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1.
Evol Anthropol ; 29(3): 117-124, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-32472595

RESUMO

The human evolutionary sciences place high value on quantitative data from traditional small-scale societies that are rapidly modernizing. These data often stem from the sustained ethnographic work of anthropologists who are today nearing the end of their careers. Yet many quantitative ethnographic data are preserved only in summary formats that do not reflect the rich and variable ethnographic reality often described in unpublished field notes, nor the deep knowledge of their collectors. In raw disaggregated formats, such data have tremendous scientific value when used in conjunction with modern statistical techniques and as part of comparative analyses. Through a personal example of longitudinal research with Batek hunter-gatherers that involved collaboration across generations of researchers, we argue that quantifiable ethnographic records, just like material artifacts, deserve high-priority preservation efforts. We discuss the benefits, challenges, and possible avenues forward for digitizing, preserving, and archiving ethnographic data before it is too late.


Assuntos
Antropologia Cultural/normas , Povos Indígenas , Registros/normas , Antropologia Cultural/instrumentação , Humanos , Malásia , Registros/estatística & dados numéricos
2.
BMC Med Res Methodol ; 20(1): 29, 2020 02 10.
Artigo em Inglês | MEDLINE | ID: mdl-32041523

RESUMO

BACKGROUND: Patient and public involvement (PPI) has become enshrined as an important pillar of health services empirical research, including PPI roles during stages of research development and analysis and co-design approaches. Whilst user participation has been central to qualitative evidence synthesis (QES) for decades, as seen in the Cochrane consumer network and guidelines, meta-ethnography has been slow to incorporate user participation and published examples of this occurring within meta-ethnography are sparse. In this paper, drawing upon our own experience of conducting a meta-ethnography, we focus on what it means in practice to 'express a synthesis' (stage 7). We suggest the methodological importance of 'expression' in Noblit and Hare's seven stage process (Noblit, GW and Hare, RD. Meta-ethnography: synthesizing qualitative studies, 1988) has been overlooked, and in particular, opportunities for PPI user participation within it. METHODS: Meta-ethnography comprises a seven-stage process of evidence synthesis. Noblit and Hare describe the final 7th stage of the meta-ethnography process as 'expression of synthesis', emphasizing co-construction of findings with the audience. In a previous study we conducted a meta-ethnography exploring patient and student experience of medical education within primary care contexts. We subsequently presented and discussed initial meta-ethnography findings with PPI (students and patients) in focus groups and interviews. We transcribed patient and student PPI interpretations of synthesis findings. As a research team, we then translated these into our existing meta-ethnography findings. RESULTS: We describe, with examples, the process of involving PPI in stage 7 of meta-ethnography and discuss three methodological implications of incorporating PPI within an interpretative approach to QES: (1) we reflect on the construct hierarchy of user participants' interpretations and consider whether incorporating these additional 1st order, 2nd level constructs implies an additional logic of 3rd order 2nd level constructs of the QES team; (2) we discuss the link between PPI user participation and what Noblit and Hare may have meant by ideas of 'expression' and 'audience' as integral to stage 7; and (3) we link PPI user participation to Noblit and Hare's underlying theory of social explanation, i.e. how expression of the synthesis is underpinned by ideas of translation and that the synthesis must be 'translated in the audience's (user participants) particular language'. CONCLUSIONS: The paper aims to complement recent attempts in the literature to refine and improve guidance on conducting a meta-ethnography, highlighting opportunities for PPI user participation in the processes of interpretation, translation and expression. We discuss the implications of user participation in meta-ethnography on ideas of 'generalisability'.


Assuntos
Antropologia Cultural/métodos , Pesquisa Biomédica/métodos , Participação do Paciente/métodos , Pesquisa Qualitativa , Antropologia Cultural/normas , Antropologia Cultural/estatística & dados numéricos , Pesquisa Biomédica/normas , Pesquisa Biomédica/estatística & dados numéricos , Dor Crônica , Grupos Focais , Humanos , Dor Musculoesquelética/diagnóstico , Participação do Paciente/estatística & dados numéricos , Projetos de Pesquisa/normas , Projetos de Pesquisa/estatística & dados numéricos , Relatório de Pesquisa/normas , Estudantes/estatística & dados numéricos
3.
BMC Urol ; 20(1): 1, 2020 Jan 16.
Artigo em Inglês | MEDLINE | ID: mdl-31941470

