Independent and joint associations of cardiorespiratory fitness and weight status with health-related quality of life among Brazilian adolescents.

PURPOSE: To investigate the independent and joint associations of cardiorespiratory fitness and body mass index (BMI) with five dimensions of Health-Related Quality of Life (HRQoL) in a cross-sectional sample of Brazilian adolescents. METHODS: 619 Brazilian schoolchildren answered a survey, BMI categories (healthy weight and overweight/obesity) were assessed by their weight and height, and they participated in a 20-m shuttle run test. HRQoL was measured using the KIDSCREEN-27 across five dimensions: Physical Well-Being, Psychological Well-Being, Autonomy and Parent Relation, Peers and Social Support, and School Environment. Sex, age, maternal education, physical activity level, and habitual sedentary behaviour were assessed and used as adjusting variables. Cardiorespiratory fitness was categorized in tertiles and independent and joint associations were tested using mixed-effects linear regressions. RESULTS: Higher levels of cardiorespiratory fitness were favourably associated with the physical well-being, psychological well-being, and peer and social support dimensions of HRQoL. Adolescents with overweight/obesity presented higher scores on peer and social support dimensions when compared to healthy-weight adolescents. Independent of the adolescents' BMI categories, better cardiorespiratory fitness was positively associated with physical and psychological well-being when compared with the category of overweight/obesity and low cardiorespiratory fitness. In addition, adolescents with overweight/obesity combined with intermediate cardiorespiratory fitness or high cardiorespiratory fitness had higher scores on the peer and social support dimension. CONCLUSION: Cardiorespiratory fitness is a strong correlate of HRQoL across most of the dimensions measured, while BMI was a correlate of one dimension of HRQoL. Future studies should evaluate these relationships prospectively and experimentally.

Calidad de vida relacionada con la salud en adolescentes de tres instituciones educativas del Valle de Aburrá / Health-Related Quality of Life in Adolescents From Three Educational Institutions in Valle de Aburra

Resumen Indagar por la calidad de vida relacionada con la salud de los adolescentes se hace relevante cuando se desea entender sus percepciones y opiniones, pero sobre todo a la hora de pensar en estrategias de atención, sobre todo en el entorno escolar. El objetivo de la presente investigación cuantitativa, no experimental, fue describir la calidad de vida relacionada con la salud de un grupo de adolescentes de tres Instituciones Educativas del Valle de Aburrá, de los grados octavo y noveno, a partir de la aplicación del cuestionario KIDSCREEN -27. El estudio se realizó con una muestra de 430 adolescentes con una mediana de edad de 14 años (CV=0.07). Se encontró que los adolescentes percibieron su calidad de vida relacionada con la salud de manera muy positiva, en especial en la dimensión de amigos y apoyo social, además se encontraron diferencias significativas con respecto al género, favoreciendo la población masculina y de los adolescentes físicamente activos.

Abstract Inquiring into the health-related quality of life of adolescents becomes relevant when we wish to understand their perceptions and opinions, especially when thinking about care strategies, particularly in the school environment. The objective of this quantitative, non-experimental research was to describe the health-related quality of life of a group of adolescents from three Educational Institutions in Valle de Aburrá, in the eighth and ninth grades, based on the application of the KIDSCREEN-27 questionnaire. The study was conducted with a sample of 430 adolescents with a median age of 14 years (CV = 0.07). The results showed that adolescents perceive their health-related quality of life in a very positive way, especially in the dimension of friends and social support. Statistically significant differences were identified for gender, favoring the male population and physically active teenagers.

Quality of life of children and adults following cardiac surgery for congenital heart disease: A Mexican cohort.

Objective: The real burden of (congenital heart defects [CHD]) and the improvement after surgical correction or palliation is both reflected in the quality of life (QoL). There are few studies in Latin-America that evaluate QoL in the CHD population. The purpose of this study was to measure the QoL after corrective or palliative surgery for CHD. Materials and methods: An observational, cross-sectional, and comparative study was carried out at the Miguel Hidalgo Centennial Hospital. Patients from 8 to 18 years old who underwent surgery for CHD were included during a period of 8 months. A total of 40 patients were included, together with a group of 80 healthy controls. From all participants, a KIDSCREEN-52 questionnaire was taken. A comparative analysis of the results was performed. Results: Overall, patients with cardiac surgery had better QoL indexes than healthy controls (p < 0.0001). The difference was greatest in moods and emotions, autonomy, and parent relations. Conclusions: Self-perception of QoL in post-operative patients for congenital heart disease is similar and in certain dimensions higher than the healthy population, possibly due to socioeconomic differences, parental care, and styles of coping with their disease. Higher complexity studies that include psychosocial variables and parental perception are required, and a better understanding of the QoL determinants will improve the attention provided to the patient and their families. Objetivo: Los efectos de las cardiopatías congénitas en los pacientes, así como la mejoría después de la paliación o la corrección quirúrgica, se reflejan en la calidad de vida (CV). Hay pocos estudios en Latinoamérica que evalúen la CV en esta población. El objetivo de este artículo es notificar la CV posterior a la operación paliativa o correctiva para defectos cardíacos congénitos. Material y métodos: Se llevó a cabo un estudio observacional, transversal y comparativo en el Centenario Hospital Miguel Hidalgo. Durante un período de ocho meses se incluyó a pacientes de 8 a 18 años sometidos a una intervención para cardiopatías congénitas. Se reunió a dos grupos de 40 pacientes y 80 controles sanos, pareados por edad y sexo. A cada participante se le aplicó el cuestionario KIDSCREEN-52 y se realizó un análisis comparativo de los resultados. Resultados: Los pacientes sometidos a operación cardíaca tuvieron mejores índices de CV que los controles sanos (p < 0.0001). La mayor diferencia se obtuvo en los aspectos de estado de ánimo y emociones, autonomía y relación con los padres. Conclusiones: La autopercepción de la CV después de una intervención para cardiopatías congénitas es similar y, en ciertas dimensiones, mejor que la de la población sana, tal vez por diferencias socioeconómicas, atención de los padres y modelos de adaptación a la enfermedad. Se requieren estudios más extensos que incluyan variables psicosociales y percepción parental. Una mayor comprensión de los determinantes de la CV podría mejorar la atención ofrecida al paciente y su familia.

