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1.
Gels ; 10(6)2024 Jun 11.
Artigo em Inglês | MEDLINE | ID: mdl-38920941

RESUMO

It is shown that a more than significant amount of experimental data obtained in the field of studying systems based on thermosensitive hydrophilic polymers and reflected in the literature over the past decades makes the issue of their systematization and classification relevant. This, in turn, makes relevant the question of choosing the appropriate classification criteria. It is shown that the basic classification feature can be the number of phase transition stages, which can vary from one to four or more depending on the nature of the temperature-sensitive system. In this work, the method of inverse phase portraits is proposed for the first time. It was intended, among other things, to identify the number of phase transition stages. Moreover, the accuracy of this method significantly exceeds the accuracy of the previously used method of direct phase portraits since, for the first time, the operation of numerical differentiation is replaced by the operation of numerical integration. A specific example of the application of the proposed method for the analysis of a previously studied temperature-sensitive system is presented. It is shown that this method also allows for a quantitative comparison between the results obtained by the differential calorimetry method and the turbidimetry method. Issues related to increasing the resolution of the method of direct phase portraits are discussed.

2.
BMC Med Inform Decis Mak ; 23(Suppl 4): 301, 2024 May 22.
Artigo em Inglês | MEDLINE | ID: mdl-38778394

RESUMO

BACKGROUND: One significant challenge in addressing the coronavirus disease 2019 (COVID-19) pandemic is to grasp a comprehensive picture of its infectious mechanisms. We urgently need a consistent framework to capture the intricacies of its complicated viral infectious processes and diverse symptoms. RESULTS: We systematized COVID-19 infectious processes through an ontological approach and provided a unified description framework of causal relationships from the early infectious stage to severe clinical manifestations based on the homeostasis imbalance process ontology (HoIP). HoIP covers a broad range of processes in the body, ranging from normal to abnormal. Moreover, our imbalance model enabled us to distinguish viral functional demands from immune defense processes, thereby supporting the development of new drugs, and our research demonstrates how ontological reasoning contributes to the identification of patients at severe risk. CONCLUSIONS: The HoIP organises knowledge of COVID-19 infectious processes and related entities, such as molecules, drugs, and symptoms, with a consistent descriptive framework. HoIP is expected to harmonise the description of various heterogeneous processes and improve the interoperability of COVID-19 knowledge through the COVID-19 ontology harmonisation working group.


Assuntos
Ontologias Biológicas , COVID-19 , Homeostase , Humanos , SARS-CoV-2
3.
J Pharm Pharmacol ; 76(4): 327-353, 2024 Apr 03.
Artigo em Inglês | MEDLINE | ID: mdl-38402634

RESUMO

OBJECTIVES: This study aimed to systematize the Zhuang medicinal herbs of Ardisia (ZMHA) in China, to clarify the traditional use in Zhuang medicine and the dynamics of international research on phytochemistry, pharmacology, clinical application, and toxicity. KEY FINDINGS: There are 25 species of ZMHA, approximately 938 compounds from the different part, including triterpenoids, phenolics, volatile oils, etc. Pharmacological activity studies have also shown that this genus has anti-tumour, anti-inflammatory, anti-oxidant, anti-bacterial, anti-microbial, etc., and significant effects on respiratory, digestive, urinary, and musculoskeletal system diseases without toxic side effects. SUMMARY: The Ardisia has a medicinal history of nearly a thousand years, mainly for treating diseases of the injuries, musculoskeletal, and symptomatic system in Zhuang medicine. Some plants, such as A. crenata, A. gigantifolia, and A. japonica, are also commonly used in folk Zhuang medicine formulas, to treat musculoskeletal, injury, respiratory, and urinate systems disease. These diseases are related to inflammation. These could provide a new direction for future new drug development research. Therefore, species identification and resource investigation should be strengthened, and conducted in vitro mechanism, in vivo pharmacology, clinical efficacy, and toxicology studies and establish a perfect quality standard system.


Assuntos
Ardisia , Plantas Medicinais , Plantas Medicinais/química , Etnobotânica , Medicina Tradicional , China , Etnofarmacologia , Compostos Fitoquímicos/farmacologia , Compostos Fitoquímicos/uso terapêutico , Extratos Vegetais/farmacologia , Extratos Vegetais/uso terapêutico , Fitoterapia
4.
Stud Hist Philos Sci ; 103: 29-38, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-37992629

RESUMO

In 1956, John G. Kemeny and Paul Oppenheim proposed an approach to intertheoretical reduction as an alternative to that of Ernest Nagel. However, they neglected to provide a clear definition of its basic concept of systematization. After decades of languishing in the shadows, new interest in the KO approach is emerging. Nevertheless, there are still misunderstandings regarding this basic concept. The present paper elucidates this concept by returning to Oppenheim's hitherto little-noticed publications from the 1920s and 1930s, which Kemeny and Oppenheim obviously used as guidance in 1956. Reappraising Oppenheim's early writings delivers two significant payoffs: new clarity in understanding the concept of systematization as well as a more solid grasp of the structure of this approach as a distinctive combination of explanation and systematization.

5.
Humanidad. med ; 23(3)dic. 2023.
Artigo em Espanhol | LILACS-Express | LILACS | ID: biblio-1520994

RESUMO

Orientar la Estomatología hacia la promoción y prevención es una demanda actual de la Organización Mundial de la Salud. El objetivo de la investigación fue argumentar un modelo de formación del desempeño profesional en el estudiante de Estomatología que atendiera a esta demanda. Los métodos utilizados en la investigación fueron el analítico-sintético, el inductivo-deductivo, la modelación sistémico estructural funcional, y los talleres de reflexión crítica y construcción colectiva. El modelo parte de la asunción de que la práctica preprofesional es un ecosistema académico-laboral-investigativo idóneo para realizar la sistematización formativa del contenido. Se ha estructurado como un sistema compuesto por tres subsistemas que siguen la lógica del proceso de formación del desempeño profesional en promoción y prevención en la atención en pos de la salud bucal durante la práctica preprofesional: aprestamiento para la formación, sistematización formativa contextual y valoración de la transformación de este desempeño. Entre los subsistemas se establecen relaciones de coordinación y complementariedad, de estas relaciones surge la idoneidad formativa del desempeño profesional en promoción y prevención en salud bucal. El modelo fue valorado por especialistas en talleres de opinión crítica y construcción colectiva, los cuales confirmaron su pertinencia al considerarlo que responde a una problemática actual de la educación médica superior, en particular en el área de la Estomatología.


