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1.
Cult Geogr ; 31(3): 417-429, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38911697

RESUMO

This essay combines text and images in the style of a graphic novel to animate the lively and dynamic processes of a qualitative research approach that I call the collective creation of performed fiction. This is a form of projective storytelling in which participants draw on their own experiences to create and perform composite stories. Using fiction helps them avoid revealing sensitive details of their personal lives. The examples shared here are drawn from a long-term engagement with a group of youth in Old Havana, Cuba, where historic geopolitical tensions and emergent economic crises are interrupting the imagined futures of the young. This brief contribution documents key differences between three creative mediums used in this work (street theatre, film and animation), and addresses their varied capacities to mitigate the risks of self-disclosure.

2.
Can J Pain ; 8(1): 2352876, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38915305

RESUMO

Background: As an emerging approach, arts-based research holds potential to advance understanding of the complex and multidimensional experiences of chronic pain and means of communicating this experiential evidence. This scoping review aimed to map and explore the extent of arts-based research in chronic non-cancer pain, understand the rationale behind using arts-based research methods, and identify directions for future research. Methods: Databases PsycINFO, MEDLINE, EMBASE, and CINAHL were searched for eligible English-language articles from inception to November 2022. Out of 1321 article titles and abstracts screened for eligibility, 18 articles underwent full-text screening, with 14 ultimately meeting all inclusion criteria. We conducted a narrative synthesis of data extracted from the 14 reviewed articles. Results: The review articles focused on a wide range of chronic non-cancer pain conditions, with 12/14 employing qualitative methods (86%), one repeated measures experimental design, and another a multiphase, multimethod design. Seven articles described the use of drawing, painting, or mixed-media artwork; four used photography; two used body mapping; and one used e-book creation. The rationale for arts-based research included exploring and better understanding patients' experiences with chronic non-cancer pain, constructing an intervention, and investigating or validating a clinical tool. Nine articles reported that their arts-based research methods produced unintended therapeutic benefits for participants. Recommendations for future research included using arts-based research to better understand and communicate with patients and providers, exploring convergence with art therapy, and designing creative and flexible multiphased studies involving collaboration across disciplines. Conclusions: Despite the wide variation in sample and art modalities across reviewed articles, arts-based methods were considered suitable and highly effective for investigating chronic non-cancer pain.


Contexte: La neuromodulation par radiofréquence pulsée (NRFP) du nerf grand occipital (NGO) est envisagée chez les patients souffrant de céphalées qui ne parviennent pas à obtenir un bénéfice analgésique durable à partir des blocages nerveux à l'aide d'un anesthésique local et de stéroïdes. Cependant, les données probantes à l'appui de cette pratique ne sont pas claires.Objectifs: Cette revue systématique narrative vise à explorer l'efficacité et la sécurité de la NRFP du NGO sur les maux de tête.Méthodes: Des bases de données ont été consultées pour trouver des études, publiées jusqu'au 1er février 2024, portant sur la NRFP du NGO chez des adultes souffrant de céphalées. Les résumés et les affiches ont été exclus. Le critère principal était le changement dans l'intensité des maux de tête. Les critères secondaires comprenaient l'effet sur la fréquence mensuelle des céphalées, la santé mentale et physique, l'humeur, le sommeil, la consommation d'analgésiques et les effets secondaires. Deux examinateurs ont évalué et extrait les données.Résultats: Vingt-deux articles (2 essais contrôlés randomisés, 11 cohortes et 9 rapports de cas/séries) portant sur 608 patients ont été recensés. Une hétérogénéité considérable a été observée en termes de devis de l'étude, de diagnostic des céphalées, de la cible et des paramètres de la FRP et de l'orientation de l'image. Les réglages de la NRFP variaient (38-42°C, 40-60 V, et 150-400 Ohms). Les études ont démontré que la NRFP procurait une analgésie significative et réduisait la fréquence des céphalées dans la migraine chronique de trois à six mois, et un soulagement significatif de la douleur pour la névralgie occipitale pendant six à dix mois. Des effets indésirables légers ont été signalés dans 3,1 % des participants de la cohorte. Une minorité d'études ont fait état de résultats secondaires. La qualité des données probantes était faible.Conclusion: Les données probantes de faible qualité indiquent un bénéfice analgésique de la NRFP du NGO pour la névralgie occipitale et la migraine chronique, mais son rôle pour d'autres types de céphalées doit être davantage étudié. La cible et les paramètres optimaux de la NRFP restent floues. Des essais contrôlés randomisés de haute qualité sont nécessaires pour explorer davantage le rôle de cette intervention.