Quality of life of children and adults following cardiac surgery for congenital heart disease: A Mexican cohort / Calidad de vida en niños y adultos después de cirugía para cardiopatías congénitas: primera cohorte mexicana

Abstract Objective: The real burden of (congenital heart defects [CHD]) and the improvement after surgical correction or palliation is both reflected in the quality of life (QoL). There are few studies in Latin-America that evaluate QoL in the CHD population. The purpose of this study was to measure the QoL after corrective or palliative surgery for CHD. Materials and methods: An observational, cross-sectional, and comparative study was carried out at the Miguel Hidalgo Centennial Hospital. Patients from 8 to 18 years old who underwent surgery for CHD were included during a period of 8 months. A total of 40 patients were included, together with a group of 80 healthy controls. From all participants, a KIDSCREEN-52 questionnaire was taken. A comparative analysis of the results was performed. Results: Overall, patients with cardiac surgery had better QoL indexes than healthy controls (p < 0.0001). The difference was greatest in moods and emotions, autonomy, and parent relations. Conclusions: Self-perception of QoL in post-operative patients for congenital heart disease is similar and in certain dimensions higher than the healthy population, possibly due to socioeconomic differences, parental care, and styles of coping with their disease. Higher complexity studies that include psychosocial variables and parental perception are required, and a better understanding of the QoL determinants will improve the attention provided to the patient and their families.

Resumen Objetivo: Los efectos de las cardiopatías congénitas en los pacientes, así como la mejoría después de la paliación o la corrección quirúrgica, se reflejan en la calidad de vida (CV). Hay pocos estudios en Latinoamérica que evalúen la CV en esta población. El objetivo de este artículo es notificar la CV posterior a la operación paliativa o correctiva para defectos cardíacos congénitos. Material y métodos: Se llevó a cabo un estudio observacional, transversal y comparativo en el Centenario Hospital Miguel Hidalgo. Durante un período de ocho meses se incluyó a pacientes de 8 a 18 años sometidos a una intervención para cardiopatías congénitas. Se reunió a dos grupos de 40 pacientes y 80 controles sanos, pareados por edad y sexo. A cada participante se le aplicó el cuestionario KIDSCREEN-52 y se realizó un análisis comparativo de los resultados. Resultados: Los pacientes sometidos a operación cardíaca tuvieron mejores índices de CV que los controles sanos (p < 0.0001). La mayor diferencia se obtuvo en los aspectos de estado de ánimo y emociones, autonomía y relación con los padres. Conclusiones: La autopercepción de la CV después de una intervención para cardiopatías congénitas es similar y, en ciertas dimensiones, mejor que la de la población sana, tal vez por diferencias socioeconómicas, atención de los padres y modelos de adaptación a la enfermedad. Se requieren estudios más extensos que incluyan variables psicosociales y percepción parental. Una mayor comprensión de los determinantes de la CV podría mejorar la atención ofrecida al paciente y su familia.

Calidad de vida relacionada con la salud en niños, niñas y adolescentes, municipios El Líbano y Honda (Tolima), 2018 / Quality of life in relation to health in children and adolescents, El Líbano and Honda (Tolima) municipalities, 2018 / Qualidade de vida relacionada com a saúde de crianças e adolescentes, municípios El Líbano e Honda (Tolima), 2018

Resumen Objetivo: Determinar la calidad de vida relacionada con la salud (cvrs) en niñas, niños y adolescentes entre 8 y 18 años, vinculados a la modalidad hogar sustituto-vulneración, en los municipios de El Líbano y Honda, del departamento de Tolima. Metodología: Estudio de corte, en una muestra no aleatoria de 77 niñas, niños y adolescentes, de 35 hogares sustitutos, a quienes se les aplicó el kidscreen-52, constituido por ocho dimensiones que puntúan en sentido positivo (autopercepción, autonomía, relación con los padres y vida familiar, sentimientos, recursos económicos, actividad física y salud, amigos y apoyo social, y entorno escolar) y dos con sentido negativo (estado de ánimo y aceptación social). Para la estimación del índice global de cvrs (igcvrs), se utilizó el kidscreen-10. Resultados: La media del igcvrs fue de 69,9 puntos (desviación estándar = 18,2). Cuando se cotejó el puntaje promedio del igcvrs con el de las dimensiones, la "aceptación social", los "sentimientos", el "entorno escolar" y la "autopercepción" alcanzaron, como mínimo, el puntaje promedio del igcvrs, en contraste con los puntajes de las dimensiones "actividad física y salud", "vida familiar", "estado de ánimo", "amigos", "autonomía" y "dinero". El 46,8 % valoró excelente su estado de salud, y el 9,1 %, regular. Conclusión: Es útil implementar una valoración basada en el perfil de vulnerabilidad-generatividad familiar y elaborar un perfil de la niña, del niño o de la o el adolescente, teniendo en cuenta sus dificultades y problemáticas psicosociales, lo que mejorará los procesos de autonomía, estado de ánimo, vida familiar, autopercepción y apoyo social.

