The formation mechanism of primary health care team effectiveness : a qualitative comparative analysis research.

BACKGROUND: Team-based care is an essential part of primary health care (PHC), and its team service delivery process is a systematic one involving multiple and complex influences. Research on the formation mechanism can help improve the effectiveness of primary health care teams (PHCTs). METHODS: First, based on the Donabedian model, we explored the theoretical framework of a PHC team's effectiveness formation mechanism. Semi-structured interviews were conducted with 23primary health care team members in Hangzhou, Zhejiang Province, China. A total of seven factors were then included as conditional variables using the crisp set qualitative comparative analysis (csQCA) to explore the complex influences between them and the outcome variable through univariate necessity analysis and path configuration analysis. RESULTS: Univariate necessity analysis showed that only "Clear Goals" in the structural dimension were necessary for team effectiveness perception. Six pathways to good primary health care team perception of effectiveness were identified. Two of these paths were more typical. CONCLUSION: "Clear Goals" was the core variable that should be emphasized when exploring the mechanism of PHCT formation. The results suggest that human resources in the management team should be rationally allocated, goal-oriented, and given good attention. Future studies should explore complex combinations of PHCT factors to improve the effectiveness of PHCTs.

The interplay of financial toxicity, health care team communication, and psychosocial well-being among rural cancer patients and survivors.

BACKGROUND: Financial toxicity contributes to psychosocial distress among cancer patients and survivors. Yet, contextual factors unique to rural settings affect patient experiences, and a deeper understanding is needed of the interplay between financial toxicity and health care team communication and its association with psychosocial well-being among rural oncology patients. PURPOSE: We examined associations between financial toxicity and psychosocial well-being among rural cancer patients, exploring variability in these linkages by health care team communication. METHODS: Using data from 273 rural cancer patients who participated in Cancer Support Community's Cancer Experience Registry, we estimated multivariable regression models predicting depression, anxiety, and social function by financial toxicity, health care team communication, and the interplay between them. RESULTS: We demonstrate robust associations between financial toxicity and psychosocial outcomes among our sample of rural cancer patients and survivors. As financial toxicity increased, symptoms of depression and anxiety increased. Further, financial toxicity was linked with decreasing social function. Having health care team conversations about treatment costs and distress-related care reduced the negative impact of financial toxicity on depressive symptoms and social function, respectively, in rural cancer patients at greatest risk for financial burden. CONCLUSIONS: Financial toxicity and psychosocial well-being are strongly linked, and these associations were confirmed in a rural sample. A theorized buffer to the detrimental impacts of financial toxicity-health care team communication-played a role in moderating these associations. Our findings suggest that health care providers in rural oncology settings may benefit from tools and resources to bolster communication with patients about costs, financial distress, and coordination of care.

The Communication of Bad News in Palliative Care: The View of Professionals in Spain.

BACKGROUND: Communication is one of the central axes around which end-of-life care revolves in the context of palliative care. Communication of bad news is reported as one of the most difficult and stressful tasks by palliative care professionals. Therefore, the aim of this study is to identify aspects related to the communication of bad news in palliative care in Spain. METHODS: Descriptive cross-sectional study. An ad hoc questionnaire was designed and sent by e-mail to all palliative care teams in Spain. RESULTS: Overall, 206 professionals (102 nurses, 88 physicians and 16 psychologists) completed the questionnaire. A total of 60.2% considered their communication of bad news skills to be good or very good. This was related to older age, experience in both the profession and palliative care, and to having received specific postgraduate training (P < .001). Around 42.2% perform communication of bad news with the patient first, which is associated with lower skill (P = .013). About 78.15% of the professionals do not use any specific protocol. CONCLUSION: This study suggests that patients access palliative care with little information about their diagnosis and prognosis. The barriers identified in the communication of bad news are the lack of specific education and training in protocol management, the difficult balance between hope and honesty, the young age of the patient, and the family.

Evaluation of a Clinic-Based, Electronic Social Determinants of Health Screening and Intervention in Primary Care Pediatrics.

OBJECTIVE: Social determinants of health (SDOH) significantly affect individuals' health outcomes, yet universal electronic SDOH screening is not standard in primary care. Our study explores the implementation of an electronic SDOH screening in the electronic health record (EHR) and follow-up intervention among primary care pediatric patients within an academic clinic. METHODS: Beginning in August of 2022, patients and their families determined to have at least one SDOH need qualified for an in-clinic referral to a coordinated care team member. We assessed the overall efficacy and feasibility of the implementation. RESULTS: Over the 4-month pilot, 1473 of 2064 (71.4%) eligible patients were screened, with 472 (32%) patients screening positive on at least one SDOH domain. Of the 472 screened positive, 48 (10.2%) declined a referral. Two hundred and forty-seven of the 424 (58.3%) received a referral to a care coordination team member. CONCLUSIONS: This study demonstrates the feasibility of a universal electronic SDOH screening tool within the EHR within an urban, academic-based clinic.

