three distinct phases: Initial Exploration (1998-2007), Growing Interest (2008-2015), and Rapid Expansion (2016-2023). The study revealed contributions from 1713 authors, with the first article appearing in 1998. Brazil and China emerged as the most productive countries in this domain. The core research areas focus on biomaterials, functional properties, and natural substances. Identified research gaps include pilot and industrial-scale applications, the lack of a regulatory framework and safety guidelines, and the application of artificial intelligence (AI), particularly deep learning and machine learning, in this field of edible coatings and films for fruit preservation. Overall, this study offers a scientific understanding of past achievements and ongoing research needs, thus aiming to boost a broader adoption of edible coatings and films by consumers and the food industry to preserve fruit quality, thereby enhancing their societal and environmental impact.

The place of health in the EU-CELAC interregional cooperation from 2005 to 2023: a historical, empirical and prospective analysis.

BACKGROUND: Much has been said by actors from different fields and perspectives about the manifold changes in world affairs triggered by the COVID-19 pandemic. In this context, it is to be expected that there will be impacts on long-standing partnerships such as the one between the European Union and the Community of Latin American and Caribbean Countries. However, few studies have demonstrated these impacts, either empirically, by uncovering their specificities or from a historical perspective, to allow for a reasonable methodological comparison of the patterns used to define the partnership and that have changed or have been affected in some way by the pandemic. RESULTS: Through an in-depth qualitative assessment of primary and secondary sources, this article contributes to this research gap. It analyzes the patterns and changes or impacts in light of two strands of behavior that can make sense of EU-CELAC health cooperation-revisionist or reformist. The findings show an economy-driven health agenda as a new pattern of cooperation, which derives from EU reformist behavior after the pandemic. CONCLUSIONS: The EU power to enforce its priorities in the context of health cooperation with CELAC is the main factor that will define how (and not just which) competing interests and capacities will be accommodated. The relevance of the study to the fields of global governance for health, interregional health cooperation and EU foreign policy is threefold. It shows us i.how two more international regimes are easily intertwined with health-trade and intellectual property-with the potential to deepen asymmetries and divergences even between long-standing strategic partners; ii.contrary to the idea that reformist behaviors are only adopted by actors who are dissatisfied with the status quo, the study shows us that the reformist actor can also be the one who has more material power and influence and who nevertheless challenges the success of cooperation in the name of new priorities and the means to achieve them; and iii.how the EU will find it difficult to operationalize its new priorities internally, among states and private actors, and with those of CELAC, given the history of intense disputes over health-related economic aspects.

An elephant in the room? Explaining agenda-setting in antimicrobial resistance policies in 30 European countries.

Antimicrobial resistances (AMR) present a particularly challenging cross-sectoral policy problem, affecting human and animal health as well as the environment. Compared to the actual problem pressure, the public awareness for AMR is comparatively low and the issue has not been high on the political agenda in most. Given the rising problem pressure, we aim to find out as to what degree and under which conditions political parties bring AMR on the political agenda. By means of multilevel logit regressions based on 173 electoral manifestos in 30 European countries from 2015 to 2020, we explore the conditions that explain whether AMR are taken up in manifestos. The empirical findings indicate firstly that AMR are only addressed by political parties in Northern and Western Europe, in no case in Eastern, and only in one case in Southern Europe, though resistant bacteria are more widely spread in the latter. Secondly, Green parties are those who are most likely to address the AMR challenge. Thirdly, vote share is positively associated with AMR agenda-setting, while EU membership is insignificant and the national average on antibiotics consumption is negatively related to AMR agenda-setting. Finally, AMR are surprisingly mainly perceived as a problem of the agricultural policy subsystem despite its cross-sectoral policy character. The study makes theoretical and empirical contributions: regarding theory, the article shows that typical variables that are used for agenda-setting are less explanatory for complex intersectoral policies. This is also accompanied by the empirical contribution: since problem awareness and complexity of policy problems are correlated, AMR are reduced to an agricultural issue and as such, it is taken over by political parties that have expertise on agricultural-environmental topics.