Abstract Objective: To determine the quality of life related to health (CVRS) in girls, boys and adolescents between 8 and 18 years old, linked to home substitution-violation, in the municipalities of El Líbano and Honda in the department of Tolima. Methodology: A cross-sectional study in a non-random sample of 77 girls, boys and adolescents from 35 foster homes, to whom KIDSCREEN-52 was applied, consisting of eight dimensions that score positively (self-perception, autonomy, relationship with parents and family life, feelings, financial resources, physical activity and health, friends and social support, and school environment) and two negatively (mood and social acceptance). The KIDSCREEN-10 was used for the estimation of the overall CVRS index (IGCVRS). Results: The mean of the IGCVRS was 69.9 points (standard deviation = 18.2). When the average IGCVRS score was compared with that of the dimensions, "social acceptance", "feelings", "school environment" and "self-perception" reached, as a minimum, the average IGCVRS score, in contrast to the scores of the "physical activity and health", "family life", "state of mind", "friends", "autonomy" and "money" dimensions. 46.8% rated their health status as excellent, and 9.1%, fair. Conclusion: It is useful to implement assessment based on the family vulnerability-generativity profile and create a profile for the girl, boy or adolescent, taking into account their psychosocial difficulties and problems, which will improve the processes of autonomy, state of encouragement, family life, self-perception and social support.

Resumo Objetivo: Determinar a qualidade de vida relacionada com a saúde (CVRS) em crianças e adolescentes entre 8 e 18 anos, vinculados à modalidade lar substituto-vulnerabilidade, nos municípios de El Líbano e Honda, no estado de Tolima. Metodologia: Estudo de corte, numa amostra não aleatória de 77 crianças e adolescentes de 35 lares substitutos, a qual foi aplicada o KIDSCREEN-52, constituído por oito dimensões que marcam em sentido positivo (autopercepção, autonomia, relação com os pais e a vida familiar, sentimentos, recursos econômicos, atividade física e saúde, amigos e apoio social e ambiente escolar) e duas com sentido negativo (estado de ânimo e aceitação social). Para a estimativa do índice global de CRVS (IGCVRS) utilizou-se o KIDSCREEN-10. Resultados: A média do IGCVRS foi de 69,9% pontos (desvio padrão = 18,2). Quando a pontuação média do IGCVRS foi verificada com a pontuação das dimensões, (aceitação social, sentimentos, ambiente escolar e autopercepção), atingiram como mínimo a pontuação média do IGCVRS, contrastando com as pontuações das dimensões (atividade física e saúde, vida familiar, estado de ânimo, amigos, autonomia e dinheiro). Um total de 46,8% avaliou como excelente seu estado de saúde e 9,1% como regular. Conclusão: É útil programar uma avaliação baseada no perfil de vulnerabilidade-geratividade familiar e elaborar um perfil da criança ou do adolescente, considerando suas dificuldades e problemas psicossociais, o que pode melhorar os processos de autonomia, estado de ânimo, vida familiar, autopercepção e apoio social.

Adjusted linguistic validation and psychometric properties of the Colombian version of KIDSCREEN-52.

In health and clinical studies, health-related quality of life is often assessed using the well-established KIDSCREEN-52 questionnaires as well as the Vécu et Santé Perçue de l'Adolescent (VSP-A). The purpose of this study was twofold: to perform an adjusted linguistic validation of the Colombian version of the KIDSCREEN-52 and to assess its psychometric properties in children and adolescents. A total of 146 children and adolescents completed the KIDSCREEN-52, adolescents ( n = 48) additionally completed the VSP-A. Psychometric analyses focused on the internal consistency as well as the convergent and discriminant validity of the KIDSCREEN-52 Colombian version. Syntactic and semantic modifications were made to 19 items in the adapted version of the KIDSCREEN-52. Cronbach's α ranged from .74 to .89 for eight dimensions, while α < .70 was obtained for self-perception and social acceptance. We found evidence of good convergent validity with the VSP-A dimensions. Regarding known-groups validity, children aged between 8 and 10=years, male, with a high socioeconomic level and no chronic health condition obtained higher scores compared to the other categories. The developed Colombian version of the KIDSCREEN-52 showed acceptable reliability and validity. This study provides a cultural adaptation of the Spanish version of the KIDSCREEN-52 for Colombian children and adolescents.