Orienting Stomatology towards the promotion and prevention is a current demand of the World Health Organization. The objective of the research was to argue a training model of professional performance in the Stomatology student that would meet this demand. The methods used in the research were analytical-synthetic, inductive-deductive, systemic-structural-functional modeling, and critical reflection and collective construction workshops. The model is based on the assumption that pre-professional practice is an ideal academic-labour-research ecosystem to carry out the formative systematization of content. It has been structured as a system made up of three subsystems that follow the logic of the training process of professional performance in promotion and prevention in care in pursuit of oral health during pre-professional practice: readiness for training, contextual training systematization and assessment of the transformation of this performance. Between the subsystems, coordination and complementarity relationships are established, from these relationships arises the formative suitability of professional performance in promotion and prevention in oral health. The model was evaluated by specialists in critical opinion and collective construction workshops, who confirmed its relevance by considering it to respond to a current problem in higher medical education, particularly in the area of Stomatology.

6.
Artigo em Russo | MEDLINE | ID: mdl-37642093

RESUMO

The maintenance of health of residents of the Northern Regions of Russia, including those living in the Arctic zone of the cbountry, is a condition of its advance development in XXI century. The percentage of Russian citizen vaccinated against the new coronavirus infection (COVID-19) does not exceed 50% after beginning of implementation of vaccination program. It can be conditioned by lower level of both of credence of citizen to health care system and health literacy.Purpose of the study is to establish determinants of vaccination of population against COVID-19 in circumpolar region of Russia as exemplified by the Arkhangelsk Oblast.The sociological survey was carried out using the interview technique of patients of medical organizations (n=433) and conditionally healthy residents of the Arkhangelsk Oblast (n=139). To evaluate the level of general health literacy the Russian version of questionnaire HLS19 - Q22-RU was applied. The most of conditionally healthy respondents and consumers of medical services looked for information about methods of prevention and treatment (80.4% and 58.2% correspondingly), had an experience of vaccination against COVID-19 (79% and 56.3% correspondingly). The relative chances of conditionally healthy respondents, women, and respondents having no children and no credence to national health care system to independently look for information related to COVID-19 is higher at 2.94, 2.08, 1.55 and 1.48-1.57 times correspondingly. The relative chances of conditionally healthy respondents having no children in family and assessing one's economic status as "higher than average" to be vaccinated against COVID-19 is higher at 4.02, 1.52, 1.53 times correspondingly. Availability of experience of vaccination against COVID-19 is conditioned by higher level of general health literacy.In the Arkhangelsk Oblast and other circumpolar regions of Russia the programs of increasing loyalty of citizen to measures of population prevention, including vaccine prevention, is to be implemented with consideration of established determinants of of vaccinations against COVID-19.


Assuntos
COVID-19 , Humanos , Feminino , COVID-19/epidemiologia , COVID-19/prevenção & controle , Nível de Saúde , Programas de Imunização , Federação Russa/epidemiologia , Fatores Socioeconômicos
7.
Artigo em Inglês | LILACS-Express | LILACS | ID: biblio-1452201

RESUMO

Introduction: the Systematization of Nursing Care is one of the main tools for the development and organization of services for nursing professionals, its application guides the planning of individualized care and focuses on the specific needs of each individual. Objective: the study's general purpose is to analyze primary health nursing care in light of the basic human needs theory. Methods: this is a descriptive study with a qualitative approach, developed in the city of Rio Branco, Acre, Brazil, with nurses from the Basic Family Health Units. As a method for organization and interpretation, we opted for the content analysis proposed by Bardin. Results: the Systematization of Nursing Care is perceived by nurses as an instrument for organizing care, but in practice, they think it is focused on assistance directed to the use of ministerial protocols. In this context, it was also evidenced that they focus on aid for health problems and complaints, indicating the anamnesis as a phase of the implemented nursing process with the other stages focused on the diagnosis of the disease and specific interventions. Conclusion: our findings showed that professionals in primary health care end up directing their care only to momentary complaints, failing to broaden their look as a whole. In this way, assistance occurs in a fragmented way, failing to meet the real needs of the population.


Introdução: a Sistematização da Assistência de Enfermagem é uma das principais ferramentas para o desenvolvimento e organização dos serviços dos profissionais da enfermagem, a aplicação da mesma orienta quanto ao planejamento de uma assistência individualizada e com foco nas necessidades específicas de cada indivíduo. Objetivo: analisar a assistência de enfermagem na atenção primaria à saúde à luz da teoria das necessidades humanas básicas. Método: trata-se de um estudo descritivo de abordagem qualitativa. A pesquisa foi desenvolvida no município de Rio Branco, com profissionais enfermeiros das Unidades Básicas de Saúde da Família. Como método para a organização e interpretação optou-se pela análise de conteúdo proposta por Bardin. Resultados: a Sistematização da Assistência de Enfermagem (SAE) é percebida pelos profissionais enfermeiros como um instrumento de organização do cuidado, porém estes na prática acabam achando que a SAE está voltada para a assistência direcionada ao uso de protocolos ministeriais. Nesse contexto, evidenciou-se ainda que estes focam a assistência em problemas de saúde e as queixas, indicando a anamnese como fase do processo de enfermagem implementado, sendo as demais etapas voltadas para diagnóstico da doença e intervenções pontuais. Conclusão: evidenciou que os profissionais na atenção primária à saúde acabam direcionando seus cuidados apenas para as queixas momentâneas, deixando de ampliar o olhar para o mesmo como um todo. Desse modo, a assistência ocorre de modo fragmentado, deixando de atender as necessidades reais da população

8.
Rev. argent. cir ; 115(1): 19-29, mayo 2023. graf
Artigo em Espanhol | LILACS-Express | LILACS | ID: biblio-1441166

RESUMO

RESUMEN Antecedentes: la pancreatectomía izquierda laparoscópica es un procedimiento de alta complejidad que debe ser sistematizado para reducir complicaciones y tiempos quirúrgicos. Objetivo: Describir los resultados con una técnica sitematizada de esplenopancreatectomía laparoscópica. Material y métodos: se seleccionaron pacientes candidatos a realizar esplenopancreatecomía distal en el período comprendido entre 2007 y 2022. Se excluyeron pacientes con enfermedad sistémica. La técnica quirúrgica laparoscópica consiste en ligar los vasos cortos como primer paso, luego disecar y cortar la arteria esplénica, dejando la sección de la vena como último gesto quirúrgico. Esto evita la congestión venosa del bazo. Se analizaron variables preoperatorias, intraoperatorias y posoperatorias. Resultados: sobre un total de 155 pacientes, 90 fueron intervenidos por vía laparoscópica y 65 por vía convencional. El tiempo quirúrgico promedio fue 168 minutos. Cuando se analizó el tiempo quirúrgico en los abordajes laparoscópicos, se observó una disminución del tiempo a partir del caso número 30. La mortalidad fue del 1,12%. La incidencia de fístula pancreática total fue 41%. La necesitad de transfusión intraoperatoria ocurrió en el 10,7% de los pacientes y la tasa de conversión fue del 13,3%. Conclusión: la sistematización de la técnica de la pancreatectomía laparoscópica permite la reducción de los tiempos quirúrgicos, adquirir mayor seguridad en la disección y realizar procedimientos cada vez más complejos.


