Descripción de necesidades sobre capacitación en una población de cuidadores de pacientes con dependencia severa en el contexto del CESFAM Madre Teresa de Calcuta

Introducción: el envejecimiento poblacional, junto al aumento de enfermedades crónicas no transmisibles han llevado a un incremento en la prevalencia de las personas en situación de dependencia severa, requiriendo que familiares, amigos o vecinos asuman roles de cuidadores. Este estudio se enfoca en identificar a la población de cuidadores de personas con dependencia severa y facilitar su adherencia en programas de capacitación para en un Centro de Salud Familiar (CESFAM) en Puente Alto, Santiago de Chile. Métodos: se detectaron 82 cuidadores de pacientes con dependencia severa, de los cuales 47 seguían siendo cuidadores activos. Se encuestó telefónicamente a 35 cuidadores de pacientes con dependencia severa. Se recopiló información sobre acceso a internet, tiempo disponible y conocimiento sobre la disponibilidad de capacitaciones. Además, se evaluó el nivel de sobrecarga en los cuidadores utilizando la escala de Zarit abreviada (EZA). Resultados: el 83% de los cuidadores encuestados tenía acceso a internet, aunque se identificaron barreras como la falta de tiempo y conocimiento sobre las capacitaciones disponibles. Se encontró que el 62,8% de los cuidadores experimentaba sobrecarga severa. Estos resultados sugieren la falta de mecanismos para el cuidado de pacientes dependientes y la necesidad de facilitar la participación en programas de capacitación. Conclusiones: el estudio ofrece una breve representación sobre los cuidadores de personas con dependencia severa en un contexto de atención primaria. Se concluye que se requieren intervenciones multidisciplinarias para acercar instancias de capacitación y optimizar el cuidado del cuidador. Como parte de estas intervenciones, se desarrolló un manual del cuidador que servirá como recurso para el equipo de salud del CESFAM Madre Teresa de Calcuta, con el fin de brindar apoyo efectivo a los cuidadores.

Introduction: Population aging and the increase in non-communicable chronic diseases have led to a rise in severe dependency, requiring that family members, friends, or neighbors take on caregiving roles. This study focuses on improving participation in training programs for caregivers of individuals with severe dependency at a Family Health Center (CESFAM) in Puente Alto, Santiago, Chile. Methods: To characterize this population and determine barriers to accessing distance training, 35 caregivers of patients with severe dependency were contacted by phone. All the information was gathered on internet access, available time, and awareness of training availability. Additionally, caregiver burden levels were evaluated using de abbreviated Zarit scale (EZA). Results: 83% of surveyed caregivers had internet access, although barriers such as lack of time and knowledge about available training were identified, and 62.8% of caregivers experienced severe burdens. These results highlight the need for interventions to facilitate participation in training programs and improve the care provided by caregivers. Conclusions: The study provides a specific insight into caregivers of individuals with severe dependency in a primary care context. Multidisciplinary interventions are required to bring training opportunities closer and optimize caregiver support. As part of these interventions, a caregiver manual was created to serve as a resource for the CESFAM Madre Teresa de Calcuta health team, aiming to provide adequate support to caregivers.

[Factors associated with caregiver burden in primary caregivers of older adults with type2 diabetes]. / Factores asociados a la sobrecarga del cuidador en cuidadores primarios de personas adultas mayores con diabetes tipo2.