3.
BMC Geriatr ; 24(1): 504, 2024 Jun 07.
Artigo em Inglês | MEDLINE | ID: mdl-38849735

RESUMO

BACKGROUND: People living with, or caring for someone with, rare forms of dementia can encounter issues while obtaining a diagnosis and trying to access appropriate support. This can affect their wellbeing, quality of life, social relationships and employment status. This study makes use of an arts-based narrative approach to explore individual accounts of these experiences whilst also exploring how, in telling their stories, those affected by rare forms of dementia might invoke, and situate their stories in relation to, broader cultural narratives around dementia and illness. METHODS: Semi-structured interviews were conducted via video-conferencing software with participants (N = 27), living with, or caring for someone with, a rare forms of dementia. Participants used line drawings to depict their journey from initial symptoms to the present day, followed by prompts to verbally narrate their experiences. All interview transcripts and line drawings were subjected to narrative analysis. Four sets of transcripts and drawings were then subjected to more in-depth analysis. RESULTS: Analysis shed light on the struggles encountered by both care-partners and people with a diagnosis, while navigating a health and social care system that does not always understand their needs. This often led to individuals feeling isolated and unsupported. Accounts also depicted challenges to identity brought on by the process. The moment of diagnosis was also drawn in a complicated light. Individuals found comfort in gaining understanding, but felt fear at recognising upcoming challenges. Participants situated their own accounts against mainstream cultural narratives around what good support for cognitive impairment and dementia might look like, whilst also demonstrating the influential role they took on in pursuing the right care. CONCLUSIONS: The use of line drawing, alongside narrative interviews, allowed participants to tell complicated, sometimes anachronistic, stories about difficult experiences, whilst also reflecting on, and attaching meaning to, them. These stories highlighted pressing gaps in healthcare services and shone a light on the various pieces of collective action individuals were engaged in in order to improve them. Finally, in modelling some elements of the participants' service provision which were working, the narratives pointed to future directions services might move in.


Assuntos
Demência , Narração , Humanos , Demência/diagnóstico , Demência/psicologia , Feminino , Masculino , Idoso , Pessoa de Meia-Idade , Idoso de 80 Anos ou mais , Apoio Social , Cuidadores/psicologia , Entrevistas como Assunto
4.
Health Expect ; 27(2): e14041, 2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-38567877