Perceptions of the primary health care team about the implementation of integrated care of patients with type 2 diabetes and hypertension in Slovenia: qualitative study.

BACKGROUND: Integrated care involves good coordination, networking, and communication within health care services and externally between providers and patients or informal caregivers. It affects the quality of services, is more cost-effective, and contributes to greater satisfaction among individuals and providers of integrated care. In our study, we examined the implementation and understanding of integrated care from the perspective of providers - the health care team - and gained insights into the current situation. METHODS: Eight focus groups were conducted with health care teams, involving a total of 48 health care professionals, including family physicians, registered nurses, practice nurses, community nurses, and registered nurses working in a health education center. Prior to conducting the focus groups, a thematic guide was developed based on the literature and contextual knowledge with the main themes of the integrated care package. The analysis was conducted using the NVivo program. RESULTS: We identified 12 main themes with 49 subthemes. Health care professionals highlighted good accessibility and the method of diagnostic screening integrated with preventive examinations as positive aspects of the current system of integrated care in Slovenia. They mentioned the good cooperation within the team, with the involvement of registered nurses and community nurses being a particular advantage. Complaints were made about the high workload and the lack of workforce. They feel that patients do not take the disease seriously enough and that patients as teachers could be useful. CONCLUSION: Primary care teams described the importance of implementing integrated care for diabetes and hypertension patients at four levels: Patient, community, care providers, and state. Primary care teams also recognized the importance of including more professionals from different health care settings on their team.

Tackling the First COVID-19 Wave at the Cape Town Hospital of Hope: Why Was It Such a Positive Experience for Staff?

Background: In contrast to alarming reports of exhaustion and burnout amongst healthcare workers in the first wave of the COVID-19 pandemic, we noticed surprisingly positive staff experiences of working in a COVID-19 field hospital in South Africa. The 862-bed "Hospital of Hope" was established at the Cape Town International Convention Centre specifically to cope with the effects of the first wave of the COVID-19 pandemic in Cape Town. Methods: We aimed to systematically describe and assess the effects on staff and the local health system. A cross-sectional descriptive study design was employed using mixed methods including record reviews and interviews with key informants. Results: Quantitative results confirmed high job satisfaction and low staff infection rates. The emerging themes from the qualitative data are grouped around a "bull's eye" of the common purpose of person-centeredness, from both patient and staff perspectives, and include staff safety and support, rapid communication, continuous learning and adaptability, underpinned by excellent teamwork. The explanations for the positive feedback included good disaster planning, adequate resources, and an extraordinary responsiveness to the need. Conclusions: The "Hospital of Hope" staff experience produced valuable lessons for designing and managing routine health services outside of a disaster. The adaptability and responsiveness of the facility and its staff were largely a product of the unprecedented nature of the pandemic, but such approaches could benefit routine health services enormously, as individual hospitals and health facilities realize their place in a system that is "more than the sum of its parts".

Parent and staff perceptions of patient and family-centred care in a Brazilian paediatric's hospital: Quantitative study.

BACKGROUND: Patient and family-centred care (PFCC) is a healthcare model has been acknowledged as the central pillar in the paediatric health care that recognizes the family's role and experience in the health care delivery. AIMS: This study investigated and compared the perception of PFCC from the perspective of staff and parents of hospitalized children and adolescents. METHODS: A quantitative and comparative cross-sectional survey was used in a convenience sample of 105 staff and 116 parents, who completed the Brazilian versions of the Perceptions of Family Centred Care-Parent and Staff questionnaires, with additional questions on their characteristics. Descriptive and analytical statistics were used, as well as the Kruskal-Wallis and Mann-Whitney tests and Spearman's correlation coefficient. RESULTS: Both parents and staff responses were positive and parents had significantly higher scores for 19 of the 20 items (p < 0.001). The item related to parental participation did not show any significant difference between the groups. CONCLUSION: The positive perception of PFCC for both groups is consistent with recommendations for expanded care that includes patient and family in healthcare settings. Parents' perception was more positive than staff perceptions of their delivery of family-centred care in hospital. The lowest score for the parent support subscale in both groups requires investigation.

La colaboración interdisciplinar en las unidades de cuidados intensivos / Interdisciplinary collaboration in intensive care units from the experience of nurses

