Working Together to Support Self-Determination for Tangata Kapo (Blind and Low Vision) Maori: An Exemplar.

ABSTRACT

This paper addresses the marginalisation of tangata kapo Maori (blind and low-vision Indigenous New Zealanders) in health- and vision-related research, despite New Zealand's commitments to international conventions. Utilising a purakau-based approach, it challenges existing colonial narratives and emphasises the importance of Maori perspectives. We advocate for Maori self-determination over research processes. This paper shares insights from a systematic review and the development of a declaration for engaging with tangata kapo Maori, reflecting the 3-year collaborative process. The Materials and Methods section details a Kaupapa Maori-grounded data collection, prioritising relationships and cultural practices. Feedback loops with participants and forums ensure accurate representation. In conclusion, the study underscores NZ government obligations and presents the "3Rs" framework-relationships, respect, and reciprocity-as essential for meaningful research engagements with tangata kapo Maori. The findings contribute valuable insights to guide future research practices, advocating for the inclusion and recognition of tangata kapo Maori rights in practice and research.