RESUMO

BACKGROUND: Cocreation has the potential to engage people with lived and living experiences in the design and evaluation of health and social services. However, guidance is needed to better include people from equity-deserving groups (EDGs), who are more likely to face barriers to participation, experience ongoing or historical harm, and benefit from accessible methods of engagement. OBJECTIVE: The aim of this international forum (CoPro2022) was to advance a collective vision for equity-based cocreation. DESIGN: A participatory process of engagement in experiential colearning and arts-based creative and reflective dialogue. Visual prototypes were created and synthesised to generate a collective vision for inclusive equity-based cocreation. SETTING AND PARTICIPANTS: The Forum was held at the Gathering Place by the Grand River in Ohsweken, Ontario, Canada. A total of 48 participants attended the forum. They were purposely invited and have intersecting positionalities (21 academic experts, six experience experts, 10 trainees, and 11 members of EDGs) from nine countries (Bangladesh, Botswana, Canada, England, Italy, Norway, Scotland, Singapore, Sweden). COPRO2022 ACTIVITIES: CoPro2022 was an immersive experience hosted on Indigenous land that encouraged continuous participant reflection on their own worldviews and those of others as participants openly discussed the challenges and opportunities with engaging EDGs in cocreation activities. Visual prototypes and descriptions created in small groups were informed by participants' reflections on the panel presentations at the Forum and their own experiences with equity-based cocreation. Following the event, the authorship team inductively coded themes from the prototype descriptions and met to discuss the cross-cutting themes. These informed the design of an illustrated collective vision for Equity Based Co-Creation (EqCC). RESULTS: Six prototypes were cocreated by each small group to illustrate their vision for EqCC. Within these, four cross-cutting themes were identified: (i) go to where people are, (ii) nurture relationships and creativity, (iii) reflect, replenish and grow, (iv) and promote thriving and transformation. These four themes are captured in the Collective EqCC Vision to guide a new era of inclusive excellence in cocreation activities. PATIENT OR PUBLIC CONTRIBUTION: Service users, caregivers, and people with lived experience were involved in leading the design of the CoPro2022 and co-led the event. This included activities at the event such as presenting, facilitating small and large group discussion, leading art-based activities, and reflecting with the team on the lessons learned. People with lived experience were involved in the analysis and knowledge sharing from this event. Several members of the research team (students and researchers) also identified as members of EDGs and were invited to draw from their personal and academic knowledge.


Assuntos
Serviço Social , Estudantes , Humanos , Ontário , Inglaterra , Noruega
5.
Health Promot Pract ; : 15248399241229641, 2024 Feb 19.
Artigo em Inglês | MEDLINE | ID: mdl-38374717

RESUMO

While structural racism has profound impacts on adolescent health, little is known about how youth synthesize racialized experiences and work to dismantle systems of oppression. This article provides an overview of a Youth Participatory Action Research study that used Photovoice and community mapping to explore how structural violence, like racism, impacts the sexual and reproductive health of historically excluded youth as they navigate unjust socio-political landscapes. Youth participants used photography and community maps to identify how the experience of bias, profiling, and tokenism impacted their ability to navigate complex social systems. With youth voices prioritized, participants explored ways to address structural racism in their lives. The importance of co-creating opportunities with and for youth in critical reflection of their lived experience is emphasized. Through an Arts and Cultural in Public Health framework, we provide an analysis of the ways structural racism functions as a gendered racial project and fundamental cause of adolescent sexual and reproductive health inequities, while identifying pathways toward liberation in pursuit of health and well-being.

6.
Arts Health ; : 1-16, 2024 Jan 31.
Artigo em Inglês | MEDLINE | ID: mdl-38294708

RESUMO

This research uses the arts-based research method of found poetry, the creation of poem-like prose from existing text, to share the lived experience of the 2009 Black Saturday bushfire disaster in Australia which killed 173 people. After outlining the processes, this paper applies found poetry to an existing text: Peg Fraser's book, Black Saturday. Five found poems are shared, each conveying a different element of the disaster experience: "Armageddon," "Go - GET OUT," "Bushfire Chook," "Resisting the Poetry Tree," and "Lucky". Compared to normal prose, there is an authentic and vulnerable vibrancy to the language of these found poems, which offer unexpected visceral insight into the bushfire experience - the fear, the heat, the confusion, the anger, and the loss. Poetry, which resonates and draws people in emotionally, has significant potential as arts-based knowledge translation in disaster risk and climate change communication.

7.
Arts Health ; : 1-18, 2023 Sep 11.
Artigo em Inglês | MEDLINE | ID: mdl-37694555

RESUMO

BACKGROUND: Collage is a modality of expression which involves repurposing and juxtaposing fragments. Our aim was to explore both how and what collage, as an arts-based research method, might contribute to enlivening understandings of the experiences of families affected by rare conditions. METHODS: During 10 weeks of collaging workshops participants created artistic representations of their experiences. The methodology produced a convivial atmosphere where participants talked openly about everyday challenges. RESULTS: The collages and conversations produced offer a means through which to consider the complex and multiple positions which families affected by rare disease interpolate. Particularly, the collages prompt cross-cutting thematic reflections on motherhood and care, the challenges of being heard, and balancing family life alongside medicalisation. CONCLUSIONS: The opportunity to convey topics and feelings through a medium which was both tentatively open yet conceptually complex allowed the broaching of sensitive and elusive themes in a safe, expressive, and non-threatening manner.