ABSTRACT Background: Laparoscopic left pancreatectomy is a high complexity procedure that should be systematized to reduce complications and operative time. Objective: To describe the results achieved with a systematized technique for laparoscopic pancreatectomy and splenectomy. Materials and methods: We selected patients who were candidates for distal pancreatectomy and splenectomy between 2007 and 2022. Patients with systemic diseases were excluded. The laparoscopic technique consists of ligating the short vessels as a first step, then dissecting and cutting the splenic artery, leaving the section of the vein as the last surgical gesture to avoid venous congestion of the spleen. Perioperative, intraoperative and postoperative variables were analyzed. Results: A total of 155 patients were analyzed, 90 underwent laparoscopy and 65 underwent conventional surgery. Mean operative time was 168 minutes The operative time in the laparoscopic approach decreased from case 30 onwards. Mortality rate was 1.12%. The incidence of pancreatic fistula was 41%. Need for intraoperative transfusion occurred in 10.7% of the patients and the conversion rate was 13.3%. Conclusion: The systematization of the technique of pancreatic laparoscopy is essential to reduce surgical times, ensure safe dissections and performe more complex procedures.

9.
Artigo em Espanhol | LILACS-Express | LILACS | ID: biblio-1535257

RESUMO

Objetivo: Comunicar los resultados de la sistematización realizada entre 2017 y 2021 en torno a las experiencias de participación comunitaria de la Mesa en Salud de Moravia, una organización comunitaria de la ciudad de Medellín. Metodología: Se efectuó una sistematización de experiencias comunitarias, modalidad de investigación cualitativa, bajo el paradigma histórico-hermenéutico, llevada a cabo en Medellín con hombres y mujeres de la Mesa en Salud, colaboradores barriales y aliados externos, a partir de 2 entrevistas grupales, 28 entrevistas individuales, observación, revisión documental y un taller de validación de resultados. Resultados: Se describen los contextos y las realizaciones del devenir histórico de la Mesa en Salud de Moravia, identificando las grandes líneas de acción y los frentes de trabajo, la red de instituciones y las organizaciones públicas y privadas con las cuales han construido su práctica social. Asimismo, se presentan las motivaciones y desmotivaciones frente a la participación en la Mesa y las reflexiones de crítica y autocrítica en torno al contexto, el papel del Estado, las dinámicas comunitarias, los liderazgos y las alternativas de transformación a partir de la resignificación de la experiencia vivida. Conclusiones: La Mesa en Salud de Moravia se constituye en una experiencia de participación social en salud desde la subalternidad. Sus dinámicas dan cuenta de los cambios contextuales comunitarios, sociales y sectoriales. Sus luchas han reivindicado, con otros actores, la posibilidad de dignificar la vida y habitar un territorio de altas complejidades en la ciudad. La visión del derecho a la salud, como derecho a la atención y a condiciones de vida digna, es la plataforma desde donde la Mesa proyecta su visión de ciudadanía, de comunidad, de participación y responsabilidad estatal.


Objective: To communicate the results of the systematization carried out between 2017 and 2021 around the experiences of community participation of the Mesa en Salud de Moravia, a community organization in the city of Medellín. Methodology: A systematization of community experiences was carried out, a qualitative research modality, under the historical-hermeneutic paradigm, carried out in Medellín with men and women from the Health Roundtable, neighborhood collaborators and external allies, based on 2 group interviews, 28 individual interviews, observation, documentary review and a results validation workshop. Results: The contexts and achievements of the historical development of the Moravian Health Board are described, identifying the main lines of action and work fronts, the network of institutions and the public and private organizations with which they have built their social practice. Likewise, the motivations and demotivations regarding participation in the Roundtable and the reflections of criticism and self-criticism regarding the context, the role of the State, community dynamics, leadership and transformation alternatives based on the resignification of the community are presented. Lived experience. Conclusions: The Moravian Health Table constitutes an experience of social participation in health from subalternity. Its dynamics account for community, social and sectoral contextual changes. Their struggles have claimed, along with other actors, the possibility of dignifying life and inhabiting a highly complex territory in the city. The vision of the right to health, as the right to care and decent living conditions, is the platform from which the Board projects its vision of citizenship, community, participation and state responsibility.


Objetivo: Comunicar os resultados da sistematização realizada entre 2017 e 2021 em torno das experiências de participação comunitária da Mesa en Salud de Moravia, organização comunitária da cidade de Medellín. Metodologia: Foi realizada uma sistematização de experiências comunitárias, modalidade de pesquisa qualitativa, sob o paradigma histórico-hermenêutico, realizada em Medellín com homens e mulheres da Mesa Redonda de Saúde, colaboradores do bairro e aliados externos, a partir de 2 entrevistas em grupo, 28 entrevistas individuais entrevistas, observação, revisão documental e oficina de validação de resultados. Resultados: Descrevem-se os contextos e conquistas do desenvolvimento histórico do Moravian Health Board, identificando as principais linhas de ação e frentes de trabalho, a rede de instituições e as organizações públicas e privadas com as quais construíram sua prática social. Da mesma forma, são apresentadas as motivações e desmotivações quanto à participação na Mesa Redonda e as reflexões de críticas e autocríticas em relação ao contexto, papel do Estado, dinâmica comunitária, liderança e alternativas de transformação a partir da ressignificação da comunidade. Conclusões: A Mesa Morávia de Saúde constitui uma experiência de participação social em saúde desde a subalternidade. Sua dinâmica responde por mudanças contextuais comunitárias, sociais e setoriais. Suas lutas têm reivindicado, junto com outros atores, a possibilidade de dignificar a vida e habitar um território de alta complexidade na cidade. A visão do direito à saúde, como direito ao cuidado e a condições dignas de vida, é a plataforma a partir da qual o Conselho projeta sua visão de cidadania, comunidade, participação e responsabilidade do Estado.