RESUMO

BACKGROUND: Urinary incontinence (UI) is highly prevalent and affects the lives of many men and women. We aimed to conduct a qualitative evidence synthesis (QES) to explore the experience of living with UI and to develop a conceptual model that can help us to understand this experience, and the potential barriers to appropriate healthcare. METHODS: We used the methods of meta-ethnography developed by Noblit and Hare and recently refined for larger studies. Meta-ethnography involves identifying concepts from the studies and abstracting these concepts into a line of argument. We searched for studies that explored the experience of adults with UI. We used the GRADE-CERQual framework to assess confidence in review findings. RESULTS: We screened 2307 titles, 429 abstracts, 107 full texts and included 41 studies (36 unique samples) in the synthesis. We organised the concepts into 26 conceptual categories, which we further abstracted into 6 themes: (1) Am I ill or is this normal? (2) It effects who I am and how I feel; (3) I feel stigmatised, ashamed and guilty; (4) talking can be difficult but it can help; (5) keeping incontinence under control; (6) have I got to the point that I need help? Our model conceptualises living with UI as navigating antagonists: Is UI normal or am I ill? Do I need help or am I managing? Do I keep UI to myself (and manage alone) or do I tell other people (and get the support that I need)? Do I use control strategies that focus on concealing (avoid risky situations, wear pads) versus, I use strategies that focus on improving the bodily function to improve continence. Our model highlights the experience of stigma, shame and guilt which exert a pull towards concealment. CONCLUSIONS: The culture of secrecy and profound sense of shame is barrier to seeking help. An environment which reduces the shame and stigma of UI may help people to switch the focus to strategies that will improve continence, rather than conceal incontinence.


Assuntos
Antropologia Cultural/métodos , Internacionalidade , Pesquisa Qualitativa , Vergonha , Incontinência Urinária/etnologia , Incontinência Urinária/terapia , Antropologia Cultural/normas , Feminino , Humanos , Masculino , Inquéritos e Questionários , Incontinência Urinária/diagnóstico
4.
PLoS One ; 14(9): e0222608, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31536568

RESUMO

BACKGROUND: Despite a proven association between the implementation of prevention guidelines for central line associated blood stream infections (CLABSI) and reduction in CLABSI rates, in practice there is poor adherence. Furthermore, current guidelines fail to address the multiple process on the care continuum. This research is based on the bottom-up "Positive Deviance" (PD) approach, through which multiple creative and safer solutions for central line (CL) insertion were identified that were not previously described in the guidelines. The aim of the study was to deconstruct CLABSI prevention guidelines ("during insertion" process only) through the PD approach, working with physicians to identify additional actions that, in practice, help maintain a sterile environment and contribute to patient safety. METHODS AND FINDINGS: Our study included a qualitative ethnographic study involving 76 physicians, working in a division of internal medicine and two intensive care units (ICUs). We triangulated findings from a combination of data-collection methods: semi-structured interviews, focused observations, video documentation, Discovery & Action Dialogue (DAD), and simulations. Deconstruction analysis was performed. A total of 23 creative extensions and variations of CL insertion practices were identified. CONCLUSIONS: The PD approach enables the identification of vital nuggets of hidden wisdom missing from the formal explicit CLABSI guidelines, and therefore helps bridge the gap between theory and praxis. During the guideline's deconstruction process, through collaborative staff learning, the written procedure is transformed into a living, breathing and cooperative one. It can reduce hospital stays and save lives, and therefore needs careful attention of healthcare scholars and practitioners.


Assuntos
Antropologia Cultural/normas , Infecção Hospitalar/prevenção & controle , Fidelidade a Diretrizes/normas , Controle de Infecções/normas , Infecções Relacionadas a Cateter/prevenção & controle , Coleta de Dados/métodos , Humanos , Unidades de Terapia Intensiva/normas , Pesquisa Qualitativa
5.
BMC Med Res Methodol ; 19(1): 35, 2019 02 18.
Artigo em Inglês | MEDLINE | ID: mdl-30777031

