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The landscape of systemic lupus erythematosus in Brazil: An expert panel review and recommendations.
Klumb, Evandro Mendes; Scheinberg, Morton; Souza, Viviane Angelina de; Xavier, Ricardo Machado; Azevedo, Valderilio Feijo; McElwee, Elizabeth; Restrepo, Mariana Rico; Monticielo, Odirlei André.
Affiliation
  • Klumb EM; Rheumatology Department, Universidade do Estado do Rio de Janeiro (UERJ), Rio de Janeiro, Brazil.
  • Scheinberg M; Hospital Israelita Albert Einstein, São Paulo, Brazil.
  • Souza VA; Faculty of Medicine, Universidade Federal de Juiz de Fora, Juiz de Fora, Brazil.
  • Xavier RM; Faculty of Medicine, Universidade Federal do Rio Grande do Sul, Porto Alegre, Brazil.
  • Azevedo VF; Rheumatology Unit, Universidade Federal do Paraná, Curitiba, Brazil.
  • McElwee E; Americas Health Foundation (AHF), USA.
  • Restrepo MR; Americas Health Foundation (AHF), Colombia.
  • Monticielo OA; Faculty of Medicine, Universidade Federal do Rio Grande do Sul, Porto Alegre, Brazil.
Lupus ; 30(10): 1684-1695, 2021 Sep.
Article in En | MEDLINE | ID: mdl-34255586
PURPOSE: The objective of this review is to address the barriers limiting access to diagnosis and treatment of systemic lupus erythematosus (SLE) and lupus nephritis (LN) in Brazil, specifically for patients in the public healthcare system, arguably those with the least access to innovation. DESIGN: A selected panel of Brazilian experts in SLE/LN were provided with a series of relevant questions to address in a multi-day conference. During the conference, responses were discussed and edited by the entire group through numerous drafts and rounds of discussion until a consensus was achieved. RESULTS: The authors propose specific and realistic recommendations for implementing access to innovative diagnostic tools and treatment alternatives for SLE/LN in Brazil. Moreover, in creating these recommendations, the authors strived to address barriers and impediments for technology adoption. The multidisciplinary care required for SLE/LN necessitates the collective participation of all involved stakeholders. CONCLUSION: A great need exists to expand the adoption of innovative diagnostic tools and treatments for SLE/LN not only in Brazil but also in most countries, as access issues remain an urgent demand. The recommendations presented in this article can serve as a strategy for new technology adoption in other countries in a similar situation.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Lupus Nephritis / Lupus Erythematosus, Systemic Type of study: Diagnostic_studies / Guideline Limits: Humans Country/Region as subject: America do sul / Brasil Language: En Journal: Lupus Journal subject: REUMATOLOGIA Year: 2021 Document type: Article Affiliation country: Brazil Country of publication: United kingdom

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Lupus Nephritis / Lupus Erythematosus, Systemic Type of study: Diagnostic_studies / Guideline Limits: Humans Country/Region as subject: America do sul / Brasil Language: En Journal: Lupus Journal subject: REUMATOLOGIA Year: 2021 Document type: Article Affiliation country: Brazil Country of publication: United kingdom