10.
J Med Internet Res ; 25: e42289, 2023 03 27.
Artigo em Inglês | MEDLINE | ID: mdl-36972116

RESUMO

BACKGROUND: Data provenance refers to the origin, processing, and movement of data. Reliable and precise knowledge about data provenance has great potential to improve reproducibility as well as quality in biomedical research and, therefore, to foster good scientific practice. However, despite the increasing interest on data provenance technologies in the literature and their implementation in other disciplines, these technologies have not yet been widely adopted in biomedical research. OBJECTIVE: The aim of this scoping review was to provide a structured overview of the body of knowledge on provenance methods in biomedical research by systematizing articles covering data provenance technologies developed for or used in this application area; describing and comparing the functionalities as well as the design of the provenance technologies used; and identifying gaps in the literature, which could provide opportunities for future research on technologies that could receive more widespread adoption. METHODS: Following a methodological framework for scoping studies and the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) guidelines, articles were identified by searching the PubMed, IEEE Xplore, and Web of Science databases and subsequently screened for eligibility. We included original articles covering software-based provenance management for scientific research published between 2010 and 2021. A set of data items was defined along the following five axes: publication metadata, application scope, provenance aspects covered, data representation, and functionalities. The data items were extracted from the articles, stored in a charting spreadsheet, and summarized in tables and figures. RESULTS: We identified 44 original articles published between 2010 and 2021. We found that the solutions described were heterogeneous along all axes. We also identified relationships among motivations for the use of provenance information, feature sets (capture, storage, retrieval, visualization, and analysis), and implementation details such as the data models and technologies used. The important gap that we identified is that only a few publications address the analysis of provenance data or use established provenance standards, such as PROV. CONCLUSIONS: The heterogeneity of provenance methods, models, and implementations found in the literature points to the lack of a unified understanding of provenance concepts for biomedical data. Providing a common framework, a biomedical reference, and benchmarking data sets could foster the development of more comprehensive provenance solutions.


Assuntos
Pesquisa Biomédica , Humanos , Metadados , PubMed , Reprodutibilidade dos Testes , Software
11.
Arq. ciências saúde UNIPAR ; 27(1): 280-290, Jan-Abr. 2023.
Artigo em Português | LILACS | ID: biblio-1414867

RESUMO

Introdução: A Sistematização da Assistência de Enfermagem Perioperatória (SAEP) é o alicerce que fornece sustentação nas ações de enfermagem, na promoção de saúde e prevenção de complicações de clientes cirúrgicos. Objetivo: este estudo teve como objetivo conhecer a percepção dos enfermeiros, que assistem pacientes cirúrgicos, sobre a SAEP dentro do contexto da sua prática profissional. Metodologia: Trata-se de uma pesquisa de revisão de literatura de caráter descritiva que implicou na busca de arti- gos científicos de 2012 a 2022, que abordassem as dificuldades que a enfermagem en- contra para a execução da SAEP. Desta forma, foram utilizados apenas publicações que estivessem nas bases de dados SciELO, LILACS, LATINDEX, MIAR. Resultados: Fo- ram identificados inicialmente 414 artigos, após a aplicação dos critérios propostos nove artigos foram selecionados para a amostra. Conclusão: As dificuldades encontradas no exercício profissional da enfermagem no centro cirúrgico estão relacionadas a não com- preensão e a aplicabilidade da SAEP, e também pela falta de recursos humanos, tecnoló- gicos e assistenciais.


Introduction: The Systematization of Perioperative Nursing Care (SAEP) is the foundation that provides support in nursing actions, in health promotion and prevention of complications in surgical clients. Objective: this study aimed to know the perception of nurses, who assist surgical patients, about SAEP within the context of their professional practice. Methodology: This is a descriptive literature review research that involved the search for scientific articles from 2012 to 2022, which addressed the difficulties that nursing encounters in the implementation of SAEP. In this way, only publications that were in the SciELO, LILACS, LATINDEX, MIAR databases were used. Results: Initially, 414 articles were identified, after applying the proposed criteria, nine articles were selected for the sample. Conclusion: The difficulties encountered in the professional practice of nursing in the surgical center are related to the lack of understanding and applicability of the SAEP, and also to the lack of human, technological and assistance resources.


Introducción: La Sistematización de los Cuidados de Enfermería Perioperatoria (SAEP) es el fundamento que proporciona apoyo en las acciones de enfermería, en la promoción de la salud y prevención de complicaciones en los clientes quirúrgicos. Objetivo: este estudio tuvo como objetivo conocer la percepción de las enfermeras, que asisten pacientes quirúrgicos, sobre la SAEP en el contexto de su práctica profesional. Metodología: Se trata de una investigación de revisión bibliográfica descriptiva que implicó la búsqueda de artículos científicos desde 2012 hasta 2022, que abordaran las dificultades que la enfermería encuentra en la implementación del SAEP. De esta forma, sólo se utilizaron publicaciones que estuvieran en las bases de datos SciELO, LILACS, LATINDEX, MIAR. Resultados: Inicialmente, se identificaron 414 artículos, después de aplicar los criterios propuestos, se seleccionaron nueve artículos para la muestra. Conclusiones: Las dificultades encontradas en la práctica profesional de enfermería en el centro quirúrgico están relacionadas con la falta de comprensión y aplicabilidad del SAEP, así como con la falta de recursos humanos, tecnológicos y asistenciales.


Assuntos
Pacientes , Enfermagem Perioperatória/métodos , Centros Cirúrgicos/organização & administração , Prática Profissional , Revisões Sistemáticas como Assunto , Promoção da Saúde , Recursos em Saúde , Enfermeiras e Enfermeiros , Cuidados de Enfermagem
12.
Psicol. educ. (Madr.) ; 29(1): 45-53, Ene. 2023. tab
Artigo em Inglês | IBECS | ID: ibc-215010

RESUMO

A description is made of the quality of Spanish family support programmes, based on their impact, dissemination, scaling up in communities, and sustainability; 57 implemented programmes with informed evidence were selected by EurofamNet. Most of the programmes were shown to make a positive impact, using quantitative methodologies, and they were manualized, while about half of them defined the core contents and included professional training. From a cluster analysis of programmes with scaling up, those with a high and moderate level of systematization were identified, based on the existence of defined core contents, implementation conditions, institutional support, professional training, and reports of findings. The highly systematized programmes were characterized by a greater use of mixed methodologies, their scientific dissemination through different means, and their inclusion in services. A programme quality analysis is proposed, taking an integrated approach that relates the programme’s impact with its design, implementation, and evaluation of sustainability.(AU)