RESUMO

BACKGROUND: Decision making in health and social care requires robust syntheses of both quantitative and qualitative evidence. Meta-ethnography is a seven-phase methodology for synthesising qualitative studies. Developed in 1988 by sociologists in education Noblit and Hare, meta-ethnography has evolved since its inception; it is now widely used in healthcare research and is gaining popularity in education research. The aim of this article is to provide up-to-date, in-depth guidance on conducting the complex analytic synthesis phases 4 to 6 of meta-ethnography through analysis of the latest methodological evidence. METHODS: We report findings from a methodological systematic review conducted from 2015 to 2016. Fourteen databases and five other online resources were searched. Expansive searches were also conducted resulting in inclusion of 57 publications on meta-ethnography conduct and reporting from a range of academic disciplines published from 1988 to 2016. RESULTS: Current guidance on applying meta-ethnography originates from a small group of researchers using the methodology in a health context. We identified that researchers have operationalised the analysis and synthesis methods of meta-ethnography - determining how studies are related (phase 4), translating studies into one another (phase 5), synthesising translations (phase 6) and line of argument synthesis - to suit their own syntheses resulting in variation in methods and their application. Empirical research is required to compare the impact of different methods of translation and synthesis. Some methods are potentially better at preserving links with the context and meaning of primary studies, a key principle of meta-ethnography. A meta-ethnography can and should include reciprocal and refutational translation and line of argument synthesis, rather than only one of these, to maximise the impact of its outputs. CONCLUSION: The current work is the first to articulate and differentiate the methodological variations and their application for different purposes and represents a significant advance in the understanding of the methodological application of meta-ethnography.


Assuntos
Antropologia Cultural/normas , Pesquisa sobre Serviços de Saúde/normas , Pesquisa Qualitativa , Projetos de Pesquisa/normas , Relatório de Pesquisa/normas , Aculturação , Adaptação Psicológica , Antropologia Cultural/métodos , Antropologia Cultural/estatística & dados numéricos , Pessoal de Saúde/psicologia , Pesquisa sobre Serviços de Saúde/métodos , Pesquisa sobre Serviços de Saúde/estatística & dados numéricos , Humanos , Projetos de Pesquisa/estatística & dados numéricos
6.
J Adv Nurs ; 75(5): 1126-1139, 2019 May.
Artigo em Inglês | MEDLINE | ID: mdl-30644123

RESUMO

AIMS: The aim of this study was to provide guidance to improve the completeness and clarity of meta-ethnography reporting. BACKGROUND: Evidence-based policy and practice require robust evidence syntheses which can further understanding of people's experiences and associated social processes. Meta-ethnography is a rigorous seven-phase qualitative evidence synthesis methodology, developed by Noblit and Hare. Meta-ethnography is used widely in health research, but reporting is often poor quality and this discourages trust in and use of its findings. Meta-ethnography reporting guidance is needed to improve reporting quality. DESIGN: The eMERGe study used a rigorous mixed-methods design and evidence-based methods to develop the novel reporting guidance and explanatory notes. METHODS: The study, conducted from 2015 - 2017, comprised of: (1) a methodological systematic review of guidance for meta-ethnography conduct and reporting; (2) a review and audit of published meta-ethnographies to identify good practice principles; (3) international, multidisciplinary consensus-building processes to agree guidance content; (4) innovative development of the guidance and explanatory notes. FINDINGS: Recommendations and good practice for all seven phases of meta-ethnography conduct and reporting were newly identified leading to 19 reporting criteria and accompanying detailed guidance. CONCLUSION: The bespoke eMERGe Reporting Guidance, which incorporates new methodological developments and advances the methodology, can help researchers to report the important aspects of meta-ethnography. Use of the guidance should raise reporting quality. Better reporting could make assessments of confidence in the findings more robust and increase use of meta-ethnography outputs to improve practice, policy, and service user outcomes in health and other fields. This is the first tailored reporting guideline for meta-ethnography. This article is being simultaneously published in the following journals: Journal of Advanced Nursing, Psycho-oncology, Review of Education, and BMC Medical Research Methodology.