OBJECTIVE: To characterize the profile of the informal primary caregiver (IPC) of adult patients with type2 diabetes (T2D) and the possible factors associated with caregiver collapse (CC). DESIGN: Observational, descriptive, cross-sectional and analytical study. SITE: Ambulatory Care Medical Unit. PARTICIPANTS: Mexican CPIs of adult patients with T2D. MAIN MEASUREMENTS: Data were collected through a prolective design using the Zarit scale and a structured survey on sociodemographic factors. A descriptive statistical analysis and univariate and multivariate logistic regression models were performed. RESULTS: The CPI profile is assumed by: women, people aged 36-58, daughters, people with a secondary and high school educational level, married, Catholic, with income <8,900 Mexican pesos, own home, inhabited by a maximum of 5 inhabitants, with support networks, who have dedicated >5years to the care of their patient, without training and with chronic diseases. The risk factors that increase the risk of CC are: being a woman (OR=11.03; 95%CI: 1.49-81.95), having a history of more than 5years of having assumed the role of caregiver (OR=2, 65; 95%CI: 1.07-6.55), living in one's own house (OR=3.03; 95%CI: 1.04-8.82), with 6 or more inhabitants (OR=2.41; 95%CI: 1.08-5.38). The support of other family members and/or friends was associated as a protective factor (OR=0.15; 95%CI: 0.07-0.33). CONCLUSIONS: Prevention programs are required to avoid CC and complications, as well as interventions to improve the quality of life of the CPI and patients in care, incorporating strategies to generate and/or increase their family and social support networks.

The burden of disease and quality of life in patients with acute hepatic porphyria: COPHASE study / Carga de la enfermedad y calidad de vida en pacientes con porfiria hepática aguda: estudio COPHASE

Background: Acute hepatic porphyria (AHP) comprises a group of rare genetic diseases characterized by neurovisceral crises that are manifested by abdominal pain and neurological and/or psychological symptoms that interfere with the ability to lead a normal life. Our objective was to determine the burden of the disease in one year and the health-related quality of life (HRQoL) in patients with AHP. Results: 28 patients were analyzed. The mean age was 36.6±10.2 years, 89.3% were women, and the average number of crises was 1.9±1.5. The average annual cost per patient was €38,255.40. 80.2% of the costs was direct medical costs, 17.5% was associated with loss of productivity and 2.3% was direct non-medical costs. 85.9% of the total cost corresponded to the crises. The intercrisis period accounted for the remaining 14.1%. The global index of the EQ-5D-5L (HRQoL) was 0.75±0.24. The dimensions of pain/discomfort, anxiety/depression and daily activities were the most affected. Leisure, travel/vacations and household activities were the most affected daily activities. 53.6% of patients required a caregiver due to AHP. 92.9% did not present overload and 7.1% presented extreme overload. Conclusions: Patients with AHP are associated with a high economic impact and an affected HRQoL in the pain/discomfort dimension, with a negative impact on the performance of daily activities and a risk of psychiatric diseases.(AU)

Antecedentes: La porfiria hepática aguda (PHA) comprende un grupo de enfermedades genéticas raras caracterizadas por crisis neuroviscerales que se manifiestan por dolor abdominal y síntomas neurológicos y/o psicológicos que interfieren en la capacidad de llevar una vida normal. Nuestro objetivo fue determinar la carga de la enfermedad en un año y la calidad de vida relacionada con la salud (CVRS) en pacientes con PHA. Resultados: Se analizaron 28 pacientes. La edad media fue de 36,6±10,2 años, el 89,3% eran mujeres y la media de crisis fue de 1,9±1,5. El coste medio anual por paciente fue de 38.255,40€. El 80,2% de los costes fueron costes médicos directos, el 17,5% estuvieron asociados a pérdida de productividad y el 2,3% fueron costes directos no médicos. El 85,9% del coste total correspondió a las crisis. El período entre crisis representó el 14,1% restante. El índice global del EQ-5D-5L (HRQoL) fue de 0,751±0,24. Las dimensiones de dolor/malestar, ansiedad/depresión y actividades cotidianas fueron las más afectadas. Ocio, viajes/vacaciones y actividades del hogar fueron las actividades diarias más afectadas. El 53,6% de los pacientes requirieron un cuidador debido a la PHA. El 92,9% no presentaron sobrecarga y el 7,1% presentaron sobrecarga extrema. Conclusiones: Los pacientes con PHA se asocian con un alto impacto económico y una CVRS afectada en la dimensión dolor/malestar, con impacto negativo en el desempeño de las actividades diarias y riesgo de enfermedades psiquiátricas.(AU)

The burden of disease and quality of life in patients with acute hepatic porphyria: COPHASE study.

