Carcinoma, Adenoid Cystic/diagnosis; Genetic Predisposition to Disease/epidemiology; Germ-Line Mutation; Head and Neck Neoplasms/genetics; Skin Neoplasms/diagnosis; Skin Neoplasms/genetics; Tumor Suppressor Proteins/genetics; Adolescent; Adult; Age Distribution; Age of Onset; Biopsy, Needle; Carcinoma, Adenoid Cystic/epidemiology; Carcinoma, Adenoid Cystic/genetics; Carcinoma, Adenoid Cystic/pathology; Carcinoma, Adenoid Cystic/surgery; Child; Cohort Studies; DNA Mutational Analysis; Deafness/diagnosis; Deubiquitinating Enzyme CYLD; Female; Follow-Up Studies; Gene Expression Regulation, Neoplastic; Genetic Testing/methods; Head and Neck Neoplasms/diagnosis; Head and Neck Neoplasms/epidemiology; Head and Neck Neoplasms/surgery; Humans; Immunohistochemistry; Incidence; Male; Middle Aged; Pedigree; Phenotype; Risk Factors; Scalp/surgery; Sensitivity and Specificity; Sex Distribution; Sexual Dysfunction, Physiological/diagnosis; Skin Neoplasms/epidemiology; Skin Neoplasms/surgery; Syndrome; Young Adult