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Competing interests: digital health and indigenous data sovereignty.
Cordes, Ashley; Bak, Marieke; Lyndon, Mataroria; Hudson, Maui; Fiske, Amelia; Celi, Leo Anthony; McLennan, Stuart.
Affiliation
  • Cordes A; Environmental Studies Program and Department of Data Science, University of Oregon, Eugene, OR, USA.
  • Bak M; Institute of History and Ethics in Medicine, Department of Preclinical Medicine, TUM School of Medicine and Health, Technical University of Munich, Munich, Germany.
  • Lyndon M; Department of Ethics, Law and Humanities, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.
  • Hudson M; Centre for Medical and Health Sciences Education, School of Medicine, The University of Auckland, Auckland, New Zealand.
  • Fiske A; Te Kotahi Research Institute, University of Waikato, Hamilton, New Zealand.
  • Celi LA; Institute of History and Ethics in Medicine, Department of Preclinical Medicine, TUM School of Medicine and Health, Technical University of Munich, Munich, Germany.
  • McLennan S; Division of Pulmonary, Critical Care, and Sleep Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA.
NPJ Digit Med ; 7(1): 178, 2024 Jul 04.
Article in En | MEDLINE | ID: mdl-38965365
ABSTRACT
Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world who are asserting control over the use of health data as a part of self-determination. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities. However, we argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples´ rights and interests. We discuss challenges and possible improvements for data acquisition, management, analysis, and integration as they pertain to the health of Indigenous communities around the world.

Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: NPJ Digit Med Year: 2024 Document type: Article Affiliation country: United States Country of publication: United kingdom

Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En Journal: NPJ Digit Med Year: 2024 Document type: Article Affiliation country: United States Country of publication: United kingdom