BACKGROUND: Acute hepatic porphyria (AHP) comprises a group of rare genetic diseases characterized by neurovisceral crises that are manifested by abdominal pain and neurological and/or psychological symptoms that interfere with the ability to lead a normal life. Our objective was to determine the burden of the disease in one year and the health-related quality of life (HRQoL) in patients with AHP. RESULTS: 28 patients were analyzed. The mean age was 36.6±10.2 years, 89.3% were women, and the average number of crises was 1.9±1.5. The average annual cost per patient was €38,255.40. 80.2% of the costs was direct medical costs, 17.5% was associated with loss of productivity and 2.3% was direct non-medical costs. 85.9% of the total cost corresponded to the crises. The intercrisis period accounted for the remaining 14.1%. The global index of the EQ-5D-5L (HRQoL) was 0.75±0.24. The dimensions of pain/discomfort, anxiety/depression and daily activities were the most affected. Leisure, travel/vacations and household activities were the most affected daily activities. 53.6% of patients required a caregiver due to AHP. 92.9% did not present overload and 7.1% presented extreme overload. CONCLUSIONS: Patients with AHP are associated with a high economic impact and an affected HRQoL in the pain/discomfort dimension, with a negative impact on the performance of daily activities and a risk of psychiatric diseases.

Effectiveness of the Online "Dialogue Circles" Nursing Intervention to Increase Positive Mental Health and Reduce the Burden of Caregivers of Patients with Complex Chronic Conditions. Randomized Clinical Trial.

The personal demands involved in caring for a chronically ill person can lead to emotional and physical exhaustion in caregivers. The aim of this study was to evaluate the effectiveness of an online nursing intervention called "dialogue circles" designed to reduce caregiver overload and enhance positive mental health (PMH) in family caregivers. We used a pre-post design. The sample consisted of 86 family caregivers of patients with complex chronic conditions, randomly assigned to the intervention group (n = 43) or the control group (n = 43). All participants completed the Zarit scale and the Positive Mental Health Questionnaire 15 days before starting the intervention and 30 days after its completion. Comparison of the post-test changes revealed statistically significant differences between the two groups in PMH and overload, with the intervention group showing greater positive changes in all dimensions of PMH after the intervention and lower scores on overload. In conclusion, the results suggest that incorporating dialogue circles as an online nursing intervention in the caregivers of patients with complex chronic conditions can enhance PMH and decrease caregiver overload, especially in settings where face-to-face encounters are not possible.

Validation of the Informal Caregiver Burden Assessment Questionnaire for Brazil - short version / Validación del Cuestionario de Evaluación de la Sobrecarga del Cuidador Informal de Brasil - versión corta / Validação do Questionário de Avaliação da Sobrecarga do Cuidador Informal para o Brasil - versão curta

ABSTRACT Objectives: to cross-culturally adapt the short version of the Informal Caregiver Burden Assessment Questionnaire to the Brazilian culture and test its psychometric properties. Methods: the questionnaire was translated, adapted, and applied to a sample of 280 informal caregivers. The psychometric assessment was verified by estimating psychometric sensitivity and internal structure validity. Results: inter-rater agreement was satisfactory among specialists. In the seven-factor model, item (Q9) of the domain "Perception of Efficacy and Control Mechanisms" showed a factor loading less than 0.40 (ʎ = 0.26), and an alternative six-factor model was evaluated. However, both models showed excellent fit indices, and it was decided to keep the seven-factor reference model. Reliability was satisfactory for the seven subscales (α > 0.70). Conclusions: the questionnaire was adapted and showed adequate psychometric indices in the Brazilian context in which it was evaluated, preserving its original essence.