Cuestionario kidscreen52 para la medición de la calidad de vida relacionada con la salud en niños con estrabismo / Use of the Kidscreen52 questionnaire to measure health-related quality of life among children with strabismus

Objetivo: Validar el cuestionario Kidscreen de 52 elementos (Kidscreen52) para medir la calidad de vida relacionada con la salud en una población pediátrica con diagnóstico de estrabismo. Método: Se realizó un estudio transversal y descriptivo. Se determinó la validez del cuestionario Kidscreen52 para medir la calidad de vida relacionada con la salud en 71 pacientes de 8 a 18 años de edad con diagnóstico de estrabismo. Resultados: En la muestra analizada, la edad de 8 años resultó ser la de mayor frecuencia (47,9 por ciento). Fue seguida de las edades de 10 y 12 años (9,9 por ciento). Con respecto al sexo, el 63,4 por ciento (45) representaba al sexo femenino y el 36,6 por ciento (26) al sexo masculino. Se obtuvieron valores mayores a 0,7 en siete de diez dimensiones (0,813-0,872) así como en la puntuación global del cuestionario Kidscreen52 (0,943). Conclusiones: Kidscreen52 es una herramienta útil para medir 10 dimensiones de la calidad de vida relacionada con la salud: bienestar físico, bienestar psicológico, estado de ánimo, autopercepción, autonomía, relación con los padres y vida familiar, recursos económicos, amigos y apoyo social, entorno escolar y aceptación social (bullying)(AU)

Objective: Validate the usefulness of the 52-item Kidscreen (Kidscreen52) questionnaire to measure health-related quality of life in a pediatric population diagnosed with strabismus. Methods: A descriptive cross-sectional study was conducted. Determination was made of the validity of the Kidscreen52 questionnaire to measure health-related quality of life in 71 patients aged 8-18 years diagnosed with strabismus. Results: The Kidscreen52 questionnaire is a valid tool to measure health-related quality of life among children and adolescents with strabismus and a Cronbach's alpha above 0.7. Conclusions: Kidscreen52 is a useful tool to measure 10 health-related quality of life parameters: physical well-being, psychological well-being, mood, self-perception, autonomy, relations with parents and family life, economic resources, friends and social support, school environment and social acceptance (bullying).(AU)

Qualidade de vida de crianças/adolescentes queimados atendidas no Sul do Brasil: percepção de si mesmas e de seus pais/responsáveis / Quality of life of burned children/adolescents assisted in the South of Brazil: Perception of themselves and her parents / guardians / Calidad de vida de niños/adolescentes quemados atendidos en el Sur de Brasil: Percepción de si mismas y de sus padres/responsables

Objetivo: Avaliar a percepção de qualidade de vida de crianças/adolescentes que sofreram queimaduras e de seus pais/responsáveis em acompanhamento ambulatorial. Método: Estudo piloto do tipo quantitativo, descritivo realizado com participação de oito crianças/adolescentes no período de junho de 2015 a junho de 2016. A qualidade de vida foi avaliada utilizando o instrumento Proteção e Promoção da Qualidade de Vida Relacionada com a Saúde em Crianças e Adolescentes, organizado em dez dimensões: saúde e atividade física, sentimentos, estado emocional, autopercepção, autonomia e tempo livre, família e ambiente familiar, aspectos financeiros, amigos e apoio social, ambiente escolar e provocação ou bullying, contemplando a realidade vivenciada em um período recordatório de uma semana. Resultados: Das 10 dimensões avaliadas pelas crianças/adolescentes, quatro mantiveram-se acima da média de corte: "sentimentos", "autonomia", "aspectos financeiros" e "ambiente escolar". As mais comprometidas foram "estado emocional" e "amigos e apoio social"; já "autopercepção", "família e ambiente familiar" e "provocação e bullying" foram mais bem avaliadas. Os pais/responsáveis avaliaram as dimensões "saúde e atividade física", "aspecto financeiro" e "estado emocional" como as mais comprometidas, enquanto "autonomia", "amigos e apoio social", "ambiente escolar", "sentimentos", "autopercepção" e "família e ambiente" foram mais bem avaliadas. Conclusão: Crianças/adolescentes avaliaram sua qualidade de vida relacionada à saúde de forma positiva em 90% das dimensões, enquanto seus país/responsáveis avaliaram a qualidade de vida relacionada à saúde das crianças/adolescentes de forma positiva em 100% das dimensões.

Objective: To evaluate the perception of quality of life of children/adolescents who suffered burns and of their parents/guardians in outpatient follow-up. Methods: A quantitative, descriptive pilot study conducted with the participation of eight children / adolescents from June 2015 to June 2016. Quality of life was evaluated using the instrument Protection and Promotion of Health-Related Quality of Life in Children and Adolescents , organized into ten dimensions: health and physical activity, feelings, emotional state, self-perception, autonomy and free time, family and family environment, financial aspects, friends and social support, school environment and bullying or provocation, contemplating the reality experienced in a period week. Results: Of the 10 dimensions evaluated by the children / adolescents, four remained above the cut-off average: "feelings", "autonomy", "financial aspects" and "school environment". The most committed were "emotional state" and "friends and social support", as "self-perception", "family and family environment" and "provocation and bullying" were better evaluated. The parents / guardians evaluated the dimensions of "health and physical activity", "financial aspect" and "emotional state" as the most affected, while "autonomy", "friends and social support", "school environment", "self-perception "and" family and environment "were better evaluated. Conclusion: Children/adolescents rated their quality of life related to health positively by 90% of the dimensions, while their parents/guardians assessed the quality of life related to health of children/adolescents positively by 100% of the dimensions. KEYWORDS: Quality of Life. Nursing, Practical. Burns. Child. Adolescent.