Objetivo: Comprender la experiencia vivida por las enfermeras que trabajan en las UCI polivalentes de un hospital de tercer nivel de la ciudad de Barcelona en relación con la colaboración interprofesional. Metodología: Diseño cualitativo exploratorio, multicéntrico de tipo descripción interpretativa. El ámbito de estudio fue cuatro UCI polivalentes de cuatro hospitales públicos y universitarios de tercer nivel. La muestra estuvo formada por 8 enfermeras. El muestreo teórico de variación máxima. La técnica de obtención de información fue el grupo de discusión con grabación de audio. Se realizó un análisis temático de contenido. Se siguieron los criterios de confiabilidad y autenticidad, así como el proceso de reflexividad durante todo el estudio. El estudio fue aprobado por el Comité de Ética de Investigación Clínica (CEIC). Resultados: Emergieron 2 grandes temas: la definición de colaboración interprofesional y propuestas de futuro. Las enfermeras consideran que la confianza y el respeto son la base de la colaboración interprofesional y aseguran la continuidad de los objetivos planificados. La comunicación y la relación entre iguales son dos de los factores que intervienen en la colaboración interprofesional. Es necesario cambiar de una jerarquía convencional a una visión compartida que mejoraría la participación de las enfermeras. Conclusiones: Los grandes pilares de la colaboración interdisciplinar son la comunicación efectiva y el trabajo en equipo, basado en la confianza y el respeto. Las líneas futuras de trabajo van enfocadas a la formación interdisciplinar de los futuros profesionales, la implantación real del pase conjunto y la mejora del clima laboral. (AU)

Purpose: Understanding the nurses experience who work in the ICUs of a high complexity hospital in Barcelona in relation to interprofessional collaboration. Methodology: Interpretative description by a qualitative exploratory and multicenter design. The study area was four ICUs from four high complexity, public and universitary hospitals. The sample consisted of 8 nurses. Theoretical sampling of maximum variation was used. The information gathering technique was the discussion group with audio recording. A thematic content analysis was carried out. The criteria of reliability and authenticity, as well as the process of reflexivity, were followed throughout the study. The study was approved by the Clinical Research Ethics Committee (CEIC). Results: Two major themes emerged: the definition of interprofessional collaboration and proposals for the future. Nurses consider that trust and respect are the basis of interprofessional collaboration and ensure the continuity of planned objectives. Communication and the relationship between equals are two of the factors involved in interprofessional collaboration. It is necessary to change from a conventional hierarchy to a shared vision that would improve the participation of nurses. Conclusions: The great pillars of interdisciplinary collaboration are effective communication and teamwork, based on trust and respect. Future lines of work are focused on the interdisciplinary training of future professionals, the actual implementation of the clinical sessions and the improvement of the work environment. (AU)

Evaluation of an Enhanced Primary Care Team Model to Improve Diabetes Care.

PURPOSE: Primary care practices manage most patients with diabetes and face considerable operational, regulatory, and reimbursement pressures to improve the quality of this care. The Enhanced Primary Care Diabetes (EPCD) model was developed to leverage the expertise of care team nurses and pharmacists to improve diabetes care. METHODS: Using a retrospective, interrupted-time series design, we evaluated the EPCD model's impact on D5, a publicly reported composite quality measure of diabetes care: glycemic control, blood pressure control, low-density lipoprotein control, tobacco abstinence, and aspirin use. We examined 32 primary care practices in an integrated health care system that cares for adults with diabetes; practices were categorized as staff clinician practices (having physicians and advanced practice providers) with access to EPCD (5,761 patients); resident physician practices with access to EPCD (1,887 patients); or staff clinician practices without access to EPCD (10,079 patients). The primary outcome was the percentage of patients meeting the D5 measure, compared between a 7-month preimplementation period and a 10-month postimplementation period. RESULTS: After EPCD implementation, staff clinician practices had a significant improvement in the percentage of patients meeting the D5 composite quality indicator (change in incident rate ratio from 0.995 to 1.005; P = .01). Trends in D5 attainment did not change significantly among the resident physician practices with access to EPCD (P = .14) and worsened among the staff clinician practices without access to EPCD (change in incident rate ratio from 1.001 to 0.994; P = .05). CONCLUSIONS: Implementation of the EPCD team model was associated with an improvement in diabetes care quality in the staff clinician group having access to this model. Further study of proactive, multidisciplinary chronic disease management led by care team nurses and integrating clinical pharmacists is warranted.

Evaluating a Pharmacist-Initiated Care Bundle for Patients with Chronic Obstructive Pulmonary Disease.

Background: Chronic obstructive pulmonary disease (COPD) is a cause of significant morbidity and mortality, and management of patients with this complex disease remains a challenge. Pharmacists work within an interdisciplinary health care team to coordinate services and ensure that standards of care are met. A pharmacist-initiated care bundle provided in the outpatient setting has shown promising results in improving COPD management. Objective: To evaluate, in the acute care setting, the effectiveness of a pharmacist-initiated COPD care bundle in improving compliance with health care measures known to improve outcomes in patients with COPD. Methods: This retrospective chart review included patients with acute exacerbation of COPD admitted from May 14, 2019, to February 29, 2020. Completion rates for the 6 individual components of the COPD care bundle were compared between patients who did and did not receive the pharmacist-initiated intervention. A subgroup of 22 patients received the following additional interventions: documentation of the modified Medical Research Council score, assessment of COPD medications, and vaccination review and administration. Results: A total of 106 patients were included in the analysis, 53 patients in each of the control and intervention groups. The pharmacist-initiated intervention increased completion rates for the overall COPD care bundle from 2% to 17% (p = 0.003), for provision of the COPD flare-up action plan from 4% to 79% (p < 0.001), and for provision of smoking cessation education from 0% to 36% (p = 0.04); however, there was no significant difference in assessment by a respiratory therapist. For the subgroup that received additional interventions, vaccination reviews were conducted for 21 (96%) of the 22 patients, which led to 9 (41%) receiving a guideline-recommended vaccine. Conclusions: Pharmacist involvement in initiation of the care bundle significantly increased completion rates for the activities included in the care bundle.