RESUMEN Objetivos: adaptar transculturalmente la versión corta del Cuestionario de Evaluación de la Sobrecarga del Cuidador Informal para cultura brasileña y probar sus propriedades psicométricas. Métodos: cuestionario traducido, adaptado y aplicado para 280 cuidadores informales. Evaluación psicométrica verificada por la estimativa de la sensibilidad psicométrica y validez de la estructura interna. Resultados: la concordancia interevaluadores fue satisfactoria entre los especialistas. En el modelo de siete factores, el ítem (Q9) del dominio "Percepción de los mecanismos de eficacia y control" presentó carga factorial menor que 0,40 (ʎ = 0,26), y un modelo alternativo de seis factores fue evaluado. Sin embargo, los dos modelos evidenciaron óptimos índices de ajustamiento, y se optó por mantener el modelo-referencia de siete factores. La confiabilidad se mostró satisfactoria para las siete subescalas (α > 0,70). Conclusiones: el cuestionario fue adaptado y demostró indicadores psicométricos satisfactorios en el contexto brasileño en que fue evaluado, preservando su esencia original.

RESUMO Objetivos: adaptar transculturalmente a versão curta do Questionário de Avaliação da Sobrecarga do Cuidador Informal para cultura brasileira e testar suas propriedades psicométricas. Métodos: o questionário foi traduzido, adaptado e aplicado em uma amostra de 280 cuidadores informais. A avaliação psicométrica foi verificada pela estimativa da sensibilidade psicométrica e validade da estrutura interna. Resultados: a concordância interavaliadores foi satisfatória entre os especialistas. No modelo de sete fatores, o item (Q9) do domínio "Percepção dos Mecanismos de Eficácia e Controle" apresentou carga fatorial menor do que 0,40 (ʎ = 0,26), e um modelo alternativo de seis fatores foi avaliado. No entanto, os dois modelos evidenciaram ótimos índices de ajustamento, e optou-se por manter o modelo-referência de sete fatores. A confiabilidade mostrou-se satisfatória para as sete subescalas (α > 0,70). Conclusões: o questionário foi adaptado e demonstrou índices psicométricos satisfatórios no contexto brasileiro em que foi avaliado, preservando sua essência original.

Evaluación de los niveles de sobrecarga en cuidadores primarios de personas con esquizofrenia a través de un programa de psicoeducación / Assessment of overload levels in primary caregivers of people with schizophrenia through a psychoeducation program

A partir del año 2012 el Hospital Psiquiátrico San Lázaro cierra el servicio de hospitalización. La propuesta de esta institución fue implementar un programa de psicoeducación dirigida a la familia para el manejo de los pacientes con trastornos mentales. La participación de los cuidadores primarios en el manejo de pacientes con trastornos mentales crónicos, incluida la esquizofrenia; sin embargo, visibilizó diversos niveles de sobrecarga. Objetivo: Determinar los niveles de sobrecarga en cuidadores primarios, y los efectos atribuibles al Programa de Clínica de Apoyo a Familiares de Personas con Esquizofrenia. Materiales y Métodos: Se diseñó un estudio de evaluación pre y post intervención, en 108 expedientes seleccionados para extraer las variables socio demográficas disponibles y los puntajes de sobrecarga obtenidos con la Escala de Sobrecarga del Cuidador de Zarit. Se describieron los resultados y se analizaron mediante el test de McNemar. Resultados: La mayoría de cuidadores fueron mujeres 67,5 %. El parentesco más frecuente fue el de padres con 44,4 % seguido de hermanos 25,9 %. El rango de edad más común fue el de 51- 60 años. El 71,1 % de los cuidadores presentaron algún tipo de sobrecarga. Para la evaluación de los cambios en los niveles de sobrecarga pre y post intervención se aplicó la prueba de McNemar, cuyo resultado fue de 27,4 mostrando diferencia significativa con valor de p <0,005. Conclusión: La intervención con cuidadores primarios, mediante programas psicoeducativos puede ser una opción viable para reducir los niveles de sobrecarga en familiares de personas con esquizofrenia(AU)