8.
Health Expect ; 26(6): 2264-2277, 2023 12.
Artigo em Inglês | MEDLINE | ID: mdl-37427532

RESUMO

INTRODUCTION: It is increasingly recognised by UK researchers and population health advocates that an important impetus to effective policy action to address health inequalities is activation of public dialogue about the social determinants of health and how inequalities might be addressed. The limited body of existing scholarship reaches varying conclusions on public preferences for responding to health inequalities but with consensus around the importance of tackling poverty. Young people's perspectives remain underexplored despite their increasingly visible role in activism across a range of policy issues and the potential impact of widening inequalities on their generation's health and wellbeing. METHODS: Six groups of young people (39 in total) from two UK cities (Glasgow and Leeds) were engaged in online workshops to explore views on health inequalities and potential solutions. Inspired by calls to employ notions of utopia, artist-facilitators and researchers supported participants to explore the evidence, debating solutions and imagining a more desirable society, using visual and performance art. Drawing together data from discussions and creative outputs, we analysed participants' perspectives on addressing health inequalities across four domains: governance, environment, society/culture and economy. FINDINGS: Proposals ranged from radical, whole-systems change to support for policies currently being considered by governments across the United Kingdom. The consensus was built around embracing more participatory, collaborative governance; prioritising sustainability and access to greenspace; promoting inclusivity and eliminating discrimination and improving the circumstances of those on the lowest incomes. Levels of acceptable income inequality, and how best to address income inequality were more contested. Individual-level interventions were rarely presented as viable options for addressing the social inequalities from which health differences emanate. CONCLUSION: Young people contributed wide-ranging and visionary solutions to debates around addressing the enduring existence of health inequalities in the United Kingdom. Their reflections signal support for 'upstream' systemic change to achieve reductions in social inequalities and the health differences that flow from these. PUBLIC CONTRIBUTION: An advisory group of young people informed the development of project plans. Participants shaped the direction of the project in terms of substantive focus and were responsible for the generation of creative project outputs aimed at influencing policymakers.


Assuntos
Renda , Pobreza , Humanos , Adolescente , Fatores Socioeconômicos , Reino Unido , Disparidades nos Níveis de Saúde
9.
Age Ageing ; 52(6)2023 06 01.
Artigo em Inglês | MEDLINE | ID: mdl-37366330

RESUMO

BACKGROUND: a change in attitude towards ageing is needed. Arts-based research (ABR) refers to the use of any creative art in research. ABR can provide an environment to reflect on challenging social issues and has the potential to make lasting impressions. OBJECTIVE: we aimed to explore the use of ABR to disseminate findings from a qualitative evidence synthesis exploring what it means to live well beyond the age of 80. DESIGN: ABR using art as a stimulus for recorded discussions and written annotations. SETTING: a mixed catchment state secondary school in the UK. SUBJECTS: fifty-four secondary school pupils aged 14-15. The majority identified as female (ratio 5:1). METHODS: school pupils created artwork to represent themes about ageing drawn from a qualitative evidence synthesis. The artwork was a stimulus for recorded discussions. We used thematic analysis to develop themes about children's response to ageing. RESULTS: we developed six themes. Pupils found comfort in recognising that old age can be lived well; they began to see themselves in the older person; they explored the ambiguous nature of memory; they highlighted the dangers of disconnection; they affirmed a need to restore connection with elders and they recognised the need to cherish time and live meaningfully. CONCLUSIONS: this project encouraged pupils to think about what it means to grow old. ABR has the potential to contribute to a more positive relationship with older people and towards ageing. Research stakeholders should not undervalue the potential power of shifts in perspective for powering social change.