Contexte: La maladie pulmonaire obstructive chronique (MPOC) est une cause d'une morbidité et d'une mortalité importantes, et la prise en charge des patients atteints de cette maladie complexe demeure un défi. Les pharmaciens travaillent au sein d'une équipe interdisciplinaire de soins de santé pour coordonner les services et s'assurer du respect des normes de soins. Un ensemble de soins initié par le pharmacien en milieu ambulatoire a donné des résultats prometteurs dans l'amélioration de la prise en charge de la MPOC. Objectif: Évaluer, dans le cadre des soins aigus, l'efficacité d'un ensemble de soins pour la MPOC initié par un pharmacien pour améliorer le respect des mesures de soins de santé connues pour améliorer les résultats chez les patients atteints de MPOC. Méthodes: Cet examen rétrospectif des dossiers comprenait des patients présentant une exacerbation aiguë de la MPOC admis du 14 mai 2019 au 29 février 2020. Les taux de réussite pour les 6 composantes individuelles de l'ensemble de soins pour la MPOC ont été comparés entre les patients ayant reçu et ceux n'ayant pas reçu l'intervention initiée par le pharmacien. Un sous-groupe de 22 patients a reçu des interventions supplémentaires : documentation du score modifié du Medical Research Council (mMRC), évaluation des médicaments pour la MPOC, et examen et administration de la vaccination. Résultats: Au total, 106 patients ont été inclus dans l'analyse : 53 patients dans le groupe de contrôle et 53 dans le groupe d'intervention. L'intervention initiée par le pharmacien a augmenté les taux d'adhésion à l'ensemble de soins pour la MPOC de 2 % à 17 % (p = 0,003), de 4 % à 79 % (p < 0,001) pour l'offre du plan d'action en cas de poussée de MPOC et de 0 % à 36 % (p = 0,04) pour l'éducation au sevrage tabagique; cependant, l'évaluation par un inhalothérapeute n'a permis de déceler aucune différence significative. Dans le sous-groupe ayant reçu des interventions supplémentaires, des examens de vaccination ont été menés chez 21 (96 %) des 22 patients; 9 patients (41 %) ont ainsi reçu un vaccin recommandé par les lignes directrices. Conclusions: La participation du pharmacien à l'initiation de l'ensemble de soins a augmenté de manière significative les taux de réussite des activités incluses dans l'ensemble de soins.

Chronic pain in children and adolescents in Manitoba: A retrospective chart review to inform the development of a provincial service for pediatric chronic pain.

Background: In the absence of an interdisciplinary service for pediatric chronic pain in Manitoba, pain management has been offered through a single provider outpatient setting with consultative services from physiotherapy, occupational therapy, and psychiatry since October 2015. Aims: The aim of this study was to characterize the patient population of this clinic to understand needs and inform future service development for pediatric chronic pain. Methods: Demographics and disease characteristics of all patients seen in this clinic between October 1, 2015, and February 28, 2019, were analyzed retrospectively from electronic medical records. Results: A total of 157 patients, mean age 13.1 (sd ±3.0) years, 75.2% female, with a median duration of pain of 20.5 (interquartile range [IQR] = 10.0-45.8) months at their first visit were included in the study. At baseline, 74.0% of patients experienced insomnia, 76.6% fatigue, 86.5% symptoms of anxiety, and 58.69% symptoms of depression; 80.1% showed withdrawal from physical activity, 67.1% missed school, and 10.2% reported opioid usage. Throughout their care in clinic, 83.4% of patients received physiotherapy, 17.8% occupational therapy, 49.7% mental health support, and 51.6% care from multiple services. The clinic experienced a significant increase in median referrals from 1.0 to 5.0 (IQR = 2.0-9.0) per month and wait time from 35.0 to 97.0 (IQR = 88.0-251.0) days during the observation period. Conclusions: Developing an interdisciplinary service for pediatric chronic pain will provide an opportunity to improve access, coordination, and comprehensiveness of care and to employ culturally sensitive services to improve care for children and youth living with chronic pain in Manitoba and possibly other jurisdictions with similar demographics and needs.