As of 2012, the San Lázaro Psychiatric Hospital closes the hospitalization service. The proposal of this institution was to implement a psychoeducation program aimed at the family for the management of patients with mental disorders. The involvement of primary caregivers in the management of patients with chronic mental disorders, including schizophrenia; however, it made visible various levels of overload. Objective: To determine the levels of burden in primary caregivers, and the effects attributable to the Program of Support Clinic for Family Members of People with Schizophrenia. Methods: A pre and post intervention evaluation study was designed in 108 selected files to extract the available socio-demographic variables and the burden scores obtained with the Zarit Caregiver Burden Scale. The results were described and analyzed using the McNemar test. Results: The majority of caregivers were women, 67.5%. The most frequent relationship was that of parents with 44.4% followed by siblings 25.9%. The most common age range was 51-60 years. 71.1% of the caregivers presented some type of overload. McNemar's test was applied to assess the changes in the levels of pre- and post-intervention overload, the result of which was 27.4, showing a significant difference with a p value <0.005. Conclusion: Intervention with primary caregivers, through psychoeducational programs, may be a viable option to reduce the levels of burden in relatives of people with schizophrenia

Síndrome de sobrecarga y estrategias de afrontamiento en cuidadores principales de pacientes oncológicos pediátricos / Burden syndrome and coping strategies in caregivers of pediatric cancer patients

Objetivo: Los cuidadores oncológicos pediátricos se encontrarán con circunstancias que llegarán a desafiar sus recursos personales para afrontar las diversas demandas propias del cuidado. Por lo tanto, el objetivo del estudio fue determinar la relación entre el síndrome de sobrecarga y las estrategias de afrontamiento en cuidadores de pacientes oncológicos pediátricos. Método: Participaron 93 cuidadores principales de pacientes oncológicos pediátricos (69,9% mujeres, 30,1% varones, edad promedio =37,20 años, DE=11,32), seleccionados de forma no probabilística. Se aplicó la Escala de Sobrecarga del Cuidador y el Cuestionario COPE-28. Se utilizaron estadísticos correlacionales y comparativos para el análisis de datos. Resultados: Los resultados indican la presencia de correlaciones significativas e inversas que varían entre r = -,25 y r = -,56. Sin embargo, no se evidenció una asociación significativa entre las dimensiones de la sobrecarga del cuidador y el uso de sustancias. Por otro lado, aquellos cuidadores que utilizan estrategias poco adaptativas, son más propensos a generar sobrecarga frente a su rol, influyendo en su vida personal, familiar y social. Conclusión: Existe una relación significativa entre el síndrome de sobrecarga y las estrategias de afrontamiento. Además, se identifican diferencias significativas en la sobrecarga según el lugar de procedencia y las horas dedicadas al cuidado (AU)

Objective: Pediatric cancer caregivers will encounter circumstances that will challenge their personal resources to face the diverse demands of care. Therefore, the objective of the study was to determine the relationship between burden syndrome and coping strategies in caregivers of pediatric cancer patients. Method: 93 main caregivers of pediatric cancer patients participated (69.9% women, 30.1% men, mean age = 37.20 years, SD = 11.32), selected in a non-probabilistic way. The Caregiver Burden Scale and the COPE-28 Questionnaire were applied. Correlational and comparative statistics were used for data analysis. Results: The results indicate the presence of significant and inverse correlations that vary between r = -.25 and r = -.56. However, no significant association was found between the dimensions of caregiver burden and substance use. On the other hand, those caregivers who use poorly adaptive strategies are more likely to generate overload in relation to their role, influencing their personal, family and social life. Conclusion: There is a significant relationship between overload syndrome and coping strategies. In addition, significant differences in overload are identified according to the place of origin and the hours dedicated to care (AU)

Sobrecarga del cuidador del adulto mayor en el barrio tierra firme de Ibagué (Colombia) / Overload of the Caregiver of the Elderly Adult in the Neighborhood Tierra Firme de Ibagué (Colombia)

RESUMEN Objetivo: Identificar el nivel de sobrecarga del cuidador primario del adulto mayor del barrio Tierra Firme de Ibagué. Método: Estudio cuantitativo, descriptivo, transversal. Muestreo a conveniencia constituido por 41 cuidadores primarios de adultos mayores a quienes se aplicó la escala de Zarit versión original, instrumento que consta de 22 ítems cuyo propósito es cuantificar el grado de sobrecarga que padecen los cuidadores de personas con dependencia parcial. Resultados: El 61 % de los participantes del estudio expresó "sentirse capaz de cuidar a su familiar por mucho más tiempo", siendo esto coherente con el resultado final señalado en la escala de Zarit, en la cual el 92,7 % no se encuentra en sobrecarga. Conclusiones: Los grupos de apoyos a los cuales asisten los cuidadores informales y las persona con enfermedad crónica con una dependencia parcial son factores esenciales para que los cuidadores tengan ausencia de sobrecarga.