Objetivo: Evaluar la percepción de calidad de vida de niños / adolescentes que sufrieron quemaduras y de sus padres/responsables en seguimiento ambulatorio. Método: Estudio piloto quantitativo, descriptivo, realizado con participación de ocho niños/adolescentes en el período de junio de 2015 a junio de 2016. La calidad de vida fue evaluada por Protección y Promoción de la Calidad de Vida Relacionada con la Salud en Niños y Adolecentes, organizado diez dimensiones: salud y actividad física, sentimentos, estado emocional, autoprotección, autonomia y tempo libre, família y ambiente familiar, aspectos financeiros, amigos y apoyo social, ambiente escolar y Bullyng ou provocación, contemplando la realidad vivida en un período de recuerdo de una semana. Resultados: De las 10 dimensiones evaluadas por los niños/ adolescentes, cuatro se mantuvieron por encima del promedio de corte: "sentimientos", "autonomía", "aspectos financieros" y "ambiente escolar". Las más comprometidas fueron "estado emocional" y "amigos y apoyo social", ya "autopercepción", "familia y ambiente familiar" y "provocación y bullying" fueron mejor evaluadas. Los padres / responsables evaluaron las dimensiones "salud y actividad física", "aspecto financiero" y "estado emocional" como las más comprometidas, como "autonomía", "amigos y apoyo social", "ambiente escolar", "sentimientos", "sentimientos" autopercepción "y" familia y ambiente "fueron mejor evaluadas. Conclusión: Niños/ adolescentes evaluaron su calidad de vida relacionada con la salud de forma positiva en el 90% de las dimensiones, mientras que sus países/responsables evaluaron la calidad de vida relacionada con la salud de los niños / adolescentes de forma positiva en el 100% de las dimensiones.

Colombian Rasch validation of KIDSCREEN-27 quality of life questionnaire.

BACKGROUND: The family of KIDSCREEN instruments is the only one with trans-cultural adaptation and validation in Colombia. These validations have been performed from the classical test theory approach, which has evidenced satisfactory psychometric properties. The aim of this study was to evaluate psychometric properties of KIDSCREEN-27 children and parent-proxy versions, through Rasch analysis. METHODS: The participants in the present study were two different sets of populations, 321 kids with a mean age of 12.3 (SD 2.6), 41 % 8 to 11 years old and 59 % 12 to 18 years old; and 1150 parent-proxy with an average age of 45.5 (SD 18.9). Psychometric properties were assessed using the partial credits model in the Rasch approach. Unidimensionality, fitting of person and item, response form, and differential item functioning (DIF) were measured. RESULTS: The Infit MNSQ in child self-reported version that ranges between 0.71-1.76, and 0.69-1.31 in the parent-proxy version. Scores gathered on Likert forms of 5-response options, person separation was 2.08 for child self-reported version and 2.40 for parent-proxy; reliability was 0.81 and 0.85, respectively. Items reliability was 0.99 on both versions, with separations of 11.92 for child self-reported and 10.83 for parent-proxy. There was not DIF according to the variables sex and age but was present according to socioeconomic status. CONCLUSION: There was a good fit for items and individuals to the Rasch model. Item separation was adecuate, and person separation improved when the response form was re-codified to four options. The presence of DIF according to socioeconomic status implies a scale's bias in the measure of HRQoL of Colombian children.

Niño quemado gran secuelado: perfil clínico y calidad de vida / Severe burns in children: clinical profile and quality of life

Las secuelas de quemaduras extendidas son causa de grandes complicaciones tanto a nivel físico como psicosocial en niños y adolescentes. Objetivo: Caracterización de la población con más de 2e por ciento de piel con secuelas por quemadura en Corporación de Ayuda al Niño Quemado, midiendo y comparando su calidad de vida según bienestar físico, bienestar psicológico, relación con los padres y autonomía, apoyo social y pares, ambiente escolar. Método: Se evalúa a través de cuestionario KIDSCREEN-27 a 29 niños de entre 8 a 18 años de edad, habiendo recibido rehabilitación integral, los que son comparados con resultados de niños sanos. Resultados. Dentro del grupo estudiado no hubo diferencias significativas entre género, edad, residencia, aunque si las hubo en cuanto a visibilidad de cicatrices. En el caso de comparación con muestra de población general sana, se evidenciaron diferencias de calidad de vida a favor de niños con quemaduras extendidas.

Introduction: The aftermath of extensive burns cause great complications both physical and psychosocial in children and adolescents. Objective: Characterization of the population over 25 percent of skin with aftermath burn in Assistance Corporation Burned Children, by measuring and comparing their quality of life by physical well, psychological, relationship with parents and autonomy, social support and peers, school environment. Methods: We evaluated through KIDSCREEN-27-29 children aged 8-18 years old having received comprehensive rehabilitation, the results being compared with healthy children. Results. Within the study group no significant differences between gender, age, residence, even if any in terms of visibility of scars. In the case of comparison with general population sample of healthy, were differences in quality of life for children with extensive burns.

Calidad de vida relacionada con la salud en adolescentes integrantes de hogares desconectados de los servicios públicos domiciliarios, Comuna 3, Medellín (Colombia) / Quality of life related to health in young members of households disconnected from household utilities, Comuna 3, Medellin (Colombia) / Qualidade de vida relacionada à saúde de adolescentes integrantes de famílias desconectadas dos serviços públicos domiciliares, Comuna 3, Medellín (Colômbia)

Objetivo: describir la calidad de vida relacionada con la salud (CVRS) en los adolescentes integrantes de los hogares desconectados de los servicios públicos domiciliarios de la franja alta de la comuna 3 de Medellín. Métodos: estudio de caso. Muestra constituida por 120 adolescentes. Se utilizó el Kidscreen-27 para medir la CVRS. Se estimaron diferencias en el puntaje de cada dominio según variables sociodemográficas mediante los test U de Mann-Whitney y Kruskal Wallis. Resultados y conclusiones: el dominio de bienestar físico fue superior en hombres, adolescentes sin morbilidad y en aquellos con exceso de peso, mientras que la más baja fue reportada por adolescentes con riesgo de desnutrición. Quienes presentaron conductas de riesgo puntuaron una CVRS más baja en la dimensión de ambiente escolar. La puntuación más baja en el dominio de relación con padres y autocuidado de la CVRS se observó en los que vivían en condiciones de hacinamiento.