En este trabajo se presenta una descripción de la calidad de los programas españoles de apoyo a las familias, basándose en su impacto, difusión, diseminación institucional y sostenibilidad. En el marco de EurofamNet se seleccionaron 57 programas implementados con evidencia fundamentada. La mayoría de los programas mostraron un impacto positivo utilizando metodologías cuantitativas y estaban manualizados, mientras que cerca de la mitad de ellos definían los contenidos clave e incluían la formación de los profesionales. A partir de un análisis de conglomerados se identificaron los que tenían un nivel de sistematización alto y moderado, definidos los contenidos clave y las condiciones de implementación, apoyo institucional, formación profesional e informes de resultados. Los programas con alto nivel de sistematización se caracterizaron por un mayor uso de metodologías mixtas, su difusión científica a través de diferentes medios y su inclusión en las instituciones. Se propone un análisis de la calidad de los programas, con un enfoque integrado que relacione el impacto del programa con su diseño, implementación y la evaluación de la sostenibilidad.(AU)


Assuntos
Humanos , Masculino , Feminino , Poder Familiar , Educação não Profissionalizante , Família , Educação , Avaliação de Programas e Projetos de Saúde , Espanha , Psicologia Educacional
13.
Ribeirão Preto; s.n; 2023. 87 p. ilus.
Tese em Português | LILACS, BDENF - Enfermagem | ID: biblio-1554923

RESUMO

A Sistematização da Assistência de Enfermagem no Perioperatório (SAEP) refere-se especificamente ao período perioperatório, visando a satisfação do paciente e realização de um serviço de maior qualidade, envolvendo e motivando os profissionais de enfermagem. O objetivo geral da presente revisão será analisar evidências nacionais e internacionais sobre a sistematização da SAEP do paciente oncológico, posteriormente, atualizando e unificando um instrumento para registro da SAEP do paciente oncológico, com base nas evidências nacionais e internacionais sobre a temática. O método adotado foi uma Revisão Integrativa (RI), realizada em seis etapas. Para a definição da pergunta considerou-se a estratégia População, Intervenção, Comparação, Desfecho e Tempo (PICOT): Quais as evidências acerca da sistematização da assistência de enfermagem perioperatória destinada a pacientes oncológicos visando a atendimento aos resultados esperados na SAE? As buscas foram realizadas no mês de fevereiro de 2022 e carregadas no aplicativo de organização de revisões online Rayyan, utilizando-se vocabulário controlado e palavras-chave, nas bases de dados: Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS), PubMed®, Cummulative Index to Nursing and Allied Health Literature (CINAHL), SciVerse Scopus e Web of Science (WOS). Foram incluídos artigos primários, de 2018 a 2022 e os dados foram extraídos mediante a utilização de instrumento validado e a avaliação da qualidade metodológica utilizou os sete níveis de evidência proposta por Melnyk e Fineout-Overholt e a ferramenta Escala de Evaluación de Artículos con Metodologías Heterogéneas para Revisiones Integrativas. Seguiu-se ainda as recomendações do Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA). Como resultados a amostra contou com 37 artigos, de um universo identificado de 667 registros. Quanto a proveniência dos estudos assinala-se: Estados Unidos da América, Brasil, Índia, Itália, Japão, Coreia do Sul, Holand, Turquia, Dinamarca, Singapura, Austrália, Jordânia, China, França, Canadá e Egito. A interpretação respeitou os eixos de debate "Período pré-operatório" (15 artigos com evidências nível VI, IV e III), "Período intraoperatório" (05 artigos com evidências IV, VI, II e III) e "Período pós-operatório" (17 artigos com evidências com IV e VI). Geraram-se Diagnósticos de Enfermagem (DE) para o Período pré-operatório: Hipertermia, Padrão respiratório ineficaz, Nutrição desequilibrada: menor que as necessidades corporais, Identidade pessoal perturbada, Imagem corporal perturbada, Padrão de sono perturbado, Constipação, Diarreia, Dor crônica, Risco de trombose, Risco de integridade da membrana mucosa oral prejudicada; no Período intraoperatório: Risco de infecção no sítio cirúrgico, Risco de hipotermia perioperatória, Risco de lesão por posicionamento perioperatório, Risco de lesão (unidade de eletrocirurgia); no Período pós-operatório imediato: Risco de infecção no sítio cirúrgico, Dor aguda, Náuseas, Constipação, Padrão respiratório ineficaz, Risco de sangramento; no Período pós-operatório mediato: Dor aguda, Fadiga, Nutrição desequilibrada: menor que as necessidades corporais, Recuperação cirúrgica retardada. Em suma, a RI embasará uma SAEP segura além de um plano de cuidados perioperatórios condizente com os usuários oncológicos, o instrumento empregado no Centro de Alta Complexidade em Oncologia foi unificado e atualizado, incluso com DE para o pré-operatório, algo não existente na versão inicial, o produto deste estudo secundário favorecerá cirurgias mais seguras e um cuidado qualificado pelas evidências


The Systematization of Perioperative Nursing Care (SPNC) refers specifically to the perioperative period, aiming at patient satisfaction and providing a higher quality service, involving and motivating nursing professionals. The general objective of this review will be to analyze national and international evidence on the systematization of SPNC for cancer patients, subsequently updating and unifying an instrument for recording SPNC for cancer patients, based on national and international evidence on the subject. The method adopted was an Integrative Review (IR), carried out in six stages. For the definition of the question, the Population, Intervention, Comparison, Outcome, and Time (PICOT) strategy was considered: What is the evidence about the systematization of perioperative nursing care aimed at cancer patients to meet the expected results in the SAE? The searches were carried out in February 2022 and uploaded to the Rayyan online review organization application, using controlled vocabulary and keywords, in the databases: Latin American and Caribbean Literature in Health Sciences (LILACS), PubMed®, Cummulative Index to Nursing and Allied Health Literature (CINAHL), SciVerse Scopus and Web of Science (WOS). Primary articles from 2018 to 2022 were included and data were extracted using a validated instrument the methodological quality assessment used the seven levels of evidence proposed by Melnyk and Fineout-Overholt and the tool Escala de Evaluación de Artículos con Metodologías Heterogéneas for Integrative Reviews. The recommendations of the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) were also followed. As a result, the sample had 37 articles, from an identified universe of 667 records. As for the origin of the studies, it is noted: the United States of America, Brazil, India, Italy, Japan, South Korea, Holland, Turkey, Denmark, Singapore, Australia, Jordan, China, France, Canada, and Egypt. The interpretation respected the axes of debate "Preoperative period" (15 articles with evidence level VI, IV, and III), "Intraoperative period" (05 articles with evidence IV, VI, II, and III), and "Postoperative period" (17 articles with evidence with IV and VI). Nursing Diagnoses (ND) were generated for the preoperative period: Hyperthermia, Ineffective breathing pattern, Imbalanced nutrition: less than body needs, Disturbed personal identity, Disturbed body image, Disturbed sleep pattern, Constipation, Diarrhea, Chronic pain, Risk of thrombosis, Risk of impaired oral mucous membrane integrity; in the intraoperative period: Risk of surgical site infection, Risk of perioperative hypothermia, Risk of perioperative positioning injury, Risk of injury (electrosurgery unit); in the immediate postoperative period: Risk of surgical site infection, Acute pain, Nausea, Constipation, Ineffective breathing pattern, Risk of bleeding; in the mid-postoperative period: Acute pain, Fatigue, Imbalanced nutrition: less than body needs, Delayed surgical recovery. In short, the IR will support a safe SPNC in addition to a perioperative care plan consistent with oncology users, the instrument used at the Center for High Complexity in Oncology was unified and updated, including an ND for the preoperative period, something that does not exist in the initial version, the product of this secondary study will favor safer surgeries and evidence-qualified care