Contexte: En l'absence d'un service interdisciplinaire pour la douleur chronique pédiatrique au Manitoba, la prise en charge de la douleur est proposée par un seul prestataire ambulatoire qui offre des services consultatifs de physiothérapie, d'ergothérapie et de psychiatrie depuis octobre 2015.Buts: Le but de cette étude était de caractériser la population de patients de cette clinique pour comprendre les besoins et éclairer le développement futur de services pour la douleur chronique pédiatrique.Méthodes: Les données démographiques et les caractéristiques de la maladie de tous les patients vus dans cette clinique entre le 1er octobre 2015 et le 28 février 2019 ont été analysées rétrospectivement à partir des dossiers médicaux électroniques.Résultats: Un total de 157 patients, dont l'âge moyen était de 13,1 ans (é.-t. ±3,0) ans, 75,2 % de femmes, avec une durée de la douleur médiane de 20,5 mois (écart interquartile [IQR] = 10,0-45,8) à leur première visite étaient inclus dans l'étude. À l'inclusion, 74,0 % des patients présentaient de l'insomnie, 76,6 % de la fatigue, 86,5 % des symptômes d'anxiété et 58,69 % des symptômes de dépression ; 80,1 % montraient un retrait de l'activité physique, 67,1 % avaient manqué l'école et 10,2 % ont déclaré avoir consommé des opioïdes. Tout au long de leur traitement en clinique, 83,4 % des patients ont reçu de la physiothérapie, 17,8 % de l'ergothérapie, 49,7 % un traitement de soutien à la santé et 51,6 % des soins dispensés par de multiples services. La clinique a connu une augmentation significative des références médianes de 1,0 à 5,0 (IQR = 2,0-9,0) par mois et du temps d'attente de 35,0 à 97,0 (IQR = 88,0-251,0) pendant la période d'observation.Conclusions : La mise sur pied d'un service interdisciplinaire pour la douleur chronique pédiatrique permettra d'améliorer l'accès, la coordination et l'exhaustivité des soins de même que le recours à des services adaptés à la culture pour améliorer les soins aux enfants et aux jeunes souffrant de douleur chronique au Manitoba et possiblement dans d'autres provinces et territoires ayant des caractéristiques démographiques et des besoins semblables.

Impact of interprofessional in situ simulations on acute pediatric burn management: Combining technical and non-technical burn team skills.

OBJECTIVE: This study aimed to evaluate the impact of interprofessional in situ simulations on the technical and non-technical skills of pediatric burn teams in acute burn management. METHODS: This quasi-experimental study consisted of a one-group pre- and post-test design conducted in a pediatric burn center in Turkey. The sample consisted of nine interprofessional burn team members. Data collection tools consisted of the following: descriptive data form, burn technical skills checklists, simulation evaluation form, and Anesthesiologists' non-technical skills in Denmark rating form. RESULTS: We found no statistically significant difference between the pre- and post-test scores for technical (p = 0.285) and non-technical skill (p = 0.180) scores. Burn team members evaluated the highest score in almost all criteria for in situ simulations. CONCLUSION: The interprofessional in situ simulations did not improve the burn teams' acute burn management; however, according to a self-report, burn team members were satisfied with the interprofessional in situ simulation experiences and achieved their own gains.

As dimensões intangíveis da prática assistencial: biopolítica, ética e afeto em sua relação com a clínica / Intangible dimensions of care: biopolitics, ethics and affection in relation to clinical practice / Las dimensiones intangibles de la práctica asistencial: biopolítica, ética y afecto en su relación con la clínica

Este artigo é parte inicial de uma pesquisa realizada em um centro de transplante de medula óssea, do Sistema Único de Saúde (SUS), cujos usuários são pessoas em situação de extrema vulnerabilidade. Sua proposta é analisar dimensões que atravessam a prática em saúde e não se reduzem a resultados imediatamente mensuráveis, podendo ser chamadas de dimensões intangíveis do cuidar. O objetivo é refletir sobre o encontro profissional-paciente, em sua relação com o adoecimento e a morte, sob o conceito psicanalítico de inconsciente. Para isso, foi realizado o relato de situações vividas no campo denominadas vinhetas clínicas; e, com base nas articulações teóricas elaboradas, consideram-se os vetores da biopolítica, ética e afeto como axiais à assistência. Conclui com a necessidade de propor perspectivas do cuidar que reconheçam a subjetividade concernida à prática assistencial. (AU)

This article is based on the initial stages of a study undertaken in a public bone marrow transplant center for extremely vulnerable people. We analyze dimensions that cut across health care practice not reduced to immediately measureable results, otherwise called intangible dimensions of care. We reflect on the intersection between health professionals and patients in relation to illness and death drawing on the psychoanalytic concept of the unconscious. To this end, we document situations experienced in the field called clinical vignettes. Drawing on the theoretical framework, we consider the vectors biopolitics, ethics and affection to be core aspects of care. We conclude that there is a need for approaches to care that recognize the subjectivity of health care practice. (AU)

Este artículo es parte inicial de una investigación realizada en un centro de trasplante de médula ósea del Sistema Único de Salud, cuyos usuarios son personas en situaciones de extremada vulnerabilidad. Su propuesta es analizar dimensiones que atraviesan la práctica en salud y no se reducen a resultados inmediatamente mensurables, pudiendo llamarse de dimensiones intangibles del cuidar. El objetivo es reflexionar sobre el encuentro profesional-paciente en su relación con la enfermedad y la muerte, bajo el concepto psicoanalítico de inconsciente. Para ello, se realizó el relato de situaciones vividas en el campo, denominadas viñetas clínicas; y a partir de las articulaciones teóricas elaboradas se consideran los vectores de la biopolítica, ética y afecto como axiales a la asistencia. Se concluye con la necesidad de proponer perspectivas del cuidar que reconozcan la subjetividad relativa a la práctica asistencial. (AU)