Metacognitive analysis of the practicum subject of the Master's in Secondary Teaching through a reflexive portfolio.

This study delves into the efficacy of the reflective portfolio in the metacognitive domain within the context of the Master's in Secondary Teaching. It places particular emphasis on the impact of prior academic training in different specialties (scientific vs. humanities) on metacognitive skills development. The research employs a mixed-methods approach, analyzing portfolios from various academic specialties, developed in practicum subject, to ascertain differences in metacognitive competencies of teaching competencies. The main findings reveal that while students generally demonstrate a basic level of success in describing learning situations, there is a notable deficiency in deeper analytical skills and self-improvement strategies, especially among science students compared to their humanities counterparts. This suggests that initial training and educational background significantly influence the development of these competencies. The study concludes that there is a pressing need for more focused and robust training in metacognitive skills across different educational disciplines. Furthermore, it highlights the necessity for educational strategies that effectively address these variations, aligning teaching and learning processes with the principles of quality and sustainable education as envisioned in Agenda 2030. The insights gained are crucial for the development of more effective and comprehensive teacher education programs.

Ethics and health research priority setting: a narrative review.

This narrative review aims to describe current practice and ongoing discussions in the academic literature regarding ethics and health research priority setting. It begins with some preliminary distinctions regarding types of research priority setting. It then gives some background on current practice with respect to formal research priority setting exercises, including summaries of The Ad Hoc Committee on Health Research method, the Child Health and Nutrition Research Initiative (CHNRI) method, the Combined Approach Matrix (CAM), the Delphi method, the Essential National Health Research (ENHR) strategy for priority setting, and the James Lind Alliance (JLA) framework. The majority of the paper reports the results of a literature review covering specifically ethical issues under the thematic headings of process criteria, substantive criteria, global justice, the obligations of specific actors, and research topics. It closes with some summary thoughts about apparent gaps and directions for future investigation.

More health research is needed to develop new treatment and prevention options for many diseases. But there are limited resources available to support health research. This means that difficult decisions must be made about how to allocate those resources among competing important projects. Making these decisions is called priority setting. Dr. Joseph Millum reviewed what has been published on the ethics of health research priority setting. First, he compared different methods that have already been developed to help organizations and governments set priorities. Second, he identified themes in the current discussions about ethics and priority setting. Some important themes included: how stakeholders should be included in priority setting exercises; what would be a fair allocation of research resources; global disparities in health research; and how different types of funder should think about their obligations. The results of this review will inform guidance from the World Health Organization on how to incorporate ethics into health research priority setting.

Corrigendum: Gender analysis of the World Health Organization's online learning programme on Immunization Agenda 2030.

[This corrects the article DOI: 10.3389/fgwh.2023.1230109.].

The development and initial evaluation of conversation cards for optimizing consultations for patients with atopic dermatitis.

Purpose: Patients with atopic dermatitis (AD) require both skills and support to effectively manage life with the disease. Here, we developed an agenda-setting tool for consultations with patients with AD to establish a collaborative agenda that enhances patient involvement and prioritizes on self-management support.Materials and methods: Using the design thinking process, we included 64 end-users (patients and healthcare professionals (HCPs)) across the different phases of design thinking. We identified seven overall categories that patients find important to discuss during consultations, which informed the development of a tool for co-creating a consultation agenda (conversation cards, CCs).Results: Through iterative user testing of the CCs, patients perceived the cards as both inspiring and an invitation from HCPs to openly discuss their needs during consultations. Healthcare professionals have found the CCs easy to use, despite the disruption to the typical consultation process.Conclusion: In summary, the CCs provide a first-of-its-kind agenda-setting tool for patients with AD. They offer a simple and practical method to establishing a shared agenda that focuses on the patients' needs and are applicable within real-world clinical settings.

Co-creating a global shared research agenda on violence against women in low- and middle-income countries.

