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Ansiedad percibida en familiares cuidadores de personas con trastorno del espectro autista, síndrome de Down y síndrome de Williams durante el confinamiento de la primera ola por COVID-19 en España / perceived anxiety in family caregivers of individuals with autism spectrum disorder, down syndrome and williams syndrome during the lockdown of the first COVID-19 wave in Spain
Martínez-Castilla, P; Campos, R; Samson, A. C; Van Herwegen, J; Dukes, D.
Affiliation
  • Martínez-Castilla, P; Universidad Autónoma de Madrid. Faculty of Psychology. Madrid. Spain
  • Campos, R; Unidistance Suisse. Faculty of Psychology. Brig. Switzerland
  • Samson, A. C; University of Fribourg. Institute of Special Education. Switzerland
  • Van Herwegen, J; University of Geneva. Swiss Center for Affective Sciences. Switzerland
  • Dukes, D; UCL. Institute of Education. United Kingdom
Actas esp. psiquiatr ; 51(2): 56-64, Marzo - Abril 2023. tab
Article in Spanish | IBECS | ID: ibc-220874
Responsible library: ES1.1
Localization: ES15.1 - BNCS
RESUMEN
Antecedentes. El confinamiento durante la primera oleada de COVID-19 en España se ha relacionado con niveles mayores de ansiedad en la población general. Sin embargo, no se ha estudiado el impacto emocional en los cuidadores de personas con trastornos del neurodesarrollo (TND).Método. Se distribuyó un cuestionario a las organizaciones que prestan apoyo a las personas con TND y sus familias. Se analizaron los datos de los cuidadores de personas con trastorno del espectro autista (TEA) (N=17), síndrome de Down (N=25) y síndrome de Williams (N=18).Resultados. Los cuidadores informaron de preocupaciones relacionadas con la situación de pandemia y confinamiento. Los cuidadores de personas con TEA mostraron mayor preocupación sobre los conflictos familiares. Los tres grupos informaron de niveles de ansiedad más altos durante el confinamiento. Predijeron la ansiedad el trastorno de ansiedad previo y el diagnóstico del hijo/a. Conclusiones. Los predictores de ansiedad en los cuidadores de individuos con TND difieren de los reportados previamente en la población general española. Los resultados sugieren que el confinamiento fue especialmente duro paralas familias de personas con TEA. Las políticas públicas deberían considerar las necesidades de las personas con TND y sus cuidadores para minimizar las consecuencias negativas de la pandemia. (AU)
ABSTRACT
Background. The lockdown during the first wave of COVID-19 in Spain has been related to higher levels of anxietyin the general population. However, the emotional impact on Spanish caregivers of individuals with neurodevelopmental disorders (NDD) has not been studied so far. Methods. An online questionnaire was distributed to Spanish organisations providing support to individuals with NDD and their families. Data from caregivers of individuals with autism spectrum disorder (ASD) (N = 17), Down syndrome (DS)(N = 25) and Williams syndrome (WS) (N = 18) were analysed. Results. All caregivers reported concerns directly related to the pandemic and lockdown situation. Caregivers of individuals with ASD showed higher level of concern about the possibility of family conflict. All three groups reported higher levels of anxiety during the lockdown. Anxiety was predicted by previous anxiety disorder and the child’s diagnosis. Conclusions. Predictors of anxiety in caregivers of individuals with NDD differ from those previously reported in the general Spanish population. The results suggest that confinement in Spain was especially demanding for families of individuals with ASD. Public policies should consider the particular needs of people with NND and their caregivers to minimise the negative consequences of the ongoing pandemic.(AU)
Subject(s)

Full text: Available Collection: National databases / Spain Database: IBECS Main subject: Anxiety / Perception / Caregivers / Down Syndrome / Coronavirus Infections / Williams Syndrome / Autism Spectrum Disorder Limits: Humans Country/Region as subject: Europa Language: Spanish Journal: Actas esp. psiquiatr Year: 2023 Document type: Article Institution/Affiliation country: UCL/United Kingdom / Unidistance Suisse/Switzerland / Universidad Autónoma de Madrid/Spain / University of Fribourg/Switzerland / University of Geneva/Switzerland
Full text: Available Collection: National databases / Spain Database: IBECS Main subject: Anxiety / Perception / Caregivers / Down Syndrome / Coronavirus Infections / Williams Syndrome / Autism Spectrum Disorder Limits: Humans Country/Region as subject: Europa Language: Spanish Journal: Actas esp. psiquiatr Year: 2023 Document type: Article Institution/Affiliation country: UCL/United Kingdom / Unidistance Suisse/Switzerland / Universidad Autónoma de Madrid/Spain / University of Fribourg/Switzerland / University of Geneva/Switzerland
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