O processo de trabalho de um ambulatório de oncologia em análise / The work process of an oncology outpatient clinic under analysis

O alto índice do câncer é algo preocupante em todo o mundo. A modalidade de tratamento mais utilizada em oncologia são os quimioterápicos, que, por sua vez, trazem o desconforto por seus efeitos colaterais tão temidos, como náuseas, vômitos, alopecia, entre outros. Se, por um lado, lidar com a dor e o sofrimento faz parte do trabalho em saúde, por outro, isso não pode significar que o trabalhador tenha que carregar as consequências como uma carga de sofrimento individual inerente às suas escolhas profissionais. Afinal, lidar com a dor e o sofrimento é uma necessidade e um bem social inestimável, que precisa ser reconhecido e valorizado nas instituições. Os objetivos deste estudo consistem conhecer os processos de trabalho junto da equipe de enfermagem no ambulatório de oncologia; promover o diálogo e a reflexão da atividade desenvolvida pela equipe de enfermagem no ambulatório de oncologia a partir do método de Instrução ao Sósia; analisar os processos de trabalho da equipe de enfermagem do ambulatório de oncologia por meio do método de Instrução ao Sósia; propor a implantação de supervisão/de reuniões de equipe com o intuito de produção coletiva do trabalho. O cenário foi o ambulatório de oncologia de um hospital público federal do estado do Rio de Janeiro; os participantes foram os integrantes da equipe de enfermagem que atuam na sala de terapia na qual se administram os quimioterápicos. Nos resultados: a dificuldade de instruir o outro na terceira pessoa trata da complexidade que é falar de sua atividade como algo fora de si; o reconhecimento de que o trabalho na quimioterapia é muito focado na técnica, e que, muitas vezes, o trabalhador esquece o poder que existe a cada encontro com o usuário e suas singularidades, mostrando aí que, frequentemente, o trabalhador é capturado pelo "trabalho morto" em detrimento do "trabalho vivo"; a falta de espaço para discussões diárias para trocas e reflexões da prática, trazendo a necessidade de reuniões; e a falta de atendimento psicológico aos profissionais do ambulatório de oncologia. Esta pesquisa traz à luz assuntos que, de fato, precisam ser vistos pelos gestores, líderes que atuam no setor referido: do quanto investimentos com espaços de Educação Permanente em Saúde, para reflexões e resoluções sobre a prática do cuidado em saúde, são essenciais; a atenção à saúde do trabalhador do ambulatório em oncologia deve ser vista e, assim, considerar que se um profissional é bem assistido, o paciente também o será. Cuidando de quem cuida, certamente reverberará em seu cuidado ao usuário.

The high rate of cancer is something worrisome around the world. The most used treatment modality in oncology is chemotherapy, which in turn brings discomfort due to its feared side effects such as nausea, vomiting, alopecia, among others. If, on the one hand, dealing with pain and suffering is part of health workers, on the other hand, this cannot mean that workers have to bear the consequences as a burden of individual suffering inherent to their professional choices. After all, dealing with pain and suffering is an invaluable need and social good that needs to be recognized and valued in institutions. The objectives of this study are: to know the work processes with the nursing team in the oncology outpatient clinic from the use of the method of instruction to the double and thus expand the resources for the action of their activities; to identify the challenges encountered in practice for the care of people using chemotherapy; and to promote transformations in the work processes. This is a qualitative study, which used the method of instruction to the double, promoting dialogue and reflection among workers. The scenario was the oncology outpatient clinic of a federal public hospital in the state of Rio de Janeiro, the participants were the members of the nursing team working in the therapy room where chemotherapy is administered. Results: the difficulty of instructing the other in the 3rd person addresses the difficulty that is to speak of their activity as something outside of themselves; the recognition that the work in chemotherapy is very focused on the technique, and that often the worker forgets the power that exists at each meeting with the user and its singularities, showing that the worker is often captured by "dead work" to the detriment of "living work"; the lack of space for daily discussions for exchanges and reflections of practice, bringing the need for meetings; the lack of psychological care for the professionals of the oncology outpatient clinic. Final considerations: this research brings to light issues that need to be seen by managers, leaders working in the referred sector, of how much investment with spaces of Permanent Education in Health are essential for reflections and resolutions on the practice of health care, the health care of the outpatient worker in oncology should be seen and thus it should be considered that if the professional is well-attended, the patient will be, too. Taking care of those who care will certainly reverberate in their care towards the user.