Objective: To describe the quality of life related to health (HRQOL) in adolescents members of households disconnected from household utilities from the high fringe of the comuna 3 of Medellin. Methods: A case study. Sample consists of 120 adolescents. The Kidscreen-27 was used to measure HRQOL. Differences were estimated in each domain score by sociodemographic variables using the Kruskal-Wallis and Mann-Whitney U test. Results and conclusions: the physical well-being domain was higher in men, adolescents without morbidity and in those with excess weight, while the lowest was reported by adolescents at risk of malnutrition. Those who had risk behavior scored a lower HRQOL in the school environment dimension. The lowest score in the domain of relationship with parents and self-care related to HRQOL was observed in those living in overcrowded conditions.

Objetivo: descrever a qualidade de vida relacionada à saúde (QVRS) em adolescentes membros de famílias desconectadas aos serviços públicos domiciliares na camada alta do distrito 3 de Medellín. Métodos: estudo de caso. Amostra é constituída por 120 adolescentes. Usamos o Kidscreen-27 para medir a QVRS. Foram estimadas diferenças em cada escore do domínio por variáveis sociodemográficas usando os testes U de Mann-Whitney e Kruskal Wallis. Resultados e conclusões: o domínio de bem-estar físico foi maior nos homens, adolescentes sem doença e em pessoas com excesso de peso, enquanto o menor foi relatado por adolescentes em risco de desnutrição. Aqueles que tinham comportamento de risco marcaram um menor QVRS na dimensão ambiente escolar. A pontuação mais baixa no domínio da relação com os pais e de autocuidado da QVRS foi observada em pessoas que vivem em condições de superlotação.

Validez y confiabilidad del ‘Cuestionario de calidad de vida KIDSCREEN-27’ versión padres, en Medellín, Colombia / Validity and reliability of the KIDSCREEN-27 life quality questionnaire, parents’ version, in Medellin, Colombia

Objetivo: Validar la versión KIDSCREEN-27 para padres en el Área Metropolitana de Medellín, Colombia, incluyendo la subescala aceptación social (AS) del KIDSCREEN-52, pues esta permite evaluar el efecto del bullying en la calidad de vida (CV) del niño. Métodos: La población de estudio fueron padres de niños entre los 8 y 18 años, de Medellín y su Área Metropolitana. Se calculó una muestra de 1.150 padres, de acuerdo con las propiedades psicométricas por medir. Se realizó una validación de constructo, comparando las puntuaciones medias entre los grupos de baja y alta condición socioeconómica. También se efectuó la validez de contenido y la medición de fiabilidad, por medio de la consistencia interna y la estabilidad prueba-reprueba. Adicionalmente, se midió el acuerdo padre-hijo. Resultados: La consistencia interna fue adecuada (α de Cronbach 0,76-0,83). Los padres de niños con mejor condición socioeconómica tuvieron puntuaciones más altas en todas las dimensiones (p < 0,05). Las puntuaciones fueron más altas entre niños sanos. Las mujeres tuvieron menores puntuaciones que los hombres, y los niños, mayores que los adolescentes. Los CCI para la evaluación de la fiabilidad estuvieron por encima de 0,7 en todas las dimensiones, excepto en entorno escolar (EC), (CCI 0,6-0,92). El acuerdo padre-hijo alcanzó niveles entre moderados y buenos (CCI 0,49-0,69). El análisis factorial exploratorio, incluyendo la subescala AS, arrojó ocho dimensiones; cuatro coincidieron con el cuestionario original: actividad física, EC, apoyo social y la subescala AS. Conclusión: KIDSCREEN-27 para padres es un instrumento válido y confiable para el contexto colombiano…

Objective: Validate the KIDSCREEN-27 for parents in the metropolitan area of Medellín, Colombia, including the Social Acceptance (SA) subscale of KIDSCREEN-52, as it evaluates the effect of bullying in Life Quality of children. Methods: The study population was made up by parents of children between 8 and 18, from Medellín and its metropolitan area. A sample of 1,150 parents was estimated according to the different psychometric properties to be measured. Construct validation was made by comparing the mean scores between groups of high and low socioeconomic conditions. The content validity and the measurement of reliability were verified by internal consistency and testretest stability. The parent-child agreement was also measured. Results: The internal consistency was adequate (Cronbach alpha 0,76-0,83). Parents of children with better socio-economic status had higher scores in all dimensions (p<0,05). Scores were higher among healthy children. Women had lower scores than men, while children registered higher scores than adolescents. The intraclass correlation coefficient for the reliability assessment was above 0.7 in all dimensions, except in School Environment-SE- (ICC 0,6- 0,92). The parent-child agreement reached moderate and good levels (ICC 0,49-0,69). The exploratory factorial analysis, including social acceptance subscale, registered eight dimensions, four of which in agreement with the original questionnaire: Physical activity, SE, Social Support, and SA subscale. Conclu-sions: KIDSCREEN-27 for parents is a valid and reliable instrument to be used in the Colombian context…

[Validity and Reliability of the KIDSCREEN-27 Life Quality Questionnaire, Parents' Version, in Medellin, Colombia]. / Validez y confiabilidad del 'Cuestionario de calidad de vida KIDSCREEN-27' versión padres, en Medellín, Colombia.