BACKGROUND: Despite a large growth in evidence on violence against women (VAW) over the last 25 years, VAW persists, as do gaps in the field's knowledge of how to prevent and respond to it. To ensure that research on VAW in low- and middle-income countries (LIMCs) is addressing the most significant gaps in knowledge, and to prioritise evidence needs to reduce VAW and better support victims/survivors, the Sexual Violence Research Initiative (SVRI) and Equality Institute (EQI) led a process of developing a global shared research agenda (GSRA) on VAW in LMICs. METHODS: The GSRA was developed through a six-stage adaptation of the Child Health and Nutrition Research Initiative (CHNRI) method, which draws on the principle of the 'wisdom of the crowd'. These steps included: a review of the literature on VAW in LMICs and development of domains; the generation of research questions within four domains by an Advisory Group; the consolidation of research questions; scoring of research questions by a Global Expert Group and the Advisory Group according to three criteria (applicability, effectiveness and equity); consultation and validation of the findings with the Advisory Group; and wide dissemination of the findings. RESULTS: The highest ranked research questions in the GSRA pertain to the domain of Intervention research, with some highly ranked questions also pertaining to the domain of Understanding VAW in its multiple forms. Questions under the other two domains, Improving existing interventions, and Methodological and measurement gaps, were not prioritised as highly by experts. There was strong consistency in top ranked research questions according to experts' characteristics, albeit with some important differences according to experts' gender, occupation and geographical location. CONCLUSIONS: The GSRA findings suggest that currently the VAW field is shifting towards intervention research after several decades of building evidence on understanding VAW, including prevalence, drivers and impacts of violence. The findings also suggest a strong emphasis on under-served populations, and under-researched forms of VAW. Future priority setting exercises in LMICs that seek to decolonise knowledge should ensure that methodologies, and modalities of engagement, put diverse voices at the centre of engagement. Trial registration Not applicable.

Non-fungible tokens (NFTs) in healthcare: a thematic analysis and research agenda.

Introduction: In the big data era, where corporations commodify health data, non-fungible tokens (NFTs) present a transformative avenue for patient empowerment and control. NFTs are unique digital assets on the blockchain, representing ownership of digital objects, including health data. By minting their data as NFTs, patients can track access, monetize its use, and build secure, private health information systems. However, research on NFTs in healthcare is in its infancy, warranting a comprehensive review. Methods: This study conducted a systematic literature review and thematic analysis of NFTs in healthcare to identify use cases, design models, and key challenges. Five multidisciplinary research databases (Scopus, Web of Science, Google Scholar, IEEE Explore, Elsevier Science Direct) were searched. The approach involved four stages: paper collection, inclusion/exclusion criteria application, screening, full-text reading, and quality assessment. A classification and coding framework was employed. Thematic analysis followed six steps: data familiarization, initial code generation, theme searching, theme review, theme definition/naming, and report production. Results: Analysis of 19 selected papers revealed three primary use cases: patient-centric data management, supply chain management for data provenance, and digital twin development. Notably, most solutions were prototypes or frameworks without real-world implementations. Four overarching themes emerged: data governance (ownership, tracking, privacy), data monetization (commercialization, incentivization, sharing), data protection, and data storage. The focus lies on user-controlled, private, and secure health data solutions. Additionally, data commodification is explored, with mechanisms proposed to incentivize data maintenance and sharing. NFTs are also suggested for tracking medical products in supply chains, ensuring data integrity and provenance. Ethereum and similar platforms dominate NFT minting, while compact NFT storage options are being explored for faster data access. Conclusion: NFTs offer significant potential for secure, traceable, decentralized healthcare data exchange systems. However, challenges exist, including dependence on blockchain, interoperability issues, and associated costs. The review identified research gaps, such as developing dual ownership models and data pricing strategies. Building an open standard for interoperability and adoption is crucial. The scalability, security, and privacy of NFT-backed healthcare applications require further investigation. Thus, this study proposes a research agenda for adopting NFTs in healthcare, focusing on governance, storage models, and perceptions.