ABSTRACT Objective: To identify the level of overload of the primary caregiver of the older adult of the Tierra Firme neighborhood of Ibagué. Method: Quantitative, descriptive, cross-sectional study. Sampling at convenience constituted by 41 primary caregivers of older adults to whom the scale of Zarit was applied original version, an instrument that consists of 22 items whose purpose is to quantify the degree of overload suffered by caregivers of people with partial dependence. Results: 61% of the study participants expressed "feeling able to take care of their family member for much longer", being coherent with the final result indicated in the Zarit scale in which 92.7% is not in overload. Conclusions: Support groups attended by informal caregivers and people with chronic illness with partial dependence are essential factors for caregivers to have no overload.

Prevenção da sobrecarga de cuidadores informais no contexto de uma equipa de cuidados continuados integrados / Prevention of the burden of informal caregivers in the context of an integrated continuing care team

O envelhecimento da população é um dos fenómenos mais relevantes do século XXI, com consequências sociais, económicas e culturais. A perda de autonomia e a dependência podem surgir, quando associadas a estilos de vida não saudáveis e a condições socioeconómicas baixas. A exigência do cuidar impõe, geralmente, uma pluralidade de esforços, tensões e tarefas que dominam as potencialidades do cuidador, conduzindo-o à exaustão. Deste modo, em consonância com a estratégia da governação clínica, em resposta às necessidades de apoio e de reconhecimento dos cuidadores informais, colaborou-se com os enfermeiros da Equipa de Cuidados Continuados Integrados, de uma Unidade de Cuidados na Comunidade da Região de Lisboa e Vale do Tejo, enquanto mestranda da especialidade de Enfermagem Comunitária e de Saúde Pública, na "Prevenção da Sobrecarga de Cuidadores Informais no Contexto de uma Equipa de Cuidados Continuados Integrados". Neste Relatório de Estágio, utilizou-se a Metodologia do Planeamento em Saúde, para a estruturação do projeto de intervenção comunitária.

The aging of the population is one of the most relevant phenomena of the 21st century, with social, economic and cultural consequences. Loss of autonomy and dependence may arise, when associated with unhealthy lifestyles and low socioeconomic conditions. The requirement of caring usually imposes a plurality of efforts, tensions and tasks that dominate the caregiver's potentialities, leading to exhaustion. Thus, in line with the strategy of clinical governance, in response to the needs of support and recognition of informal caregivers, it collaborated with the nurses of the Integrated Continuing Care Team, a Community Care Unit in the Lisboa and Vale do Tejo Region, as a masters student in the field of Community Nursing and Public Health, in the "Prevention of Overloading Informal Caregivers in the Context of an Integrated Continuing Care Team." In this Internship Report, the Health Planning Methodology was used to structure the community intervention project.

Habilidad de cuidado y sobrecarga en cuidadores de personas en terapia de hemodialisis y diálisis peritoneal  / Ability to care and overload in caregivers of people undergoing hemodialysis and peritoneal dialysis therapy