Assuntos
Humanos , Enfermagem Perioperatória , Oncologia , Cuidados de Enfermagem , Processo de Enfermagem
14.
Apuntes psicol ; 40(3): 151-162, 13 nov. 2022. tab
Artigo em Espanhol | IBECS | ID: ibc-212679

RESUMO

En este artículo se describe el proceso de investigación-acción llevado a cabo para la redefinición y el diseño de un programa destinado a niños, niñas y adolescentes con dificultades y/o situaciones conflictivas en el ámbito familiar. El diseño del nuevo programa NAYFA se ha realizado siguiendo los estándares de calidad de los programas basados en la evidencia y mediante un proceso colaborativo entre responsables políticos, profesionales e investigadores. Se utilizó la técnica DAFO para identificar las principales fortalezas y debilidades de las actuaciones previas desarrolladas en diferentes provincias andaluzas. Los resultados pusieron de manifiesto una importante falta de sistematización que se ha tratado de solventar definiendo, mediante un proceso colaborativo y de acuerdo con los criterios de calidad más consensuados, los componentes clave del nuevo programa: fundamentación teórica y metodológica, destinatarios, objetivos, contenidos, condiciones de implementación y diseño de la evaluación. El alto grado de acuerdo de profesionales y responsables con las características propuestas puede contribuir a que la implementación del programa se lleve a cabo con fidelidad al diseño original y, con ello, favorecer su efectividad (AU)


This article describes the action-research process carried out to redefine and design a program for children and adolescents with difficulties and/or conflictive situations in the family. The design of the NAYFA program has been carried out following the quality standards of evidence-based programs and through a collaborative process between policymakers, professionals and researchers. The SWOT technique was used to identify the main strengths and weak-nesses of the previous actions carried out in different Andalucía provinces. The results revealed an important lack of systematization that an attempt has been made to solve by defining, through a collaborative process and in accordance with the most agreed quality criteria, the key components of the new program: theoretical and methodological founda-tions, recipients, objectives, contents, implementation conditions and evaluation design. The high degree of agreement of professionals and managers with the proposed characteristics can contribute to the implementation of the program being carried out with fidelity to the original design and, thus, favor its effectiveness. (AU)


Assuntos
Humanos , Masculino , Feminino , Criança , Adolescente , 36397 , Conflito Familiar , Relações Pais-Filho , Entrevistas como Assunto , Efetividade , Espanha
15.
Salud UNINORTE ; 38(2)mayo-ago. 2022.
Artigo em Espanhol | LILACS-Express | LILACS | ID: biblio-1536795

RESUMO

Introducción. La cirugía estética tiene un importante reconocimiento en la sociedad contemporánea. Colombia se ubica como uno de los países en el que anualmente se practica un alto número de procedimientos estéticos invasivos; sin embargo, también se ha establecido que esta especialidad presenta frecuentes complicaciones cuyos riesgos necesitan ser registrados y sistematizados. Objetivo: Proponer un modelo adicional de sistematización de riesgos en cirugía estética que fortalezca los comúnmente empleados en Colombia. Metodología: El método utilizado fue el de estrategias de prevención de riesgos aplicadas al ámbito médico, empleando para este trabajo las dos primeras etapas, es decir, la sistematización de fuentes de información a partir de datos obtenidos de la gaceta jurisprudencial publicada por el Tribunal Nacional de Ética Médica y la identificación de la taxonomía de los eventos y errores médicos en cirugía estética. Resultados: En total se analizaron 57 providencias de las gacetas del Tribunal Nacional de Ética Médica sobre cirugía plástica y estética (privilegiando los procedimientos estéticos invasivos), pertenecientes a 2012, 2015 y 2017; de estas 34 cumplieron los criterios de selección; posteriormente, se realizó la sistematización de los riesgos hallados. Conclusiones: El modelo de tecnovigilancia empleado en Colombia resulta insuficiente a la hora de registrar los eventos y errores que se producen en procedimientos estéticos invasivos, por lo que es necesario emplear métodos adicionales que permitan garantizar una mayor seguridad en el paciente, prevenir daños lesivos y disminuir los procesos judiciales en contra del personal sanitario.


Introduction: Plastic surgery has an important place in today's contemporary society. Colombia ranks as one of the countries with the highest annual number of performed invasive esthetic procedures. However, it has been established that this type of special procedures showcases frequent complications and the need to register and systematize risks. Objective: To propose an additional model of risk systematization in cosmetic surgery that strengthens those commonly used in Colombia. Methodology: The method used was that of risk prevention strategies applied to the medical field, using for this work the first two stages, that is, the systematization of sources of information from data obtained from the jurisprudential gazette published by the National Court of Medical Ethics, and the identification of the taxonomy of events and medical errors in esthetic surgery. Results: In total, 57 orders of the National Court of Medical Ethics on plastic and esthetic surgery (favoring invasive esthetic procedures), from 2012, 2015, and 2017, were analyzed, of which 34 met the selection criteria; later, the found risks were systematized. Conclusions: The techno-vigilance model used in Colombia is insufficient to record events and errors that occur in invasive esthetic procedures, so it is necessary to use additional methods to ensure greater patient safety, prevent harm, and reduce judicial proceedings against healthcare personnel.