Assuntos
Envelhecimento , Instituições Acadêmicas , Humanos , Feminino , Idoso , Reino Unido , Pesquisa Qualitativa
10.
J Fam Nurs ; 29(4): 395-416, 2023 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-37128884

RESUMO

Family care is essential to pediatric nursing practice, as the entire family is affected by childhood illness. However, little is known about art making for therapeutic purposes and how art is used to better understand families' experiences. Our purpose was to examine the nature of arts-based interventions and research methods used with, and the experiences of families of children facing life-limiting and life-threatening illnesses, and those families who are bereaved. Academic peer-reviewed sources published between January 1999 and May 2022 were retrieved via four databases using key search terms. Twenty-five articles were analyzed, resulting in three multifaceted categories including Social, Emotional, and Family Health. Critical strengths and limitations were also identified. Art making has been incorporated into interventions and research studies due to its benefits for family well-being. Understanding the potential of art making can inspire nurses to implement such activities to enhance family nursing practice and research.


Assuntos
Saúde da Família , Enfermagem Familiar , Humanos , Criança , Pesquisa Qualitativa
11.
Cult. cuid ; 27(66): 141-156, Juli 25, 2023. tab
Artigo em Espanhol | IBECS | ID: ibc-224026

RESUMO

The article presents the results of a participatory research process based on the arts, whichsought to incorporate art and creativity in seven units of a high-complexity university hospital, forsupport at the end of life and bereavement. This was done through the provision of kits with materials with creative potential and the development of awareness and creation workshops with healthand administrative staff, patients, and family members. The process was produced through participant observation and field diaries. Informal, semi-structured interviews and a discussion groupwere also conducted to identify the main barriers and facilitators of the proposal. We conclude that,in order to integrate this type of resources and for care centered on the person and families, healthservices require deep transformations that include death as a significant experience, giving space totheir own mourning and emotions, which would reduce Fatigue due to inflammation is very frequent in health personnel confronted with death in a systematic way. The project was approved bythe respective ethics committee.(AU)


El artículo presenta los resultados de un proceso de investigación participativa basadaen las artes, en el que se buscó incorporar el arte y la creatividad en siete unidades de un hospitaluniversitario de alta complejidad, para el acompañamiento en final de vida y duelo. Esto se hizo através de la disposición de kits con materiales con potencial creativo y el desarrollo de talleres desensibilización y creación con personal sanitario, administrativo, pacientes y familiares. El procesose registró a través de observación participante y diarios de campo. También se realizaron reunionesperiódicas, entrevistas informales, semiestructuradas de seguimiento y un grupo de discusión paraidentificar las principales barreras y facilitadores de la propuesta. Concluimos que, para poderintegrar este tipo de recursos y para una atención centrada en la persona y las familias, los serviciosde salud requieren transformaciones de fondo que incluyan la muerte como experiencia significante, dando espacio a sus propios duelos y emociones, lo que reduciría la fatiga por compasiónmuy frecuente en personal de salud enfrentado a la muerte de manera sistemática. El proyecto contócon la aprobación del comité de ética respectivo.(AU)


O artigo apresenta os resultados de um processo de pesquisa participativa baseado nasartes, que buscou incorporar arte e criatividade em sete unidades de um hospital universitário dealta complexidade, para apoio no final da vida e luto. Isso foi feito por meio da disponibilização dekits com materiais com potencial criativo e do desenvolvimento de oficinas de sensibilização e criação com equipe de saúde e administrativa, pacientes e familiares. O processo foi produzido pormeio de observação participante e diários de campo. Também foram realizadas entrevistas informais semiestruturadas e um grupo de discussão para identificar as principais barreiras e facilitadores da proposta. Concluímos que, para integrar este tipo de recursos e para um cuidado centradona pessoa e na família, os serviços de saúde necessitam de profundas transformações que incluama morte como uma experiência significativa, dando espaço ao seu próprio luto e emoções, o quereduziria a Fadiga por a inflamação é muito frequente em profissionais de saúde confrontados coma morte de forma sistemática. O projeto foi aprovado pelo respectivo comitê de ética.(AU)