OBJECTIVE: Validate the KIDSCREEN-27 for parents in the metropolitan area of Medellín, Colombia, including the Social Acceptance (SA) subscale of KIDSCREEN-52, as it evaluates the effect of bullying in Life Quality of children. METHODS: The study population was made up by parents of children between 8 and 18, from Medellín and its metropolitan area. A sample of 1,150 parents was estimated according to the different psychometric properties to be measured. Construct validation was made by comparing the mean scores between groups of high and low socioeconomic conditions. The content validity and the measurement of reliability were verified by internal consistency and test-retest stability. The parent-child agreement was also measured. RESULTS: The internal consistency was adequate (Cronbach alpha 0,76-0,83). Parents of children with better socio-economic status had higher scores in all dimensions (p<0,05). Scores were higher among healthy children. Women had lower scores than men, while children registered higher scores than adolescents. The intraclass correlation coefficient for the reliability assessment was above 0.7 in all dimensions, except in School Environment-SE- (ICC 0,6-0,92). The parent-child agreement reached moderate and good levels (ICC 0,49-0,69). The exploratory factorial analysis, including social acceptance subscale, registered eight dimensions, four of which in agreement with the original questionnaire: Physical activity, SE, Social Support, and SA subscale. CONCLUSIONS: KIDSCREEN-27 for parents is a valid and reliable instrument to be used in the Colombian context.

Validación del Cuestionario KIDSCREEN-27 de calidad de vida relacionada con la salud en niños y adolescentes de Medellín, Colombia / Validation of Questionnaire KIDSCREEN-27 to Measure Health Related Quality of Life in Children and Adolescents of Medellin, Colombia

Objetivo: Validar el cuestionario de calidad de vida (CV) KIDSCREEN-27 en el área metropolitana de Medellín (Colombia). Materiales y métodos: Estudio de validación de una escala de CV para niños y adolescentes entre 8 y 18 años, sanos y con enfermedades agudas o crónicas. Se evaluó la validez de constructo y de contenido, la consistencia interna, la fiabilidad interobservador e intraobservador y la sensibilidad al cambio. Se encuestaron 161 niños y adolescentes sanos de 3 instituciones educativas y 160 niños y adolescentes enfermos, 81 con enfermedades de menos de 3 meses de evolución y 79 de más de 3 meses de evolución, hospitalizados o ambulatorios, de 3 instituciones de salud, 2 privadas y 1 pública. Resultados: La CV en todas las dimensiones fue menor en los niños y adolescentes enfermos y aún peor en los hospitalizados y en los niños que en las niñas; en los adolescentes fue similar en ambos géneros. Para la validez de constructo las medias de cada uno de los grupos fuero diferentes en todas las dimensiones. En el análisis factorial exploratorio se encontraron 6 categorías, validadas en el análisis factorial confirmatorio. La consistencia interna fue mayor a 0,7 en todas las dimensiones. En todos los dominios el coeficiente de correlación intraclase fue superior a 0,87 en la fiabilidad interobservador y mayor a 0,8 en la fiabilidad intraobservador. Conclusión: El KIDSCREEN-27 se puede usar en población de niños y adolescentes del área metropolitana de Medellín ya que mostró adecuadas propiedades psicométricas de fiabilidad y validez...

Objective: To validate the quality of life questionnaire (QOL) KIDSCREEN-27 in the metropolitan area of Medellin (Colombia). Materials and methods: Validation of a scale of quality of life for children and adolescents aged 8 to 18, healthy and with acute or chronic diseases. We evaluated the construct validity and content, internal consistency, interobserver and intraobserver reliability and sensitivity to change. It surveyed 161 healthy children and adolescents from 3 educational institutions, and 160 ill children and adolescents, 81 with a disease that lasted less than 3 months and 79 with a disease that lasted more than 3 months, inpatients or outpatients from 3 health institutions, 2 public and 1 private 2. Results: QOL in all dimensions was lower in ill children and adolescents and even lower in inpatients. It was also lower in boys than in girls, whereas it was similar for adolescents of both genders. For construct validity the means of each of the groups were different in all dimensions. In the exploratory factor analysis there were 6 categories, validated in the confirmatory factor analysis. Internal consistency was greater than 0.7 in all dimensions. In all domains the intraclass correlation coefficient was above 0.87 in the interobserver reliability and greater than 0.8 in the intraobserver reliability. Conclusion: The KIDSCREEN-27 can be used in children and adolescent population of the metropolitan area of Medellin. It showed adequate psychometric properties of reliability and validity...

Calidad de vida en niños y adolescentes sobrevivientes de leucemia linfoblástica aguda / Quality of life in children and adolescents surviving acute lymphoblastic leukemia

Objective: Describe the quality of life of patients cured of acute lymphoblastic leukemia (ALL) treated at the Oncology Unit at Roberto del Rio Children's Hospital. Method: With a transversal design, the Kidscreen-27 questionnaire was applied to a selected sample of 41 patients. Results were compared with a random sample of school children paired for age and sex. Results: Children cured from ALL had lower scores than the control group, although ANOVA showed differences were not significant. ALL children tended to self report as ill, significantly lower in physical well-being. Average followup time was 8 years. Conclusions: Quality of life of chilean children cured from ALL is similar to school children of similar age and gender. To preserve the quality of life, it is suggested that the following measures be taken: prevention of sequelae, detection and treatment of emotional disorders, and discharge at a reasonable time.