16.
Heliyon ; 8(6): e09633, 2022 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-35706961

RESUMO

Human Action Recognition (HAR) is a challenging task used in sports such as volleyball, basketball, soccer, and tennis to detect players and recognize their actions and teams' activities during training, matches, warm-ups, or competitions. HAR aims to detect the person performing the action on an unknown video sequence, determine the action's duration, and identify the action type. The main idea of HAR in sports is to monitor a player's performance, that is, to detect the player, track their movements, recognize the performed action, compare various actions, compare different kinds and skills of acting performances, or make automatic statistical analysis. As an action that can occur in the sports field refers to a set of physical movements performed by a player in order to complete a task using their body or interacting with objects or other persons, actions can be of different complexity. Because of that, a novel systematization of actions based on complexity and level of performance and interactions is proposed. The overview of HAR research focuses on various methods performed on publicly available datasets, including actions of everyday activities. That is just a good starting point; however, HAR is increasingly represented in sports and is becoming more directed towards recognizing similar actions of a particular sports domain. Therefore, this paper presents an overview of HAR applications in sports primarily based on Computer Vision as the main contribution, along with popular publicly available datasets for this purpose.

17.
Rev. Univ. Ind. Santander, Salud ; 54(1): e327, Enero 2, 2022. tab
Artigo em Espanhol | LILACS | ID: biblio-1407026

RESUMO

Resumen Introducción: Esta sistematización recoge las riquezas de notas de campo escritas por siete encuestadoras de siete ciudades de Colombia (Bogotá, Medellín, Cali, Barranquilla, Bucaramanga, Manizales y Pasto), realizadas durante una prueba piloto, en donde se reconocieron sus dinámicas y aprendizajes. Objetivo: Sistematizar las experiencias de los traslados hacia los terrenos de campo y de las experiencias del parto de mujeres entrevistadas, a través de las voces de las encuestadoras. Método: Se plantearon tres fases para seguir la metodología de la sistematización de experiencias: fase de reconstrucción, fase de la interpretación y fase de la potenciación de la experiencia. Resultados: Se evidenciaron tres categorías de análisis: el trayecto y el entorno, las convergencias en la maternidad y la experiencia del parto. Conclusiones: Las notas de campo de las encuestadoras se convirtieron en fuente primordial de informaciones no homogéneas y muy diversas. Se hizo imprescindible analizar sus experiencias durante sus traslados a los terrenos de campo y, de esta forma, aplicar un enfoque intersectorial para entender e interpretar lo que ellas escucharon de parte de las madres encuestadas, por ejemplo: circunstancias cálidas y respetuosas a la hora de recibir la atención clínica del parto, así como situaciones de maltrato en la asistencia obstétrica, donde han sido culturalmente jerarquizadas por la medicalización del parto, lo que constituye una posición de subordinación hacia la paciente.


Abstract Introduction: This systematization gathers the richness of the field notes written by seven interviewers from seven cities in Colombia (Bogotá, Medellin, Cali, Barranquilla, Bucaramanga, Manizales and Pasto), carried out during a test pilot, where their dynamics and learning were recognized. Objective: To systematize experiences of itineraries to the territories, as well as childbirth from the voices of the interviewers. Method: The methodological process presented three phases designed to follow the methodology of systematization of experiences. Reconstruction phase; interpretation phase and experience empowerment phase. Results: Three categories of analysis were evidenced: the journey and the environment, the convergences in motherhood and the experience of childbirth. Conclusions: The field notes of the pollsters became a primary source of inhomogeneous and highly diverse information. It became essential to analyze their experiences during their transfers to the fields and thus apply an intersectoral approach to understand and interpret what they heard from the surveyed mothers: warm and respectful circumstances when receiving clinical care of childbirth, as well as situations of abuse in obstetric care that are and have been culturally hierarchical by the medicalization of childbirth, constituting a subordinate position towards the patient.


Assuntos
Humanos , Feminino , Gravidez , Parto Humanizado , Serviços de Saúde , Aprendizagem
18.
Rev. cuba. enferm ; 37(4)dic. 2021.
Artigo em Espanhol | LILACS, BDENF - Enfermagem, CUMED | ID: biblio-1408309

RESUMO

Introducción: La sistematización de la experiencia de desarrollo de capacidades en estudiantes de enfermería para la realización de investigaciones en políticas y sistemas permite reflexionar e interpretar de forma critica la práctica para extraer aprendizajes y compartirlos. Objetivo: Sistematizar la experiencia del desarrollo de capacidades para las investigaciones en políticas y sistemas de salud en estudiantes de enfermería. Métodos: Se realizó la sistematización de la experiencia realizada en el periodo septiembre 2017 a julio 2019. El grupo participante estuvo constituido por 52 estudiantes del pregrado: 38 de la formación técnica y 14 de la licenciatura. Los sujetos de la sistematización fueron los integrantes del equipo de investigación. Se aplicó una metodología que integra cinco pasos: El punto de partida, las preguntas iniciales, la recuperación del proceso vivido, la reflexión de fondo y los puntos de llegada. Resultados: Durante la sistematización se identificaron aciertos como la aplicación de una metodología validada, obstáculos relacionados con el limitado número de profesores familiarizados con este tipo de estudio y dificultades manifestadas en los diferentes niveles de capacidades alcanzados entre la formación técnica y licenciados. Las lecciones aprendidas aportaron aprendizajes en el orden práctico y afirmaciones que requerirán estudios futuros. Conclusiones: La sistematización de la experiencia permitió al equipo de investigación identificar brechas de mejora para futuras propuestas, entre ellas la necesidad de desarrollar capacidades en profesores y de identificar formas de incentivo para los estudiantes del técnico en enfermería. La socialización de la experiencia puede contribuir con otros investigadores interesados en desarrollar capacidades en estudiantes de enfermería(AU)


Introduction: The systematization of the experience of capacity development in nursing students to carry out research on policies and systems allows reflecting on and critically interpreting the practice to extract learning and share it. Objective: To systematize the experience of the development of capacities for research in health policies and systems for nursing students. Methods: The experience carried out from September 2017 to July 2019 was systematized. The participating group was made up of 52 undergraduate students: 38 from technical training and 14 were undergraduate. The subjects for systematization were the members of the research team. A five-step methodology was applied: The starting point, the initial questions, and the recovery of the lived process, the in-depth reflection and the arrival points. Results: During the systematization, successes were identified, such as the application of a validated methodology, obstacles related to the limited number of trainers familiar with this type of study and difficulties established in the different levels of capacities reached between technical training and graduates. The lessons learned provided practical learning and statements that will require future study. Conclusions: The systematization of the experience allowed the research team to identify improvement gaps for future proposals, among them the need to develop capacities in trainers and to identify forms of encouragement for nursing technician students. The socialization of the experience can contribute to other researchers interested in developing capacities in nursing students(AU)