Assuntos
Humanos , Masculino , Feminino , Morte , Pesar , Cuidados Paliativos na Terminalidade da Vida , Arte , Serviço de Acompanhamento de Pacientes , Criatividade , Pessoal de Saúde , Pesquisa Qualitativa , Colômbia , Comitês de Ética em Pesquisa
12.
J Appl Res Intellect Disabil ; 36(4): 725-738, 2023 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-37062820

RESUMO

BACKGROUND: Photovoice is an arts-based participatory action research methodology that is growing in popularity. Our aim was to systematically review photovoice research with people with intellectual disabilities to describe the current 'state of the art' and identify areas for further methodological consideration. METHODS: We searched five databases using search terms relating to photovoice and intellectual disabilities. Thirty one studies met inclusion criteria. We used thematic analysis to identify common themes. FINDINGS: The themes identified-adaptations to the photovoice method, collaboration, participation and power, impact and outcomes-explored how far the 'voice' and agency of participants with intellectual disabilities taking part in photovoice research were supported and whether photovoice lived up to its promise as 'action' research. CONCLUSION: Photovoice creates opportunities for self-representation of people with intellectual disabilities through photography. Participants could be further supported to engage with researchers in critical reflection on findings and collaborate on tangible outcomes.


Assuntos
Deficiência Intelectual , Projetos de Pesquisa , Humanos , Pesquisa Participativa Baseada na Comunidade , Pesquisa sobre Serviços de Saúde , Fotografação
13.
JMIR Form Res ; 7: e37549, 2023 Mar 14.
Artigo em Inglês | MEDLINE | ID: mdl-36917164

RESUMO

BACKGROUND: Endometriosis is a complex chronic disease characterized by pain, including painful sex, that can contribute to considerable sexual function, self-esteem, and relationship challenges. Digital storytelling is an arts-based, participatory methodology wherein individuals create and share their illness experiences in detailing their lived experiences. OBJECTIVE: The study objective was to pilot-test a web-based digital storytelling workshop focused on endometriosis to understand storytellers' experiences of workshop participation. We assessed the feasibility of story cocreation and sharing, including the emotional impact of workshop participation, the acceptability of the workshop for the subject matter, and the storytellers' willingness to share their stories with broader audiences as a method for knowledge translation. METHODS: This study used a community-based participatory methodology supplemented with patient-oriented research and integrated knowledge translation. Study participants, referred to as storytellers, cocreated 3- to 5-minute individual digital stories about their lived experiences of endometriosis during a web-based workshop (comprising five 2-hour sessions over 6 weeks) facilitated by The Center for Digital Storytelling. Data were collected through participant observations at the workshop, storyteller weekly reflective journals, and an end-of-workshop focus group interview with storytellers. These data were analyzed using a qualitative interpretive description approach. RESULTS: A total of 5 women and 1 nonbinary storyteller aged 19 to 39 years who had experienced endometriosis for 4 to 22 years participated in the study. We characterized storytelling workshop participation and the acceptability of story cocreation by describing participants' experiences of opportunity, commitment, and connection; complex emotions that were healing; and a desire to share. Feasibility was demonstrated through 100% engagement in the workshops. All 6 storytellers reported feeling empowered by publicly sharing their cocreated digital stories through social media and the Sex, Pain & Endometriosis website. CONCLUSIONS: Despite the complexities of the story-building process, the workshop and the cocreation and sharing of digital stories were feasible. The storytellers found that this process allowed for emotional healing and personal empowerment by offering a unique way to talk about painful sex, which also facilitated a connection among those in the workshop. The use of digital storytelling as a knowledge translation tool shows promise, and this approach also has potential as a therapeutic intervention.