Objetivo: Describir la calidad de vida relacionada con la salud en niños curados de LLA tratados en la Unidad de Oncología del Hospital de Niños Roberto del Río. Método: Bajo un diseño transversal, se aplicó el cuestionario específico Kidscreen-27 a una muestra intencionada de 41 pacientes. Con fines ilustrativos se compararon, mediante un ANOVA, los resultados obtenidos con datos de dos sub-muestras pareadas en edad y sexo, escogidas mediante proceso de randomización en una muestra de niños chilenos escolarizados evaluados con el mismo instrumento. Resultados: Los niños curados de LLA tuvieron medias inferiores (no significativo) a la de los grupos con que se compararon. En la muestra estudiada se observó mayor proporción de niños que se autoreportan como enfermos; en el ámbito del bienestar físico tienen una media significativamente inferior que los que se reportan sanos. El tiempo medio de control oncológico fue 8 años. Conclusiones: El auto-reporte de la calidad de vida de los niños curados de LLA es similar a una muestra de niños escolarizados chilenos. Para preservar la calidad de vida de los pacientes se sugiere que se realice prevención de secuelas, pesquisa y tratamiento de trastornos emocionales y alta definitiva en un plazo razonable.

Propiedades psicométricas del cuestionario de auto reporte de la calidad de vida KIDSCREEN-27 en adolescentes chilenos / Psychometric properties of the quality of life questionnaire KIDSCREEEN-27 adapted to Chilean adolescents

Se evalúa, las propiedades psicométricas del cuestionario de Calidad de Vida KIDSCREEN-27 adaptado a niños/as y adolescentes chilenos. Participaron 1678 sujetos escolarizados de entre 8 y 18 años. Se evaluó tanto la consistencia interna como indicadores de validez de constructo, discriminante y convergente. El alfa de Cronbach de la escala total como de las distintas dimensiones es superior a 0.70. Los análisis factoriales exploratorio y confirmatorio arrojan evidencia de una estructura similar a la teórica de cinco dimensiones. El instrumento es capaz de discriminar entre hombres y mujeres, así como entre rangos de edad, en diferentes dimensiones. Los resultados permiten decir que el KIDSCREEN-27 presentó coeficientes de fiabilidad y validez aceptables, similares a los de la versión original, permitiendo disponer de un nuevo instrumento que evalúe calidad de vida en Chile y a la vez comparar los resultados obtenidos con otros países que utilicen este instrumento.

The aim of this research was to evaluate the psychometric properties of the quality of life questionnaire KIDSCREEEN-27 adapted to Chilean children and adolescents. The sample was 1678 participants from schools between 8 and 18 years old. The internal consistency and indicators for construct, discriminant and convergent validity was evaluated. Cronbach alphas for total scale and the domains were higher to .70. The exploratory and confirmatory factorial analysis confirmed the five domains proposed in the theoretical structure. The questionnaire was capable of discriminate by gender, as well as among ages, in different domains. In conclusion, results show that the KIDSCREEN-27 presents acceptable coefficients of reliability and validity, similar to those of the original version. This allows Chilean researchers to have a new instrument to evaluate quality of life, and simultaneously to compare their results with other countries that use this instrument.

Autoreporte de la calidad de vida en niños y adolescentes escolarizados / Self-report of quality of life in school age children and adolescents

Background: Although quality of life has been incorporated as a comprehensive indicator of health status, there are no standards available. Objective: To report values that can be used as standards in clinical and public health areas. Methods: 1 678 children and adolescents (8 to 18 years old) were evaluated. They came from public, semiprivate and private schools in the city of Antofagasta (North of Chile) utilizing KIDSCREEN-27 questionnaire. Results: The study shows mean and decile values for each of the five domains assessed (physical wellbeing, psychological wellbeing, relationship with parents and autonomy, social support and peers, school environment) for gender, age range and type of school. Conclusion: Values were presented which can be used as standards for Chilean children and adolescents in the specified domains. In general, best quality of life was found among boys, younger age children, and those from private schools. These findings are similar to those reported in studies in Spain, utilizing the same instrument.

Introducción: Aun cuando se ha ido incorporando la calidad de vida como un indicador comprensivo del estado de salud, no se tienen valores de referencia. Objetivo: Reportar valores que puedan ser utilizados como referencia en el campo clínico y de la salud pública. Método: Se evalúa a 1 678 niños y adolescentes de entre 8 y 18 años de establecimientos públicos, subvencionados y particulares de la ciudad de Antofagasta a través del cuestionario KIDSCREEN-27. Resultados: Se reportan las medias y deciles de cada una de las cinco dimensiones evaluadas (bienestar físico, bienestar psicológico, relación con los padres y autonomía, apoyo social y pares, ambiente escolar) para hombres y mujeres, rangos de edad y tipos de establecimiento educacional. Conclusión: Los valores presentados en las diferentes dimensiones evaluadas pueden ser utilizados como valores de referencia en población infanta juvenil chilena. En general, los hombres reportan una mejor calidad de vida que las mujeres, al igual que los rangos de menor edad y los establecimientos privados. Estos hallazgos son similares a los reportados en la población española utilizando similar instrumento.