Health-Related Quality of Life of Nigerian Children with Epilepsy

ABSTRACT

Background Epilepsy is a leading neurological disorder in childhood with the greatest burden in developing countries. The scope of management of epilepsy includes optimal seizure control as well as improvement of the health related quality of life (HRQOL) of affected children. Objectives The study was undertaken to assess the HRQOL of Nigerian children with epilepsy and the psychosocial impact of the disease on the parents of affected children. Methods A standardized questionnaire adapted from the PedsQL Questionnaire was applied to evaluate the HRQOL in 66 consecutive children with epilepsy; aged ?5 years seen at the University College Hospital; Ibadan during a 3 month period. Results Twenty children (30.3) showed significant impairment in the HRQOL with the major impact found in the areas of general health; family life; school activity and self esteem. There was a statistically significant association between seizure severity; parental emotional impact; maternal level of education and impaired HRQOL. Conclusion Impaired HRQOL is a major issue in Nigerian children with epilepsy. The extended family support system does not appear to have any ameliorating effect on the stress experienced by the affected families. This study suggests the need for psychosocial support to achieve optimal care for children on antiepileptic drugs