Assuntos
Antropologia Cultural/normas , Pesquisa Biomédica/normas , Guias como Assunto , Projetos de Pesquisa/normas , Relatório de Pesquisa/normas , Humanos , Pesquisa Qualitativa
7.
Psychooncology ; 28(3): 447-458, 2019 03.
Artigo em Inglês | MEDLINE | ID: mdl-30644150

RESUMO

AIMS: The aim of this study was to provide guidance to improve the completeness and clarity of meta-ethnography reporting. BACKGROUND: Evidence-based policy and practice require robust evidence syntheses which can further understanding of people's experiences and associated social processes. Meta-ethnography is a rigorous seven-phase qualitative evidence synthesis methodology, developed by Noblit and Hare. Meta-ethnography is used widely in health research, but reporting is often poor quality and this discourages trust in and use of its findings. Meta-ethnography reporting guidance is needed to improve reporting quality. DESIGN: The eMERGe study used a rigorous mixed-methods design and evidence-based methods to develop the novel reporting guidance and explanatory notes. METHODS: The study, conducted from 2015 to 2017, comprised of: (1) a methodological systematic review of guidance for meta-ethnography conduct and reporting; (2) a review and audit of published meta-ethnographies to identify good practice principles; (3) international, multidisciplinary consensus-building processes to agree guidance content; (4) innovative development of the guidance and explanatory notes. FINDINGS: Recommendations and good practice for all seven phases of meta-ethnography conduct and reporting were newly identified leading to 19 reporting criteria and accompanying detailed guidance. CONCLUSION: The bespoke eMERGe Reporting Guidance, which incorporates new methodological developments and advances the methodology, can help researchers to report the important aspects of meta-ethnography. Use of the guidance should raise reporting quality. Better reporting could make assessments of confidence in the findings more robust and increase use of meta-ethnography outputs to improve practice, policy, and service user outcomes in health and other fields. This is the first tailored reporting guideline for meta-ethnography. This article is being simultaneously published in the following journals: Journal of Advanced Nursing, Psycho-oncology, Review of Education, and BMC Medical Research Methodology.


Assuntos
Antropologia Cultural/normas , Pesquisa Biomédica/normas , Psico-Oncologia/normas , Projetos de Pesquisa/normas , Relatório de Pesquisa/normas , Atenção à Saúde/normas , Humanos , Pesquisa Qualitativa
8.
Psychol Psychother ; 92(4): 584-604, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-30390362

RESUMO

PURPOSE: To review and synthesize the qualitative literature on service users' experiences of endings from a psychological service or therapy. METHODS: A systematic search of the peer-reviewed literature identified qualitative studies meeting specific inclusion criteria. A modified CASP tool was used to critically appraise their quality, and a meta-ethnographic approach was used to synthesize their findings. RESULTS: Twelve papers met the inclusion criteria. The interpretation of findings suggested three key themes: anticipation of ending, service user control, and sense of responsibility. Although studies varied in geographical location and type of service, they were consistently of high quality. CONCLUSIONS: The review highlights the importance of service users' perspectives in understanding the experiences of endings. The findings complement existing literature and provide new interpretations. Considerations for practice were limited; however, the review provides useful directions for future research. PRACTITIONER POINTS: When ending therapy, clinicians should consider the dyadic nature of the therapeutic relationship and the emotional impact this may have upon both service users and staff. Further consideration should be given to how staff manage their responses to the ending. The time-limited structure of therapy may aid the ending process by relieving staff and service users of responsibility.


Assuntos
Antropologia Cultural/normas , Serviços de Saúde Mental/normas , Relações Profissional-Família , Pesquisa Qualitativa , Aculturação , Adaptação Psicológica , Antropologia Cultural/métodos , Antropologia Cultural/estatística & dados numéricos , Pessoal de Saúde/psicologia , Humanos
9.
Trials ; 18(1): 237, 2017 05 25.
Artigo em Inglês | MEDLINE | ID: mdl-28545545

RESUMO

BACKGROUND: Prior to commencing a randomised controlled trial, we conducted a focused ethnography to ensure that the trial was well suited to the proposed setting. METHODS: A six-month observation of a Child and Adolescent Mental Health Service site in the North-East of England was undertaken to observe the site procedures, staff culture and patient care pathways. During this period, documentary data were collected and interviews were conducted with key informants to provide insight into staff perceptions of the proposed trial. The data were coded using thematic analysis and the resulting themes were verified by a second coder. RESULTS: Seventeen documents were collected, 158 h of observation and six formal staff interviews were undertaken. Four themes emerged from the data; non-clinically orientated variation in practice, diagnosis, capacity and staff economy. Non-clinically orientated variation in practice occurred when staff decisions were based upon resource availability rather than on clinical judgement. Diagnosis demonstrated differing staff confidence in making diagnoses and in the treatment of patients who had received a diagnosis. Capacity consisted of the time to attend training and the psychological capacity to consider or incorporate learning into practice. Staff economy was characterised by staff changes and shortages. There was significant interaction between the themes, with staff economy emerging as a central barrier to research. The results directly informed adaptations to the trial protocol. CONCLUSIONS: An ethnographic approach has provided important insights into the individual, practical and organisational boundaries into which a trial would need to be implemented.