El cuidador familiar de personas con enfermedad renal crónica debe asumir un nuevo rol que requiere habilidad para cuidar e implica el riesgo de desarrollar sobrecarga del cuidador. La evidencia sugiere que pueden existir diferencias en las variables de habilidad de cuidado y sobrecarga del cuidador entre cuidadores de personas con ERC que se encuentran en terapia de diálisis peritoneal y hemodiálisis. Las diferencias se pueden relacionar con la dedicación al cuidado y responsabilidad sobre la terapia, pues el cuidador de personas en diálisis peritoneal debe apoyar la terapia en el hogar. Objetivo. Determinar las diferencias entre la habilidad de cuidado y sobrecarga del cuidador en cuidadores de pacientes con ERC en terapia de diálisis peritoneal y hemodiálisis que son atendidos en una institución especializada de la Ciudad de Cúcuta durante el año 2015 ­ 2016 Materiales y métodos. Estudio cuantitativo descriptivo comparativo. Se hizo comparación del perfil sociodemográfico y las variables de habilidad de cuidado y sobrecarga del cuidador entre dos grupos: Cuidadores de personas en diálisis peritoneal y cuidadores de personas en hemodiálisis. Participaron en el estudio 25 cuidadores de personas en diálisis peritoneal y 43 cuidadores de personas en hemodiálisis. Los datos de recolectaron mediante una ficha de caracterización, el Instrumento habilidad de cuidado de cuidadores de personas con enfermedad crónica de Barrera y la Entrevista Zarit. La caracterización se analizó mediante estadística descriptiva, usando frecuencias, proporciones, medias y desviación estándar. Las comparaciones se realizaron a través de pruebas Chi cuadrado de Pearson para las variables nominales y ordinales y pruebas T para muestras independientes en variables de razón. Resultados. No se encontraron diferencias significativas entre las variables de caracterización de los cuidadores familiares de personas con ERC en diálisis peritoneal versus los cuidadores de personas en Hemodiálisis, excepto el tiempo diario dedicado a cuidar, el cual es 16 horas mayor en los cuidadores de personas en diálisis peritoneal. La habilidad de cuidado fue similar en los dos grupos, sin embargo fue mejor en la dimensión relación y cambio en la rutina en el grupo de hemodiálisis. La sobrecarga del cuidador fue similar en ambos grupos, con peores niveles de sobrecarga en las dimensiones impacto y competencias- expectativas en el grupo de diálisis peritoneal. Conclusión. Se observa menos habilidad de cuidado y más sobrecarga del cuidador en el grupo de cuidadores de personas en diálisis peritoneal. Se requiere intensificar la capacitación y apoyo en esta población de cuidadores.

The family caregiver of people with chronic kidney disease must assume a new role that requires skill to care and involves the risk of developing overload of the caregiver. The evidence suggests that there may be differences in care ability variables and caregiver overload among caregivers of people with CKD who are on peritoneal dialysis and hemodialysis therapy. The differences can be related to the dedication to care and responsibility over the therapy, since the caregiver of people in peritoneal dialysis must support the therapy in the home. Objective. To determine the differences between the skill of care and overload of the caregiver in caregivers of patients with CKD in peritoneal dialysis and hemodialysis therapy who are treated in a specialized institution of the City of Cúcuta during the year 2015 ­ 2016 Materials and methods. Quantitative comparative descriptive study. The sociodemographic profile and care ability and care overload variables of the caregiver were compared between two groups: Caregivers of people on peritoneal dialysis and caregivers of people on hemodialysis. Twenty-five caregivers of people on peritoneal dialysis and 43 caregivers of people on hemodialysis participated in the study. The data was collected through a characterization card, the Instrument care skill of caregivers of people with chronic disease of Barrera and the Zarit Interview. The characterization was analyzed by descriptive statistics, using frequencies, proportions, means and standard deviation. The comparisons were made through Pearson Chi square tests for nominal and ordinal variables and T tests for independent samples in ratio variables. Results No significant differences were found between the characterization variables of the family caregivers of people with CKD in peritoneal dialysis versus the caregivers of people on Hemodialysis, except the daily time dedicated to caring, which is 16 hours longer in the caregivers of people on dialysis peritoneal The care ability was similar in the two groups, however it was better in the relationship dimension and change in the routine in the hemodialysis group. Caregiver overload was similar in both groups, with worse levels of overload in the impact and competence-expectations dimensions in the peritoneal dialysis group. Conclusion. There is less ability to care and more caregiver burden in the group of caregivers of people on peritoneal dialysis. It is necessary to intensify the training and support in this population of caregivers.