14.
Arts Health ; : 1-23, 2023 Feb 06.
Artigo em Inglês | MEDLINE | ID: mdl-36744326

RESUMO

BACKGROUND: Body dysmorphic disorder (BDD) is a mental health condition characterised by distress associated with perceived defects in one's physical appearance. Such defects are likely to be very slight or invisible to external observers, making it difficult for people with BDD to convey what they see. METHODS: Participants created artwork representing how they cope with BDD, then completed a follow-up interview to discuss their artwork. Framework for the Analysis of Drawings was used together with Interpretative Phenomenological Analysis. FINDINGS: Three overarching themes were generated from the analysis, centred around BDD's fusion with one's lifeworld, perceptual detachment, and fragmented selves. CONCLUSIONS: We suggest incorporating artwork creation in BDD research and clinical settings may elucidate understanding of "hidden" experiences. Clinicians may find it helpful to reflect on how the distinctive BDD "way of seeing" can infuse not just specific perceptions of the body, but also the person's wider relationship to the world.

15.
Health Sociol Rev ; : 1-18, 2023 Feb 09.
Artigo em Inglês | MEDLINE | ID: mdl-36759339

RESUMO

There are numerous ways that researchers can creatively approach social research and translation. This article discusses elements from the first stages of a novel project that centres social research translation in the form of a public exhibition. 'Creative Approaches to Health Information Ecologies' is a project by a multidisciplinary research team in collaboration with an Australian health consumer organisation. The project uses creative workshop methods to explore how people learn, think, and feel about their bodies and health states, and brings attention to the significance of communities, places, spaces, objects, and other living things - the 'ecologies' of health information. It then builds on these insights to create an interactive exhibition of materials designed for public engagement. This reflexive article unpacks how this creative translation-centred collaboration contributed to the make-up of the project team, the project's research methods, and the process of making exhibition materials. We discuss what the research team learned from the process about creative collaboration, research-creation, and research translation.

16.
J Health Serv Res Policy ; 28(3): 190-196, 2023 07.
Artigo em Inglês | MEDLINE | ID: mdl-36367301

RESUMO

OBJECTIVE: Arts-based research (ABR) refers to the use of art in the research process to help generate, interpret and/or communicate knowledge. We used ABR principles to adapt a centre-staging method to complement a more traditional qualitative approach to evaluate participants' views on dental service reform. METHODS: We asked five individuals in the dental health sector in the National Health Service in Wales to select objects to depict their views on the current reform process and their ideal reform process. This process took place alongside traditional semi-structured interviews with the participants. RESULTS: There were three marked differences in the centre-staging process as compared to the interviews: (1) there was a greater use of symbolism by the participants, (2) the participants put a greater focus on the process of change and (3) the participants were more likely to reveal the emotions underlying their assessments of the reform process. CONCLUSIONS: The arts-based approach adopted appeared to be highly accessible and has the potential to be used in a wide range of applications.


Assuntos
Atenção à Saúde , Assistência Odontológica , Medicina Estatal , Humanos , Grupos Focais , Reforma dos Serviços de Saúde , Pesquisa Qualitativa , País de Gales
17.
Medical Education ; : 235-243, 2023.
Artigo em Japonês | WPRIM (Pacífico Ocidental) | ID: wpr-1007013

RESUMO

The use of arts in Japanese health professions education has received increasing attention. This paper provides an overview of arts-integrated learning and related concepts, including medical humanities. It also discusses the benefits of using arts as a new teaching method. The benefits include facilitating the understanding of the human condition-such as involvement in medicine and disease-with emotion, including empathy, through case studies and cultivating perspective-taking and critical perspectives. Further, the use of arts helps to encourage learning in diverse contexts for transfer (application) to clinical practice, fostering values regarding medicine, nurturing a research mindset, facilitating an integrative understanding using creative methods, and enabling students to experience the usefulness of arts in medicine.