Assuntos
Serviços de Saúde do Adolescente/organização & administração , Antropologia Cultural , Serviços de Saúde da Criança/organização & administração , Prestação Integrada de Cuidados de Saúde/organização & administração , Depressão/terapia , Serviços de Saúde Mental/organização & administração , Ensaios Clínicos Controlados Aleatórios como Assunto/métodos , Projetos de Pesquisa , Adolescente , Comportamento do Adolescente , Serviços de Saúde do Adolescente/normas , Antropologia Cultural/normas , Atitude do Pessoal de Saúde , Criança , Comportamento Infantil , Serviços de Saúde da Criança/normas , Competência Clínica , Procedimentos Clínicos/organização & administração , Prestação Integrada de Cuidados de Saúde/normas , Depressão/diagnóstico , Depressão/psicologia , Inglaterra , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Serviços de Saúde Mental/normas , Admissão e Escalonamento de Pessoal , Ensaios Clínicos Pragmáticos como Assunto/métodos , Ensaios Clínicos Controlados Aleatórios como Assunto/normas , Projetos de Pesquisa/normas , Fatores de Tempo , Carga de Trabalho , Local de Trabalho/psicologia
10.
J Transcult Nurs ; 28(2): 152-158, 2017 03.
Artigo em Inglês | MEDLINE | ID: mdl-26637343

RESUMO

There are benefits and challenges associated with conducting research in a familiar setting, especially when the researcher is more an insider than an outsider. The aim of this article is to explore the author's experience as a native scholar conducting ethnographic research among the Swahili peoples of Lamu, Kenya. This article focuses on methodological issues related to conducting ethnographic research among the author's own people, including examining the issues of anthropological reflexivity as a native ethnographer and highlighting the author's experiences embodying multiple identities. Native ethnographers must consider the challenges associated with negotiating multiple roles in the research setting, especially in the presence of sociocultural factors such as gender stratification, complex kinship networks, socioeconomic hierarchies, illiteracy, and poverty. Embracing rather than being confused by the multiple levels of understanding native researchers bring to studies of their communities opens up new avenues of research and possibilities.


Assuntos
Antropologia Cultural/métodos , Antropologia Cultural/normas , Atitude do Pessoal de Saúde , Pesquisadores/psicologia , Competência Cultural/psicologia , Humanos , Relações Interpessoais , Quênia , Enfermeiras e Enfermeiros/psicologia , Recursos Humanos
11.
Integr Psychol Behav Sci ; 50(3): 359-67, 2016 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-26910038

RESUMO

This paper discusses the need for contextualization and reflection of psychological theorizing within its respective cultural and historical context. By acknowledging the anthropological assumptions which form a key part of every psychological theory and connect psychological thinking with broader cultural values, norms, ideals and meanings, psychologists can gain a deeper understanding of the limits of their own theories. It is argued that the prolonged debate within academic psychology concerning its status and methodology which became famous as "psychology's crisis" is an effect of the neglect of these implicit anthropological assumptions. Especially as cultural and cultural-historical psychologists, we should avoid the improper universalization of particular models of what defines a human being.