Exploración de las opiniones de agentes implicados sobre la integración entre la farmacia comunitaria y los equipos de atención primaria / Stakeholder views of the integration of community pharmacy and primary health care teams

Introducción: Dado el aislamiento existente entre los farmacéuticos comunitarios y los miembros de los equipos de atención primaria en nuestro país, se diseñó este estudio para explorar las opiniones de profesionales de la salud de Osakidetza y de farmacia comunitaria, sobre la posibilidad de inte-gración de ambos colectivos. Método: Se diseñó un estudio cualitativo utilizan-do el Grupo Focal como método de obtención de información con análisis temático del contenido. La reunión tuvo lugar en el Centro de Salud de Gros (OSI Donostialdea). Participaron diferentes profesionales tanto de Osakidetza (n=6) como de la farmacia comunitaria (n=2). Todo el proceso de la reunión grupal y su informe, se realizó siguiendo los Standards for Reporting Qualitative Research (SRQR). Resultados: La Farmacia tiene como elementos fuertes su frecuentación, cercanía y facilidad de ac-ceso viéndose como un recurso no suficientemente aprovechado. A pesar de la dificultad conceptual de integrar un colectivo privado con otro público, se entendía la necesidad de acercamiento inter-profesional a través de una integración funcional, proceso que por su complejidad será lento y largo. Se debe comenzar con los programas locales ya existentes, proyectos pequeños, con objetivos concretos e indicadores medibles y mejorando la comunicación interprofesional y el conocimiento mutuo. Se analizaron las barreras a superar y los agentes implicados que deberían participar en cualquier proyecto futuro de integración siguiendo un modelo de diseño compartido.Conclusiones: Parece importante integrar funcio-nalmente la Farmacia comunitaria en Osakidetza – SVS.(AU)

Introduction: Due to the lack of integration of com-munity pharmacy and primary health care teams a study was designed to explore the views of stake-holders in the Basque health care system (Osakide-tza) on the integration of community pharmacy and primary healthcare teams.Method: A qualitative study, using focus group technique was used. The group met in the Gros health care center (IHO Donostialdea). There were 6 participants from the Basque primary health care system and 2 from community pharmacy. The whole focus group process followed the “Standards for Reporting Qualitative Research (SRQR”) and data generated was thematic content analysis.Results: The group identified the inherent strengths of community pharmacy as accessibility, geograph-ical distribution and frequency of visits by patients. Pharmacy was seen as a resource that was not optimally used. Despite the philosophical dilemma posed by the integration of a private (community pharmacy) and public (salaried health care profes-sionals) sector, there was seen a need for interpro-fessional collaboration, via functional integration due to the complexities and length of time required. The starting point was identified as existing rela-tively small local programs with specific objectives and measurable outcomes that increase commu-nication and build mutual confidence. The content analysis indicated a number of barriers and iden-tified potential stakeholders that should codesign any future potential integration program.Conclusions: There was general support for the integration of community pharmacy in the primary care system however this was tempered with sig-nificant barriers which would suggest a lengthy and complex process.(AU)

Supportive Roles of the Health Care Team Throughout the Illness Trajectory of Bladder Cancer Patients Undergoing Radical Cystectomy: A Qualitative Study Exploring the Patients' Perspectives.

OBJECTIVES: To explore patient perspectives of muscle-invasive bladder cancer (MIBC) on how the health care team and their social network can support them during their cancer trajectory. DATA SOURCES: Sixteen semi-structured interviews were conducted with MIBC survivors who underwent radical cystectomies at Ghent University Hospital. The interviews were audiotaped, transcribed verbatim, and analyzed with an iterative content analysis approach. CONCLUSION: Information to support people affected by bladder cancer (BC) in several aspects of their disease trajectory (eg, shared decision-making and self-management of their urinary diversion) was most important throughout the interviews (although type and source of required information varied). The clinical nurse specialist was important for informational and emotional support because receiving sufficient information might help patients reduce emotional stress. People affected by BC are still reluctant to consult a psychologist, and several barriers were indicated for this. Also physical needs in the early postoperative phase could be reduced with appropriate information. Communication skills of clinicians in the hospital and knowledge of general practitioners about the important aspects of BC care are also important aspects that should be further optimized. Furthermore, peer support groups and family members can offer important support throughout the BC pathway. IMPLICATIONS FOR NURSING PRACTICE: This study provides an overview of how people affected by BC want to be supported by their health care team and their social network. This overview can serve as a basis to develop educational interventions for both patients and health care professionals to guide restructuring of BC pathways and can also be used to develop future intervention studies to improve BC outcomes.