Assuntos
Humanos , Estudantes de Enfermagem , Sistemas de Saúde , Política de Saúde , Metodologia como Assunto
19.
Rev. Hosp. Ital. B. Aires (2004) ; 41(3): 110-118, sept. 2021. ilus, tab
Artigo em Espanhol | LILACS, UNISALUD, BINACIS | ID: biblio-1362921

RESUMO

Introducción: desde el inicio de la pandemia de COVID-19 en la Argentina se estableció la identificación y seguimiento de casos y contactos estrechos como una estrategia clave para cortar la cadena de transmisión del virus. Desde el Hospital Italiano de Buenos Aires se desarrolló un circuito de llamados telefónicos a casos y contactos estrechos para brindar pautas de alarma, medidas de aislamiento domiciliario y detectar situaciones que requieran acciones de gestión. Materiales y métodos: ante el aumento de casos en el mes de junio de 2020, el "Voluntariado para el Abordaje Epidemiológico de casos CO-VID-19 y detección de contactos estrechos" surge como propuesta para incorporar estudiantes de grado al circuito de llamados. Durante el período julio-octubre se desarrollaron tres cohortes consecutivas y participaron 51 estudiantes de distintas carreras de salud del Instituto Universitario del Hospital Italiano de Buenos Aires. Este trabajo se enmarca en una sistematización de experiencias como propuesta metodológica para la cual se conformó un equipo integrado por coordinadores/as y estudiantes. Objetivos: analizar el voluntariado implementado desde el marco de la sistematización de experiencias. Además, este trabajo se propone describir el desarrollo y las estrategias de capacitación, organización y comunicación e indagar en los sentidos que tuvo el voluntariado para los/as estudiantes. Resultados: se contactó al 20% (n = 1226) del total de los 6068 casos positivos del Hospital Italiano de Buenos Aires en dicho período y se derivaron 195 acciones de gestión. Desde la perspectiva de los/as voluntarios/as se destacó la posibilidad de tener contacto con pacientes, desarrollar habilidades comunicacionales y sentir que aportaron un "granito de arena" en el contexto de pandemia. Conclusiones: el voluntariado excedió los objetivos iniciales del circuito de llamados, para transformarse en un espacio de aprendizaje, inter-cambio y formación. Este trabajo invita a reflexionar sobre los perfiles profesionales del campo de la salud y a dialogar con propuestas formativas basadas en el aprendizaje complejo y el encuentro con escenarios reales. (AU)


Introduction: since the beginning of the COVID-19 pandemic in our country, the identification of COVID-19 cases and close contact tracing has been established as a key strategy to cut the chain of contagion. The Hospital Italiano de Buenos Aires created a phone call circuit to provide preventive measures and detect situations that require additional actions.Because of the increase in COVID-19 cases in June 2020, the "Volunteering for the COVID-19 cases and close contact tracing" emerged as a proposal to incorporate undergraduate students to the phone call circuit. During the period July to October, three consecutive volunteer cohorts took place and 51 students from different health careers from the Instituto Universitario del Hospital Italiano de Buenos Aires participated.Methodology: this work is based on a systematization of experiences as a research method for which a team made up of coordinators and students was formed. Objectives: analyze the volunteering implemented from the framework of the systematization of experiences. Also, this work proposes to de-scribe the development of the volunteering and the formation, organization and communication strategies and helped to know the meanings as-signed by the students to the volunteering. Results: the 20% (n = 1226) of the total 6068 Hospital Italiano de Buenos Aires cases were contacted by volunteers and 195 additional actions were executed. From the perspective of the volunteers, they highlighted the possibility of having contact with patients, involving communication skills and feeling that they made a contribution in the context of a pandemic. Conclusion: the volunteering exceeded the initial objectives of the proposal, to become a place for learning, exchange and personal growth. This work invites us to reflect on the professional roles in the health field and to dialogue with educational programmes based on complex learning and encounters with real scenarios. (AU)


Assuntos
Humanos , Voluntários/educação , COVID-19/prevenção & controle , Aprendizagem Baseada em Problemas , Aprendizado Social , Práticas Interdisciplinares
20.
BMC Med Inform Decis Mak ; 21(1): 242, 2021 08 12.
Artigo em Inglês | MEDLINE | ID: mdl-34384406

RESUMO

BACKGROUND: Data sharing is considered a crucial part of modern medical research. Unfortunately, despite its advantages, it often faces obstacles, especially data privacy challenges. As a result, various approaches and infrastructures have been developed that aim to ensure that patients and research participants remain anonymous when data is shared. However, privacy protection typically comes at a cost, e.g. restrictions regarding the types of analyses that can be performed on shared data. What is lacking is a systematization making the trade-offs taken by different approaches transparent. The aim of the work described in this paper was to develop a systematization for the degree of privacy protection provided and the trade-offs taken by different data sharing methods. Based on this contribution, we categorized popular data sharing approaches and identified research gaps by analyzing combinations of promising properties and features that are not yet supported by existing approaches. METHODS: The systematization consists of different axes. Three axes relate to privacy protection aspects and were adopted from the popular Five Safes Framework: (1) safe data, addressing privacy at the input level, (2) safe settings, addressing privacy during shared processing, and (3) safe outputs, addressing privacy protection of analysis results. Three additional axes address the usefulness of approaches: (4) support for de-duplication, to enable the reconciliation of data belonging to the same individuals, (5) flexibility, to be able to adapt to different data analysis requirements, and (6) scalability, to maintain performance with increasing complexity of shared data or common analysis processes. RESULTS: Using the systematization, we identified three different categories of approaches: distributed data analyses, which exchange anonymous aggregated data, secure multi-party computation protocols, which exchange encrypted data, and data enclaves, which store pooled individual-level data in secure environments for access for analysis purposes. We identified important research gaps, including a lack of approaches enabling the de-duplication of horizontally distributed data or providing a high degree of flexibility. CONCLUSIONS: There are fundamental differences between different data sharing approaches and several gaps in their functionality that may be interesting to investigate in future work. Our systematization can make the properties of privacy-preserving data sharing infrastructures more transparent and support decision makers and regulatory authorities with a better understanding of the trade-offs taken.


Assuntos
Pesquisa Biomédica , Privacidade , Segurança Computacional , Humanos , Disseminação de Informação
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