Assuntos
Antropologia Cultural/normas , Teoria Psicológica , Psicologia/normas , Antropologia Cultural/tendências , Humanos , Psicologia/tendências
12.
Span. j. psychol ; 19: e29.1-e29.10, 2016. tab, ilus
Artigo em Inglês | IBECS | ID: ibc-159084

RESUMO

This study evaluated cross-cultural measurement invariance for the General Self-efficacy Scale (GSES) in a large Brazilian (N = 2.394) and representative German (N = 2.046) and Colombian (N = 1.500) samples. Initially, multipleindicators multiple-causes (MIMIC) analyses showed that sex and age were biasing items responses on the total sample (2 and 10 items, respectively). After controlling for these two covariates, a multigroup confirmatory factor analysis (MGCFA) was employed. Configural invariance was attested. However, metric invariance was not supported for five items, in a total of 10, and scalar invariance was not supported for all items. We also evaluated the differences between the latent scores estimated by two models: MIMIC and MGCFA unconstraining the non-equivalent parameters across countries. The average difference was equal to (.07) on the estimation of the latent scores, and 22.8% of the scores were biased in at least .10 standardized points. Bias effects were above the mean for the German group, which the average difference was equal to (.09), and 33.7% of the scores were biased in at least .10. In synthesis, the GSES did not provide evidence of measurement invariance to be employed in this cross-cultural study. More than that, our results showed that even when controlling for sex and age effects, the absence of control on items parameters in the MGCFA analyses across countries would implicate in bias of the latent scores estimation, with a higher effect for the German population (AU)


No disponible


Assuntos
Humanos , Masculino , Feminino , Adolescente , Adulto Jovem , Adulto , Pessoa de Meia-Idade , Idoso , Características Culturais , Comparação Transcultural , Etnopsicologia/métodos , Etnopsicologia/organização & administração , Autoeficácia , Modelos Psicológicos , Psicometria/métodos , Resultado do Tratamento , Avaliação de Eficácia-Efetividade de Intervenções , Antropologia Cultural/normas , Brasil/epidemiologia , Alemanha/epidemiologia , Colômbia/epidemiologia , Análise Fatorial , Inquéritos e Questionários
15.
Coll Antropol ; 37(3): 665-76, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-24308202

RESUMO

This paper describes the project ANTRONA aimed at constructing basic anthropological terminology that covers the entire range of anthropology as a science. It is a part of national language planning oriented terminology management for the Croatian language, and as such it is focused solely at the production of a terminographic database. The major difficulties encountered during the procedural stages of the project are outlined, such as the wide range of the interdisciplinary field of anthropology, including concepts and terms from natural and social sciences and humanities, as well as polysemy and fuzzy boundaries between the lexicon of the general language and specialized language. On the basis of several examples, we argue that terminography should be dealt with primarily by keeping in mind the range of its subsequent applications the aim of which is not only ontological, but also communicative in nature, and that functional pragmatic approach offers a more flexible framework for dealing with the demands of terminology in such an interdisciplinary field.


Assuntos
Antropologia Cultural/normas , Comunicação Interdisciplinar , Idioma , Terminologia como Assunto , Croácia , Humanos
16.
Coll Antropol ; 37(3): 677-83, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-24308203

RESUMO

The development of the Croatian Special Field Terminology program (known by its Croatian acronym Struna) began in 2007 as part of an initial coordination project launched at the initiative of the Croatian Standard Language Council, and has since been financed by the Croatian Science Foundation. It is being carried out at the Institute of Croatian Language and Linguistics, which serves as the national coordinator. This paper describes the current design of the e-Struna termbank and explains the adjustments made in the database structure and in the terminographic approach, both to support and reflect the methodological issues concerning interdisciplinary and multidisciplinary work. Based on examples taken from the Croatian anthropological terminology collection special attention is given to two frequently neglected categories of terminological description: context and note.


Assuntos
Antropologia Cultural/normas , Bases de Dados como Assunto/normas , Idioma , Terminologia como Assunto , Croácia , Humanos
17.
Rev. Rol enferm ; 36(7/8): 488-498, jul.-ago. 2013. tab
Artigo em Espanhol | IBECS | ID: ibc-115211