A não adesão ao atendimento odontológico de crianças em situação de vulnerabilidade / Non-adherence to dental care of socially vulnerable children

Resumo Introdução A adesão ao tratamento possui relação crucial com a iniquidade social, sendo uma das principais barreiras. Objetivo Analisar os fatores relacionados à não adesão ao atendimento odontológico de crianças em situação de vulnerabilidade, segundo a percepção de uma equipe de saúde bucal. Método Estudo qualitativo, por meio de entrevistas com a equipe de saúde bucal, realizado em uma Unidade Básica de Saúde da região sul do município de Londrina, Paraná, de julho a setembro de 2016, por identificação e caracterização do atendimento odontológico a crianças de 6 a 9 anos, residentes no território de abrangência. Resultados Os resultados foram descritivos e analisados segundo a adesão ao tratamento, e as entrevistas foram interpretadas por meio da análise de conteúdo temática. Das 55 crianças identificadas, 30 eram faltosas, 19 eram assíduas e 6 nunca foram atendidas. Constatou-se que a concepção dos profissionais sobre a vulnerabilidade está relacionada às baixas condições socioeconômicas. Os principais fatores à não adesão foram: desvalorização da importância do cuidado, priorização de outras tarefas, questões culturais, sofrimento anterior, falta de profissionais, ausência de busca ativa e de classificação de risco e falta de integração entre os profissionais. Conclusão O usuário é culpabilizado pela sua situação, e o profissional desconsidera a situação de vulnerabilidade, desresponsabilizando-se pelo cuidado integral.

Abstract Background Treatment adherence has a crucial relationship with social inequality, which is one of its main barriers. Objective To analyze the factors related to non-adherence to dental care of socially vulnerable children according to the perception of an oral health team. Method Qualitative study conducted through interviews with an oral health team in a Basic Health Unit (BHU) of the southern region of Londrina, state of Parana, Brazil, from July to September 2016 that aimed to identify and characterize the dental care of children aged 6-9 years residing in the BHU coverage territory. Results The descriptive results were analyzed according to treatment adherence, and the interviews interpreted through thematic content analysis. Of the 55 children identified, 30 were often absent, 19 were assiduous, and six never attended treatment. It was verified that the professionals' understanding of vulnerability is related to low socioeconomic conditions. The main reasons for treatment non-adherence were devaluation of the importance of care, prioritization of other tasks, cultural issues, previous suffering, lack of professionals, absence of active search and risk classification, and lack of integration among professionals. Conclusion The users are blamed for their situation, and the professionals disregard social vulnerability and disclaim responsibility for total care.

Psychometrics of the Persian Version of the Team Assessment Questionnaire in Providing Care for Heart Failure Patients.

BACKGROUND: Teamwork in the health care domain is the preferred mode of care delivery. Few instruments have been developed to assess teamwork in the field of health care, particularly in Iran. This study aimed to validate the Persian version of the Team Assessment Questionnaire (P-TAQ) in care for Congestive Heart Failure (CHF) patients. MATERIALS AND METHODS: In this cross-sectional study, the validity (face, content, and construct validity) and the reliability (internal consistency and stability) of the cross-cultural adaptation of the Persian version of the Team Assessment Questionnaire (P-TAQ) were assessed. RESULTS: The P-TAQ had adequate face and content validity. The confirmatory factor analysis confirmed the seven dimensions of the questionnaire. The internal consistency of the P-TAQ was 0.91, and the Intraclass Correlation Coefficient (ICC) was 0.89. CONCLUSIONS: The P-TAQ is a valid questionnaire in terms of dimensions and items. Assessing teamwork is an essential component of delivering adequate care. By examining the status of teamwork using this questionnaire, it is possible to promote teamwork and to understand its strengths and weaknesses. Future research is necessary to better understand the P-TAQ so that it can be used for the assessment of teamwork outcomes regarding patient safety, cultural barriers, and medical errors.

[Erratic consent and lability of discernment]. / Errances du consentement et labilité du discernement.

Consent and discernment are two important notions, constantly present in the daily life of psychiatric caregivers. The Haute Autorité de santé sheds valuable light on discernment by defining it in terms of five characteristics. As for consent, it is based on the fundamental principle of an agreement given on a proposal with a perception of the stakes by the different parties. The consequences within the multidisciplinary team are multiple, between the information recorded in the shared medical record, the care decisions according to the clinic and the impact on the patients' group. These are all serious ethical and practical difficulties.

A qualitative study of family members' experiences of their loved one developing dementia and their subsequent placement in a nursing home.

AIM: To investigate the family members' experiences with receiving help and support while their loved one develops dementia and their subsequent placement in nursing homes. BACKGROUND: As the dementia disease progresses, some family members will struggle with the option of nursing home placement. This situation can precipitate feelings of anger, disappointment and guilt, all of which can be overwhelming. METHODS: A qualitative descriptive study with in-depth interviews (n = 19) was carried out in several nursing homes of Slovenia's North Eastern Region. RESULTS: Inductive thematic analysis identified two main themes: (i) developing the diagnosis and (ii) accommodation process. Family members noticed the progressive behavioural changes in their loved ones. While they were searching for help at the primary health care level, they experienced a lack of help and support. CONCLUSIONS: When family members detect behavioural changes in their loved ones, the primary health care team should establish an early diagnosis of dementia and provide adequate decision-making support. IMPLICATIONS FOR NURSING MANAGEMENT: The findings are useful to prepare guidance for a family member to inform them of the types of support available and from which associations and organisations. To achieve adequate management support, primary health care teams need to be aware of family member experiences.