Policy brief Belgian EBCP Mirror Group patient and citizen engagement.
Arch Public Health
; 82(Suppl 1): 133, 2024 Aug 26.
Article
in En
| MEDLINE
| ID: mdl-39187893
ABSTRACT
Rights, preferences, needs and expectations of patients and citizens can only be respected and addressed if they are well understood. As such, a continuous, systematic and formalised dialogue between patients, citizens and policy makers is required to ensure ethical and socially appropriate cancer prevention, diagnostics, treatment and care. Relying on donations and project-based funding is not a sustainable way to ensure patient involvement and representativeness in policy. Patient organizations need long term, structural support to fulfil their role as patient representatives and support network in order to deliver the best possible service and to play their role as a professional representative of their disease-specific community. Inequalities can only be tackled if they are properly identified. This requires the definition of appropriate determinants fit for (inter)national comparison and extension and linkage of good quality data registries for cancer that allow the monitoring these inequalities.
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Language:
En
Journal:
Arch Public Health
/
Archives of public health
Year:
2024
Document type:
Article
Affiliation country:
Belgium
Country of publication:
United kingdom