RESUMO

Objetivo: mostrar la vivencia de personas afectadas de fibromialgia, a través de la etnografía y de la narrativa, así como una reflexión que plantee y cuestione la orientación de los cuidados profesionales. Metodología: cualitativa y, dentro de esta, etnografía enfocada generando la información mediante la observación participante y la entrevista en profundidad a dos mujeres y un hombre afectados de fibromialgia; efectuando un análisis emergente a partir de cinco unidades de narrativa. Resultados: destacar el estrés generado en el tiempo de espera hasta el diagnóstico y el rompimiento vital que significa la enfermedad, la dificultad de compartirla con familiares y amistades; el conflicto con el sistema de salud y la poca presencia de los profesionales de enfermería; el interés por seguir activas en el trabajo y la vida personal, aunque con fuertes limitaciones por el dolor y el malestar; la adherencia al tratamiento, la ayuda que representan las asociaciones y pensar en el presente y poco en el futuro. Conclusiones: el diagnóstico representa poner nombre a un malestar de tiempo que libera de la energía de búsqueda; la poca información que acompaña hace difícil manejar la incertidumbre y avanzar hacia una adaptación armoniosa. Las personas afectadas siguen el tratamiento prescrito, muestran un gran interés en mantenerse activas y es el dolor o el malestar quien lo impide, viven de forma intensa el presente y piensan poco en el futuro. Unos cuidados profesionales enfermeros adoptando modelos de cuidados actuales son adecuados para la atención individualizada en una enfermedad crónica y compleja, siendo la narrativa una estrategia para el conocimiento de la vivencia de enfermedad(AU)


Objective: To show the experience of people suffering from fibromyalgia, through ethnography and narrative, and a reflection to raise and question the direction of professional care. Methodology: Qualitative, and within this focused ethnography, generating information through participant observation and in-depth interviews with two women and a man suffering from fibromyalgia, with analysis emerging from five units of narrative. Results: highlight the stress generated in the waiting time to diagnosis and the vital break which means the disease, the difficulty of sharing with family and friends, the conflict with the health system and the limited presence of nurses, the interest to remain active at work and personal life, although tightly constrained by the pain and discomfort, treatment adherence, aid associations representing, and thinking the present and little for the future. Conclusions: The diagnosis represents a naming an extensive upset while freeing energy of search, the little information that accompanies it difficult to handle the uncertainty and move toward a harmonious adaptation. The affected people follow the prescribed treatment, showing great interest in staying active and their pain or discomfort hamper it, they live intensely the present and think little for the future. Some nurses taking care professional current care models are suitable for individualized care in a chronic and complex illness, and the narrative is a strategy to the knowledge of the illness experience(AU)


Assuntos
Humanos , Masculino , Feminino , Fibromialgia/etnologia , Fibromialgia/epidemiologia , Antropologia Cultural/métodos , Antropologia Cultural/normas , Antropologia Cultural/tendências , Narração , Doença Crônica/enfermagem , Dor Crônica/enfermagem , /psicologia , Doença Crônica/epidemiologia , Doença Crônica/prevenção & controle , Doença Crônica/reabilitação
18.
Cult Med Psychiatry ; 37(3): 505-33, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23836098

RESUMO

The Outline for Cultural Formulation (OCF) in the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) marked an attempt to apply anthropological concepts within psychiatry. The OCF has been criticized for not providing guidelines to clinicians. The DSM-5 Cultural Issues Subgroup has since converted the OCF into the Cultural Formulation Interview (CFI) for use by any clinician with any patient in any clinical setting. This paper presents perceived barriers to CFI implementation in clinical practice reported by patients (n = 32) and clinicians (n = 7) at the New York site within the DSM-5 international field trial. We used an implementation fidelity paradigm to code debriefing interviews after each CFI session through deductive content analysis. The most frequent patient threats were lack of differentiation from other treatments, lack of buy-in, ambiguity of design, over-standardization of the CFI, and severity of illness. The most frequent clinician threats were lack of conceptual relevance between intervention and problem, drift from the format, repetition, severity of patient illness, and lack of clinician buy-in. The Subgroup has revised the CFI based on these barriers for final publication in DSM-5. Our findings expand knowledge on the cultural formulation by reporting the CFI's reception among patients and clinicians.


Assuntos
Antropologia Médica/métodos , Manual Diagnóstico e Estatístico de Transtornos Mentais , Etnopsicologia/métodos , Entrevista Psicológica/normas , Transtornos Mentais , Adulto , Idoso , Antropologia Cultural/instrumentação , Antropologia Cultural/métodos , Antropologia Cultural/normas , Antropologia Médica/instrumentação , Antropologia Médica/normas , Etnopsicologia/instrumentação , Etnopsicologia/normas , Feminino , Humanos , Masculino , Transtornos Mentais/classificação , Transtornos Mentais/diagnóstico , Transtornos Mentais/etnologia , Pessoa de Meia-Idade , New York , Pesquisa Qualitativa
20.
Health Technol Assess ; 15(43): 1-164, 2011 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-22176717

