TuberOus SClerosis Registry to Increase Disease Awareness: A Review on Alignment of Its Planning, Execution, and Publications With European Medicines Agency Guidelines.

Marques, Ruben; Thole, Henriette; Ruiz de Morales, José G

Marques, Ruben; Thole, Henriette; Ruiz de Morales, José G.

Affiliation

Marques R; Institute of Biomedicine (IBIOMED), University of Leon, León, Spain.
Thole H; Real World Evidence Centre of Excellence Oncology, Novartis Pharma AG, Basel, Switzerland.
Ruiz de Morales JG; Institute of Biomedicine (IBIOMED), University of Leon, León, Spain.

Front Neurol ; 11: 365, 2020.

Article in En | MEDLINE | ID: mdl-32499750

Key words

patient registry; rare disease; rare disease registry; tuberous sclerosis complex; tuberous sclerosis registry to increase disease awareness

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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Clinical_trials / Guideline / Qualitative_research Language: En Journal: Front Neurol Year: 2020 Document type: Article Affiliation country: Spain Country of publication: Switzerland

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