18.
HRB Open Res ; 6: 74, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-38560723

RESUMO

Background: There is a growing awareness of the need to include people's lived experiences in health decision-making. While much progress has been made in this field, exclusionary patterns persist regarding migrant participation in health research. The aim of this scoping review was to examine the available literature around the use of music as an arts-based research (ABR) method in migrant health research in order to extend knowledge of creative methods and tools used for migrant participation in health research. Methods: Our review follows a scoping review methodology. Searches were conducted in 11 electronic databases between June and August, 2020. We identified 14 eligible references published between January 2009 and August 2020. We analysed how music is utilised as an arts-based research method in community-based health and wellbeing contexts primarily with refugees, asylum seekers, undocumented migrants, and members of resettled immigrant communities. Results: The findings show that music's role is most prominent as a tool for recruitment and engagement followed by its use as a tool for dissemination. Music is effective as a means to co-produce and communicate knowledge of lived experiences of migration and related wellbeing issues. Recommendations and conclusions: Our recommendations for further research include the need for increased detail on the musical element in ABR projects; Explicit identification of such research as ABR; Greater recognition of a multi-arts understanding of music in the context of ABR; Harnessing the potential of music in ABR across the research cycle. We conclude that arts-based research using music shows promise for capturing the complexity of migrants' lives and health issues in an ethical way. It warrants further investigation in empirical studies in multiple clinical and community settings to understand its processes and impacts on the evidence base for migrant health.

19.
J Aging Stud ; 63: 100930, 2022 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-36462910

RESUMO

In this article, we re-vision Anishinaabe, crip and queer futures of aging against and beyond dominant successful aging narratives by drawing on our archive of digital/multimedia videos (short documentaries) produced in conjunction with older/e/Elder persons and the Re•Vision: Centre for Art and Social Justice. These documentaries are directed and come from the lives of those older and e/Elder persons whose aging embodiments intra-sect with their Indigenous, disabled and queer selves. Disrupting hegemonic successful aging narratives, and specifically heteronormative and ableist trajectories of aging, these alternative renderings of aging futures offer rich, affective relationalities and cyclical timescapes of older experience that draw on the past even as they reach into divergent futurities. Anishinaabe, crip and queer aging emerge. While we discern resonances in relationalities and temporalities among and between the Anishinaabe and non-Indigenous stories, we also identify significant differences across accounts, indicating that they cannot be collapsed together. Instead, we argue for holding different life-ways and futures alongside one another, following the 1613 Two Row Wampum Treaty between the Dutch and the Haudenosaunee, in which each party promised to respect the other's ways, and committed to non-interference, as well as to the development and maintenance of relationship.


Assuntos
Minorias Sexuais e de Gênero , Humanos , Idoso , Envelhecimento , Narração , Etnicidade , Justiça Social
20.
Artigo em Inglês | MEDLINE | ID: mdl-36497592

RESUMO

BACKGROUND: Arts-based methodologies can be beneficial to identify different representations of stigmatized topics such as mental health conditions. This study used a theater-based workshop to describe manifestations, representations, and potential causes of depression and anxiety as perceived by adolescents and young adults. METHODS: The theater company Teatro La Plaza conducted three online sessions with a group of adolescents and another with a group of young adults from Lima, Peru. The artistic outputs, which included images, similes, monologues, and narrations, were used to describe the experiences of depression and anxiety symptoms following a content analysis using posteriori categories. RESULTS: Seventeen participants joined the sessions. The artistic outputs showed: physical, behavioral, cognitive, and emotional manifestations of depression and anxiety; a perception that both disorders have a cyclical nature; and an awareness that it is often difficult to notice symptom triggers. The mandatory social isolation due to the COVID-19 pandemic was highlighted as an important symptom trigger, mostly linked to anxiety. CONCLUSIONS: The findings are consistent with the literature, especially with regard to the manifestations, representations, and potential causes that trigger depression and anxiety. Using arts-based methods allowed adolescents and young adults to expand the articulation of their representations of mental disorders.


Assuntos
COVID-19 , Depressão , Adulto Jovem , Adolescente , Humanos , Depressão/epidemiologia , Depressão/etiologia , Depressão/psicologia , Pandemias , COVID-19/epidemiologia , Ansiedade/psicologia , Transtornos de Ansiedade
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