RESUMO

BACKGROUND: Methods for reviewing and synthesising findings from quantitative research studies in health care are well established. Although there is recognition of the need for qualitative research to be brought into the evidence base, there is no consensus about how this should be done and the methods for synthesising qualitative research are at a relatively early stage of development. OBJECTIVE: To evaluate meta-ethnography as a method for synthesising qualitative research studies in health and health care. METHODS: Two full syntheses of qualitative research studies were conducted between April 2002 and September 2004 using meta-ethnography: (1) studies of medicine-taking and (2) studies exploring patients' experiences of living with rheumatoid arthritis. Potentially relevant studies identified in multiple literature searches conducted in July and August 2002 (electronically and by hand) were appraised using a modified version of the Critical Appraisal Skills Programme questions for understanding qualitative research. Candidate papers were excluded on grounds of lack of relevance to the aims of the synthesis or because the work failed to employ qualitative methods of data collection and analysis. RESULTS: Thirty-eight studies were entered into the medicine-taking synthesis, one of which did not contribute to the final synthesis. The synthesis revealed a general caution about taking medicine, and that the practice of lay testing of medicines was widespread. People were found to take their medicine passively or actively or to reject it outright. Some, in particular clinical areas, were coerced into taking it. Those who actively accepted their medicine often modified the regimen prescribed by a doctor, without the doctor's knowledge. The synthesis concluded that people often do not take their medicines as prescribed because of concern about the medicines themselves. 'Resistance' emerged from the synthesis as a concept that best encapsulated the lay response to prescribed medicines. It was suggested that a policy focus should be on the problems associated with the medicines themselves and on evaluating the effectiveness of alternative treatments that some people use in preference to prescribed medicines. The synthesis of studies of lay experiences of living with rheumatoid arthritis began with 29 papers. Four could not be synthesised, leaving 25 papers (describing 22 studies) contributing to the final synthesis. Most of the papers were concerned with the everyday experience of living with rheumatoid arthritis. This synthesis did not produce significant new insights, probably because the early papers in the area were substantial and theoretically rich, and later papers were mostly confirmatory. In both topic areas, only a minority of the studies included in the syntheses were found to have referenced each other, suggesting that unnecessary replication had occurred. LIMITATIONS: We only evaluated meta-ethnography as a method for synthesising qualitative research, but there are other methods being employed. Further research is required to investigate how different methods of qualitative synthesis influence the outcome of the synthesis. CONCLUSIONS: Meta-ethnography is an effective method for synthesising qualitative research. The process of reciprocally translating the findings from each individual study into those from all the other studies in the synthesis, if applied rigorously, ensures that qualitative data can be combined. Following this essential process, the synthesis can then be expressed as a 'line of argument' that can be presented as text and in summary tables and diagrams or models. Meta-ethnography can produce significant new insights, but not all meta-ethnographic syntheses do so. Instead, some will identify fields in which saturation has been reached and in which no theoretical development has taken place for some time. Both outcomes are helpful in either moving research forward or avoiding wasted resources. Meta-ethnography is a highly interpretative method requiring considerable immersion in the individual studies to achieve a synthesis. It places substantial demands upon the synthesiser and requires a high degree of qualitative research skill. Meta-ethnography has great potential as a method of synthesis in qualitative health technology assessment but it is still evolving and cannot, at present, be regarded as a standardised approach capable of application in a routinised way. FUNDING: Funding for this study was provided by the Health Technology Assessment programme of the National Institute for Health Research.


Assuntos
Antropologia Cultural/métodos , Pesquisa Biomédica/métodos , Pesquisa sobre Serviços de Saúde/métodos , Metanálise como Assunto , Pesquisa Qualitativa , Antropologia Cultural/normas , Artrite Reumatoide/tratamento farmacológico , Artrite Reumatoide/psicologia , Pesquisa Biomédica/normas , Bases de Dados Bibliográficas , Infecções por HIV/tratamento farmacológico , Infecções por HIV/psicologia , Pesquisa sobre Serviços de Saúde/normas , Humanos , Adesão à Medicação/psicologia , Variações Dependentes do Observador , Reprodutibilidade dos Testes , Perfil de Impacto da Doença
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